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Testing Baby For Celiac
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Hi. I am a new member. Just diagnosed with celiac disease last week after antibodies and biopsy. Developed symptoms after pregnancy. Now I have a four and a half month old baby and I am wondering if I need to get him tested. he is still only getting formula and breast milk. Is there gluten in similac? If not, he would not be expected to have antibodies if he had never been exposed to gluten. He is growing very well as of now. Can anyone help?

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Whether or not your child is getting gluten, this is WAY, WAY too young to have him tested. The tests would not be accurate. 20 months at the earliest if he starts having symptoms. And don't deny him gluten just because you have it.

Your child should be tesed eventually (as should ANY first-degree relatives), but barring any symptoms you should wait at least two years, maybe more.

richard

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I had reactions as soon as I was on formula. . .so my mom had to find a special one (this was 19 years go). You should really talk to your doctor about when to test.

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I would definitely talk to the doctor and I would definitely get him tested when he gets older, symptoms or not, but as long as he's growing well and symptomless, he's simply too young to worry about testing now. Relax and enjoy.

richard

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Thanks everyone for your responses. The doctor said we should start introducing food as we normally would ( a little more carefully b/c of my other allergies). I guess I am just worried that he will get sick and I won't pick up on it right away and then he will become malnourished which at his age could be very detrimental. I know I am overreacting, but I am still getting used to the idea, I guess. I definitely don't want to deny him stuff, especially if he doesn't have it. I have tried talking to my brother about himself and his son, but didn't get a very good response. He said neither of them were sick, so why should they go get tested? Any suggestions? Thanks again, Linda

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You can't do much more with your brother than tell him that the NIH and all celiac experts say first-degree relatives should be tested (the son doesn't need testing unless your brother has it). My father, brother, sister, son and daughter, none of whom had obvious symptoms, all got tested and my father was positive.

richard

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    • I eat them with no issues and know several other Celiacs that eat them with no issue.
    • I am sorry that you are sick! i think you need to really adhere to a gluten free diet that consists of ONLY whole foods (no processed gluten-free foods) and do not go out to eat, until you start to see improvement.  Each tiny gluten exposure can set you back.  It sounds like you really became even more ill after the gluten challenge.   I was just anemic when diagnosed.  I waited seven weeks for my endoscopy due to work issues, so i took the time to consume lots of gluten.  Like a loaf of sourdough per day not to mention all the cakes, cookies that I loved.  (Okay, I just ate a few out of each package......)  by the end of seven weeks, I knew I had celiac disease.  I had a bloated stomach visible under my left rib cage, pinching when I bent over, indigestion, etc.  Not to mention some weird Fibro pain my my shoulders, tingly legs, etc.   Most resolved, but it took about two years. If you  ask for thyroid panel, be sure it includes testing for thyroid antibodies.   
    • My daughter, who is almost 21 and has celiac disease, was diagnosed with Epilepsy a year ago. Hindsight being 20/20, we realized she had been having seizure since she was a teenager but the random passing out and feelings of being 'out of it' were attributed to dehydration or poor nutrition and sleep habits during numerous trips to the emergency room. In our reading about Epilepsy, I have found some mention of celiac and gluten issue connections and even where a strict adherence to a gluten-free diet provided a lot of improve the with frequency and severity of seizures.  I would be interested to know if anyone else shares this experience.
    • I have also reacted to various Planters products, believing them to be safe because gluten is not listed in the allergens but have had almost identical reactions to yours.  It did not occur to me that I might be getting zapped from them until just recently when I ate some of their Salt and Vinegar almonds and became really ill and then recognized that I had reacted to them before. I have notice in the past few months that the 'Hermans' brand nuts, which have never mentioned wheat in their allergens now carries the 'processed in a plant that processes wheat' disclaimer.  It makes me wonder if all nuts are processed in the same manner and if all nuts and nut products should be considered unsafe? I know that I will not trust the Planters brand any longer regardless of whether wheat is listed or not.
    • I've heard some people say that they're gluten free, and some say they're not.. I had a container of planter's cashews that I ate a few days ago and I haven't been feeling that great since then. I thought I was fine, but yesterday I woke up with a headache and was feeling really gassy all day. Then since last night, every once in a while I'll have some stomach cramps. They last for a few minutes and then go away.. that has happened 3 or 4 times since last night. It seems weird that I wouldn't have a reaction right away though.. or at least within a few hours of eating them. I ate some on thursday and on friday, and I didn't really start to feel sick until saturday. It's been a while since I last got glutened though, so maybe my reaction has changed? Or maybe I'm being paranoid and I just ate too many cashews haha. But that's the only thing I've eaten in the past like 2 weeks that was different. Has anyone else had a problem with planter's nuts?
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