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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Irritability & Weight Gain
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Hi, my husband was recently diagnosed with celiac, and has been doing well on the gluten free diet,(we're still learning) but I noticed that if he does happen to accidently ingest gluten, the next day he is bloated and very down/irritable which is very unlike him, he's a very good natured guy most of the time, and he says he noticed some mood swings too. So I was wondering if anyone else has noticed a change in moods after eating something with wheat in it after going on the gluten free diet? I was also wondering if anyone else has gained, or has a loved one who's gained weight after going gluten free? He's gained about 10 pounds since the diet.

Thanks! :)

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;) all normal---if you are doing well on a gluten free diet and you get glutened, it stands to reason that you would be down in the dumps--it's such a job to stay gluten-free and its a big let down to get glutened and yes--many people gain weight when they go gluten-free because they are eating better and finally food taste good again---some of us lose weight only because the gluten was keeping us heavy to begin--i lost 60# when i went gluten-free-----seems there are many symptoms for celiacs---some have this one, some have that one--some have many and some have few--try not to dwell on the bad days and be thankful for the good ones :lol: deb
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I also firmly believe that gluten does effect our emotions, maybe not with all people, but in my family, absolutely. My 15 year old explains it like this. No gluten, life if fine. With gluten, life sucks. He says he can literally feel his whole body becoming slow and depressed, which makes him think about how awful life is having to be gluten-free and having celiac disease and because he then has a dh flare up, he's even more depressed. My 10 year old becomes very irritable, unable to keep varying things in perspective, he's likely to have many more emotional meltdowns that take him a much longer time to get under control...exactly like he'd always been before going gluten-free! Even my husband feels more down, acts cranky (and he's Mr. Easygoing himself!)

I just realized it hits all three of my guys but not me or my daughter like this. I wonder if this reaction if more pronounced in males than females?

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Hello

When I have gluten, I actually gain weight. I am sure that half of this weight is edema but nonetheless weight gain, which is like 15 pounds in five days. ABout the irritability, it is an immediate reaction for me. Every second is like being trapped in a torturous prison that your conciously and subconciously aware of. YOu have rage about it, but you have no one to be angry at so you become irritable. The irritability is really like a desparate cry that you need help. A plea for someone to understand and drop all the other insignificant things and rescue you.

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I also gained a little bit. (I was in the normal range for my height before, still am) My dietcian said that's good, because it means my intestines are healing and absorbing more.

And, yes, emotional reactions to gluten are very common, as you've read here.

M

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When first diagnosed with Celiac I was extremely anemic and had lost 35lbs. Now after 8 years of being on the gluten-free Diet, I have gained it all back and some more. Everyone says that shows I am healthy now, but I am still overweight and not happy about it :angry: I have had to substitute many things in my diet and some were good and some have made me gain weight I think. :unsure: I went on the SouthBeach low Carb diet with my husband, he lost constant weight while we were on it and after being on it for months, I had not lost 1lb. :( ...I have been told my body is in starvation mode which makes it hold onto fat. Oh also the low-carb diet I had a problem with being regular, my digestive tract did not like all that meat and veges... and no bulk items like potatoes, bread, ect...Oh well, good luck to your husband, and you, and like they say, enjoy the good days...Nancy

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When I get gluten, I am irritable, my hearing bothers me, and sometimes even my skin gets ouchie to the touch. That might have to do with the DH. My son gets tired and cranky also.

Laurie

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When I get glutened I get terrible headaches that won't go away unless I take a prescription migraine medicine. I also get very irritable, I cry over everything and lose my patience and temper very easily. I also want to be left alone and hate everything, and then as quickly as it hits, it's gone. I feel terrible for my fiancee because I don't mean to be mean or "psychotic" I can't really control it, I know how I'm acting but don't stop. I hate that more than anything, I can get over not feeling well, but I feel horrible for a long time when I'm rude or impatient especially towards him. :( Thankfully he's very understanding and loving, poor guy...

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I wish my six year old would gain weight.

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Irritability and mood swings are just a symptom of gluten ingestion for me. Some doctors are wiling to treat the symptoms if they are bad enough. Otherwise, my spouse usually sees the change in moods before I notice it.

Best of luck finding a happy middle ground.

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I just had my first unknown gluten ingestion over the weekend. And it was time to call an exorcist. I didn't know what was wrong with me, but I was jumping down my husband's throat every chance I got and couldn't help it.

Before my gluten-free diet, I never noticed attacks of irritablity like now. But now when I have anything with gluten, I lose it - nearly literally. It's very strange but everyone here was very supportive and said, "It's okay. And it's normal." Then I relaxed, and it went as quickly as it came. It took a couple of days though for just one gluten food

BEWARE OF "MODIFIED FOOD STARCH". I thought it was safe. Nuh-uh. Make sure you know it's source. Mine was nacho cheese over the weekend, and my husband and I thanks to my dietician, figured out that it must have had gluten. And it did.

Good luck. Remind him that it is a normal response for us to act during one of those "fits" of gluten. When we put it in to perspective (my hubby and I) it was easier to handle - the next time a wave of temp. insanity hit. (humorously speaking of course.)

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    • How do you know what's causing what?
      I am in same boat, yesterday my stomach was churning and bloated and I don't know what the cause was.  How about keeping a food diary? Just note what you ate and how you feel. A few days may be sufficient to discern a pattern, either some rogue product or a previously unknown intolerance. I have read that after gluten is removed further intolerances which were hidden can become apparent.  I don't know whether you could cut yourself some slack from a full vegan approach whilst your body heals? If not, maybe you could substitute say milk with coconut milk or similar to give your body a break whilst keeping calcium levels high? If you join coeliac uk you can check your sauces etc on their gluten-free database, they'll also send you a book which became my bible until I got a hang of which brands I could eat safely. Finally, have you excluded cross contamination from pots and pans, toasters, shared condiments etc?  Good luck!
    • Blood results - odd
      My results were similar – Low ferritin but normal B12. Although my ferritin levels were low, my Iron serum levels were normal. So might be worth getting your iron levels checked out to see if you have any deficiency in Iron. Also I was deficient in Vitamin D, which is perhaps more of a problem in England rather than the US - Our milk isn’t supplemented with vit D and we obviously have less sunshine.
    • How do you know what's causing what?
      Hi Kam, If you are going to continue the celiac testing with an endoscopy, you need to keep eating gluten until it's done. It can be hard for vegetarians to keep their vitamin D levels up.   This Vitamin D  Council link has some good info on ways to boost your levels. https://www.vitamindcouncil.org/about-vitamin-d/
    • Blood results - odd
      Your ferritin was very low!  My result was a 2 when I was diagnosed.    I hard a hard time breathing and the fatigue was awful due to low hemoglobin levels.  But after going gluten free and taking iron for a few months, I quickly recovered from iron-deficiency anemia.  I still have hemologobin levels that are slightly below range due to Thalassemia which is genetic and my body has adjusted for it.   My B12 and folate levels are  super high.  My B12 is over 2000!  Yeah, I googled and ruled out cancers, etc.  Looks like some of us do not process man-made B12 often included in supplements.  I opted for natural sources of B-12 and folate and my levels have come down a bit.   Let us know your results.  Read the Newbie 101 section under "Coping" within this forum for tips.   Be patient.  It can take months, to years to feel good.  But it will happen!    
    • How do you know what's causing what?
      Welcome to the forum!   Well.....in theory you should be able to heal within a few months (grow new villi, etc.).  The reality is that it takes so much longer -- like a year or two (I kid you not!)  Why?  celiac disease can damage more than just the gut.  Depending on what was damaged (nerves, bones, etc) can impact healing time.  The gluten-free diet has a very steep learning curve.  It's not just giving up gluten.  It's avoiding cross contamination.  Becoming an expert in reading labels.  Learning to avoid foods processed on shared lines in a facility.  Then there are intolerances that most celiacs develop.  The most common ones is lactose.  Why?  The villi tips release the enzymes to digest lactose.  No villi tips?  Then you can not digest lactose.  Often this is temporary, but if you are one of the many adults in this world, you might already be lactose intolerant or might become so as you age.   Other intolerances that members often report include corn or soy.   Some celiacs react to oats, even gluten free.  So avoid oats for six months.  So, try cutting out dairy for a few days and see how you feel.  Then add in those items that have the least lactose:  hard cheese, butter, yogurt and see how you feel.   Avoid eating out for six months until you have seen some improvement.   Read our Newbie 101 thread under coping for more ideas!  Hope you feel better soon.   
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