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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Ugh New Here
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I just recently got diagnosed with celiacs and started the gluten free diet 5 weeks ago. tonight I thought i was eating Prego traditional pasta sauce and after a couple of bites, my face flared bright red and got hot and now i am all broke out on my face and feel funny :( This is the first time i have messed up, does this mean i start back over to square 1?? How will this hurt me :( My face ugh its soo hot and red. I wish they would start listing on labels the major allergens. Do any of you know if they have any plans to do this soon? I am so frustrated with this whole thing. Any advice or tips or encouragement that i wont have to start back over (i felt terrible the first week of coming off gluten). Have any of you accidentally messed up?

Thanks so much

Hope to get to know you all better

Dianna

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Hello Dianna,

welcome in our gluten free forum. I feel with you, because i just had a gluten accident with Amstel light yesterday evening. I just got out of bed and feel a little better now, but i'm still "gaggy". But due to my feeling bad my husband was really romantic and cared and even made me a glutenfree pizza with an icecream afterwards. Makes you wanna be sick a little more often...lol :rolleyes:

Oh well, do you already have a glutenfree list? They have a lot of different lists here on the forum and they helped me a lot. I don't know where you are from, but if you are from Europe, they just put it into law, that every manufacturer has to put everything on the label, no matter how small the amount of something in that food is. And every manufacturer has to adjust their labels until September 2005 or November 2005. I can't remember exactly anymore. Well, since i lived in germany, i know, they do that in germany for sure. But i also heard, that it's every country in the EU. But i don't know, if that's true.

I live in the states now and i'm quite frustrated. They should do that here, too. I mean, if Kraft can do it, why not everybody else?

Greetings, Stef

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Oh, it's me again,

I forgot to answer your other question. Which is a very good question. Do you have to start all over again with your diet? I think, it depends on how far you already came with your diet. I mean, if your off gluten for like a week or so and then your diet mistake happens, then i think its most likely, that you ruin everything. But i can tell you from me that, if you are gluten free for a few month already, that it will damage your body, but you don't have to start new all over again. Yes, i had diarrhea today and my guts still hurt, but i'm not nearly as bad as in July, when i started. That means, you still should be very careful not to make any mistakes. But i think it's with everybody at the beginning, that you make those mistakes, just because you really don't know, where there's hidden gluten in and where isn't. So if it happens, don't get all that worked out about it. Yes, it is terrible and it hurts, but think about it this way. You won't make the same mistake twice, you can only learn from your mistake. So next time, don't eat Prego traditional pasta sauce anymore, when you know, it's hurting you. And nobody's gonna rip your head off, if it happens, don't be too hard on yourself. Just learn from it. It can only get better.

So, if you have any more questions, just post them on here. All the nice people in here try to help out. (i don't know, what i would have done without you guys :D )

And then i only can say, i hope you get better soon.

Stef

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Prego should be gluten-free. I think they'll list any gluten but check with them yourself.

richard

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;) i have checked and only prego traditional is gluten-free--none of the rest of their line is---much of ragu is, so maybe try it next time and no dianna, you are still gluten free, you just made a mistake and yes, that mistake made you sick and may have set you back a little, but you havent lost all the good work you are striving for--just a little set back ;) ---we celiacs must read, read, read and :( still we miss things--i have been gluten-free now for over 3 years and i glutened myself for 2 weeks unknowingly :angry: --i didnt get physically ill so i didnt realize i was doing it---the strange thing is <_< ---i didnt get diarrhea like i always do when glutened--this was barley and what did happen, my aches in my hips came back--as the barley left my system, so did the aches :) so keep at it--just look at this as another learning experience :lol: deb
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Thanks guys for answering my questions. I did get sick last night but this morning i feel a little better. This disease is so hard. I feel better Joint wise and depression wise, but my stomach is still bothering me most of the time. I think its because i am allergic to milk also adn have been eating foods with that in there because if i eliminated that Id have nothing to eat. Thanks so much :) for all your help!!

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Going Gluten-free Casein-free takes some doing, but it doesn't have to be that hard. Take a look around the GFCFdiet.com site, and generally google around for some tips. It's not an uncommon diet, and there are a couple yahoo groups that you may find helpful as well. (I've been gluten-free for ~15 months, and Gluten-free Casein-free for ~4 months.)

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what is Gluten-free Casein-free ??? and does the C part also have gluten?? Does it make you feel bad also having the C??

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    • celiac disease is psychosomatic
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    • celiac disease is psychosomatic
      If you don't get the diagnosis you are happy with go to another doc.  Try to find a Celiac Friendly doc.  OR you can do what i did and give up and just go gluten free.  I didn't need a doctor to confirm that if my gas, bloating, migraines, depression, joint pain, rash, dry skin and brittle nails went away when i went gluten free that i must have celiac.  AND 6 months after i went gluten free on my own i had some blood tests repeated that i had done when they were trying to figure out what was causing my severe rash, all the things that were "wrong" with me or abnormal in the the first blood tests, went to normal on the second test.  INCLUDING MY THYROID LEVELS! Oh, i didn't mention that during this time they diagnosed me with early hashimotos.. 6 months later i was miraculously cured from this progressive thyroid disorder according to the blood test results.  I didn't have hashimotos to put it bluntly.   I am almost 10 years gluten free with no positive Celiac diagnosis.  But let me tell you this,  My daughter's neurologist did a DNA test on her 1 year after she too went gluten free and it came back positive for Celiac.  so.  js.     That's my story..  in short.
    • celiac disease is psychosomatic
      Were you officially diagnosed with Celiac Disease at the time she wrote that?  And, if so, for how long were you diagnosed & gluten-free but still complaining of those symptoms?
    • Weird Reaction
      Hi Richie By the sounds of it you could have gluten sneaking in somewhere, or maybe blood sugar issues,  or just plain anxiety, but it would be good to know for sure so you know what to do next. I think maybe the best course of action would be to see your GP and  tell him/her all your symptoms.  Book a double appointment as we say in the UK (but that isn't always possible!)  I dread seeing my own GP because as lovely as she is she is very fond of sending me for blood tests (which always seem to include liver function, thyroid and full blood count) which for someone with health anxiety isn't the recipe for a peaceful night's sleep!  But she is right, those particular blood tests, and others, can hold important clues when one has a lot of vague symptoms.   Celiac testing is of course another set of tests, which Flowerqueen has described well above.    If you do have all these tests and anxiety continues to be a problem, whether caused by by celiac disease, another medical condition or just being a stand alone problem, one book that I would recommend that really helped me understand the condition is 'At Last a Life' by  Paul David. I found it an immensely helpful tool in my recovery.   There is also a website. http://anxietynomore.co.uk/   Keep us posted Cristiana      
    • celiac disease is psychosomatic
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