Posted 07 February 2004 - 12:26 AM
It occurred to me just today that about 2 years ago I reintroduced cheese into my diet and because it had no neg. effect on my digestive system I assumed I had healed enough from the gluten-free diet to tolerate it again...I never could tolerate it at all before....well I have read some info on arthritis being the result of food allergies, etc... Any wisdom at this point would be appreciated...I am barely functioning much of the time and desperate for anything that might give me a direction to go in to find results...getting mighty tired of waiting...
Thank you...so glad I found you folks.
Posted 07 February 2004 - 06:54 AM
My main complaint for years has been mucle pain, joint aches. It got so bad after I had my daughter that I couldn't pick her up. I saw a new dr. yesterday who tells me that these are classic symptoms of celiac disease!
I can't tolerate dairy right now, I'm in the process of healing up, but the dr. said there is the possibility that I may not ever get it back. Also, check into casein.
I was on arthritis medication for years and although it got me back to the point of functioning again, I just never got completely better. I was just recently diagnosed with celiac disease and it all makes sense now.
You'll be in my prayers,
Posted 07 February 2004 - 11:14 AM
allergic to milk protein prior to becoming celiac disease
The milk protein you are referring to is casein, right? In which case this is a lifelong intolerance. The reason being, that casein is a similar molecular structure to wheat gluten and therefor your body will see it as the same and you will have similar symptoms as if you were eating gluten. I don't think it causes the same intestinal damage, but symptoms will occur. The cheese could very well be what has cuased the other problems, and you might be wise to eliminate it once again.
I am also casein intolerant (as are many Celiacs) and it was very hard for me to accept that diagnosis. I like dairy products, and to have to give them up, along with all the gluten foods was very hard. Butter, cream, yogurt, cheese, cream cheese... all those foods would make eating gluten-free much better, but I want to be healthy, so I try to be dairy free as well as gluten free. I do occasionally slip with the dairy, and I think I will take your situation to heart. I don't want to spend the rest of my life suffering and if cutting dairy 100% will help, then I will do it.
I have had problems with pain in my joints since I was 4 years old. I now know this was caused by the gluten/casein.
I hope you feel better soon.
Mariann, gluten intolerant and mother of 3 gluten intolerant children
Posted 07 February 2004 - 04:06 PM
Posted 17 February 2004 - 07:11 PM
I am totally wasted today from the 8 hours trip to the specialist yesterday but over the past 12 days or so of being dairy free again and not taking any gluten lased vitamins I have been progressively improving...have a long way to go tho and we are hoping that all the other weird blood tests will slowly return to normal too if the celiac disease has been the root of all of this...and not some other funky autoimmune probs...So far blood tests have shown that I have elevated parathyroid hormone, increased cortisol, extremely high folate (which makes no sense at all), too much creatinine. I am also osteopenic, have osteoarthritis, hypothyroidistis and vitilago...the hypothyroidism and vitilago have been around a while...the other stuff is new in the last two years.
Anyone else here every have a return of symptoms after a period of feeling great? My problem was that different symptoms showed up the second time around...mostly musculoskeletal...which threw me off...I was thinking no gastro probs meant I was doing ok with the celiac disease and developing other things....My gastro looked at me when I explained these symptoms and said well it sounds like you need a rheumatologist and a neurologist....hmmm...and all these symptoms are evidence of malabsorption are they not which is a gastro prob? Gotta love doctors...
Yes, there is hope...I had a year of great health after being gluten free for two years in which I saw steady improvement. I have been getting bits of it in hidden places...I have resigned myself to avoiding any packaged foods that are not expressly made by gluten free manufacturers...have a great gluten free company called kinnikinik that I don't think I have problems with...I am keeping a journal of everything that goes in my mouth and recording symptoms...assuming that I remember, that is...I am way more educated than I was a few years ago thanks to the internet...I also have an MD at the moment who seems to know more than the gastro dr...and who is determined to get to the root of all this... thankful for that...
Any old veterans around here who have dealt well with this for long periods of time??? Would love to hear anyone's input...
Posted 18 February 2004 - 06:46 AM
Posted 24 February 2004 - 08:29 PM
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