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Philadelphia News Story


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#1 jaimek

 
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Posted 23 November 2004 - 08:14 AM

If anyone is in the Philadelphia area, Channel 6 Action News will be doing a whole story on Ed Snider (owner of the Philadelphia Flyers) tonight. They say it is about a mysterious disease that millions of people have and don't know it. I know Ed Snider has Celiac (since he is a board member of one of the local foundations). So, if anyone lives in this area, make sure to watch the 11pm news tonight on Channel 6!
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#2 Canadian Karen

 
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Posted 25 November 2004 - 04:11 PM

It was an excellent story about Celiac Disease and very informative.... Here is a link:

http://ww2.wpvi.com/...=7&rnd=42301302

Karen
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Karen

positive bloodwork, positive biopsy
Celiac, collagenous colitis, hypothyroidism
endometriosis (at age 20)
spinal stenosis (early 20's)

Biopsy August 2006 confirmed complete villous atrophy despite being gluten-free for years and bloodwork within range showing compliance with diet. Doctor has confirmed diagnosis of Refractory Celiac Sprue.
Endoscopy also showed numerous stomach ulcers, have started taking Losec.

Mother to Eileen 13 yrs
Rhiannon 8 yrs
Daniel & Connor 6 yr twin boys......

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#3 celiac3270

 
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Posted 25 November 2004 - 05:31 PM

Oh, wow--I'm an avid hockey fan, so that's interesting for me :D I don't live in Philadelphia, but I'll definitely read about it ;)
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