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Confused


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#1 gockleyt6

 
gockleyt6

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Posted 29 November 2004 - 05:35 PM

Hi everyone , i'm 65 years old and i have DH for 28 years but didn't know it could do any damage until i saw a GI doctor last summer.
I am taking 25mg of dapsone everyday and i watch what i eat so i very seldom brake out with the blisters.
Now my GI doctor tells me i must stick to a glutin free diet and i haven't a clue what i might be eating that has glutin in it.
Are their any good books to buy or sites to go to so i can get some good information.
The strange thing is that for 28 years the dermatologist never told me it could do damage to my small intestine.
Well it looks like i need some help here and the strange thing is that my blood tests show that i have a hight tolorance for glutin???
Thanks for your time.
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#2 lovegrov

 
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Posted 29 November 2004 - 06:21 PM

I had DH for more than 20 years before I suddenly got extremely ill (at age 46) -- I mean I was dying of malnutrition. 11 days in the hospital and 10 weeks off work, and they weren't really sure I would make it at first. I took 25 mg of dpasone maybe three times a week (when really cold just once a week) and that controlled it except when it was reallly hot. My doctor had urged me to go gluten-free but never told be about the celiac disease link.

My father had DH for more than 40 years -- including a period of years where he never had to take dapsone. After I was diagnosed he was tested and was positive on everything -- and with no symptoms other than DH.

This is a good site and so is the forum at delphiforums.com. It's tough at first but keep asking questions.

richard
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