13 replies to this topic

[Twister2]

HI all! I have been relatively gluten free for about 2 weeks now, but I still feel like am in the dark about being "totally" gluten free. How long did it take for you to get the gluten worked out in your diets? It seems like so many Celics sometimes disagree on some products that are "safe".

Cheers!

Twister2

[haans42]

Hi,

Wow, I think it takes years to get this completely figured out. There is gluten in lots of foods you would not expect. Some medicines and vitamins use starch as a binder, this starch may or may not be gluten-free. Carmel color may be made from wheat, the list goes on and on. Cereal with malt flavoring is not gluten-free. Many soy sauces are made with wheat. Basically if it is a processed food and is not labeled as gluten-free read the ingredients very very carefully.

Haans

[FreyaUSA]

Eight months gluten-free and this entire last week I've been symptomatic! No idea what I've gotten in to, maybe it's something that has changed its ingredient supplier recently. So, eight months apparently is not long enough

[pixiegirl]

Well I'm about 8 weeks trying to gluten-free and I was doing well until Thanksgiving, but I think, generally.... I have a good idea of what is what. I'd say if it wasn't for reading this list every day I'd still be so far in the dark.... I've really gotten a good handle on how wide spread gluten is from all the posts here.

I've also come to realize that people who have been gluten-free for years sometimes can get glutened accidently. So I'm just going to do the best I can. I've copied all those big lists and am making a sort of Master list for myself.

Susan

[darlindeb25]

sorry twister---i have been at this for over 3 years--3 yrs 4 months, to be exact and i still make mistakes--manufacturers change ingredients without telling us-- what are they thinking--anyways, sometimes we become to trusting of a product and may not look at the ingredients for a while and bam they change it or they have a product that looks so much like the other and it has gluten---i barley'd myself and didnt know it for 2 weeks, it didnt have the same effect on me as wheat--it didnt give me any symptoms, but i bet it was in there telling my villi to lay down and now i have finally realized i have to be soy limited too we celiacs can never let our guard down and we are always learning--this is our lifestyle like it or not---it does get easier, but we always have to watch deb

[mommida]

I've been trying to be gluten free for about 12 months. I forgot to check out the lip gloss I wore yesterday. No need to call the manufacturer, since I reacted to it.
The thing that bothers me most is the codex system rating for "gluten free" foods. As long as the product is within the range of parts per million it is labeled gluten free.
Laura

[FreyaUSA]

Nancynet, I've been using DaVinci brand of flavored sugar free syrups (sweetened with splenda,) I called the company and they are all gluten-free. I've also been using the splenda packets never called them! Do you know if this has gluten? I guess I call the company Monday. (Maybe that's what's been getting to me this past week? I hope not.)

[lilliexx]

splenda is gluten free.....( unless somethings changed very recently)

anyway...in my first few months of being gluten free i was soooooo careful!! but in the last month i havnt been that careful ( stopped reading labels, becuz i thought i had it down) but i have been having pretty bad stomach problems in the last couple weeks. so even when you think you have everything figured out, you still need to be careful. i always learn my lessons the hard way

[darlindeb25]

geez. i about flipped when i read equal contains gluten ---then i was relieved when you said maltodextrin ----maltodextrin in the US is safe --it is made from corn--i believe they must state if it isnt made with corn, anyways, my sister the dietician checked it out and it is safe --i know that equal, nutrataste, sugar twin, splenda--most all sweeteners are gluten-free---i dont want to go back to sugar deb

[tom]

I ended up making 2 gluten mistakes after starting gluten-free.

At the beginning tho, i felt SO much better it didn't occur that gluten was still sneaking in. Then maybe 2 mos in, i'd realized that i'd plateaued and started rechecking EVERYTHING.
Although i was sure i'd checked every ingred in every pill b4, i ended up finding that the Vit C i'd been taking every day had a modified food starch that turned out to probably be from a grain source. (wheat or barley, not corn)
Ahhh here's the quote:
The only Longs Drug Stores brand of vitamin C that contains modified food
starch from a gluten-containing grain is Longs Vitamin C 500 mg tablets
with a product ID number of LG 4210 PL 440. This is according to Liener
Health Products, the manufacturer of Longs Drugs Stores vitamin C.

So w/ a gluten-free replacement, i started feeling like i was getting better again.

The other error was caught much quicker. Silly mistake and i like to blame it on the fog still bein around at the time. I'd checked toothpaste prev and it was fine. THen it ran out and i just grabbed the tube i had layin around. I didn't check it. I think it was Aim, but whatever brand it was i know it wasn't on the safe lists i've seen. Second day in, i realized what was different and checked it and stopped using it and i think i've been 100% gluten-free ever since.