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Celiac.com Celiac Disease & Gluten-Free Diet Forum: Coffee/caffeine - Celiac.com Celiac Disease & Gluten-Free Diet Forum

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#1 User is offline   ricardo29 

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Posted 10 January 2008 - 06:34 AM

I was wondering, if anybody out there has issues with coffee and/or caffeine. I struggle a lot with my energy and sometimes it seems to make things better and sometimes (coffee) it seems to make things worse. Any ideas?
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#2 User is offline   Joni63 

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Posted 10 January 2008 - 06:58 AM

Yes, I have terrible issues with caffeine. I cut out regular coffee and only drink decaf and still am having problems. I had a full strength cup about a week ago and I felt like I was going 10 times faster than I should. I was shaky and had butterflies in my stomach. It was awful. Also, it makes me have highs and lows with energy just like you.

I notice even chocolate affects me if I have to much. I'm still working on eliminating that one though, it's one of my saving graces since the gluten free diet.
Joni


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#3 User is offline   lizard00 

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Posted 10 January 2008 - 09:46 AM

I can't really handle caffeine much either. It hurts my stomach ALOT! Very sad though, since I love coffee. But I gave it up a few weeks ago. How long have you been gluten-free? My two biggest symptoms were headache and exhaustion. It took me a few weeks (or maybe even a little longer) to not wake up exhausted and get worse through the day. But since being gluten-free I truly feel better, like I don't have to have caffeine to get me through the day.
Be yourself, everyone else is taken.
Oscar Wilde

Gluten free November 2007
IgA Deficient, Neg Bloodwork, Double DQ2 Positive
Dietary and Genetic Diagnosis June 2, 2008
Soy free Jan 09

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#4 User is offline   Ursa Major 

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Posted 10 January 2008 - 10:34 AM

Coffee will give me a stomach ache (and I haven't had gluten in two and a quarter years), and it makes me really tired. So, obviously, I don't drink it. Most people have it to wake them up! I wished there was something that would wake me up when I need it.
I am a German citizen, married to a Canadian 29 years, four daughters, one son, seven granddaughters and four grandsons, with one more grandchild on the way in July 2009.

Intolerant to all lectins (including gluten), nightshades (potatoes, tomatoes, peppers, eggplant) and salicylates.

Asperger Syndrome, Tourette Syndrome, Addison's disease (adrenal insufficiency), hypothyroidism, fatigue syndrome, asthma

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#5 User is offline   ricardo29 

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Posted 10 January 2008 - 11:26 AM

View Postlizard00, on Jan 10 2008, 12:46 PM, said:

I can't really handle caffeine much either. It hurts my stomach ALOT! Very sad though, since I love coffee. But I gave it up a few weeks ago. How long have you been gluten-free? My two biggest symptoms were headache and exhaustion. It took me a few weeks (or maybe even a little longer) to not wake up exhausted and get worse through the day. But since being gluten-free I truly feel better, like I don't have to have caffeine to get me through the day.


have been gluten free for 7 months, it's made a big difference, it's just sometimes i get in these low energy holes and it takes a superhuman effort to pull me out, then i 'll drink coffee and get energy but i will feel so much worse later, i am just looking for something to help me, i am already on a supplements protocol, i think it is the natural course of healing of a celiac, but thank u
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#6 User is offline   VioletBlue 

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Posted 10 January 2008 - 02:38 PM

I can only handle moderate amounts of caffeine. Before I was diagnosed I drank the fully leaded coffee without problem. Once I went gluten free the caffeine started to really bother me. It was no longer an energy boost so much as a manic moment. I drank mostly decaf for about nine months after that. Now days I can drink moderate amounts of caffeine and it is pleasantly stimulating. But if I go overboard it zaps my energy and causes concentration issues. If I remember right, caffeine also interferes with iron absorption and that can further impact your energy levels. For me the key is moderation. Well, that and a good espresso machine. Espresso is the only way I can tolerate the taste of decaf.

Violet


View Postricardo29, on Jan 10 2008, 06:34 AM, said:

I was wondering, if anybody out there has issues with coffee and/or caffeine. I struggle a lot with my energy and sometimes it seems to make things better and sometimes (coffee) it seems to make things worse. Any ideas?

"My mother always told me, it's okay to play with a man's mind
as long as you put it back where you got it when you're done with it."
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#7 User is offline   Cynbd 

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Posted 10 January 2008 - 03:29 PM

I never thought in a million years that I would give up caffeine, and this past summer I did. (If I have to give up my wine, there will be nothing left :P (I didn't even go decaf when I was pregnant (I did cut back).)
I was having a lot of stomach trouble and truly believed it was the caffeine. It didn't always hit me right away, but I was finding I couldn't eat for several hours after my coffee. So in the interest of my gut, I went decaf. And it has helped A LOT.
The withdrawals were not fun, that was bad, but it was totally worth it, and I am glad I did it.
The decaf does bother my stomach sometimes, but I find I don't drink as much decaf in the morning, and if I feel like I might have a bad morning, then I just have my one cup. I am not driven to have more because of the caffeine.

If you suspect it's giving you problems, you should try to give it up. It's made a huge difference for me.

Now if I I can just give up Smarties :o

Good luck!
Cindy


Gluten Free since November 2006
Lactose Intolerant since 1980
100% Lactose Free since May 2006
Caffeine Free since August 2007
Hashimoto's Disease
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