Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

What About Cd Causes Infertility?
0

8 posts in this topic

Am I going to be infertile? Does it depend on how long I've been tearing up my intestines with gluten (aprox 27 years!) ? Are underweight women Celiacs infertile because of amenhorrea? About what % of us are infertile?

I know lots of women with celiac disease have had successful pregnancies, but what makes the difference between a celiac who becomes pregnant and one who doesn't? (besides sex :rolleyes: ) I'm not healthy enough right now to try for a baby, but I'm a little concerned to hear about infertility among Celiacs. My sister had four miscarriages before she carried a child to term. I understand (I think) why the body would miscarry: if it's not even getting enough nutrients to sustain one life, it's definitely not going to support two. I just don't understand what part of Celiac Disease would cause infertility.

Any info would help. Thanks!

0

Share this post


Link to post
Share on other sites


Ads by Google:

"Infertility" includes early miscarriages - which actually occurs in about 30% of all pregnancies, the thing is that most women don't know they're pregnant when they happen because they are SO early. So the two aren't necessarily separate issues. I know a non-trivial portion of the problem is the fact that you're not absorbing the nutrients a fetus needs, and there are immune system antibodies floating around that the body thinks shouldn't be around when incubating the next generation. I'm not sure about the full details.

0

Share this post


Link to post
Share on other sites

I'm 36. I was "diagnosed" with unexplained infertility in May2004, celiac in June 2004. I would have a 2-12 hour period, that's all. But all my levels were fine. Once I mentioned that my dad had celiac my gyn wanted me tested.

From what I understand, your body won't absorb nutrients needed to provide enough of a lining in your uterus & you may not even be ovulating.

I am on Clomid - 150mg for the 4th month. I also see an accupuncturist. I feel I am getting more out of accupuncture for my celiac & my fertility. I drink herbs that I boil myself (so no chance of gluten/cross-contamination) twice per day. This month I had a normal period. Although I was disappointed I was not pregnant, my accupuncturist said it just goes to show I am improving overall. Once my whole body is cured, I should be able to get pregnant with no problems.

I would suggest seeing an gyn or a specialist when you are ready to start trying. Make sure they understand celiac or are willing to check into it & learn. My gyn has been incredible about it.

Good luck & I hope it happens quickly for you.

0

Share this post


Link to post
Share on other sites

I carried a baby to term and delivered a perfectly healthy baby while suffering from undiagnosed Celiacs. My arms, legs, and face got thinner as my belly got bigger. Three years after her birth I finally got a diagnosis of Celiacs. Now I am pregnant with my second and have had several gluten accidents (gotta love restaurants and hospitals!) and so far the baby is healthy although I am much more nervous. I was in my 30's before I got the Celiac diagnosis and have symptoms that go back to infancy.

I don't know what the connection is between Celiacs and miscarrages, but I have read about a lot of women who have a very hard time carrying a baby to term. There are also Celiac women who have no troubles with pregnancy. I would say get your diet under control, get a very good GastroInterologists who knows you are trying to get pregnant (mine recommended gaining weight before gettinbg pregnant), get a good OB, do everything to avoid gluten, and hope for the best. Since I am having a very hard time eating out while pregnant, I know do everything I can to avoid any gluten risks like not eating out and bringing food to friends houses for dinner.

Good luck with getting pregnant!

0

Share this post


Link to post
Share on other sites

Thank you all!

OK, Tiffany, what I understand from your post is that the two main factors that cause infertility (whether that's in the form of miscarriages or not conceiving at all) are antibodies in the blood, and inability to extract enough nutrients from food to feed two people. Makes sense.

Roxyk, I wish you the very best in your efforts. Sounds like you're coming along. I know if you can find a good alternative health care specialist like your acupuncturist, they can bring you towards health faster and easier than pure allopathic medicine.

I haven't ovulated in a while (BBT charting). When I first found out about Celiac Disease I was borderline underweight. Since going gluten-free, my body became hypersensitive and I have found that low starch gluten-free/CF/preservative-free foods are all that my body can handle right now. Basically that boils down to meat, veggies, and occasionally some fruit. So I've been losing more weight, but my gut doesn't hurt most of the time. I'm thinking that's why I haven't ovulated for a while. Fat cells produce estrogen, and I just don't have enough of them working for me right now. Maybe. Dunno. We'll see what happens.

hapi, Congrats on your 2nd!!

0

Share this post


Link to post
Share on other sites




I chart too (contraception, at this point), and have noticed that - now that I'm gluten-free - if I accidentally get gluten in the week before I would ovulate, my ovulation is delayed. Don't know exactly why that is - and it's one of the only things that delays it - but thought I'd share that wacky bit.

0

Share this post


Link to post
Share on other sites

Actually Tiffany that's great to know, because at times I ovulate at very predictable intervals, but other months it's delayed by 1.5 to 2 weeks (frustrating as we use BBT as birth control also). I hadn't thought that eating something naughty by accident could be causing those delays. Hopefully I'll be back on schedule soon. As always, thanks for the info.

0

Share this post


Link to post
Share on other sites

I think this information is very useful. I had a very difficult time getting pregnant and took Clomid for 2 1/2 years before getting pregnant with my first child. I took it again for my second and my third was a surprise. I never got pregnant again even though I didn't use any birth control.

Of course at the time I didn't know I had celiac disease although looking back 20 years I was having symptoms.

I wonder if there is a corelation?

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,345
    • Total Posts
      920,488
  • Topics

  • Posts

    • Karen, the iodine test was a test for DH used in the 'olden' days. Iodine would be swabbed onto a spot and then it would be covered with a bandage. If someone had DH the iodined area would break out in lesions. I don't know how but we do know iodine can activate the antibodies. That is why some of us with DH have to avoid iodine in foods until the antibodies have cleared the dermis. OP, if you haven't been tested for celiac you should be and if you have active lesions a biopsy done next to a lesion by a DH knowledgable dermatologist may help in diagnosis.
    • The gluten-free diet (GFD) is the only validated treatment for celiac disease (celiac disease), but despite strict adherence, complete mucosal recovery is rarely ... View the full article
    • What's an " iodine test"?  Haven't heard doctors doing that to diagnose DH.
    • Hello! I've just been given my blood results and told they are highly suggestive of coeliacs but will have to wait till next month to see the gastroenterologist and who knows how much longer for a biopsy. My igA, igG and tissuetrans igA were all over 250 and tissuetrans igG was the only one that was normal. These results don't mean much to me yet but I'm told they are very high. I'm now quite fearful of how much damage I've gone to myself. I've had stomach problems for 25 years (just turned 40) and have often steered clear of too much bread and pasta for how bloated it made me feel but the symptoms were always vague and inconsistent so I kept eating. I had a couple of boats of gastro in the past few months (thanks kids) which I took a lot longer than normal to recover from which looking back may have been related. Then last Friday I had a blowout with wine, cheese, crackers, pizza and chocolate cake. I'm sure I've probably had blowouts like that before but I have never felt so sick before and am still slowly recovering. This is what finally prompted me to go back to my GP after being fobbed off so many times over the years. So I guess my question and my concern is whether there is still  chance of a false positive with levels like this? I worry what else it might be if not coeliac. I'm also worried that I may have done so much damage to myself that I will have several disorders going on! I'm also still recovering from last Friday and wondering when I'm going to feel better. I've stayed off gluten and dairy since my blood result a couple of days ago but feel like I'm allergic to food in general.  Thankyou!!    
    • Here's what the Klondike Bar makers say on the FAQ page of their website (August 2016): Are your products gluten free? Nope. They are not. We have not validated for gluten free. We do not operate allergen-free manufacturing sites, however we do have allergen management programs in all our facilities. The intent of these programs is to avoid unintentional cross-contamination of allergens between products. Our product labels adhere to the FDA’s strict regulations regarding declaration of ingredients and allergens. We do not use the terms “Natural” or “Artificial Flavorings” to hide the existence of any allergens. RECIPES CAN CHANGE. We strongly recommend that allergic consumers refer to ingredient declarations EVERY TIME they purchase processed foods.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,415
    • Most Online
      1,763

    Newest Member
    Ails123
    Joined