Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Medication?
0

8 posts in this topic

My teenage son has dh. Since going gluten-free 5-6 months ago, his skin has pretty much cleared up, almost completely. Unfortunately, since going gluten-free, whenever he accidentally gets glutened, his reactions have become increasingly more severe. Yesterday, he suddenly broke out in a sweat, starting getting a migraine, developed a full body rash of tiny red dots (from his ankles to his hairline) AND the usual patches of "typical" itchy dh spots have become much MUCH larger (he also gets all the GI fun too, lucky kid :( ) He was so miserable last night! Does anyone know of anything out there to help lessen the dh effects? We've not been to a dermatologist, but we will if it would be recommended (but I've been unimpressed with the knowledge of most doctors concerning celiac disease.) Any help would be most appreciated!

0

Share this post


Link to post
Share on other sites


Ads by Google:

When I was diagnosed as celiac my dr told me about the rash.He did not know that I had had the rash for 8 months.I did not know what it was.He gave me a scrip for "lotrosone cream".It was wonderful.It helped heal and stop the itch.Maybe this can help your son.This has to be really hard for a child.You have my sympathy.Hope this helps. : ;)

0

Share this post


Link to post
Share on other sites

Hi Freya,

I don't know of any creams to help your son's itch, but I'd like to let you know that I'm thinking and praying for him, and you.

I have a small patch on my ankle and it drives me almost mental when it is at it's worst.

Maggie

0

Share this post


Link to post
Share on other sites

Thank you, Bratcat, for the cream suggestion. I'm going to give the doctor a call today and get a prescription. And, thank you Maggie and Bratcat for your kind thoughts! Yesterday he went to school, but he's home again today. He also gets very depressed from the gluten (when otherwise he's a really upbeat, together kid) and, though he might "feel" good enough to go to school, last night he had an emotional breakdown and I gave him an extra day home. :(

0

Share this post


Link to post
Share on other sites

I know everyone here suggests being totally gluten free, which I support and which I am doing. But I have to say that Dapsone was extremely effective in treating my DH and starts to work within 24 hours. I never had any side effects whatsoever, even though I know there can be severe side effects. The side effect that is so bad is that it could make your white or red blood cells (can't remember which) "explode" which results in anemia and who knows what else. But, they check your blood to make sure you don't suddenly become anemic - that would be the sign that you're having the side effect.

I would ask a doctor or dermatologist for Dapsone. It will help when he has "accidents" w/gluten. He can have his blood drawn once a month for a few months to make sure he's not having the side effects. Like I said, I never had any problems with it and was much happier using the Dapsone than being totally gluten free. I would be using the Dapsone if I were not trying to get pregnant.

Good luck!

0

Share this post


Link to post
Share on other sites




AustinDH, do you have to take the dapsone every day even when not having a reaction?

0

Share this post


Link to post
Share on other sites

How often you have to take dapsone and how much depends on the individual. I took mine only every third day or so even when I was eating gluten every day. The tiny red dots don't sound like DH, though, at least not the way I had it. You sure he's not also having an allergic reaction?

If your son took the dapsone only when he starts an outbreak, he'd still suffer some but not as long and not as much. The DH should cease to be a problem after he's been strictly gluten-free for a while.

richard

0

Share this post


Link to post
Share on other sites

The little red dots aren't technically DH. It had been diagnosed as keratosis pilaris some years ago. However, since they flare up whenever he eats gluten, they are somehow gluten related (who knows, he may have a wheat allergy on top of celiac disease.) But, he does have the regular DH breakout reactions, too, on his hips, knees and "other areas." (I didn't press for more info, I could see the ones on his hips though, NASTY!) Injury to insult, I suppose. The little dots don't seem to bother him much (except visually.) The DH spots drive him crazy though.

I'd be willing to get the dapsone if it wasn't something he had to take all the time, but just during outbreaks. Thanks for the info, Richard! Any shortening of reaction time would be wonderful for him.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,636
    • Total Posts
      921,534
  • Topics

  • Posts

    • I have 2 insurance policies, one with my husband's company and one through mine. I also stretch out the more major work into the next year, so I can make the most use of my benefits. So, a dental implant for me takes about a year for me to complete.  I have the post put in at the end of one year and the tooth made about 6 months later. Honestly, the insurance company probably hates me because I max out my benefits every year. You do what ya gotta do!  I still have to pay for some of the work out of pocket but about 75% gets covered. If you pay cash for procedures then they usually charge a lower price. Haggle with the dentist over price. They like getting cash.
    • Did your doctor check for SIBO, H. pylori, ulcers, etc. when he was obtaining biopsies to check for celiac disease?  
    • Oh, and as I mentioned in my own post on pain, xanax. I swear. I tried it just to deal with the occasional panic I had at weird scary symptoms and clueless doctors. I am not a fan of long term use. But I recently found that .25 mg seems to aid with the neuropathic pain. It does not go away, but it helps. 
    • It does sound like a Glutening and you are just a few months into the diet.  It might help if you read our Newbie 101 thread under the "Coping" section.   Here is some information about rice milk: https://www.verywell.com/is-rice-dream-gluten-free-562354 Many, many celiacs are often lactose intolerant temorarily or permanently if you are naturally genetically inclined.  When I am glutened, I lose the ability to digest lactose for a while.   Salad?  Great but it can be rough on a sore gut!  Think soups, stews, easy-to-digest foods that you prepare yourself until you feel better.  Did your folks give you salad after a bout of flu?  Or did you stick with jello and broth?  I am intolerant still after three years to garlic and onions (the lactose resolved, thankfully).  You have a leaky gut (Google zonulin and Dr. Fasano who is a leading celiac researcher to verify that this is true) and that means you can become intolerant to anything (hopefully, just temporarily).   If you are 100% sure that you have had no access to gluten....did you eat out lately?.....then see your doctor.  Remember, celiac disease symptoms can change.  And here is the biggie.....it can take weeks, months or years to heal from celiac disease.  Two months in is nothing, really.  Why?  It takes time to figure out the diet and time for antibodies to come down.  celiac disease is an autoimmune disorder triggerEd by gluten.  once triggered it can go on and on damaging your gut especially with repeated glutenings (accidental or through cross contamination). I hope you feel better soon!  
    • I concur! I literally feel your pain as well. Like, at the moment, lol. Did you have an endo to see inflammation or damage? I am close to begging my GI for carafate or something to coat and protect. How about testing your antibodies to see if they are still rising? I read somewhere here rice milk may not be a good option.  Folks here have also suggested to me to stick with whole foods. Limit processed. Especially stuff that is not certified gluten-free, like chex. I think small amounts of gluten are in processed foids and can add up. I too reacted to lettuce the other day like I was ingesting glass. My sibling  had a food sensitivity panel done and it came back positive for a few things he had been eating a lot of. He can now eat them, but had to cut them out of his diet. Lettuce is probably on mine.  I have been drinking carrot and pomegranate juice,  dandelion root tea with hiney, aloe water, lots of squash, fish. Mild, no garlic, no onions or hot sauce. No coffee. It sucks.  Inflammation can tick off other organs, you mention a "Pain below". Not exactly sure which side, but certainly call your doc Monday. Sooner if the pain increases.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,639
    • Most Online
      3,093

    Newest Member
    NickyW_UK
    Joined