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Casein Intolerant And I Ate Cottage Cheese


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6 replies to this topic

#1 SUZ42

 
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Posted 10 October 2007 - 06:20 AM

I am casein intolerant and have gone very light on the casein, but have not given it up completely. Last March I went gluten free and casein light. For the first time since March I ate cottage cheese. Only 1/2 cup. Within minutes my tongue was sore (geographic tongue) and today I have undereye bags, hand is numb, lump in throat, chest/back pressure, rapid pounding heart beat and cramping stomach (not intestines). Very same symptoms as when I was gluttened! Could the cottage cheese have done this? The only other possibility would be the egg drop soup (I gave in to a craving) I ate from the chinese place the day before yesterday. But what could that have in it? Anyone have ideas about casein symptoms? Are they the same as Gluten symptoms? :(
Thanks
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Suzanne

2/07
EnteroLab
Antigliadin IgA [pos.]
Antitissue Transglutaminase IgA [pos.]
Anti-Casein IgA antibody [pos.] {how very sad}

HLA-DQ3 (subtype 8)
HLA-DQ3 (subtype 7)

Gluten free 3/18/07
Casein (very light) 3/18/07

constipation/dysmotility since birth
severe headaches 11/83
hypothyroidism 4/00
B-12 defficiency 10/04
"GERD" 1/06 "Gastritis" 3/06
"IBS" (forever) 3/06
depression w/ pain 4/06
iron defficiency anemia (off and on forever) 12/06
celiac disease 3/07
plus.....

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#2 Mom23boys

 
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Posted 10 October 2007 - 06:23 AM

I am casein intolerant and have gone very light on the casein, but have not given it up completely. Last March I went gluten free and casein light. For the first time since March I ate cottage cheese. Only 1/2 cup. Within minutes my tongue was sore (geographic tongue) and today I have undereye bags, hand is numb, lump in throat, chest/back pressure, rapid pounding heart beat and cramping stomach (not intestines). Very same symptoms as when I was gluttened! Could the cottage cheese have done this? The only other possibility would be the egg drop soup (I gave in to a craving) I ate from the chinese place the day before yesterday. But what could that have in it? Anyone have ideas about casein symptoms? Are they the same as Gluten symptoms? :(
Thanks



Casein symptoms can vary. You may think about getting testing done for casein. It sounds like you had a rather intense reaction.
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Shellfish free since 1980
Milk free (all forms) since 1991
Feingold in 2003
First gluten-free round 2007
Now entering full time Gluten free, egg free, almond/peanut free

#3 hathor

 
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Posted 10 October 2007 - 06:39 AM

I can tell you from experience that having a lot of casein after not having much can make you sick. I've been on a pretty much vegan diet for years, but had little bits of casein from time to time. (OK, the restaurant put parmesan cheese on my dish, I didn't send it back -- that sort of thing.) At Thanksgiving, I had a slice of cheesecake (this was before I tested as intolerant to casein). I was sick for a week.

Symptoms can vary. My gluten and casein reactions are similar. My soy reaction is subtle. My egg reaction is actually the worst of the bunch. But then people all seem to react in different ways.

However, you could be reacting to the egg drop soup. I googled for recipes and found some contain wheat flour for thickening. Also, could it have contained MSG? Some react rather strongly to that.

I hope you get feeling better.

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McDougall diet (low fat vegan) since 6/00
Gluten free since 1/6/07
Soy free and completely casein and egg free since 2/15/07
Yeast free, on and off, since 3/1/07 -- I can't notice any difference one way or the other

Enterolab results -- 2/15/07
Fecal Antigliladin IgA 140 (Normal Range <10 units)
Fecal Antitissue Transglutaminase IgA 50 (Normal Range <10 units)
Quantitative Microscopic Fecal Fat Score 517 (Normal Range <300 units)
Fecal anti-casein (cow's milk) IgA antibody 127 (Normal Range <10 units)
HLA-DQB1 Molecular analysis, Allele 1 0501
HLA-DQB1 Molecular analysis, Allele 2 06xx
Serologic equivalent: HLA-DQ 1,1 (subtype 5,6)
Fecal anti-ovalbumin (chicken egg) IgA antibody 11 (Normal range <10 units)
Fecal Anti-Saccharomyces cerevisiae (dietary yeast) IgA 11 (Normal range <10 units)
Fecal Anti-Soy IgA 119 (Normal Range < 10 units)

#4 hathor

 
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Posted 10 October 2007 - 06:40 AM

Deletion of inexplicable double post ...

Edited by hathor, 10 October 2007 - 12:33 PM.

  • 0
McDougall diet (low fat vegan) since 6/00
Gluten free since 1/6/07
Soy free and completely casein and egg free since 2/15/07
Yeast free, on and off, since 3/1/07 -- I can't notice any difference one way or the other

Enterolab results -- 2/15/07
Fecal Antigliladin IgA 140 (Normal Range <10 units)
Fecal Antitissue Transglutaminase IgA 50 (Normal Range <10 units)
Quantitative Microscopic Fecal Fat Score 517 (Normal Range <300 units)
Fecal anti-casein (cow's milk) IgA antibody 127 (Normal Range <10 units)
HLA-DQB1 Molecular analysis, Allele 1 0501
HLA-DQB1 Molecular analysis, Allele 2 06xx
Serologic equivalent: HLA-DQ 1,1 (subtype 5,6)
Fecal anti-ovalbumin (chicken egg) IgA antibody 11 (Normal range <10 units)
Fecal Anti-Saccharomyces cerevisiae (dietary yeast) IgA 11 (Normal range <10 units)
Fecal Anti-Soy IgA 119 (Normal Range < 10 units)

#5 horsegirl

 
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Posted 10 October 2007 - 11:37 AM

Are you sure the cottage cheese was gluten free? Not all brands are, from research I've done in the past. Also, could the soup have had MSG in it? Maybe that's another sensitivity (or the eggs themselves). Good luck - hope you feel better soon!
  • 0
Diagnosed Fibromyalgia & osteoarthritis in multiple joints 12/06

Diagnosed gluten intolerant through dietary trials 8/07
Enterolab positive for gluten, casein, soy, egg
Serologic equivalent: HLA-DQ 1,1 (Subtype 6,6)

Gluten free 8/10/07
Casein free 8/27/07
Soy & egg free 9/8/07
Eggs back again (whoo hoo!) 11/08

Diagnosed chronic fatigue syndrome 12/09
Starting various supplements/vitamins in hopes of feeling better!

#6 7_cody

 
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Posted 10 October 2007 - 12:10 PM

Are you sure the cottage cheese was gluten free? Not all brands are, from research I've done in the past. Also, could the soup have had MSG in it? Maybe that's another sensitivity (or the eggs themselves). Good luck - hope you feel better soon!


I was going to say the same thing.

"Word."
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#7 tom

 
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Posted 10 October 2007 - 02:02 PM

I am casein intolerant and have gone very light on the casein, but have not given it up completely.

Suz . . .gotta tell ya - I don't understand this at all.
Why not completely?
I've been 100% dairy-free for years and it's a breeze.

I DID recently find that goat cheese is fine for me. It seems pretty common for the casein-intolerant to really just have trouble w/ cow casein.
Every goat cheese I've tried has been fantastic, tho I'm only trying 'fresh' varieties, as opposed to 'aged', but that's due to a different problem w/ mold.
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>>>>>>> tom <<<<<<<

Celiac 1st diagnosed as a toddler, in the 60s. Docs then, between bloodletting & leech-tending, said "he'll grow out of it" & I was back on gluten & mostly fine for 30yrs.

Gluten-free since 12-03
Dairy-free since 10-04
Soy-free since 5-07




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