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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

I Hate Everything...
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40 posts in this topic

This is how I feel sometimes, and when I didn't eat gluten for a little while it went away. Does anyone relate to this?

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Yes, your whole bondy goes out of whack if you eat gluten(and you have celiac or gluten intolerance). Many people feel a ton better when they go gluten-free...no depression, pain ect.

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Although I don't really feel that way, I have seen it first hand in my husband.

All of 2007 was basically like that for him. He was just down, down, down every day. In a way, it's good that we run our own business, because I don't think he could've held down a job in the state he was in.

Then, about the end of November...a month and 1/2 into the gluten-free diet for him...he slowly began to have a better attitude overall. Things began to interest him again & he began to be the fun-loving guy I fell in love with. I was sooooo relieved to see this!

Then, we went to a holiday party where a friend of ours cooked this fabulous meal. We were told which items were not gluten free & we avoided those. This was our 1st time eating out since going gluten free. But, something got to my husband. He began having all the old symptoms all over again. He backslid into the same bad funk. Only now do I feel like he's beginning to feel a little better mentally. I am really surprised that it's taken this long for him to rally.

I do have to add that he has psoriatic arthritis & I think that a lot of the depression (but definitely not all) stems from having his joints flare up.

Clearly others have these "negative feelings" issues with gluten. But, if you get glutened, how long does it take you to begin to feel like life is worth living again? I am trying to be understanding, but I have to admit, I just want him to snap out of it & see that things were getting so good again. Hearing if others like my husband suffer from an accidental glutening for a while would really help.

Needless to say....it's gluten-free all the way!!! :D

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Thank you for these responses, they're helpful. I think the overall feeling for about half a day after I consume gluten is melancholy, and when I'm due for my next gluten fix (gotta love those opioid peptides) I get this feeling of restless frustration. I have to do something, but I feel literally incapable of doing anything. And I hate everything. :lol: Good times.

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For some it's a day for some it's longer to bounce back. For me it's a couple days...first is the bathroom issues and the next day or so I just feel out of it.

Watch out for parties....people have teh best intentions on cooking things with gluten free ingredients..but that does not account for CC when cooking ect!!!

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...and when I'm due for my next gluten fix (gotta love those opioid peptides)...

What is a gluten fix?

Gluten now hits me about 1 day after consuming and the mental and physical effects last for at least 2 or 3 more, depending on the amount. Gluten causes me serious bipolar (manic depressive) side effects, reason enough for me to stay gluten-free. I cannot stand the bipolar :angry:, that really messes me up. I almost think gluten products should be kept behind the pharmacists counter :lol:.

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What is a gluten fix?

For people who are gluten intolerant, eating gluten can cause the body's natural pain killers to be released. When we're used to getting it and we go too long without it, we can go through withdrawals just like any other drug addict who didn't get their fix.

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Joyous-

Does that mean some people consume gluteny products to satisfy the fix?

:o Isn't the mental and physical punishment enough to put a stop to the craving. I used to have a slight hankering for gluten stuff, but now I have no desire because of the trouble it causes me. I'd rather bang my head on a brick wall than eat it on purpose. :lol: Mark

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yep definitely feel like that ... definitely...

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Rock on, when I first went gluten free, an accidental glutening could make me feel "down" for a couple weeks. I've been gluten free for over three years now and nowadays I recover in a few days. I know it can be frustrating for my husband as well, so you have my sympathies, but it really isn't something he can snap out of. I wish it was! But at least with me time has helped and I do recover more quickly now.

One thing that really helps me after a glutening is taking a vitamin B complex. I know a lot of people here recommend B12 but for me a supplement that has all the vitamin B's in a low dose seems to work well. I take one every day, when I've been glutened, two for a few days. It helps me get through the worst few days.

Pauliina

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For people who are gluten intolerant, eating gluten can cause the body's natural pain killers to be released. When we're used to getting it and we go too long without it, we can go through withdrawals just like any other drug addict who didn't get their fix.

This is true of all celiac's, not just gluten intolerant, to a certain extent. I do not believe eating gluten causes the body's natural pain killer's to be released, I do know that we all are addicted to gluten, just as some are addicted to drugs. Gluten is an addiction and we must, always fight that addiction, and never give in, just as a drug addict can never give in to the drug, or an alcoholic can not take a drink--we can NOT eat gluten. Eating gluten only continues the addiction. In time, the want for gluten decreases and in time, you really do not crave it anymore. You will always miss certain foods, but you are missing the food, not the gluten itself.

I almost think gluten products should be kept behind the pharmacists counter .

What a great idea!!!!! :lol:

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I do not believe eating gluten causes the body's natural pain killer's to be released

Now that I think about it, I think the opioid peptides actually come from the gluten itself. They end up going through the intestinal wall and crossing the blood brain barrier. (I obviously need to learn more about this. lol) Let me see if I can find the article I read...

Okay, got it.

Why are gluten and casein a problem?

There are at least two clear problems. First of all, in some children, gluten is toxic to the intestine, similar to classic celiac disease, causing cramps, nausea, diarrhea or constipation, and poor absorption of nutrients from food. These children may show signs of malnutrition, such as swollen belly, thin arms and legs, skin rash, mouth sores, etc.

Second, and most shocking is that in some people, the proteins gluten and casein are not completely digested, leaving small protein fragments called peptides. Certain of the peptides derived from gluten and casein get through the intestinal wall into the blood stream, and are carried to the brain, where they have opioid activity--that is, they act like morphine! People with this problem are actually addicted to the gluten-derived opioid peptides (called gluten exorphins) and casein-derived opioid peptides (known as casein exorphins or casomorphins). While under the influence of the opioids, the child may not feel pain, and may seem spacey. As the dose of the opioid peptides wears off, the child goes into a withdrawal state, just like a drug addict, and may behave in an agitated or aggressive manner.

Is this gluten problem like celiac disease?

It is probably somewhere on the spectrum between classical "celiac sprue" and the less clear manifestions which are currently being called "atypical celiac disease." People with the atypical form of the disease may show no gastro-intestinal symptoms at all, only malabsorption of nutrients[4] or neurological symptoms such as ataxia (lack of coordination in walking)[5]. Many children who have the opioid peptide problem show up positive on tests for celiac disease, but not all do. My children's blood tests were negative for celiac disease. Note that celiac patients who do not follow a gluten-free diet have a high rate of mental illness and epilepsy[6], suggesting again that gluten or gluten-derived peptides can have mental effects.

However, perhaps when we eat things that are poison to our bodies it's reaction to pain and/or danger is to be expected? I have read about how people who lack the enzymes to digest certain sugars can become addicted to them because of the release of endorphins, which can be addictive.

Also, some people (especially people who can't absorb the nutrients from their food?) have low levels of norepinephrine (not to mentioned other neurotransmitters) because the proteins we eat contain amino acids that are precursers to neurotransmitters such as dopamine, norepinephrine, and seratonin. I've got a chart in my photobucket about how low levels of these things can cause addictions and other symptoms.

http://i14.photobucket.com/albums/a317/cha...sanddogs003.jpg

So yeah, a lot of food containing gluten are also starchy. Cravings for bread or pasta (among other things, as you can see) could be the result of malabsorbtion.

Now, having said all that, I've read that many people go through a week or so of withdrawals when they stop consuming foods they're intolerant to. Taking certain supplements can help with this. When I stopped eating gluten for a week and a half as an experiment, I didn't go through any type of withdrawal, but I was taking some of the supplements listed in that chart as well as L-glutamine and a good multivitamin. The one that seems to help me the most is DLPA (listed in the chart as DL-phenylalanine).

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Thanks Pauliina. I'm glad that things have gotten better for you over time & it's really reassuring to hear that someone else felt "down" for a while after getting glutened. Today is the 1st day in weeks that my husband got up & didn't scowl. I think he's on the mend. I do understand that he can't snap out of it. We're very open with communication & he does tell me what it's like for him. I just hate feeling like there's nothing I can do for him. You have given me hope that he can & will keep healing.

My husband is B12 deficient & I give him shots every 2 weeks. Come to think of it, yesterday he said he feels like he needs his shot. I'll give it to him today, maybe that will help him feel better.

Best to you-

R.O.

Rock on, when I first went gluten free, an accidental glutening could make me feel "down" for a couple weeks. I've been gluten free for over three years now and nowadays I recover in a few days. I know it can be frustrating for my husband as well, so you have my sympathies, but it really isn't something he can snap out of. I wish it was! But at least with me time has helped and I do recover more quickly now.

One thing that really helps me after a glutening is taking a vitamin B complex. I know a lot of people here recommend B12 but for me a supplement that has all the vitamin B's in a low dose seems to work well. I take one every day, when I've been glutened, two for a few days. It helps me get through the worst few days.

Pauliina

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Now that I think about it, I think the opioid peptides actually come from the gluten itself. They end up going through the intestinal wall and crossing the blood brain barrier. (I obviously need to learn more about this. lol) Let me see if I can find the article I read...

Okay, got it.

However, perhaps when we eat things that are poison to our bodies it's reaction to pain and/or danger is to be expected? I have read about how people who lack the enzymes to digest certain sugars can become addicted to them because of the release of endorphins, which can be addictive.

Also, some people (especially people who can't absorb the nutrients from their food?) have low levels of norepinephrine (not to mentioned other neurotransmitters) because the proteins we eat contain amino acids that are precursers to neurotransmitters such as dopamine, norepinephrine, and seratonin. I've got a chart in my photobucket about how low levels of these things can cause addictions and other symptoms.

http://i14.photobucket.com/albums/a317/cha...sanddogs003.jpg

So yeah, a lot of food containing gluten are also starchy. Cravings for bread or pasta (among other things, as you can see) could be the result of malabsorbtion.

Now, having said all that, I've read that many people go through a week or so of withdrawals when they stop consuming foods they're intolerant to. Taking certain supplements can help with this. When I stopped eating gluten for a week and a half as an experiment, I didn't go through any type of withdrawal, but I was taking some of the supplements listed in that chart as well as L-glutamine and a good multivitamin. The one that seems to help me the most is DLPA (listed in the chart as DL-phenylalanine).

Joyous,

Would you please site the source of this article. Thanks. :)

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Joyous,

Would you please site the source of this article. Thanks. :)

Sorry, I was going to try to find a link when I posted it but had to get my kid to school and didn't know if I'd have time to google it (ended up being easy because apparently all you have to do with something like that is put quotes around a whole sentence and search for it, and it comes up right away).

Here's what I've found: http://www.come-over.to/FAS/FASDnutrition.htm

Anyways... I don't want to make it sound like I'm saying this DEFINITELY IS TRUE or anything like that. I don't know how credible the source is, but when I originally found it I had been reading similar things from other sources (no idea what they were anymore). The article isn't even specifically about Celiac Disease. :lol:

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Wow, all I can say is that this explains so many things!! My kids have ADD symptoms, and I'd been trying to find ways of boosting their levels of dopamine, norepinephrine, etc. Now I get it!! They weren't digesting the foods that are precursors to those things. And when I first took my son off gluten, he had what looked for all the world like withdrawal symptoms, sweating like crazy, up all night, craving carbs, etc.

Who would ever have thought that that morning toast was ruining everyone's lives in so many areas!! Physically, mentally, emotionally.

Another piece of the puzzle fits into place! Thanks for posting this.

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You know its just so weird...

The last few days things have just felt off to me. Everything...every single thing...

And this morning I woke up and finally felt right again.

Its almost ridiculous. I think I did get glutened... I was feeling SO good and then a friend fed me some of this pot roast he made. I'm sure the broth had something bad in it... or it could have been cross contamination from something else.

One sign I know when things aren't going right is my right eye droops. That... and I start getting really nervous around people!!!!! Social anxiety... its just there and I can't shake it. I guess I just feel uncomfortable and I would rather not be around other people because I don't want them to feel my weird feelings that I'm having.

I think whoever said it on these boards....that when your gut is inflamed for whatever reason...then you are in an "anxiety" state. Makes sense! Can you imagine your gut shaking and trembling and inflammed... that is probably what anxiety truly is. A shaky state. And so -you- become that way...and then you start seeing the world through that filter of your own feeling-state. Its just bad...

I'm starting to wonder if there is a big conspiracy out there. We know that huge corporations have such power in America. its almost like corporations are our government now... why?? Well they have tons of money. They have huge connections to our -actual- government. So they have a lot of power.

Just like the cotton and other industries in the 30's told the government to ban hemp (so good for our environment and much better)... I wonder now... if its possible... that some of these huge genetic engineering companies are working together with the government and pharmacuetical companies...

Do you think its possible they have genetically engineered wheat... they KNOW the symptoms and problems it causes...

They work together with the pharmacuetical companies so those companies can make BILLIONS of dollars supplying MEDS to treat the problems caused by a genetically engineered wheat plant. Then its all sealed when they tell the government to put it in all of the elementary and public school system.

I could be really paranoid here...hehe... but just think for a second.

Why the heck is gluten in EVERYTHING. And we even feed our cows this high-gluten stuff...which gets in our MILK...which is in everything also....

Check out some of the articles on DogtorJ.net.... especially his article "The Answer". He really has some interesting ideas.

I personally just CANNOT afford anymore days of being slightly glutened...cross contaminated... blah blah blah blah blah. Its just horrible. Your sitting there wondering what is going wrong with your life. I start questioning everything... and right now I am in a spot in life where I absolutely cannot afford this type of behavior.... because I could tell that this behavior the last few days could have cost me numerous business and social contacts etc...not acting like my true self...not having a clear head.

I guess no more restaurant eating, sadly...at least for a long time. NO MORE EATING stews from "innocent" friends who don't really know what they put in the stew and "threw away the broth packaging" so I couldn't read it.

Just keep eating raw foods...foods like bananas...packaged by God so no possible source of cross-contamination!!

Geez...

These last few days just sucked! I didn't think I was glutened either...although I had thoughts that I could have been somehow. And some signs... I wish there was some sort of ph-test or spit test or piss-test that you could do to see if you were having an auto-immune response so that you could indeed realize what was truly going on!!!

Well back to reality now... finally woke up. All of a sudden everything doesn't seem so starky and I'm ready to take on the day! Phew...

Man this life ain't easy!....

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You know its just so weird...

The last few days things have just felt off to me. Everything...every single thing...

And this morning I woke up and finally felt right again.

Its almost ridiculous. I think I did get glutened... I was feeling SO good and then a friend fed me some of this pot roast he made. I'm sure the broth had something bad in it... or it could have been cross contamination from something else.

One sign I know when things aren't going right is my right eye droops. That... and I start getting really nervous around people!!!!! Social anxiety... its just there and I can't shake it. I guess I just feel uncomfortable and I would rather not be around other people because I don't want them to feel my weird feelings that I'm having.

I think whoever said it on these boards....that when your gut is inflamed for whatever reason...then you are in an "anxiety" state. Makes sense! Can you imagine your gut shaking and trembling and inflammed... that is probably what anxiety truly is. A shaky state. And so -you- become that way...and then you start seeing the world through that filter of your own feeling-state. Its just bad...

I'm starting to wonder if there is a big conspiracy out there. We know that huge corporations have such power in America. its almost like corporations are our government now... why?? Well they have tons of money. They have huge connections to our -actual- government. So they have a lot of power.

Just like the cotton and other industries in the 30's told the government to ban hemp (so good for our environment and much better)... I wonder now... if its possible... that some of these huge genetic engineering companies are working together with the government and pharmacuetical companies...

Do you think its possible they have genetically engineered wheat... they KNOW the symptoms and problems it causes...

They work together with the pharmacuetical companies so those companies can make BILLIONS of dollars supplying MEDS to treat the problems caused by a genetically engineered wheat plant. Then its all sealed when they tell the government to put it in all of the elementary and public school system.

I could be really paranoid here...hehe... but just think for a second.

Why the heck is gluten in EVERYTHING. And we even feed our cows this high-gluten stuff...which gets in our MILK...which is in everything also....

Check out some of the articles on DogtorJ.net.... especially his article "The Answer". He really has some interesting ideas.

I personally just CANNOT afford anymore days of being slightly glutened...cross contaminated... blah blah blah blah blah. Its just horrible. Your sitting there wondering what is going wrong with your life. I start questioning everything... and right now I am in a spot in life where I absolutely cannot afford this type of behavior.... because I could tell that this behavior the last few days could have cost me numerous business and social contacts etc...not acting like my true self...not having a clear head.

I guess no more restaurant eating, sadly...at least for a long time. NO MORE EATING stews from "innocent" friends who don't really know what they put in the stew and "threw away the broth packaging" so I couldn't read it.

Just keep eating raw foods...foods like bananas...packaged by God so no possible source of cross-contamination!!

Geez...

These last few days just sucked! I didn't think I was glutened either...although I had thoughts that I could have been somehow. And some signs... I wish there was some sort of ph-test or spit test or piss-test that you could do to see if you were having an auto-immune response so that you could indeed realize what was truly going on!!!

Well back to reality now... finally woke up. All of a sudden everything doesn't seem so starky and I'm ready to take on the day! Phew...

Man this life ain't easy!....

Check out the Gov't's food pyramid and look at what comprises the majority of it...

http://medicalimages.allrefer.com/large/fo...ide-pyramid.jpg

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I would like to say I am so sorry...and Thank Goddess I am not alone anymore!!!!!!!since going gluten free I haven't had a single depressed mood, no pms!!!, no anxiety.

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This is how I feel sometimes, and when I didn't eat gluten for a little while it went away. Does anyone relate to this?

Yes when i was sick or even now when i get cross contaminated i don`t even want to be around anyone and when i am i can`t look them in the eye i just want to be left alone in my misery. thats why it`s so great to find out it feels sooo much better. it`s hard to believe i lived like that for so long. good luck

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Check out the Gov't's food pyramid and look at what comprises the majority of it...

http://medicalimages.allrefer.com/large/fo...ide-pyramid.jpg

amen brother... wheat is a subsidized crop, cheap and versatile and yes it has been highly modified over the years. over the last 3 yrs i have lost everything house wife family business everything ended up living at my mom`s towards the end. now i`m starting all over and it`s a lot slower a process than i thought it would be. but i just have to be patient ( i was really bad like a concentration camp victim) and focus on getting better. good luck

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This doesn't happen to me but... to my daughter it does! She has been gluten free for about a month and the difference in her personality is like night and day. When she was a gluten eater she was always so down on herself, to the point of... well as her mom, it was scary to me.

Now she is just a typical teenager. Some good days. some not so good but nothing like she had before. Having other food allergies + now have to be gluten-free has been hard on her, she feels so "different" then other kids so I'm praying every day that she sticks to the gluten-free.

On another note... its early and I'm only on my first cup of tea but earlier in this post some were talking about being addicted to gluten, the say like smoking, its addicting to everyone. Is that what you were saying? I'm not sure thats true. BGF (before gluten free) I ate pizza or sour dough bread occasionally but I certainly didn't crave them and once I found out I had to be gluten-free it was ok - done. I didn't have any withdrawal symptoms, I didn't feel deprived or have personality changes (other then good ones cuz I felt so much better). So I'm not sure I'm buying its addicting.

Either way.... have a good one!

Susan

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I didn't have any withdrawal symptoms, I didn't feel deprived or have personality changes (other then good ones cuz I felt so much better). So I'm not sure I'm buying its addicting.

I don't think it's necessarily addicting to everyone. But I think to people who have more of the neurological and mood symptoms, a lot of those people say they were big bread eaters and found it hard to quit. So I think it's quite possible that gluten has a different effect on some people, you shouldn't generalize from just your own experience (although of course we all do that).

Pauliina

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Well, I think what's happening when a person seems addicted to gluten is that bits of undigested or partially digested gluten (or dairy) find their way back into the bloodstream, and supposedly they are of a similar composition to opiates like morphine or heroin and fit into the same receptor sites in the brain. They are even called casomorphin and gliamorphin or gliadorphin or something like that, names similar to morphine. There's a theory called the opioid peptide theory which anyone can google for more information about this. I think you have to have a leaky gut problem to have this, though.

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As I read through this, it keeps making more and more sense....A couple hours after eating gluten the mental symptoms are as follows: social anxiety, slight dizziness, "down" feeling, both wired and tired at the same time, my inner critic gets really super loud...

I tested negative for celiac disease but was dx gluten intolerant and told to eliminate it. I've tested as having extremely low neurotransmitter levels, and have been on high levels of St. John's Wort (herbal serotonin booster) and amino acids to address the deficiency, for over a year. I know this was caused by gluten, because when I go off of gluten, it is like taking a happy pill; in about two days I start to feel "normal" again. And then after about 4 to 5 days I feel like the sun is shining and I finally know what it is like to actually be happy--and not in a constant self-berating, groggy funk. I liken this effect to a garden hose with a kink in it--you remove the gluten, you take the kink out of the hose, and everything flows as it should.

It was a relief to get to stop gluten (I was eating it in anticipation of a possible biopsy and I was totally miserable).

I can identify with every single mental/emotional symptom described here. And I used to be a total wheat freak. It was all or nothing for me. I'd go off of it for a few months, and then a day would come along when I would say, a little bit won't hurt. Sooner or later I had to have it every morning to feel "up." On some level I knew it was making me unwell, mentally.

And you know what I think? I'm no doctor, but for what it is worth: just because medicine doesn't have a test to measure the damage gluten does in some people's brains, does not mean that it isn't every bit as serious as celiac disease. It just happens to manifest in some people as one, or the other, or both.

So, as I understand it from reading the articles I'm linking to below, the theory is that the peptide chains in gluten don't break down in the gut. These large opioid peptides go into the brain, and jam into one's opiate receptors. Much like the toxins in our environment that mimic hormones in our bodies and jam themselves rudely into our hormone receptors, the key fits, but not quite. It is like jamming a square peg into a round hole. This places the "kink in the hose." Gluten comes in, and your own endorphins can't go into your receptors, so maybe your poor little natural endorphins give up and go home or something....And eventually the hypothalamus-pituitary-adrenal axis gets out of whack, and that's when physical effects of all sorts may ensue. Like adrenal fatigue, PMS, sleep problems, so-called emotional problems.

Anyway, here are the articles I found a while ago when I was googling this topic. If you've already seen them, I apologize; if not, I hope they are helpful for someone. I hope there is someday a test to see who has this "brain allergy" (an overly mild term, in my opinion) so that they can avoid all the confusion I had for years.

http://orthomolecular.org/library/jom/2000...5n01-p005.shtml

http://developmental-delay.com/page.cfm/248

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