Posted 21 November 2004 - 01:25 PM
Posted 21 November 2004 - 03:44 PM
The Enterolabs do not tell you if you have Celiac Disease. They define all positive results as Gluten Sensitivity. In a paper I read by Dr. Fine he states that to him a sensitivity and an intolerance are the same thing. Conventional medicine has decided the only concrete way to diagnose Celiac is by biopsy of the small intestine, and obviously his tests don't do that. The gene tests they do can only tell you if you have the genes that pre-dispose you to the disease. So for our own use, a positive result with Enterolab means that you need the gluten-free diet. Whether or not you call your self Celiac, gluten intolerant, or gluten sensitive is up to you. They are all basically the same. Your body cannot digest gluten properly, so you shouldn't eat it.
Now the milk sensitivity issue is one that is a bit touchy with me and my kids. We miss certain dairy products and although we can live without them, we hope to be able to have them in the future. Dr. Fine says it is not a good idea to go back on them, my kids pediatric GI says they should eventually be able to tolerate dairy again. But then most GIs only accept an intolerance to lactose and that has been proven that you can outgrow that intolerance. I don't know how many studies have been done on casein intolerance. So we are hoping in the future to tolerate dairy, but we know it is not a guarantee...
Mariann, gluten intolerant and mother of 3 gluten intolerant children
Posted 24 November 2004 - 04:04 PM
Posted 24 November 2004 - 07:09 PM
I guess with enterolab, the closest you could get to diagnosing celiac disease would be a positive gene test AND a positive gluten sensitivity test. The only way you can be sure is a by having a positive biopsy.
Celaic or not, your body obviously has an issue with gluten so I'd stay away!
Diagnosed with Celiac Disease in March 2004
Postitive tTg Blood Test, December 2003
Positive Biopsy, March 3, 2004
Posted 24 November 2004 - 09:17 PM
I am planning on testing with Enterolab. I have a problem with Gluten
and Dairy. I just saw my GI Doc and we went round and round on these
issues on Monday. He said I could not be casein (dairy) intolerant because
it would have shown up as a baby. He told me to take the Lactaid tablets
but I won't do it because I still get gassy and have numerous BM all day
and all nite, not diarrhea. I asked him to order the ELISA or York
test but he refused, he doesn't like them. He said if I wanted them to
go to an allergist, which I won't do but that's a whole other story.
Then we got onto the discussion of Gluten. Because I don't have the
Celiac gene or damage to the villi he thinks that most of my symptoms
started after a stressful time in my life. He said he just diagnosed an
80 year old woman who had just lost her husband. He said stress triggers it.
My IGA was elevated but has come down and symptoms are less intense.
Right now he thinks my Insomnia is from low serotonin levels which
I sort of agree with because I just had a migraine about a week ago,
the first in over a year. He started me on Lexapro, small dose to get
my levels up, and in 2 weeks I am to eat gluten again and see what
I want to believe this man, he has good credentials and is a professor
at the University of Pittsburgh. He has diagnosed 250 celiacs in
the last 2 years.Would appreciate your thoughts on this. I am going to
stay gluten-free whether he likes it or not. Thats why I want to do the Enterolab
I want to believe this man because he was the only one of many who
even thought of testing me for Celiac and put me on a course of
Amitryptiline for a year. He said Lexapro won't cause the weight
gain, I have lost 23 pounds but need to lose more. I myself will
probably stay gluten-free, although I will do the test, and I want to prove
to him that I am sensitive to casein and gluten, which is why I
want to do Enterolab. i
Judy- Gluten Intolerant
Posted 24 November 2004 - 09:25 PM
celiac3270, if you are out there can you help?....judy
Judy- Gluten Intolerant
0 user(s) are reading this topic
0 members, 0 guests, 0 anonymous users