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Dietician List Of Foods To Stay Away From


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6 replies to this topic

#1 Rindy

 
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Posted 15 December 2007 - 10:27 AM

I am newly diagnosed Celiac with a biopsy, so I am just now learning everything as to what I can and cannot eat. I met with my dietician the other day and he gave me a lot of handouts to read! A couple things that were on there, wondering if anyone knows the answer are.....is Metamucil okay to take (or store brand)? I have seen controversary on this, some say yes, some say no. Also, does anyone know what packaged suet is? We grind our own wild game and get suet from the store, but it is just trimmed from meat they are wrapping each day. I am looking forward to this site and help along the way. [email="rbessler@wyoming.com"]
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#2 blueeyedmanda

 
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Posted 15 December 2007 - 10:33 AM

Hi Rindy,
Welcome to the board. I am not sure of the answer to the question about seut but someone one here probably does. Good Luck
Amanda
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#3 Guest_j_mommy_*

 
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Posted 15 December 2007 - 10:48 AM

This is a list of safe ingredients:

http://www.celiac.co...ents/Page1.html

This is a list of unsafe ingedients:

http://www.celiac.co...ents/Page1.html

This is a list of safe alcohol:

http://www.celiac.co...ages/Page1.html

List of gluten free medications:

http://www.glutenfreedrugs.com/

I find that it is easier to know the ingredients that you can't have.
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#4 kbtoyssni

 
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Posted 15 December 2007 - 11:20 AM

I'm not 100% sure about the suet, but some bird seed does have wheat, but you can find stuff without it. I'm not familiar with brands, though. I'm not sure if you get the kind with seed in it.
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Gluten-Free since September 15, 2005.
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#5 Rindy

 
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Posted 15 December 2007 - 12:19 PM

I see Metamucil is listed as a safe medication, but I got information from a website celiacsyndrome.com that it was on an unsafe list. I'm still confused.



This is a list of safe ingredients:

http://www.celiac.co...ents/Page1.html

This is a list of unsafe ingedients:

http://www.celiac.co...ents/Page1.html

This is a list of safe alcohol:

http://www.celiac.co...ages/Page1.html

List of gluten free medications:

http://www.glutenfreedrugs.com/

I find that it is easier to know the ingredients that you can't have.


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#6 ravenwoodglass

 
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Posted 15 December 2007 - 12:44 PM

I see Metamucil is listed as a safe medication, but I got information from a website celiacsyndrome.com that it was on an unsafe list. I'm still confused.


Welcome to the board. When in doubt do without until you are asymptomatic at least. There is a factor about sensitivity levels and they can vary from person to person. There are other things that might be able to help that are for sure gluten-free. Flax seeds come to mind, they can be ground and added to smoothies or baked in stuff or even just sprinkled on cereal. If you want the Metamucil because of irregularity the diet itself may do away with the need. Get plenty of water and fruits and veggies, usually cooked are better tolerated at first. Things may be up and down for a bit at first, that is normal as there is a need for a lifestyle change for most of us. The gluten free world can be confusing at first but once you are feeling better the changes are so worth it.
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Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#7 ENF

 
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Posted 16 December 2007 - 10:32 PM

I am doubtful about the accuracy of gluten free drug lists. At least one of them (referenced in a post above), http://www.glutenfreedrugs.com/, still has Xanax listed as gluten free - which is wrong.
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Celiac diagnosis from positive blood work & endoscope (2005)

Serologic equivalent: HLA-DQ 2,3 Subtype 2,8 (double Celiac genes)




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