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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


    Started by gockleyt6,

    2 posts in this topic

    Posted · Report post

    Hi everyone , i'm 65 years old and i have DH for 28 years but didn't know it could do any damage until i saw a GI doctor last summer.

    I am taking 25mg of dapsone everyday and i watch what i eat so i very seldom brake out with the blisters.

    Now my GI doctor tells me i must stick to a glutin free diet and i haven't a clue what i might be eating that has glutin in it.

    Are their any good books to buy or sites to go to so i can get some good information.

    The strange thing is that for 28 years the dermatologist never told me it could do damage to my small intestine.

    Well it looks like i need some help here and the strange thing is that my blood tests show that i have a hight tolorance for glutin???

    Thanks for your time.


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    Posted · Report post

    I had DH for more than 20 years before I suddenly got extremely ill (at age 46) -- I mean I was dying of malnutrition. 11 days in the hospital and 10 weeks off work, and they weren't really sure I would make it at first. I took 25 mg of dpasone maybe three times a week (when really cold just once a week) and that controlled it except when it was reallly hot. My doctor had urged me to go gluten-free but never told be about the celiac disease link.

    My father had DH for more than 40 years -- including a period of years where he never had to take dapsone. After I was diagnosed he was tested and was positive on everything -- and with no symptoms other than DH.

    This is a good site and so is the forum at It's tough at first but keep asking questions.



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