38 replies to this topic

[Rikki Tikki]

While we are on the topic of where we live I got curious about the heritage of everyone. I have often heard that people of a certain descent have a higher incident of developing celiac disease. I think it was European and I thought it might be fun to see if that was true.
My father was of german descent and my mother is dutch.
I also was wondering how many people found other family members that have celiac?
I have not been able to trace it back to anyone. I did have a maternal grandfather that had colitis and a paternal cousin with crohns disease

[darlindeb25]

hi sally--i am of german descent on my dad's side--dont know about my mom's side--she doesnt know who her dad is--she is a freckled redhead, so maybe irish --my sister is a diagnosed celiac, my dad has been told by his doctor to go gluten-free, so i am not sure if it is his opinion or from a test--my dad has been very ill with stomach problems the last few years--he has always had issues with his stomach--when my sister was diagnosed i also went gluten-free and it made all the difference in the world to me--my dad has only been gluten-free for a few weeks--my sister and i for over 3 yrs now deb

[celiac3270]

Yes, they say that celiac is more common in those of European descent, particularly Northern European. To my knowledge, nobody else in my family has celiac. My grandparents on my mom's side have been tested, my family has been tested...but who knows about my dad's parents or my great-grandparents on both sides--I doubt they were checking for celiac disease back then

Mother's Side: Swiss, Swedish
Father's Side: English, Irish, Scottish

[mommida]

mother's side, Finnish
father's side, Swede and German
No history of celiac but diabetes, migraine headaches and arthritis.
Laura

[Thomas]

I believe that it can be a European disease...

[Deby]

I am Hungarian and German on my mother's side and German American Indian on my father's side. My mother had all the symptoms of gluten-free but since her antibody test came out negative she will not follow a gluten-free diet. My brother is HD diagnosed, My two sons have celiac disease as do I. I'm pretty sure my maternal grandfather had celiac disease as he had RA and other health issues. My paternal aunt I think also has celiac disease since she has sever migrains, sever bone loss requiring fusions and animia. She refuses to get tested.

I have to say I'm glad to hear so many of you say that you are the only one in your family because I was starting to believe that all of my grandchildren were doomed to have celiac disease.

But on a side note, doctors in the US think that celiac is 1 in 10,000 in our population. I just read a stat from the head GI doc here in Denver that the incidence is more like 1 in 135. That SHOCKED me.

[Rikki Tikki]

Deby:

When I went to the celiac conference at Stanford University in California this October, they estimated that one in 133 people have celiac disease.
This is up from just a year ago when they stated it was one in 250. It is shocking!
There were over 500 people that attended this year, last year there were about 200 people.
Even looking at this message board the numbers are rising. I sometimes wonder if it is something in the enviroment?

[stargirl]

My mom's family is Scottish and English and has many Celiacs, most diagnosed. My dad's family is Irish and German and has a handful, most undiagnosed. It just runs in the blood!

[ryebaby0]

My family is English (like, the Mayflower), Canadian (orginal Acadians) and the usual American hodge-podge of bits of other things down through the years.

My husband's family is German, German, German, and oh yeah, Austrian.

My son is celiac, hubby is being re-tested, probably positive, my other son and I and so far all my relations are negative. My grandfather (one of the French-Canadians, granpere spoke French!) died of colon cancer, as did his mom and dad. Hmmmm....Husband's family is a pile of colitis, colon polyps, IBS and diverticulitis. No, none of them have been tested, they "know" they don't have it......

[JUDI42MIL]

Dad- German, Irish
Mom- Italian

Mom has it- and one daughter.
Though I suspect many had it, and am convinced- another daughter, and 1 of my sons, and one of my grandsons do.

[FreyaUSA]

Dad - Danish
Mom - English (but Colonial American kind, too, Ryebaby0)

I have it, my three kids have it (their father is a German, French Canadian and who-knows American). One of my sisters have it and one nephew of a different sister, and we suspect MANY others in my family have it but no one is interested in getting tested.

I suspect my mom has it, too, but she refuses to consider she might (her mother had all the symptoms of having celiac disease since a small child: growth problems, gastro problems, 3/4 of her stomach was removed, divirticulitis...)

We suspect my father had it (he recently died and all the reports look like it was from gluten neuropathy, he had all the physical signs of this, plus the autopsy showed severe degeneration/atrophy of the cerebellum with a marked loss of Purkinje cells - these are the cells in the brain that are attacked as opposed to the ones in the small intestine), his sister probably had it (all the same physical signs as my father except she was a heavy smoker and that got her), his mother (gluten neuropathy again...)

Anyway...

[LynnR]

I was adopted at the age of 6-weeks so there isn't much background information especially on my Natural Father's side.

Mom - Polish
Dad - German

I did meet my Natural Mom about a year ago. She was having "some" health issues that she attributed to IBS - couldn't lose weight, constant diarrhea, & others that we just didn't get into at the time. She now has 2 grown children from another man. I wouldn't be surprised if she has celiac disease.

[Deby]

Even looking at this message board the numbers are rising. I sometimes wonder if it is something in the enviroment?

Sally,

I think the something in the envoronment is the processed wheat that takes out the fiber and ups the gluten. Even whole wheat bread has added gluten. The reason I think this is because my identical twin sons both have celiac disease. the first got it at 3 so we emptied the house of gluten. The second twin then didn't get as much wheat. He was getting it in his breakfast sometimes and at lunch in a sandwhich or pasta. His antibodies went positive, just barely, but the biopsy was neg. He didn't go positive until I purposfully upped his gluten eating for 6 mos and then redid the biopsy. Even then the biopsy was 0, 1 and a barely 2.

Stress could play a factor too

[tarnalberry]

We know that it's partly environmental - though not necessarily exactly what it is in our environment that does the triggering. I'm a Heinz 57 of Northern European decent - primarily French and Hungarian, but also some Irish, English, Welsh, German, and some other stuff I don't remember... No one else in my family has tested for it, and none are obvious contenders - no obvious GI problems I know of, nor anyone with obvious malabsorption issues - but enough of the uncommon symptoms that it wouldn't be a huge suprise if one or two were to test positive.

[Melanie]

Hey Lynn,

I adopted too and only know about my mother's side. I'm German and Icelandic, which is mostly Norwegian although the Icelandic side is very dark in coloring, on my mom's side.

My mother has many stomach problems, ulcers, acid reflux and IBS. Whenever I talk to her, her stomach is in pain. I did send her some info on Celiac but she didn't say anything about it so I'm going to send her some more info. I'm not sure she will listen or be open minded because she is a nurse and that can make her a little narrow minded about things. She has problems losing weight too and I'm sure that is why she won't even consider celiac as an option. Oh, and she has Reynoid's syndrome (I think I spelled that wrong) and that is an autoimmune thing. Have you talked to your mom about it? Does anyone have a source that says you can be overweight and have Celiac?

As far as causes- Don't like 20% of the population have a gene for Celiac? So that many people have the potential to get it so it could be on the rise because of the environment or maybe it is being diagnosed more frequently because doctors are more aware of it especially in adults and in those who are not underweight?

Melanie