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Day 1 No Gluten
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63 posts in this topic

That's good new Tom I really like those nuts, I was hoping to be able to still eat them and was disapointed when I thought I coudn't. I don't have a bag in front of me but the other ingrediants looked pretty basic and gluten-free.

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It's possible there's a different temporary problem w/ the honey-roasted. It is a lot of sugar, and it seems possible to me that w/ the diet changing suddenly and the villi finally not being bombarded by more poison, the whole system is in flux and it should be expected to react differently at different stages of the process.

If i ate them right now i'd get a headache in 10-15 min which would last hrs, and it probably would contribute to nextday intestinal issues (haven't bothered to test - too busy feeling good), tho i still believe i can be fine w/ them in the future. When i started gluten-free, i'd read it could take 6 mos to 2 yrs to fully repair the villi.

And the bone pain does keep going away. Not sure where i mentioned it b4, but of the 5 or 6 worst symptoms for me, the bone pain went away slowest or maybe 2nd slowest to nausea. but the nausea is kinda a diff story cuz it was SO bad right b4 starting gluten-free, 1st it got a LOT better, then continued at a slower pace. The bone pain reduction has been steady.

Today was the day i shot some hoops again for the 1st time in forever. Surprised at how weak the arms were for longer shots, but just moving around, jumping, shooting felt fantastic.

:D

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Hey Tom glad you're feeling better, me Too!!! I feel like a million bucks. My nausea is much much better, bone pain a hair better maybe, my insides feel way better! I'm sleeping about 10 hours a night, real tired, but overall about 50 times better than 9 days ago. I feel like I'm waking up from a nightmare. I think I might have a peanut allergy, had just a little peanut butter last night and it did not sit great, leaving peanuts alone for a while. I had a couple migrane episodes after eating the nuts over next 2 days (or the cheese which I am also avioding). Lots of rice and beans, I'm getting creative with them, lots of olive oil, fresh garlic, onion, tomatoes, cayenne pepper, not bad. My head is clearing up also, I feel my anxiety going away and I'm much more able to have clear thoughts and do things. I realize now how bad I had gotten the last 2 months, I wasn't far from bedridden, it came on so slow I didn't even really see it. I was living 95% of the time between my bed and bathroom for a couple months. There is no doubt the gluten party is over though, I'm getting so much better. Many thanks to all who have helped me get this far.

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:D great mcdougall---so glad you feel so well---but, now that you think you need to stay away from peanuts--you probably should be careful of anything with soy in it--soy is a close relative of peanuts--just be careful--ok--i can have peanuts but have to be very careful with the soy---tuna packed in water often contains soy---read, read, read--keep up the good work------deb :D
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Hi McDougall!!

That sounds wonderful that you have undergone such a change in such a short period of time. You can be pretty guaranteed that you have found the source of your problems. It never ceases to amaze me how doctors continue to have blinders on when it comes to celiac disease. I wish they would wake up and make the connection to celiac when they have patients whose symptoms scream out "CLASSIC CASE OF CELIAC!!!!!" Perhaps in the not too distant future, the medical establishment will finally realize how widespread celiac is.....

You sound like you have made amazing progress... Be very diligent - gluten is hidden in the most unlikely sources.... You are doing a great job though!!!

Have a great day!

Karen

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Ater reading your post I see so many similarities. I'm sure we all do. I am still in the learning stage but would not mind sharing information with you. I see that you are from Pompano Beach. I live in Aventura and do not have a doctor here yet so if you find someone please let me know. I'm originally from NY and have only been here about 2 years...I have yet to find a good GI dr. The dr who find the gluten intolerance is up in NJ....I felw up to see him about a month ago out of desparation. It was right there in one of my old blood tests that I brought along. I am still trying to work out the diet and medications but I have to say that I feel better when I do NOT have gluten. I've also discovered other intolerances.

Email me anytime...

Mel

mela14@bellsouthnet

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Speaking of unlikely sources, it might be good to mention again these: envelope and stamp glue and communion wafers.

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.. .. . just a little peanut butter last night and it did not sit great, leaving peanuts alone for a while.

I ended up finding out the sugar in my former fav peanut butter (skippy superchunk) was giving me trouble, so now i'm putting the all-natural (peanuts, salt) pb on a big fluffy slice of breadmachine gluten-free bread. (yes i said fluffy and i MEANT IT!)

Oh and looking back at last couple months pre-gluten-free makes me think i was just plain crazy to let things get that bad. I'd see those scooter ads for the elderly and feel i'd have to use one by the time i was 44. I still can get emotional just thinking about it.

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:D I'm so pleased you're doing and feeling so well McDougall. Great job!

Maggie

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Do you think it could be the peanut butter?

when I first started on the gluten-free diet (3 weeks ago) I went to a dietician and she wrote down the things that I could have and gave me a book to keep a food diary. It is the BEST thing I am doing. I have found so many food intolerances this way. Peanuts and soy are definate NO-NOs for me. When I look back in my food diary I can clearly see what I ate...the time I ate it..and the emotion I had afterwards. There is no guessing ( as I have done in the past).....maybe it's this...maybe it's that!

Yesterday I started with Almond butter. I didn't use that much because I was afraid but I think it was OK. I'll try it again today.

Still trying to figure it all out but at least I have a direction now!

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What do you do when you crave things you know are bad for you? I really feel like a lamington....

 

easy fix...buy the Patties brand gluten-free Lamingtons in the freezer aisle from Woolworths.  They are surprisingly very nice!

 

Obviously not a super healthy snack, but one is ok to fix a craving.

 

mlspattieslam.jpg

Here are the ingredients:

Patties Lamingtons Ingredients:

Water, Sugar, Strawberry Jam [sugar, Strawberries, Pectin, Citric acid], Dessicated Coconut (8%) [Coconut, Preservative (220-Sulphites)], Rice Flour, Maize starch, 

Margarine [vegetable fats and oils, emulsifiers (322 - Soy, 471), antioxidant (306-Soy), Colours (160b, 100)],

Egg solids, Cocoa (2.5%), Potato starch, Sodium bicarbonate, Fruit fibre, Acidity regulator (450), Thickeners (415, 412), Humectant (420), Emulsifier (471, 475 - Soy), Natural Flavour.

Contains: Egg, Soybean products and added sulphites.

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Hi Simon, Welcome to the forum. 

 

This thread you are replying to is ten years old.  Any information has probably changed since then, so please be aware of that, and also the people from the original discussion may not be around any more.  It is a good idea, especially when using the search function to look up specific things, to take note of the date.

 

I wish I was in Australia, though, because those patties look tasty :)

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Ok Laura, thanks for the heads up - I might do a separate post on these as they super delicious!

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    • Mnoosh,    Can you give us a link to the article you read about the increased risk after being diagnosed and maintaining a strict gluten-free diet??       IMO,   You are over reacting to a misprint or most likely a misread article.
    • Yes!  With dairy, celiacs can often have a temorary lactose intolerance due to damaged intestinal villi (where the enzymes normally are released to digest lactose).  Of course you could be naturally lactose intolerant based on race or age.  It is best to stick to a whole foods diet while you are healing.  Really, is ice cream or potato chips going to provide you with nutritional value?  Stick with naturally gluten free foods like meat, fish, fats,  veggies (even those with carbs like sweet potatoes or winter squash) and fruit.  Avoid that processed junk as you may react to the additives right now.  Later, you can add back in dairy (test) and other foods you miss and crave.   Good luck!  
    • Take a deep breath and calm down!    The incidence of cancer with Celiac Disease is rare.......it can happen but the vast majority of people never have that experience.  You may have somewhat enlarged lymph nodes due to inflammation from undiagnosed Celiac but that will all calm down and go away once you get going on the diet.  Believe me, there are many of us that have things happen during the diagnosis and early recovery period and everything turned out just fine.  There is an elevated risk for some cancers with Celiac but that risk goes back to that of the general population after a couple of years on the gluten-free diet. I cannot remember the exact time frame but it is somewhere between 2-4 years, I think.  So many of us went years without a diagnosis and when it was all figured out, we have gone on to be healthy with little complications.  Really...do  not worry about this.  Concentrate on learning all the ins and outs of this disease and how to live gluten free happily.  We are here to help you and guess what? The diet is not as bad as some make it out to be. Many things can be made gluten free and are every bit as good as their gluten counterparts. The diet may not be convenient but it is not hard. I would not lie to you!   
    • Well....one common symptom that most celiacs have when they are diagnosed (or undiagnosed) is anxiety.  So, there is a risk of cancers, but science has demonstrated that that risk goes down on a gluten free diet (if you have celiac disease).  In goes down to the same risk as those without celiac disease.   I kind of was a basket case.  I drive my family a bit crazy because I was anxious.  I felt a bit stupid too.  I guess I had a little brain fog going on too.  All that resolved after I healed. Welcome to the fourum.  Read our Newbie 101 thread under "Coping" (pinned at the top of the page) and learn about hidden sources of gluten and cross contamination.  I think most of us do not worry about cancer. We mourn the freedom to eat anything anywhere!   I did not have swollen lymph nodes, but I am sure others have and they did not have cancer.  Hopefully, they will chime in and set your mind at ease.  If not, you can search for "lymph nodes" at the top of the page (little magnifying glass).  There are lots of members with the same issue!  
    • I was recently diagnosed as having celiac and to be honest the part I'm having the most trouble with isn't the change in food or lifestyle. I'm really upset about what I've read about the risk of cancer increasing with celiac disease. I think this is playing into my fears because I currently have lymph nodes all over my body-my Doctor says they are not considered swollen or concerning, but I don't usually feel nodes. The lymph nodes and horrible diarrhea for the last 3 weeks were what got me into the the doctor for lab work. My blood work came great so I'm wondering if anyone else experienced lymph nodes reacting when they found out they were celiac? Also how do you deal with anxiety surrounding the increased risk of cancer? Thanks!
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