Get email alerts Get E-mail Alerts Sponsor: Sponsor:

Ads by Google:

   Get email alerts  Subscribe to FREE email alerts

I Feel Ugh

2 posts in this topic

Over the weekend I got contaminated and was just starting to feel better. Tonight we had a family birthday dinner out and I am sure I got it again. I am so bloated and out of breath. Tomorrow will be spent in bed. I can't see me climbing my stairs to get to the main part of the house, I will be so fatigued by then. I went up about a half hour ago and my legs were aching so bad already.

I feel like I can't breath, but I can but it is just such a struggle. I have an inhaler but I know it isn't asthma itself its the food.

It makes me want to drink so much water, I feel parched. So I drink a lot of water then feel even more bloated.

This is depressing, we are going away for a long weekend and will be eating out the whole time. I am scared. We love to go out, we always say we are doing the Rachael Ray thing. The show where she would visit an area and eat at diffrent places for a budget. We don't worry too much about the budget but we plan ahead and know what kind of money we are willing to spend in the first place (not much lol).

So far the waitresses have no idea what I am talking about except one at bar/pub. She came out from the kitchen to tell me something was gluten-free, that she knew to say that impressed me. We were in down town Seattle and more people are aware in the city, but the other places we ate at, hmm they don't know what it is. I just say wheat allergy then I usually say ya know gluten. Tonight she had no idea though.

Cripes this is really going to suck.

I slept on it, after I realized how bummed out I was. Actually I cried myself to sleep. I do know that the major depression I went through for years was not cool to deal with - I used to bake a lot for my family (mainly growing/hungry boys), a lot of whole grain breads and such. Of course I ate them. Anger, depression, brain fog, weakness. UGH I don't want this coming back if only for a day or two or three. I think when the symptoms come back they seem so much more pronounced because they were gone and I don't miss them.


Share this post

Link to post
Share on other sites

Ads by Google:

I know its seems over whelming at first. I think that when you are first diagnosed you should try to eat in only....get yourself back to health, and regain your strength. If you are feeling as crummy as I think you are, (I remember that feeling well) you must take care of "you". Then you'll see, you can start baking, and you'll trust eating out better, right now you can't take the chance. The future is a bright one :) Janet


Share this post

Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Forum Statistics

    • Total Topics
    • Total Posts
  • Topics

  • Posts

    • Hi Sunshine, There is a program called a 504 plan that some schools will follow if you get one approved.  It helps the school identify proper ways to deal with a child's particular needs.  Probably it is helpful to have a 504 plan, but they may require a formal diagnosis for it.  I suggest you talk to the school and ask them about it.  Tell them the situation with the kid and about the stress he would need to go through to get diagnosed.  They may be willing to work with you without a formal diagnosis.   I am not saying you absolutely have to have a 504 plan for him.  School districts vary and some may be more accommodating than others.  A 504 plan may give you certain rights, but I  am no expert on them. The gluten challenge is 12 weeks of eating gluten for blood tests.  The payback for being formally diagnosed is questionable IMHO.  Treatment is the same regardless, eating gluten-free for life.  One thing to be aware of is that celiac disease has a genetic factor.  So he got the gene from one of the parents.  Anyone else in the family could have celiac develop at some point.  So testing every couple years for all family members is a good idea. Welcome to the forum!
    • Thank you everyone. I appreciate all of the information and support.  I am feeling overwhelmed right now and it was really getting me down yesterday. I don't feel so hopeless now. 
    • Okay. I think I will start with an allergist and a dietitian. 
    • Yes, that list I posted includes stuff to look out for in your cosmetics as well, I think. Spices get contaminated often depending on brands, sources, and packaging plants, you have to find brands that are certified, I find Spicely Orangics works here. Supplement wise I am on a ton. I take combinations of Liquid Health Brand, Stress & Energy and Neurologic Support for B-Vitamins, I take Doctors Best Chelated Powdered Magnesium. I drink a bunch of almond milk and eat a lot of nuts, seeds, green leafy veggies, and a huge viarity of foods always having a mix to balance out my needs in vitamins (I studied alot an worked with a dietician to learn what contains what and find my balance). I found a IBS targeted probitotic from jarrow seems to work best with me and no bloat. List of other supplements if you want but with celiacs different people can get different deficiencies and you should probably talk to a dietician and see about having your own regiment built up. I just listed the common ones. I was thinking about this later on and after I got off the stuff for awhile I found myself randomly vomiting from some foods, none of the brain fog, numbness, Just throwing up. Ended up I developed intolerance to certain foods like egg yolks, soy, and a few others things. I also developed allergies to corn where I would just get sores in my mouth and digestive tact and run 99-102F Fevers when I ate anything contaminated with it. And a peanut allergy that caused me to distend and swell throwing up for hours and getting a rash later on. My different reactions to different foods made my dietician laugh at how odd my body is (we both did after talking for awhile) and my doctors found it interesting and kept on wanting to run more test.
    • I will cut dairy out immediately. I have eliminated most processed foods already. I do use a lot of spices. I read labels on everything. It is so overwhelming. Is there a good list of ingredients to look for in cosmetics, soaps, supplements... ? It has been recommended that I take a probiotic, calcium and vitamin D. Do you take supplements?
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
    • Most Online

    Newest Member