Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

I'm New & Need Help
0

4 posts in this topic

Hi. I'm new to the site and a recently diagnosed Celiac. I've been on the diet for six weeks and in the last few days have been having tummy trouble (I had no troubles pre-diagnosis - I was diagnosed for other reasons). Lately after I eat I have an awful tummy ache for a couple of hours with bloating, gas and icky trips to the bathroom. (not after every meal, just sometimes) I'm positive I haven't ingested any gluten.

I've gone from a stomach that could handle almost anything (multiple rows of cookies, large servings of pasta) to having an extremely sensitive system. This isn't what I was expecting. Is this normal? Shouldn't I be feeling better?

Any advice would be helpful. Thanks.

0

Share this post


Link to post
Share on other sites


Ads by Google:

Hmm, that's an interesting situation. It doesn't seem uncommon though. The best example I have is that I know quite a few families who have had one member diagnosed with celiac disease, but to save time and money, the entire family decided to go gluten-free. After a while, the non-celiac disease members started noticeing reactions whenever they ingested gluten whether accidentally or intentionally. Maybe it is hidden in your diet somewhere, remember that for some celiacs, it can take several hours to a couple of days for symptoms to show up, for others it may take as little as 15 - 30 minutes.

Six weeks is a beginning, remember that for a lot of celiac disease floks, depending on the amount of healing they have to do, it may take many months to begin to feel better.

I don't know if this is all that helpful, but in anycase, I hope you will spend some time talking to all the great folks on this board, they are awesome. I am sure someone will have some more definite answers for you.

0

Share this post


Link to post
Share on other sites

stella,

Just a little over a year ago, my favorite meal in the whole world was a HUGE plate of pasta with sauteed zucchini and mushrooms, lots of garlic and Pecorino romano cheese, and several sloshes of lemon juice. I probably ate it twice a week, and I never noticed any reaction. But then I decided to cut wheat (and ALL dairy) out of my diet for the sake of my breastfeeding baby. Not long after this, I suddenly began having repeated problems with "food poisoning," but it was always from grains--especially barley. Even rice that I had cooked in the same pot as barley would make me ill. Now, I react to the tiniest amount of gluten. Looking back at my childhood and adolescence, I can see that I DID have symptoms of celiac disease, but they were not intestinal. After I went wheat-free, my intestines decided to join the act.

Have you also removed dairy from your diet (at least for now)? Most celiacs are lactose intolerant during the beginning phase of the healing process, and a significant minority of us cannot distinguish casein (a milk protein) from gluten and end up reacting to BOTH! If you are still eating dairy and having trouble, try eliminating it for a couple of weeks to a month and see what happens. A food diary would also help you track down the culprit behind your discomfort, if you can remember to write in it (I can't!).

I hope this information is helpful to you and that you begin feeling much better soon!

0

Share this post


Link to post
Share on other sites

I've been off milk for a week and it's made a huge difference. I've been sneaking small amounts of cheese and I think I even have to stop that (big disappointment). Thanks for the advice!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,698
    • Total Posts
      921,787
  • Topics

  • Posts

    • When it's that high, it almost always means Celiac.  Sure, you can have Crohns, too.  Just like you can have Celiac and diabetes, the common cold or a hang nail.  I wouldn't jump to Chrohns.  I don't think the tTg really has anything to do with Chrohns?  Where did you see that?  Sometimes, a slightly elevate tTg can be elevated from other issues, but >100 is not a " slightly elevated" reading
    • Hi! I'm new here, and I'm looking for some information because I'm having a hard time finding it.  Over Labor Day weekend I got some kind of intestinal bug. I didn't think much of it until the D persisted once a day up til now. I tried a priobiotic but that didn't help much. I have bad anxiety and began to think that I was just anxious and stressed. No fever, no pain, all bloodwork is normal, so no infection or anemia. My mother has 5 siblings and 3 have celiac. One other one had a high result on a blood test but was never officially diagnosed and insists she doesn't have it. So I went to my local health fair and got the ttg-iga test, just in case. My result came back at >100. So I have called and scheduled a visit with a GI for next week. Aside from the recent intestinal issues I have never thought that I had any signs of celiac. I do have dermatographism and have had that since I was 20 (I am 28). I have severe anxiety. I had PUPPPS when I was pregnant with my daughter and it was miserable. It looks much like the skin rashes that celiacs have. Again, didn't think much of it. Because of my anxiety I am terrified that this high blood test is from something else, like crohn's. I don't have diabetes, my liver and thyroid numbers are fine. I think it's much more plausible that this is celiac because of my family history. But my anxiety says "what if it's crohns?" Does anyone have any insight? Is it true that the ttg iga can be elevated from crohns and not celiac? Is >100 pretty definitive of celiac? I didn't know if crohns was the cause if the number would be this high.  I'm just freaked out. 
    • This does say it is for NCGS....so not  for Celiacs.  There is a drug being developed that may actually break down the gluten in the stomach before it hits the intestines.  However, that is still in clinical trials.
    • could be from your neck, or it is, literally, in your head. perhaps a scan is needed.
    • The anxiety thing is there I take teas, and supplements along with CBD oil to help with it, and long walks and exercise when I get antsy. As for the human interaction it is a mix of other mental issues, and the way I feel about people who can eat gluten. If they are not eating I have no issue talking with people. I mentioned I have issues accepting them as the same species when I see them eating. My reaction to gluten is so ingrained in me that it is not a food but a poison, that watching others eat it causes a subconscious reaction where I find myself avoiding them and looking down on them like something from another planet. I end up disgusted with them and walking away, I will go out of my way to avoid people and places where foods like this are present. This is my TRAUMA part of the gluten exposure, and one of the big things I am trying to address in my life right now. I know it is irrational to do so but I end up doing it, I have never cared about others race, religion, or looks, but if I see them eating a gluten/poison, it somehow changes how I perceive them and interact with them and I hate this part about me. It is taking a lot of mental effort to try to smile and treat them as a human, and not something to be looked down upon in disgust. I just recall that mental state that gluten puts me in with my mind and body turning against me and not doing what I will it and the fear comes back. This diet is pretty much like mine, I take Doctors best Magnesium powder in a tea that is actually brewed with st johns wort (never thought much of it) , I use Liquid Health Stress & Energy along with the Neurologic Support they have, twice-three times a day for B vitamins(along with a bunch of other supplements) . I can not digest meats or carbs well, meats it is a issue with breaking them down same with egg yolks, I literally just burp up the undigested meats hours later. I have found the only way to eat them is to boil/slow cook them til they melt then blend them into a broth and have it with digestive enzymes so only do it with turkey bacon, longhorn, and salmon in small amounts in soups or for flavoring stock for stir frys.  As for Carbs like rice and potatoes I end up getting really gassy and bloated, same with sugars in any amount greater then like the size of my thumb give or take. Oats I only have gluten-free Harvest in about a tbsp amount when tasting recipes of stuff I sell at farmers markets. So I eat mostly fats and protein from egg whites, nuts, seeds, veggies, and vegan protein powders blends balanced for complete proteins. I have at least 1-2 dried fig, dates, handful of banana chips, or a 1/4 of a small fruit with meals for fruits.  My meals are mostly egg white and veggie omelettes, stir frys, and soups, Always with lots of fats and proteins in each meal. I have found having nutritional yeast to help with my mood and energy levels also and find someway of having it in meals often. I keep my foods on rotation and keep getting updated feed back on ratios with my dietician. I also have a rather odd list of foods I can not eat due to allergies/intolerance.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,704
    • Most Online
      3,093

    Newest Member
    Fbmb
    Joined