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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Brain Fog
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13 posts in this topic

B):huh: I just read a blurb from one of the forums and it was about how we get effected mentally by the gluten...It was put so eloquently that I could not have described it better:

There's also something called 'brain fog' that we all talk about experiencing, it makes us feel stupid, like we can't comprehend anything. This may be contributing to why she doesn't want to research this, it's probably too confusing and overhwelming for her right now.

Keeping in mind the above statement.............Now, that I have been away from gluten for a few yrs.....it is hit and miss at times.......But more times without gluten then with, I am having an extraordinarily hard time getting use to all the input that is coming at me all the time. It is almost like to much simulation at once. I can actually feel my brain stop info from coming in until I have been able to absorb what I have received. Then open up again for more info.

It makes it pure hell learning a new job. Makes me look like I am a dumb person at times......but I call it mind glitches because I don't know when it is going to happen and if I eat some gluten acccidentally........I appear very thick headed and dull...........bordering on stupid.

Now, that I am off SSI for asthma and no longer wheezing through the day.........I have to make a living and this is making it very difficult. Any suggestions. How have others over come this in the work place? Please e-mail me if you have any solutions. Swezzan

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i don't get how people say they feel that off gluten, i feel EXACTLY that way now (not on diet yet)....to the point where once i say something, i know what i'm about to say after but space out, so everythings all broken up and i can't even remember even though i do...hard to explain, but my memory/concentration is shot to hell and emotionally/mentally so off that i can't even explain if i tried....i assume from celiac, but i can't see how it would get anything but BETTER without gluten, or am i wrong?

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:o

I have been on a gluten free diet but every now and then I get glutenized without knowing.

It is like a trial and error thing.

this week I ended up fasting in order not to add any more in my diet. It is playing chaos with my working.

sometimes I am smart enough to do the teller job and other times I am as dumb as a board.

And now that i can see the difference in my mental capacities I am as frustrated as ever.

But hey, I will learn and deal.....that is life. I am healthier and can move and breath so life is good........but challenging. C'est la vive!! :rolleyes:

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Brain fog is terrible. I feel a bit better, or much better, from it now this far along on the diet.

"Teflon brain" is another thing I notice I get. Things just doesn't stick.

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Teflon brain.....I like that. I have the double whammy of being hypothyroid as well as Celiac and brain fog/overwhelming fatigue is a symptom of both although am slowly getting better

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I definitely get this. When I'm like that I feel like I can't talk to people. I won't be able to communicate effectively anyways, and it just feels like trying would take this huge mental effort that I just can't bring myself to make. And if someone tells me I need to run an errand it feels like the end of the world (lol). :o If someone's telling me something that I'm going to need to remember, I ask them to tell me later. :(

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Word people! I go through the fog alot, i guess i'm still eating something with wheat or gluten in it.This is so terrible.. :(

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sorry to hear that Greg. Hope you can find your triggers and get rid of them!!

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Definitely difficult to learn a new job or remember much of anything with this so called "brain fog". My doctor did run a test and found that I had extremely low folate which can lead to memory problems. I have been taking folate now for a couple of months and haven't been retested but I believe that it has helped some.

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Hello everyone,

Ididn't make it as a Teller. Brain Fog and Teflon brain defeated that attempt. But don't worry tomorrow is another day.

Learning our triggers seem to be what we need to do. Dumbie me, a friend of mine had back surgery and I thought I would help by cleaning the cat litter. She had been in the hospital for 5 days and it was pretty awful when we went into the house of 5 cats.

I know she was in misery after back surgery but somehow I still think she should have realized that the litter she chose was "Wheat Litter". Needless to say, I was weakbefore I finished the cat box and after 3 weeks still not fully recuperated. Apparently, it weakened my immune system and I have a good cold and wheezing some. Haven't had either in a few years since not eating gluten. I guess breathing it and for the length of time was drastic to my system. My face broke out with large pimples. Live and Learn I guess. I am glad I helped my friend but next time I will ask questions before I attempt to do something I usually don't do.

I hope all of you are getting some fix on how to avoid the brain fog and teflon thing. I feel better knowing that I am not dumb........just stunned for a time see you all later and good luck and let me know how you are all doing =)

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It's frustrating when you KNOW you're smart and your brain fog gets you.

I used to call it my little black cloud.

Now I know what it is.

I feel for anyone with this problem! My sister has it worse than I do...

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I donty know If I have this but I get basically

I make a statement

its challenged

tough time thinking of reply

I am constantly CONSTANTLY i tell you 'searching for the right word' all theee

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I found a great article on "brain fog" from Linda "the gluten free homemaker". I reposted it and added my own comments on my blog: http://switch2glutenfree.com/mikes-journey...-eating-gluten/

Here is an excerpt and decent medical explanation...

"Intestinal permeability is part of the reaction that takes place when someone with celiac disease eats gluten. To put it simply, molecules that should be kept within the intestines are able to

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      Hi Cristiana, You are quite right, there could be something wrong with the batch. I have often wondered this myself when I've had symptoms. A lot of manufacturers recall products when they find contamination issues, I often wonder though, how many products 'sneak' under the radar and no-one knows for sure; it could be the reason why so many of us wonder what we did to get 'glutened'. 
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      I was explaining that some people have other trouble that is immune related and caused by eating gluten, but doesn't effect the gut in a noticeable way. According to the paper that I quoted there are some people which have different types of brain problems but don't have inflammation when tested by a biopsy.  The author used the term "non-Celiac gluten sensitivity" to refer to anyone who has any brain trouble that can be traced to gluten but without obvious gut inflammation.  There are a lot of different possible ways gluten can effect the brain some may not be related to the gut.  It could still be an immune system problem.  Normally "non-Celiac gluten sensitivity" refers to just a food intolerance.  Withdrawal symptoms are not normal and could be indicative of an immune system response of some sort, but I don't know for sure.        
    • Weird Reaction
      Hi Richie I've put the above in quotes as you have described in the first and second sentence how I felt six months prior to my DX.   In my own case, in the end I concluded it was anxiety after consulting Dr Google!  It was such an alien feeling to me, I couldn't even think what it was, particularly as life was pretty good at the time.  Anxiety is a problem for a lot of celiacs prior to diagnosis, and often after glutening after going gluten-free. You mention breathlessness, this of course can be for reasons such as anaemia (again a common celiac problem, I had this prior to DX) but of course also can arise if you are anxious.   Re 'gluten free' - Flowerqueen is right, from what I have read on this forum some people really do seem to react with less than 20ppm.    But perhaps some other things to consider...  could there be something wrong with the batch you have consumed?  Might it be worth contacting the manufacturers?   That said, you could , as Flowerqueen suggests, have a problem with another ingredient, in the product or something else you consumed. In the past I have had a terrible reaction - fever, trembling, diarrhea, stomach cramps that lasted up to three hours the last three times I ate..... broccoli, of all things.    Who would have thought that possible?  I have often thought I should try it again, just to be sure it was the broccoli, as it is a 'super food' that I ought to have in my diet, that I like very much, but the thought of having such a reaction again has put me off. I do hope you will find some answers soon.  
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