Bracing For The Endoscopy
Posted 01 December 2004 - 02:43 PM
Question - do they have to look for celiac disease specifically or will they know it when they see it? Anyone know if the same goes for things like eos/ee?
I don't know whether or not to hope they find something. It would sure be nice to figure out what's been causing the failure to thrive as well as her irritability, etc.
For those of you that have gone down this road already, any tips, advice, questions or subjections I should bring up with the GI?
Posted 01 December 2004 - 07:42 PM
For questions to ask the GI doc.....
-I'd ask if he is doing multiple biopsies of the small intestine (This is important since some parts of the intestine may appear fine while others are damaged).
- If your daughter has a choice (like I did) to be sedated or not, choose sedation for her! Trust me on this one. I had partial sedation for mine. The scope wasn't painful but extremely uncomfortable, and I gagged through most of the procedure. I'm assuming they would give complete sedation to a small child, but you never know.
- I would ask when to expect results and if he could go over them with you.
- I would also ask when you could start a gluten free diet with your daughter (If you want to try it). I asked and I started mine the day of the scope!
I wish your daughter luck on the scope! She'll do fine
Diagnosed with Celiac Disease in March 2004
Postitive tTg Blood Test, December 2003
Positive Biopsy, March 3, 2004
Posted 02 December 2004 - 10:08 AM
Good luck. It will be over before you know it!
Posted 02 December 2004 - 10:31 AM
My suggestion would be to ask if you can be present immediately after the procedure for the recovery. If she is very upset by strangers this may make waking up easier. Also see if you can bring a favorite baby doll or toy to comfort her while being put under and during recovery. It seemed to help us.
It may make you feel better to know that however she reacts to the procedure, due to her age she will very likely remember NOTHING from the day.
Posted 02 December 2004 - 11:01 AM
Posted 02 December 2004 - 02:28 PM
For the record, we are going to be doing a biopsy (will ask how many samples). I was told by the nurse that the sedation will be partial but deep. Not my first desire, but considering that I don't believe my daughter has been put under before (she was in the NICU at birth) it may be best to forgo general anesthesia unless it's totally necessary.
Wish us luck tomorrow morning. I'll post an update when things settle back down.
Thanks again for everything!
Posted 02 December 2004 - 02:30 PM
Just wanted to add that I wish you luck as well next week. I hope it goes well and they find the answers you are looking for.
Wishing you and your little one good luck.My 15month old son's Endo and Sigmod is on Tues the 7th.I know they are taking 6 pieces for the biopsy and he will be sedated.The GI doc will tell us if he saw anything after the procedure as for the Biopsy results they will come back for us in less then 1wk.Take Care!
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