Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Heritage
0

39 posts in this topic

While we are on the topic of where we live I got curious about the heritage of everyone. I have often heard that people of a certain descent have a higher incident of developing celiac disease. I think it was European and I thought it might be fun to see if that was true.

My father was of german descent and my mother is dutch.

I also was wondering how many people found other family members that have celiac?

I have not been able to trace it back to anyone. I did have a maternal grandfather that had colitis and a paternal cousin with crohns disease

0

Share this post


Link to post
Share on other sites


Ads by Google:
;) hi sally--i am of german descent on my dad's side--dont know about my mom's side--she doesnt know who her dad is--she is a freckled redhead, so maybe irish :P --my sister is a diagnosed celiac, my dad has been told by his doctor to go gluten-free, so i am not sure if it is his opinion or from a test--my dad has been very ill with stomach problems the last few years--he has always had issues with his stomach--when my sister was diagnosed i also went gluten-free and it made all the difference in the world to me--my dad has only been gluten-free for a few weeks--my sister and i for over 3 yrs now :D deb
0

Share this post


Link to post
Share on other sites

Yes, they say that celiac is more common in those of European descent, particularly Northern European. To my knowledge, nobody else in my family has celiac. My grandparents on my mom's side have been tested, my family has been tested...but who knows about my dad's parents or my great-grandparents on both sides--I doubt they were checking for celiac disease back then :)

Mother's Side: Swiss, Swedish

Father's Side: English, Irish, Scottish

0

Share this post


Link to post
Share on other sites

mother's side, Finnish

father's side, Swede and German

No history of celiac but diabetes, migraine headaches and arthritis.

Laura

0

Share this post


Link to post
Share on other sites

I believe that it can be a European disease...

0

Share this post


Link to post
Share on other sites




I am Hungarian and German on my mother's side and German American Indian on my father's side. My mother had all the symptoms of gluten-free but since her antibody test came out negative she will not follow a gluten-free diet. My brother is HD diagnosed, My two sons have celiac disease as do I. I'm pretty sure my maternal grandfather had celiac disease as he had RA and other health issues. My paternal aunt I think also has celiac disease since she has sever migrains, sever bone loss requiring fusions and animia. She refuses to get tested.

I have to say I'm glad to hear so many of you say that you are the only one in your family because I was starting to believe that all of my grandchildren were doomed to have celiac disease.

But on a side note, doctors in the US think that celiac is 1 in 10,000 in our population. I just read a stat from the head GI doc here in Denver that the incidence is more like 1 in 135. That SHOCKED me.

0

Share this post


Link to post
Share on other sites

Deby:

When I went to the celiac conference at Stanford University in California this October, they estimated that one in 133 people have celiac disease.

This is up from just a year ago when they stated it was one in 250. It is shocking!

There were over 500 people that attended this year, last year there were about 200 people.

Even looking at this message board the numbers are rising. I sometimes wonder if it is something in the enviroment?

0

Share this post


Link to post
Share on other sites

My mom's family is Scottish and English and has many Celiacs, most diagnosed. My dad's family is Irish and German and has a handful, most undiagnosed. It just runs in the blood!

0

Share this post


Link to post
Share on other sites

My family is English (like, the Mayflower), Canadian (orginal Acadians) and the usual American hodge-podge of bits of other things down through the years.

My husband's family is German, German, German, and oh yeah, Austrian.

My son is celiac, hubby is being re-tested, probably positive, my other son and I and so far all my relations are negative. My grandfather (one of the French-Canadians, granpere spoke French!) died of colon cancer, as did his mom and dad. Hmmmm....Husband's family is a pile of colitis, colon polyps, IBS and diverticulitis. No, none of them have been tested, they "know" they don't have it......

0

Share this post


Link to post
Share on other sites

Dad- German, Irish

Mom- Italian

Mom has it- and one daughter.

Though I suspect many had it, and am convinced- another daughter, and 1 of my sons, and one of my grandsons do.

0

Share this post


Link to post
Share on other sites

Dad - Danish

Mom - English (but Colonial American kind, too, Ryebaby0)

I have it, my three kids have it (their father is a German, French Canadian and who-knows American). One of my sisters have it and one nephew of a different sister, and we suspect MANY others in my family have it but no one is interested in getting tested. :blink:

I suspect my mom has it, too, but she refuses to consider she might (her mother had all the symptoms of having celiac disease since a small child: growth problems, gastro problems, 3/4 of her stomach was removed, divirticulitis...)

We suspect my father had it (he recently died and all the reports look like it was from gluten neuropathy, he had all the physical signs of this, plus the autopsy showed severe degeneration/atrophy of the cerebellum with a marked loss of Purkinje cells - these are the cells in the brain that are attacked as opposed to the ones in the small intestine), his sister probably had it (all the same physical signs as my father except she was a heavy smoker and that got her), his mother (gluten neuropathy again...)

Anyway... :(

0

Share this post


Link to post
Share on other sites

I was adopted at the age of 6-weeks so there isn't much background information especially on my Natural Father's side.

Mom - Polish

Dad - German

I did meet my Natural Mom about a year ago. She was having "some" health issues that she attributed to IBS - couldn't lose weight, constant diarrhea, & others that we just didn't get into at the time. She now has 2 grown children from another man. I wouldn't be surprised if she has celiac disease.

0

Share this post


Link to post
Share on other sites
Even looking at this message board the numbers are rising. I sometimes wonder if it is something in the enviroment?

Sally,

I think the something in the envoronment is the processed wheat that takes out the fiber and ups the gluten. Even whole wheat bread has added gluten. The reason I think this is because my identical twin sons both have celiac disease. the first got it at 3 so we emptied the house of gluten. The second twin then didn't get as much wheat. He was getting it in his breakfast sometimes and at lunch in a sandwhich or pasta. His antibodies went positive, just barely, but the biopsy was neg. He didn't go positive until I purposfully upped his gluten eating for 6 mos and then redid the biopsy. Even then the biopsy was 0, 1 and a barely 2.

Stress could play a factor too :)

0

Share this post


Link to post
Share on other sites

We know that it's partly environmental - though not necessarily exactly what it is in our environment that does the triggering. I'm a Heinz 57 of Northern European decent - primarily French and Hungarian, but also some Irish, English, Welsh, German, and some other stuff I don't remember... No one else in my family has tested for it, and none are obvious contenders - no obvious GI problems I know of, nor anyone with obvious malabsorption issues - but enough of the uncommon symptoms that it wouldn't be a huge suprise if one or two were to test positive.

0

Share this post


Link to post
Share on other sites

Hey Lynn,

I adopted too and only know about my mother's side. I'm German and Icelandic, which is mostly Norwegian although the Icelandic side is very dark in coloring, on my mom's side.

My mother has many stomach problems, ulcers, acid reflux and IBS. Whenever I talk to her, her stomach is in pain. I did send her some info on Celiac but she didn't say anything about it so I'm going to send her some more info. I'm not sure she will listen or be open minded because she is a nurse and that can make her a little narrow minded about things. She has problems losing weight too and I'm sure that is why she won't even consider celiac as an option. Oh, and she has Reynoid's syndrome (I think I spelled that wrong) and that is an autoimmune thing. Have you talked to your mom about it? Does anyone have a source that says you can be overweight and have Celiac?

As far as causes- Don't like 20% of the population have a gene for Celiac? So that many people have the potential to get it so it could be on the rise because of the environment or maybe it is being diagnosed more frequently because doctors are more aware of it especially in adults and in those who are not underweight?

Melanie

0

Share this post


Link to post
Share on other sites

I do believe that people can be overweight and have celiac. At the conference I went to most of the people looked very healthy and some were overweight. I have also talked to people that have celiac disease and are overweight.

Personally I would rather be somewhat overweight than look like an anorexic like I do! I have even had people "assume" that I have an eating disorder. I am having a very difficult time gaining the weight back. I think it may possibly be because it took so many years to find out what was wrong and there was a lot of damage to my body in the meantime.

0

Share this post


Link to post
Share on other sites

Dad's side - Scottish, Irish

Mom's side - Irish, Norwegian, English

I am the only one in my family that has been diagnosed with celiac. My mom is the only other person that has been tested (as far as I know... I have a hudge family, lots of cousins).

0

Share this post


Link to post
Share on other sites

Hi!

I also belong to a huge Irish, Catholic, Newfie family. I have 102 first cousins!!!

On my dad's side: Irish, Irish

On my mom's side: Irish, French

Karen

0

Share this post


Link to post
Share on other sites

Oh yeah, I was wrong--my dad's parents were tested, as well as my mom's.....so no grandparents have celiac disease, nobody else in my immediate family has celiac disease.....must be some great grandparent or great, great grandparent ;)

0

Share this post


Link to post
Share on other sites
Hi!

I also belong to a huge Irish, Catholic, Newfie family. I have 102 first cousins!!!

On my dad's side: Irish, Irish

On my mom's side: Irish, French

Karen

WOW! 102 first cousins... :o ...let's see, I have...seven cousins... :lol:

0

Share this post


Link to post
Share on other sites

Both my sides are Ukrainian/Polish. My gido(granda for those you dont know my language :P ) was born in Ukraine and lived there til he was 4 I think. No family history of Celiac that we know of, but diabetes,A LOT of cancer, and A LOT of arthritis..

~lisa~

0

Share this post


Link to post
Share on other sites

Hi Melanie,

That is funny that your Mom is a nurse b/c my natural Mom was also a nurse until she was in a car accident & injured her back. Because I have been sick so long I thought by contacting her, I would be able to find some medical information regarding my background.

Unfortunately, we ended our relationship a year ago last October 10th. She had high expectations about the person I should be - that I would help her out financially, that I would return to be her daughter, that I would be there for her when she needed me, my hair should be a certain way, I should weigh a certain amount, etc. She also had expectations that I should have hugged her & kissed her when we met. I am shy & it sometimes takes me a while when I meet someone new. She couldn't understand that at all.

I am still thinking about writing her a note about my findings. It can't hurt. Then it will be up to her what she wants to do if anything.

At one point, I was very underweight (afterwards I started to become very bloated). They diagnosed me as Anexoria. I went down to 68 pounds at 5'3". We had a daughter who we adopted from China & we were in the process of adopting another daughter from Korea. Because of my severe weight loss & the pending adopting, the adoption agency took away our 2nd daughter from us b/c they felt it was intentional.

In my opinion - if doctors were more knowledgeable about celiac disease & took the time to check people out for this disease, it would save people from going through a lot of things.

0

Share this post


Link to post
Share on other sites

Lynn R.

That is so sad, it seems that people never cease to surprise me. I am sorry that you have to go through this, but you are not alone. Just be happy with yourself and things have a way of working out, or so I am told.

0

Share this post


Link to post
Share on other sites

Hi celiac3270!

One thing Irish Catholics (and especially Newfie ones) know how to do, is multiply!!! LOL! Including me, with four kids (my two girls and my twin boys..) Multiple births run in my family quite a lot, a lot of twins and triplets. A month before my twin boys were born, one of my cousins had triplet girls....

I always joke that most of my cousins are born 9 months after fishing season ends.....

Karen

0

Share this post


Link to post
Share on other sites

Mother: German and Irish

Father: Irish and Czheckoslovakian

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,895
    • Total Posts
      919,535
  • Topics

  • Posts

    • Test Results
      Update: I am about at my wit's end. I won't be able to see my new doctor until July 17 to get a referral to a GI doctor, so I continue to eat gluten and the effects continue to worsen. Today my boss, whom I have been working with for 12 years, and I had a meeting where he said he's noticed a change in many things, such as speech, not articulating well, forgetfulness, and other things that are affecting my work product. I finally told him I know there is something wrong with me medically and I've been trying to get to the doctor to no avail. I recall those four weeks early in the year when I tried out gluten free and was beginning to feel much better- more present, more sharp, and then went back on gluten in preparation for the blood test.  I just don't think I can do this gluten thing any longer and am thinking of going cold-turkey gluten free.  I'm 54 years old, am beginning not to care about a diagnosis because I just want to feel better and be able to do what I need to do. Because of how I felt going off of gluten earlier in the year, and eating gluten free when I was on the McDougall plan years ago, and how I feel while doing this gluten challenge, I am pretty convinced that my issue is gluten.  Any words of encouragement would be welcome.  If you've done gluten free and never looked back, tell me about it. 
    • Gardasil
      "I got this vaccination in 2009 when I was 20 and it completely altered my life. Made my celiac disease so much worse, sleep 15-18 hours a day, SIBO, it has completely altered my life since getting this vaccination. My doctor has two twin girls about my age and they both have digestion problems after receiving gardasil Thank you I have a young daughter and have wondered this exact question posed by the poster and your response has given me great pause about this issue which may come up in years to come. I am sorry to hear this wreak havoc on your life, but simultaneously thank you for sharing this detail to help those of us that have likely been decades misdiagnosed celiacs now raising children. Thank you.
    • Gluten does WHAT to the brain?
      "Wondering what kind of life my brother could have had - if  he had celiac - constantly haunts me" My sympathies that is just tragic, as this story is.  I hope you are at peace knowing you are aware of your celiac and help so many lost, scared, and confused celiacs here. It can never bring back your brother but I hope it can give soften some of what you feel that was/is beyond your control. His suffering and your loss has made you a better advocate to yourself and in your work helping us. I don't like my body or my  brain on gluten either. I do fear that people overlook the toll inflammation takes on the brain. It likely may explain decades of mental illness that was brain based inflammation unknown until changes in technology advancement catch up. However consuming gluten to study how one enters psychosis may not be the best method. Do no harm.  
    • Gardasil
      I got this vaccination in 2009 when I was 20 and it completely altered my life. Made my celiac disease so much worse, sleep 15-18 hours a day, SIBO, it has completely altered my life since getting this vaccination. My doctor has two twin girls about my age and they both have digestion problems after receiving gardasil
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Jmg  »  admin

      Hello Admin!
      I don't know whether this is of interest to post on your articles feed:
      http://pratt.duke.edu/about/news/window-guts-brain
      Kind Regards,
      Matt
      · 2 replies
    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
  • Who's Online (See full list)

    There are no registered users currently online

  • Member Statistics

    • Total Members
      60,941
    • Most Online
      1,763

    Newest Member
    dl2z12
    Joined