Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Day 1 No Gluten
0

63 posts in this topic

That's good new Tom I really like those nuts, I was hoping to be able to still eat them and was disapointed when I thought I coudn't. I don't have a bag in front of me but the other ingrediants looked pretty basic and gluten-free.

0

Share this post


Link to post
Share on other sites


Ads by Google:

It's possible there's a different temporary problem w/ the honey-roasted. It is a lot of sugar, and it seems possible to me that w/ the diet changing suddenly and the villi finally not being bombarded by more poison, the whole system is in flux and it should be expected to react differently at different stages of the process.

If i ate them right now i'd get a headache in 10-15 min which would last hrs, and it probably would contribute to nextday intestinal issues (haven't bothered to test - too busy feeling good), tho i still believe i can be fine w/ them in the future. When i started gluten-free, i'd read it could take 6 mos to 2 yrs to fully repair the villi.

And the bone pain does keep going away. Not sure where i mentioned it b4, but of the 5 or 6 worst symptoms for me, the bone pain went away slowest or maybe 2nd slowest to nausea. but the nausea is kinda a diff story cuz it was SO bad right b4 starting gluten-free, 1st it got a LOT better, then continued at a slower pace. The bone pain reduction has been steady.

Today was the day i shot some hoops again for the 1st time in forever. Surprised at how weak the arms were for longer shots, but just moving around, jumping, shooting felt fantastic.

:D

0

Share this post


Link to post
Share on other sites

Hey Tom glad you're feeling better, me Too!!! I feel like a million bucks. My nausea is much much better, bone pain a hair better maybe, my insides feel way better! I'm sleeping about 10 hours a night, real tired, but overall about 50 times better than 9 days ago. I feel like I'm waking up from a nightmare. I think I might have a peanut allergy, had just a little peanut butter last night and it did not sit great, leaving peanuts alone for a while. I had a couple migrane episodes after eating the nuts over next 2 days (or the cheese which I am also avioding). Lots of rice and beans, I'm getting creative with them, lots of olive oil, fresh garlic, onion, tomatoes, cayenne pepper, not bad. My head is clearing up also, I feel my anxiety going away and I'm much more able to have clear thoughts and do things. I realize now how bad I had gotten the last 2 months, I wasn't far from bedridden, it came on so slow I didn't even really see it. I was living 95% of the time between my bed and bathroom for a couple months. There is no doubt the gluten party is over though, I'm getting so much better. Many thanks to all who have helped me get this far.

0

Share this post


Link to post
Share on other sites
:D great mcdougall---so glad you feel so well---but, now that you think you need to stay away from peanuts--you probably should be careful of anything with soy in it--soy is a close relative of peanuts--just be careful--ok--i can have peanuts but have to be very careful with the soy---tuna packed in water often contains soy---read, read, read--keep up the good work------deb :D
0

Share this post


Link to post
Share on other sites

Hi McDougall!!

That sounds wonderful that you have undergone such a change in such a short period of time. You can be pretty guaranteed that you have found the source of your problems. It never ceases to amaze me how doctors continue to have blinders on when it comes to celiac disease. I wish they would wake up and make the connection to celiac when they have patients whose symptoms scream out "CLASSIC CASE OF CELIAC!!!!!" Perhaps in the not too distant future, the medical establishment will finally realize how widespread celiac is.....

You sound like you have made amazing progress... Be very diligent - gluten is hidden in the most unlikely sources.... You are doing a great job though!!!

Have a great day!

Karen

0

Share this post


Link to post
Share on other sites




Ater reading your post I see so many similarities. I'm sure we all do. I am still in the learning stage but would not mind sharing information with you. I see that you are from Pompano Beach. I live in Aventura and do not have a doctor here yet so if you find someone please let me know. I'm originally from NY and have only been here about 2 years...I have yet to find a good GI dr. The dr who find the gluten intolerance is up in NJ....I felw up to see him about a month ago out of desparation. It was right there in one of my old blood tests that I brought along. I am still trying to work out the diet and medications but I have to say that I feel better when I do NOT have gluten. I've also discovered other intolerances.

Email me anytime...

Mel

mela14@bellsouthnet

0

Share this post


Link to post
Share on other sites

Speaking of unlikely sources, it might be good to mention again these: envelope and stamp glue and communion wafers.

0

Share this post


Link to post
Share on other sites
.. .. . just a little peanut butter last night and it did not sit great, leaving peanuts alone for a while.

I ended up finding out the sugar in my former fav peanut butter (skippy superchunk) was giving me trouble, so now i'm putting the all-natural (peanuts, salt) pb on a big fluffy slice of breadmachine gluten-free bread. (yes i said fluffy and i MEANT IT!)

Oh and looking back at last couple months pre-gluten-free makes me think i was just plain crazy to let things get that bad. I'd see those scooter ads for the elderly and feel i'd have to use one by the time i was 44. I still can get emotional just thinking about it.

0

Share this post


Link to post
Share on other sites

:D I'm so pleased you're doing and feeling so well McDougall. Great job!

Maggie

0

Share this post


Link to post
Share on other sites

Do you think it could be the peanut butter?

when I first started on the gluten-free diet (3 weeks ago) I went to a dietician and she wrote down the things that I could have and gave me a book to keep a food diary. It is the BEST thing I am doing. I have found so many food intolerances this way. Peanuts and soy are definate NO-NOs for me. When I look back in my food diary I can clearly see what I ate...the time I ate it..and the emotion I had afterwards. There is no guessing ( as I have done in the past).....maybe it's this...maybe it's that!

Yesterday I started with Almond butter. I didn't use that much because I was afraid but I think it was OK. I'll try it again today.

Still trying to figure it all out but at least I have a direction now!

0

Share this post


Link to post
Share on other sites

What do you do when you crave things you know are bad for you? I really feel like a lamington....

 

easy fix...buy the Patties brand gluten-free Lamingtons in the freezer aisle from Woolworths.  They are surprisingly very nice!

 

Obviously not a super healthy snack, but one is ok to fix a craving.

 

mlspattieslam.jpg

Here are the ingredients:

Patties Lamingtons Ingredients:

Water, Sugar, Strawberry Jam [sugar, Strawberries, Pectin, Citric acid], Dessicated Coconut (8%) [Coconut, Preservative (220-Sulphites)], Rice Flour, Maize starch, 

Margarine [vegetable fats and oils, emulsifiers (322 - Soy, 471), antioxidant (306-Soy), Colours (160b, 100)],

Egg solids, Cocoa (2.5%), Potato starch, Sodium bicarbonate, Fruit fibre, Acidity regulator (450), Thickeners (415, 412), Humectant (420), Emulsifier (471, 475 - Soy), Natural Flavour.

Contains: Egg, Soybean products and added sulphites.

0

Share this post


Link to post
Share on other sites

Hi Simon, Welcome to the forum. 

 

This thread you are replying to is ten years old.  Any information has probably changed since then, so please be aware of that, and also the people from the original discussion may not be around any more.  It is a good idea, especially when using the search function to look up specific things, to take note of the date.

 

I wish I was in Australia, though, because those patties look tasty :)

0

Share this post


Link to post
Share on other sites

Ok Laura, thanks for the heads up - I might do a separate post on these as they super delicious!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,365
    • Total Posts
      920,552
  • Topics

  • Posts

    • Well, I am stressed to the max. I just spent 3 days in the hospital with D and stomach pain, dizziness, chest pain, generally unwell. Then another trip to the ER on top of that. My protein was low and my RBC and hemoglobin dropped below normal in 3 days. Not terribly low, but below normal. I also had metabolic acidosis which still confuses me. I usually eat every 2-3 hours despite it causing pain to keep my energy up and was unable to eat that frequently in the hospital. I usually carry protein with me and had been taking liquid iron which I stopped a few weeks ago because my new endo is not a fan of iron supplements. As soon as I got home from the hospital I started with my protein drinks and blackstrap molasses for iron.  I now have bilateral mild pleural effusions and a nodule on my left lung, which hopefully is nothing, but was not there on a CT back in March. In addition, my left adrenal gland, which also appeared normal in March, is calcified and the report indicates this is most likely due to a previous bleed or infection. My colon appears tortuous (whatever that means) and we are waiting on colon/endo biopsies. I have been gluten-free since March except for cc so expect the biopsies to again be negative.  My primary care is useless. I am in the process of getting a new one I will see on the 7th but need the current one to fill out FMLA paperwork because I both physically and mentally need time to recover. I will have to go off of payroll for 2 weeks but I think I need to. I called the primary's office today to discuss the hospital tests which she does NOT have yet and to ask if we should/could start a low dose of prednisone because my body is attacking itself. My thyroid on ultrasound is also abnormal though my bloodwork thus far is normal. But it hurts on that side. The only reason the ultrasound was ordered is because I asked for it in the first place. The only reason I have started seeing an endocrinologist is because I found one myself. Anyway...I broke down in tears on the phone eith her today and she told me I was having a "manic episode". I have no history of mania. I only recently started taking xanax to help me cope with the stress of being sick. I was not sick until I did this stupid gluten challenge over the winter. My mother was in town and spoke with the doctor on the phone as well who was trying to get my mom to take me to a psych hospital. She also threatened to send the police to check on me. My mother assured her I was in no danger and we hung up the phone in complete shock. Admittedly, I was in tears when I called her and probably sounded like a fucking mess. But I believe I referenced the dropping iron, protein, fluid near lungs, enlarged thyroid and attacked adrenal gland then literally said "my body is attacking itself and I need help" to which she said, "I think you are manic". Lovely. If I was a mess before that phone call it was 10x worse when we hung up.  Anyway, this is the first night it has been extremely difficult to sleep. I admit my thoughts about my odd symptoms keep me up often recently. I mean, who the hell bleeds from or gets an infected adrenal gland?! I am sure it was another time I begged my primary for help. On a side not, the NP at the ER told me the primary should be putting these pieces together and communicating with my other doctors better. He then stated that he used to go to the same practice but left because the practice got too big and like a business. So I got some validation from that chat.  A melatonin or a .25 xanax usually does the trick for me to sleep but I am so disturbed about my interaction today, stressed at my health, stressed that my ex has our son so much because I am always sick (bless him for coming through), stressed that I have to go back to this awful doctor because I will need the FMLA paperwork before I see the new doc on the 7th.  8 months ago, I took a multivitamin when I remembered it and that was it.  End rant. Maybe now that it is off my chest I can finally sleep. 
    • Hi DKH0614, I use aspirin, Pepto Bismol, and peppermint tea or Altoids peppermints.  Pepto Bismol has a soothing effect on the gut.  Pepto Bismol also has aspirin in it.  Peppermint is helpful for relaxing smooth muscle tissue and getting gas out of the stomach. As per KarenG, you may be reacting to dairy.  Dairy has a sugar called lactose in it that some people with celiac have a hard time digesting.  You could try avoiding dairy for a few weeks to see if that helps.  Or try taking lactaid type pills when you eat dairy. It doesn't take very much gluten to cause an immune system reaction.  So it is important to avoid even traces of gluten if possible.  The stuff is hard to avoid sometimes if people around you don't understand how much a small amount of it can affect your body. Let us know if we can help with any  more questions, or if you have concerns we haven't addressed. And welcome to the forum! Also, if you subscribe to the thread (notify me of replies) you'll get an email when people respond to your thread.    
    • After a year and half, if you are eating gluten-free, you shouldn't be having pain from Celiac.  Perhaps you need to find out what is really causing your issues?  Dairy/ lactose is an obvious first place to look.
    • Hi! I am 15 and have been diagnosed with celiac disease for about a year and a half now and I am woundering what do some of y'all use to relive some of the abdominal pains that come along with celiac/gluten allergies?  ( Ibuprofen,  Tylenol, etc.) 
    • Hi Laurabella, Yes, you could have celiac disease!  It is important to keep eating gluten until all testing is completed, including an endoscopy with biopsy samples if the doctor recommends it.  The doctors usually do want the endoscopy.  The biopsy samples of the small intestine lining (4 to 6 samples) are checked for microscopic damage that indicates celiac disease.  Gall bladder problems can happen with celiac disease.  Your pain could also be from intestinal damage in any part of the small intestine. Some things you could try while you are waiting for your tests to be completed are stopping all dairy, and taking peppermint tea for gas in the stomach.  Celiac disease damage makes it hard to digest dairy sugar (lactose) and that can cause bloating and pain.  Constipation and diahrea are also possible fun symptoms. Welcome to the forum!
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,439
    • Most Online
      1,763

    Newest Member
    DKH0614
    Joined