Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Couple Days After

norcalballa23

Recommended Posts

norcalballa23 Rookie
norcalballa23
Posted

Well to sum up how i was feeling, im 17 and all i was eating macaroni n cheese which has wheat in it. the past week iv been gluten free and am feeling prob 60% better which is great. im going to the docter in 2 days and he has no idea iv gone gluten free. so im worried it wont show in any future tests ill be doing. I definitely dont want to go back on gluten. my life has been hell the past 6 years. it got so bad i even thought of killing people, i was so insane of feeling like poop. and now i feel like i did in 4th grade and im just really happy to be getting better. i just want to know if this is enough for a diagnosis.

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

If the diet is helping you then you have your answer. If you do not feel the need to have a doctor confirm then just go ahead with the diet, you don't need anyones permission to not eat something that is poisoning you. Response to the diet is the real true test of whether it is needed or not. In addition if you are sent to a GI for confirmation most will want you back on gluten for testing that may or may not show up accurately anyway.

If you have only been gluten-free for a week you may want to consider calling your doctors office first thing in the morning and requesting a lab slip for a celiac panel. Then get your blood drawn immediately even if you need to wait a bit for an appointment. If you have only been gluten-free a week they may still pick up antibodies, if you are a person who would show up positive in the first place. Another thing to bear in mind is that your doctor knows your history, he knows how bothered you have been by the issues you have been having. Some doctors upon resolution of those issues will be smart enought to agree with celiac or gluten intolerance and consider that enough for diagnosis. So do talk to your doctor about it, even if you don't decide to go back on gluten, dietary response is valid and you may not see a whole lot of him after your gluten-free for a bit.

Link to comment
Share on other sites
norcalballa23 Rookie
norcalballa23
  • Author
Posted
If the diet is helping you then you have your answer. If you do not feel the need to have a doctor confirm then just go ahead with the diet, you don't need anyones permission to not eat something that is poisoning you. Response to the diet is the real true test of whether it is needed or not. In addition if you are sent to a GI for confirmation most will want you back on gluten for testing that may or may not show up accurately anyway.

If you have only been gluten-free for a week you may want to consider calling your doctors office first thing in the morning and requesting a lab slip for a celiac panel. Then get your blood drawn immediately even if you need to wait a bit for an appointment. If you have only been gluten-free a week they may still pick up antibodies, if you are a person who would show up positive in the first place. Another thing to bear in mind is that your doctor knows your history, he knows how bothered you have been by the issues you have been having. Some doctors upon resolution of those issues will be smart enought to agree with celiac or gluten intolerance and consider that enough for diagnosis. So do talk to your doctor about it, even if you don't decide to go back on gluten, dietary response is valid and you may not see a whole lot of him after your gluten-free for a bit.

Yeah i actually already had blood drawn for celiac and stool tests, i just couldn't stand waiting even longer for the results that i still dont have. hopefully the bloods come back positive and i can be diagnosed.

Link to comment
Share on other sites
ravenwoodglass Mentor
ravenwoodglass
Posted
Yeah i actually already had blood drawn for celiac and stool tests, i just couldn't stand waiting even longer for the results that i still dont have. hopefully the bloods come back positive and i can be diagnosed.

Just make sure you remember that there are a lot of false negatives with blood work. No matter what your test results you need to do the diet for a couple of months. Your results from the dietary exclusion are going to be the most valid result you can get. You have already seen a bit of improvement gluten-free so stick with it even if the tests say you don't need to. Inadaquate testing in the US leaves a lot of us suffering needlessly for years.

Link to comment
Share on other sites
GlutenWrangler Contributor
GlutenWrangler
Posted

Go with what feels right. Follow your gut, and don't worry if your results come back negative. False negatives are very common. Just don't let a doctor tell you that you don't have it. Good luck,

-Brian

Link to comment
Share on other sites
norcalballa23 Rookie
norcalballa23
  • Author
Posted
Go with what feels right. Follow your gut, and don't worry if your results come back negative. False negatives are very common. Just don't let a doctor tell you that you don't have it. Good luck,

-Brian

yeah man, i feel like i did in 5th grade. i guess iv felt like crap so long i got used to it. this diet is doing wonders.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      121,176
    • Most Online (within 30 mins)
      7,748
    a-ball
    Newest Member
    a-ball
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • awright24
      Anyone had endoscopy with a cold/cough???

      By awright24 · Posted

      I have my endoscopy on Thursday, has anyone had the procedure done with a cough? I don't have a continuous cough, but every now and then throughout the day I have sort of coughing episodes. They are a lot better than they were but I called endoscopy and they said to speak to my gp and my gp got back to me and said I need to ask endoscopy if its ok if I have it done still.  Help!
    • MMH13
      Not Sure What to Think

      By MMH13 · Posted

      Thank you so much, everyone. For the moment my doctor just has me taking iron but hopefully we can reconnect soon. I'm going to look into genetic testing, too. Great advice all around and I appreciate it--and you can bet I'm going off the PPIs!
    • Eldene
      Sore muscles

      By Eldene · Posted

      I walk fast for fitness, 4 to 6 km per day. I am also 74 years old. Apart from the Celiac challenge, my lifestyle is healthy. I had a sciatiac nerve pinching under my one foot, with inflamation in my whole shin. It was almost cured, when the other shin started paining and burning. I do stretches, use a natural cooling gel and rest my feet. Can Celiac cause muscle pains/inflamation, or is it just over-excercising?
    • LovintheGFlife
      Trader Joe's grocery prodcuts

      By LovintheGFlife · Posted

      I recently started shopping at a nearby Trader Joe's store. I was surprised at the number and variety of (healthy) gluten-free options sold there. I must admit their low prices are also quite tempting. However, I am curious as to the labeling on all their packages. While none of their products are certified as gluten-free, many are identified as 'GLUTEN FREE' on the packaging. Are these items safe for celiacs? Has anyone tried Trader Joe's products and have there been any adverse reactions?
    • Beverley Ann Johnson
      Gluten challenge

      By Beverley Ann Johnson · Posted

      HI, my doctor suggested one week of consuming gluten before blood tests.  I have been gluten free for 3 years.  Has anyone been through this and will I get exact results after one week of consuming gluten?  I don't even know if I can do this, if I get sick I am not sure if I can continue, any suggestions??  Thanks in advance.  
×
×
  • Create New...