Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

I'm New & Need Help
0

4 posts in this topic

Hi. I'm new to the site and a recently diagnosed Celiac. I've been on the diet for six weeks and in the last few days have been having tummy trouble (I had no troubles pre-diagnosis - I was diagnosed for other reasons). Lately after I eat I have an awful tummy ache for a couple of hours with bloating, gas and icky trips to the bathroom. (not after every meal, just sometimes) I'm positive I haven't ingested any gluten.

I've gone from a stomach that could handle almost anything (multiple rows of cookies, large servings of pasta) to having an extremely sensitive system. This isn't what I was expecting. Is this normal? Shouldn't I be feeling better?

Any advice would be helpful. Thanks.

0

Share this post


Link to post
Share on other sites


Ads by Google:

Hmm, that's an interesting situation. It doesn't seem uncommon though. The best example I have is that I know quite a few families who have had one member diagnosed with celiac disease, but to save time and money, the entire family decided to go gluten-free. After a while, the non-celiac disease members started noticeing reactions whenever they ingested gluten whether accidentally or intentionally. Maybe it is hidden in your diet somewhere, remember that for some celiacs, it can take several hours to a couple of days for symptoms to show up, for others it may take as little as 15 - 30 minutes.

Six weeks is a beginning, remember that for a lot of celiac disease floks, depending on the amount of healing they have to do, it may take many months to begin to feel better.

I don't know if this is all that helpful, but in anycase, I hope you will spend some time talking to all the great folks on this board, they are awesome. I am sure someone will have some more definite answers for you.

0

Share this post


Link to post
Share on other sites

stella,

Just a little over a year ago, my favorite meal in the whole world was a HUGE plate of pasta with sauteed zucchini and mushrooms, lots of garlic and Pecorino romano cheese, and several sloshes of lemon juice. I probably ate it twice a week, and I never noticed any reaction. But then I decided to cut wheat (and ALL dairy) out of my diet for the sake of my breastfeeding baby. Not long after this, I suddenly began having repeated problems with "food poisoning," but it was always from grains--especially barley. Even rice that I had cooked in the same pot as barley would make me ill. Now, I react to the tiniest amount of gluten. Looking back at my childhood and adolescence, I can see that I DID have symptoms of celiac disease, but they were not intestinal. After I went wheat-free, my intestines decided to join the act.

Have you also removed dairy from your diet (at least for now)? Most celiacs are lactose intolerant during the beginning phase of the healing process, and a significant minority of us cannot distinguish casein (a milk protein) from gluten and end up reacting to BOTH! If you are still eating dairy and having trouble, try eliminating it for a couple of weeks to a month and see what happens. A food diary would also help you track down the culprit behind your discomfort, if you can remember to write in it (I can't!).

I hope this information is helpful to you and that you begin feeling much better soon!

0

Share this post


Link to post
Share on other sites

I've been off milk for a week and it's made a huge difference. I've been sneaking small amounts of cheese and I think I even have to stop that (big disappointment). Thanks for the advice!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,334
    • Total Posts
      920,437
  • Topics

  • Posts

    • Thank you cyclinglady! We'll just keep pushing forward and we'll get things figured out one way or another. You have been most helpful and informative and given me some great resources and things to consider. I really appreciate it! I definitely feel better as I've felt like a crazy mom lately thinking through the test results and everything. Even if it turns out to not be celiac or gluten related, at least I can say we did our due diligence and looked under every rock to find the source of his troubles. Thanks again!  Take care! 
    • Anxiety is quite a common symptom with undiagnosed celiacs. It should improve if not disappear when you go gluten free. Be sure to CONTINUE eating gluten until the endoscopy!   Welcome to the club!
    • Although serological tests are useful for identifying celiac disease, it is well known that a small minority of celiacs are seronegative, and show no blood markers for celiac disease. A team of researchers wanted to define the prevalence and features of seronegative compared to seropositive celiac disease, and to establish whether celiac disease is a common cause of seronegative villous atrophy. View the full article
    • This was absolutely me before diagnosis.  The worst of all of my Celiac symptoms occurred in the morning.  The anxiety was terrible in the mornings, I had horrible nausea, no appetite, felt light headed, dizzy and shaky, diarrhea, stomach cramps... the works.  Honestly, I don't know if it was the symptoms causing the anxiety, the anxiety making my symptoms worse, or a combination.  I almost dropped out of school because I felt so terrible every morning I didn't want to leave the house to go to class.  The first few doctors I saw insisted all of my symptoms were psychological and tried to give me anti-depressants/anti-anxiety meds, but I knew there was something else wrong with me.  I had always been a bit "high-strung," but for the year I was really sick before diagnosis, the anxiety got out of control. I was diagnosed with celiac disease 6 months ago and have been gluten free ever since.  It took time, but everything is gradually improving.  The morning anxiety is much improved and some mornings, is completely gone.  I realized a month or two ago that I no longer spend the first hour after waking up gagging and dry-heaving, something I had done for so many years that I just thought it was normal for me.  I can brush my teeth and my tongue without feeling like I'm going to puke.  I eat breakfast now, which I have never done, because I was always too anxious and nauseous in the mornings to be hungry.  I am not "all better."  I still have bad days and even bad weeks.  If I get glutened the anxiety comes back full force.  If I'm super-stressed out or letting my health slide (not eating well, not sleeping enough) the AM anxiety seems to return.  But, it has been slowly improving over the last 6 months and has become so much more manageable.   Your anxiety could be a separate disorder from the celiac disease, but for me, it seems it was absolutely related and continues to get better.  Don't get discouraged if you don't see an immediate improvement or experience relapses after improving.  Often, I feel like it's a two-step-forward, one-step-back kind of thing, but it is getting better.
    • I have suffered with GERD for 20 years and accidently found out it was a gluten intolerance. I had gone on Atkins years ago and noticed that I had no GERD symptoms while on the diet. I didn't make the connection at that time. Then I went on the Mayo Diet back in the winter and once again, the constant was having no bread primarily. I had also noticed that I would have major attacks anytime I ate Italian food. I blamed it on the onions, the tomatoes, herbs...but I could tolerate all those foods separately. Then, like a lightning bolt...it hit me...the culprit was the "innocent" pasta. BINGO!!  I went gluten-free in March 2016 and I have had no GERD now in 5 months. I feel as if it is a gift to me.   
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,389
    • Most Online
      1,763

    Newest Member
    EJ653
    Joined