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Nickel Allergy Anyone?


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16 replies to this topic

#1 cyberprof

 
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Posted 15 October 2007 - 10:01 PM

I know Sunnydyrain has this too. But I never connected it with celiac or even thought that it could be connected.

Anyone else with a nickel allergy?
  • 0
Diagnosed by biopsy 2/12/07. Negative blood tests. Gluten-free (except for accidents) since 2/15/07. DQ2.5 (HLA DQA1*05:DQB1*0201)

Son, age 18, previously delayed growth 3rd percentile weight, 25th percentile height (5'3" at age 15). Negative blood work. Endoscopy declined. Enterolab positive 3/12/08. Gene results: HLA-DQB1 Molecular analysis, Allele 1 0201 HLA-DQB1 Molecular analysis, Allele 2 0503 Serologic equivalent: HLA-DQ 2,1(Subtype 2,5) Went gluten-free, casein-free 3/15/08. Now 6'2" (Over six feet!) and doing great.

"Great difficulties may be surmounted by patience and perseverance." Abigail Adams (1744-1818) 2nd First Lady of the United States

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#2 darlindeb25

 
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Posted 16 October 2007 - 02:27 AM

Yup--me too, my daughter, my mother, my granddaughter--we gots it too. Seems to happen often, more often then many realize. My daughter can not have any metal jewelry touch her. So far, she has not complained about the zipper in her jeans, but then again, I am not sure it touches her, she wears them so big. I bought her a stone cross on a rope and the cross, we later found out had a small amount of metal in it and she reacted to it. I truly thought I was safe with that necklace--she loves necklaces. I love ankle bracelets and I had found a magnet ankle bracelet. It was so pretty, but my ankle kept swelling, was so weird and I couldn't figure it out. I read up on magnets and found that no one should be allergic to magnets---WELL, they use little pieces of metal inbetween the magnets and there almost always is nickel in the metal. I have not found a magnet bracelet anywhere without metal. Most nickel free earrings now bother me too. I can still wear the nickel free studs, but thats about it. I haven't ventured much outside of the jewelry to find what else has nickel in it, I do understand that it is in foods too.
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Deb
Long Island, NY

Double DQ1, subtype 6

We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!

"The calm river of your life approaches the rocky chute of the rapids - flow on through. You are the same water. The rocks cannot hurt you. Remember, now and then, that you are the water and not the boat. Flow on!

#3 WW340

 
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Posted 16 October 2007 - 06:49 AM

I am highly allergic to most metals. I didn't know how bad it was until I was older and found that the dental amalgam used in my root canal had eaten away my jaw bone and I had to have a bone graft.

They think now that the original almalgam fillings caused the damage leading to the root canals. I had to have 3 root canals redone and all the amalgam removed from my mouth.

I have to wear titanium glasses because of metal reactions where the glasses touch my face or ears.

I have never been able to wear costume jewelry or silver. I am fine with gold, even 14K gold, which does have some other metals in the alloy.
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Positive Bloodwork January 2007
Positive Biopsy Feb. 2007
Gluten Free since January 2007

HLA-DQB1 Molecular analysis, Allele 1 0201
HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 2,3 (Subtype 2,9)

#4 ravenwoodglass

 
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Posted 16 October 2007 - 07:37 AM

Add me to the list. Although I am no longer so reactive that I have to wear something between the snap on my jeans and my skin. My Mom was allergic also and always said it was a great excuse to buy good jewelry. :)
  • 0
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#5 Sugarmag

 
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Posted 16 October 2007 - 11:46 AM

Check yes for me too! I haven't been able to wear costume jewelry ever really. I could tolerate small amounts as a kid..like putting clear nail polish over the back of a pendant so the metal didn't touch me...but I can't even handle that anymore! It's only gold and platinum for me now! I'm sure my hubby would love it if I could wear the cheaper stuff!! :rolleyes:
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Katie

Gluten free since July 2005
Lactose Free since 1994
Soy free since May 2007
Dairy free since September 2007
Hypothyroid & Hashimoto

#6 Michi8

 
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Posted 16 October 2007 - 12:27 PM

I know Sunnydyrain has this too. But I never connected it with celiac or even thought that it could be connected.

Anyone else with a nickel allergy?


I have allergies to nickel, chromium and cobalt. Don't have a positive celiac diagnosis...but I do believe I'm gluten intolerant. Also have EDS, which is connected to skin sensitivity.

Michelle
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#7 cyberprof

 
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Posted 16 October 2007 - 01:19 PM

I have allergies to nickel, chromium and cobalt. Don't have a positive celiac diagnosis...but I do believe I'm gluten intolerant. Also have EDS, which is connected to skin sensitivity.

Michelle


Michelle, what is EDS?

Are chromium and cobalt in many foods/beverages? I think that chromium is in vitamins, right?

I read recently that people who are allergic to nickel shouldn't wear mineral-based makeup, so I've eliminated that. The article (sorry, can't remember where I read it) said that continuing to wear mineral makeup could make people allergic to more metals. Yikes! I really like wearing my gold rings, and would hate to have to stop.
  • 0
Diagnosed by biopsy 2/12/07. Negative blood tests. Gluten-free (except for accidents) since 2/15/07. DQ2.5 (HLA DQA1*05:DQB1*0201)

Son, age 18, previously delayed growth 3rd percentile weight, 25th percentile height (5'3" at age 15). Negative blood work. Endoscopy declined. Enterolab positive 3/12/08. Gene results: HLA-DQB1 Molecular analysis, Allele 1 0201 HLA-DQB1 Molecular analysis, Allele 2 0503 Serologic equivalent: HLA-DQ 2,1(Subtype 2,5) Went gluten-free, casein-free 3/15/08. Now 6'2" (Over six feet!) and doing great.

"Great difficulties may be surmounted by patience and perseverance." Abigail Adams (1744-1818) 2nd First Lady of the United States

#8 cyberprof

 
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Posted 16 October 2007 - 01:21 PM

Add me to the list. Although I am no longer so reactive that I have to wear something between the snap on my jeans and my skin. My Mom was allergic also and always said it was a great excuse to buy good jewelry. :)


I have to put medical-grade tape over the snap on my jeans.

I can wear stainless steel wire earrings (the dangly kind) but not posts.

Raven, do you think your sensitivitity has decreased since you went gluten free? Is there a connection?
  • 0
Diagnosed by biopsy 2/12/07. Negative blood tests. Gluten-free (except for accidents) since 2/15/07. DQ2.5 (HLA DQA1*05:DQB1*0201)

Son, age 18, previously delayed growth 3rd percentile weight, 25th percentile height (5'3" at age 15). Negative blood work. Endoscopy declined. Enterolab positive 3/12/08. Gene results: HLA-DQB1 Molecular analysis, Allele 1 0201 HLA-DQB1 Molecular analysis, Allele 2 0503 Serologic equivalent: HLA-DQ 2,1(Subtype 2,5) Went gluten-free, casein-free 3/15/08. Now 6'2" (Over six feet!) and doing great.

"Great difficulties may be surmounted by patience and perseverance." Abigail Adams (1744-1818) 2nd First Lady of the United States

#9 Michi8

 
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Posted 16 October 2007 - 06:25 PM

Michelle, what is EDS?


Ehlers Danlos Syndrome. It's a genetic connective tissue disorder, which affects all tissues in the body.

Are chromium and cobalt in many foods/beverages? I think that chromium is in vitamins, right?

I read recently that people who are allergic to nickel shouldn't wear mineral-based makeup, so I've eliminated that. The article (sorry, can't remember where I read it) said that continuing to wear mineral makeup could make people allergic to more metals. Yikes! I really like wearing my gold rings, and would hate to have to stop.


Cobalt is what vitamin B12 is. It is also found in metals and pigments. Chromium is in metals, glues, resins, inks/pigments, ceramics, cement, perservatives, etc. Tatoos are a no-no when someone has either cobalt or chromium allergy...could cause a pretty bad reaction. Both cobalt and chromium are found in many makeups, especially mascara and eyeshadow. Nickel can be found in many different foods (I've a long list of foods that may need to be avoided), and can affect tap water too.

Michelle
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#10 cyberprof

 
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Posted 16 October 2007 - 06:30 PM

Ehlers Danlos Syndrome. It's a genetic connective tissue disorder, which affects all tissues in the body.



Cobalt is what vitamin B12 is. It is also found in metals and pigments. Chromium is in metals, glues, resins, inks/pigments, ceramics, cement, perservatives, etc. Tatoos are a no-no when someone has either cobalt or chromium allergy...could cause a pretty bad reaction. Both cobalt and chromium are found in many makeups, especially mascara and eyeshadow. Nickel can be found in many different foods (I've a long list of foods that may need to be avoided), and can affect tap water too.

Michelle


Nickel in foods? Michelle, if you could post your list I'd be very grateful. Thanks in advance....

Nevermind, I used the wonders of Google to get a list. Thanks for pointing it out though, I never would have thought....
  • 0
Diagnosed by biopsy 2/12/07. Negative blood tests. Gluten-free (except for accidents) since 2/15/07. DQ2.5 (HLA DQA1*05:DQB1*0201)

Son, age 18, previously delayed growth 3rd percentile weight, 25th percentile height (5'3" at age 15). Negative blood work. Endoscopy declined. Enterolab positive 3/12/08. Gene results: HLA-DQB1 Molecular analysis, Allele 1 0201 HLA-DQB1 Molecular analysis, Allele 2 0503 Serologic equivalent: HLA-DQ 2,1(Subtype 2,5) Went gluten-free, casein-free 3/15/08. Now 6'2" (Over six feet!) and doing great.

"Great difficulties may be surmounted by patience and perseverance." Abigail Adams (1744-1818) 2nd First Lady of the United States

#11 Michi8

 
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Posted 16 October 2007 - 07:11 PM

Nickel in foods? Michelle, if you could post your list I'd be very grateful. Thanks in advance....

Nevermind, I used the wonders of Google to get a list. Thanks for pointing it out though, I never would have thought....



I'm glad you found it via Google, because the list is quite long and complicated. :) If you still need it though, I could scan it and post the copy.

Michelle
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#12 ravenwoodglass

 
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Posted 17 October 2007 - 02:26 AM

Raven, do you think your sensitivitity has decreased since you went gluten free? Is there a connection?



Along with all my other allergies my nickel allergy has become much less severe. I still would not try wearing costume earring but I don't react to things like my snaps at all any more. All of my allergies have lessened though, some have disappeared totally.
I find the Ehlers link interesting as I am also an Ehlers Danlos person and have even seen some of the worst of my EDS effects subside. I now rarely dislocate when I used to have dislocations of my feet,knees and ankles on a nightly basis. I would have to try and pop stuff back in before my feet hit the ground every morning unless I slept in ace wraps. In my instance a lot of the dislocations seemed to be linked to my edema now that I have no edema I only dislocate maybe once every couple months or so. Makes the EDS much easier to deal with.
  • 0
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#13 Michi8

 
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Posted 17 October 2007 - 08:14 AM

Along with all my other allergies my nickel allergy has become much less severe. I still would not try wearing costume earring but I don't react to things like my snaps at all any more. All of my allergies have lessened though, some have disappeared totally.
I find the Ehlers link interesting as I am also an Ehlers Danlos person and have even seen some of the worst of my EDS effects subside. I now rarely dislocate when I used to have dislocations of my feet,knees and ankles on a nightly basis. I would have to try and pop stuff back in before my feet hit the ground every morning unless I slept in ace wraps. In my instance a lot of the dislocations seemed to be linked to my edema now that I have no edema I only dislocate maybe once every couple months or so. Makes the EDS much easier to deal with.



That's very interesting to hear. I'm just starting my investigation into EDS...I've got a genetics appointment next month.

Since so many EDSers have IBS/GI issues, and many have autoimmune issues too, I can't help but wonder if there is a direct connection between EDS and gluten intolerance. My kids seem to all have EDS related issues, and I have read that anxiety issues can be linked to the same genes as well...all three of my kids have some degree of anxiety (as do I) with our youngest being diagnosed OCD as well.

I did find that being gluten free helped my moodiness and anxiety...I don't know if it helped my EDS, because I wasn't aware I had it at the time. I am not gluten free right now (long story behind that) but am planning on eliminating gluten again soon...the whole family will be doing an elimination diet. Now I just have to work up the strength to implement it...gotta be prepared for a lot of whining (not just from my kids, but my husband too!) LOL!

Michelle
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#14 ravenwoodglass

 
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Posted 17 October 2007 - 09:26 AM

That's very interesting to hear. I'm just starting my investigation into EDS...I've got a genetics appointment next month.

Since so many EDSers have IBS/GI issues, and many have autoimmune issues too, I can't help but wonder if there is a direct connection between EDS and gluten intolerance. My kids seem to all have EDS related issues, and I have read that anxiety issues can be linked to the same genes as well...all three of my kids have some degree of anxiety (as do I) with our youngest being diagnosed OCD as well.

I did find that being gluten free helped my moodiness and anxiety...I don't know if it helped my EDS, because I wasn't aware I had it at the time. I am not gluten free right now (long story behind that) but am planning on eliminating gluten again soon...the whole family will be doing an elimination diet. Now I just have to work up the strength to implement it...gotta be prepared for a lot of whining (not just from my kids, but my husband too!) LOL!

Michelle


Hi Michelle, What kind of issues are you dealing with that are thought to be EDS related? There are different subtypes of EDS, some of them with only issues with joints and tendons and others can be serious with organ ruptures (uterus many times in women). There are also hypermobility syndromes that are just that hypermobility without any of the connective tissue issues. That was thought to be what I had until I had a coloscopy and that revealed extensive diverticuli (weak spots and outpouching) throughout my entire large intestine rather than the usual area of the left descending colon.
Most of the pain that I experienced in my joints and muscles actually came from gluten. Also be sure you investigate gluten throughly before you allow your kids to be medicated for anxiety. Anxiety and depression are closely associated with neurotoxicity of gluten in those that are suseptable and medication with standard meds can have unexpected and real nasty results. I almost lost my DD because of those effects.
  • 0
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#15 Michi8

 
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Posted 17 October 2007 - 10:12 AM

Hi Michelle, What kind of issues are you dealing with that are thought to be EDS related? There are different subtypes of EDS, some of them with only issues with joints and tendons and others can be serious with organ ruptures (uterus many times in women). There are also hypermobility syndromes that are just that hypermobility without any of the connective tissue issues. That was thought to be what I had until I had a coloscopy and that revealed extensive diverticuli (weak spots and outpouching) throughout my entire large intestine rather than the usual area of the left descending colon.
Most of the pain that I experienced in my joints and muscles actually came from gluten. Also be sure you investigate gluten throughly before you allow your kids to be medicated for anxiety. Anxiety and depression are closely associated with neurotoxicity of gluten in those that are suseptable and medication with standard meds can have unexpected and real nasty results. I almost lost my DD because of those effects.



I've got Classical EDS (I believe it's also considered type III). I do have hyperflexibility in many joints, with a tendency to dislocate shoulders and knees, but I cannot flex my knees or elbows backward. I have occassional joint pain as I get older, seems to be worst during weather/barometric changes. I also have the classic stretchy, velvety soft, transluscent skin. I do have organ issues...hiatal hernia, prolapse, redundant colon along with constipation issues. While I had no issue with uterine rupture (I had two cesarean sections then one natural birth, and everything was fine!), I did have a problem with losing a lot of blood (the technical term escapes me now...my memory isn't so good...right, "hemmorage" is the word!) which was rectified with a shot of oxytocin. In hindsight, I do believe that my babies were malpositioned because of the extensibility of my tissues (easy to flip back and forth from breech) and could have avoided the first cesarean if I was given time to let baby flip back down. I do have many other health issues that could be linked to EDS, but if I wrote them down, this would be way too long. :-)

At any rate, at my genetics appointment we will look at the EDS more closely and hopefully we'll determine from which side of the family it came, and which kids have inherited it. The geneticist has a special interest in EDS, and has done some research of her own.

We will not be using drugs to treat anxiety. I've held the doctors off in the case of my health for many years (I do not take any drugs lightly, and prefer to always treat naturally.) With respect to my daughter's OCD, we were told that we should medicate because she's too old for preschool therapy, and too young for traditional therapy methods. I won't medicate without exhausting all of our other options, and absolutely will not consider drugs unless the OCD is severly impacting her quality of life. At this point, as frustrating and stressful as it is to parent a child with the OCD, we manage quite well with making concessions as appropriate and are having some good success with using a reward system for getting through rituals and completing tasks.

BTW, just keeping on topic...my eldest has been allergic to nickel since birth. Not sure about my other two kids.

Michelle
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