Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Is It A Casein Issue?
0

7 posts in this topic

My 6 year old has been on a gluten-free diet for the last year. We had her blood tested twice prior to that but each time it came back negative. My husband as well as several extended family members have Celiac so I decided to put her on a gluten-free diet due to her behavioral symptoms. It made a huge difference in how she physically and emotionally felt as well as her behavior. Obviously we kept her on the gluten-free diet. In the last 6 months, some of her symptoms have returned. She has some of the same behavioral issues and has started to havae headaches and stomach aches again. I am very careful about gluten and the whole family eats gluten free. I guess it is possible that she is getting some somewhere but I don't know where. As I type this I realize that her symptoms have returned since school started back up in september. Hmmm. Well I have also noticed that she seems more irritable after she has milk-like in cereal, or lots of cheese-like on pizza but not so much if it is cooked in something. I recently read something that said that 50% of people with celiac also have problems with casein. I am wondering if she may have a problem with casein? I am planning on having some allergy tests done at her next checkup but should I try just eliminating it in the meantime? How is casein intolerance identified? Is it like gluten tests that aren't always accurate? Is dairy and casein the same thing? Going dairy free is my worst fear! If anyone can shed some light on the whole casein issue I would appreciate it sooo much!

0

Share this post


Link to post
Share on other sites


Ads by Google:

Casein is the phosphoprotein in dairy products. We usually just say protein for short, but it is the casein that is so bad for us. The lowest casein content is found in butter. Some of us tolerate butter. Which by the way i think you should only use butter, if you can have dairy, that margarine stuff is really bad for your arteries etc.

Yes, for some of us dairy is as bad as gluten. I would recommend that you take all the dairy out of the child's diet. She should improve quickly. she might be able to tolerate butter in homemade cookies that kind of thing. I seem to tolerate it okay. But have been off dairy for quite a while.

After maybe a year or so your child might be able to tolerate limited amounts of things like cheese. Or maybe even sooner, depends on your child... I would never give her milk, better to use coconut milk in cooking. You can also use almond milk, but please do not give her soy. Soy is really bad & can cause worse problems... nutritionally she does not need milk or soy to be healthy, despite what the prevailing big money dairy lobby would like you to think...

It seems that it is really hard for us to give up dairy. But it is like gluten, it has that addictive property. It takes about 2 weeks of dairy free to get over the craving. But once you get used to not using dairy it really is not that bad, just put plenty of roasted veggies & fresh herbs etc & lots of meat on her pizza, grated carrot looks good on tacos, a salad with at least two meats gives a taste variety & you will not miss the cheese. I make frito pie with no cheese, layer fritoes with Hormel Chili WITH Beans (the only one that is gluten-free) & bake in oven till bubbly, if your child likes onions you can layere those in also, same thing with enchiladas, just heat your tortillas dip in the above chili fill with shredded chicken & onions, roll up place in casserole dish top with rest of the chili & bake till bubbly.

I am reading the book "Good Calories Bad calories" this is a serious read & long but well worth it, along with this book, from what I have learned so far, when you cut out dairy I would make sure that you give your child plenty of animal fat, such as bacon & fatty steaks etc. contrary to what the food myth is to eat low fat, it really is not healthy. Like most of us already know it is the white flour & sugar that is so bad for ones health, really the "fast carbs". So when your child has any carb it is good to include fat & protein with it. A pizza loaded down with pepperoni and bacon with a little dipping sauce of herbed olive oil is a good thing...

0

Share this post


Link to post
Share on other sites

Regular allergy tests won't show a problem with casein, if one exists. You can tell this by dietary test and/or by testing by folks such as Enterolab.

The very lowest casein content is in ghee, which is so clarified that no protein remains. I react to butter.

I disagree with gfpaperdoll's conclusions about a healthy diet BTW But this really isn't the place to argue about that. Anyone who wants to can do their own research and draw their own conclusions. (I would direct interested people to McDougall, Ornish, Esselstyn, Barnard, Novick, Fuhrman, Shintari, etc.) We do agree about some things, though, like milk, trans fats, and refined carbs.

0

Share this post


Link to post
Share on other sites

Well, probably to feel normal and like all the other kids she may possibly actually sneaking some food there, I mean eating it instead of always having her own separate food. the temptations with all those glutenous snacks and foods right infront of her nose at school where she's all on her own is tremendous. It makes me afraid of when my little one is gonne go to school!

Let me tell you something! If she only has an sensitifity to thoses things, it's NOT an Allergy and won't show on Allergy-Test! My daughter just had all the tests done, asnd little did you know- she's basnned from Wheat for lifetime now due to her being Celaic, but she's not the least allergic at all to it. If it wasn't for her Celaic amijhng her sensitive to it she would not ever have a issue with it. Sadly she's not alelrgic to anything rpetty much BUT gets all the Gastrointestinal symptoms she gets with beeing glutened when she ingests anything dairy, anything goatmilk anything soy- rpobalby the worst soy. It is extremely hard to feed her overall, since there is sooooooo much she has trouble with digesting or dealing with!

Go for the Allergytest, but if you see something that turns up cero but you feel like it's an issue put her on a dairyfree diet for a while as well to see if she gets better! As for the Antibodies to stuff, some people just don't produce enough to have elavated levels and will always come up negative, that's why the Biopsie is still goldstandart in diagnosing celiac!

PS: Have a talk with her again, as well with her teacher keeping an eye on her for a week if she's getting food from others or really sticking to her own stuff. If she's good with her own stuff it's very like that she's getting crosscontamination! That possibility starts already with the soaps on Schoolsinks which often contains gluten to the kids simply NIOT washing their hadns after eating, touching things she touches and voila, you have her already glutened!

My 6 year old has been on a gluten-free diet for the last year. We had her blood tested twice prior to that but each time it came back negative. My husband as well as several extended family members have Celiac so I decided to put her on a gluten-free diet due to her behavioral symptoms. It made a huge difference in how she physically and emotionally felt as well as her behavior. Obviously we kept her on the gluten-free diet. In the last 6 months, some of her symptoms have returned. She has some of the same behavioral issues and has started to havae headaches and stomach aches again. I am very careful about gluten and the whole family eats gluten free. I guess it is possible that she is getting some somewhere but I don't know where. As I type this I realize that her symptoms have returned since school started back up in september. Hmmm. Well I have also noticed that she seems more irritable after she has milk-like in cereal, or lots of cheese-like on pizza but not so much if it is cooked in something. I recently read something that said that 50% of people with celiac also have problems with casein. I am wondering if she may have a problem with casein? I am planning on having some allergy tests done at her next checkup but should I try just eliminating it in the meantime? How is casein intolerance identified? Is it like gluten tests that aren't always accurate? Is dairy and casein the same thing? Going dairy free is my worst fear! If anyone can shed some light on the whole casein issue I would appreciate it sooo much!
0

Share this post


Link to post
Share on other sites

Hathor, you should read "Good Calories Bad calories" he has referenced every study (well almost) since the 1800's. there are at least 100 pages in the back of references. This book is a very technical read & not for everyone, but it will give you some good insight as to what really goes on with a lot of these studies & the NIH and other organizations that SHOULD be protecting our health & keeping us informed. When you read this book you will see that will never happen...

0

Share this post


Link to post
Share on other sites




We had the same problem with my son. After going gluten free he was doing fine until about 6 month later when all the symptoms came back. He had a RAST test done (allergy test) and came up negative to everything. Suffered on for another 2 years before he had his second colonoscopy which showed white bumps in his colon which the doctor said signified an allergy to something. The first thing I did was take away milk and all the symptoms went away. He now drinks rice milk and also uses it in his cereal (it is fortified with calcium and all the stuff in milk). I also use it to cook. We have found a dairy free butter called earth balance which tastes just like butter. For ice cream I use Toffuti brand dairy free ice cream treats. They also make a good sour cream. So he is not missing much as long as we are eating in. I will also add that since he started back to school in September I have seen some unexplained return of symptoms including a new one, weird red rings that appear on his face out of no where and then disappear in a few days, only to return again. He swears he isn't cheating but I wonder about the cc issue in school, he is in first grade.

Nicole

0

Share this post


Link to post
Share on other sites

My 8 year old and I are both gluten and casein sensitive per entero lab. As others have said, getting used to non-dairy isn't so bad after a while. There are also some decent Rice Dream ice cream flavors! We use the earth balance butter also...it's soy but small amounts. Ghee would be better I guess but I haven't seen it yet to buy it.

One thing i've noticed big time with my daughter is a major emotional/behavioral reaction to food additives like food colorings (especially red#40 and yellow#5, but also the others), MSG, etc. so you might want to check how much candy/pop/colored juices/punch etc she might be getting which has those things in it. I think with the intestinal damage, you have leaky gut which allows these big molecules to go out of the intestine, into the bloodstream, and cross the blood/brain barrier. My daughter has tantrums that only 2 year olds should be having on the occasions when she gets too much of these coloris/etc. BTW, parmesan cheese is extremely high in MSG (free glutamate) and i've seen my daughter react to that as well in the past when we were still eating dairy.

good luck!

Liz

My 6 year old has been on a gluten-free diet for the last year. We had her blood tested twice prior to that but each time it came back negative. My husband as well as several extended family members have Celiac so I decided to put her on a gluten-free diet due to her behavioral symptoms. It made a huge difference in how she physically and emotionally felt as well as her behavior. Obviously we kept her on the gluten-free diet. In the last 6 months, some of her symptoms have returned. She has some of the same behavioral issues and has started to havae headaches and stomach aches again. I am very careful about gluten and the whole family eats gluten free. I guess it is possible that she is getting some somewhere but I don't know where. As I type this I realize that her symptoms have returned since school started back up in september. Hmmm. Well I have also noticed that she seems more irritable after she has milk-like in cereal, or lots of cheese-like on pizza but not so much if it is cooked in something. I recently read something that said that 50% of people with celiac also have problems with casein. I am wondering if she may have a problem with casein? I am planning on having some allergy tests done at her next checkup but should I try just eliminating it in the meantime? How is casein intolerance identified? Is it like gluten tests that aren't always accurate? Is dairy and casein the same thing? Going dairy free is my worst fear! If anyone can shed some light on the whole casein issue I would appreciate it sooo much!
0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,365
    • Total Posts
      920,553
  • Topics

  • Posts

    • Just a quick one to say I got a diagnosis of celiac disease today. I know in the past it's been helpful for me to know the outcome for other folk, so thought I would update. The moral of this story is even with a VERY borderline blood test it's worth persisting. thanks for all the help Sue 
    • Well, I am stressed to the max. I just spent 3 days in the hospital with D and stomach pain, dizziness, chest pain, generally unwell. Then another trip to the ER on top of that. My protein was low and my RBC and hemoglobin dropped below normal in 3 days. Not terribly low, but below normal. I also had metabolic acidosis which still confuses me. I usually eat every 2-3 hours despite it causing pain to keep my energy up and was unable to eat that frequently in the hospital. I usually carry protein with me and had been taking liquid iron which I stopped a few weeks ago because my new endo is not a fan of iron supplements. As soon as I got home from the hospital I started with my protein drinks and blackstrap molasses for iron.  I now have bilateral mild pleural effusions and a nodule on my left lung, which hopefully is nothing, but was not there on a CT back in March. In addition, my left adrenal gland, which also appeared normal in March, is calcified and the report indicates this is most likely due to a previous bleed or infection. My colon appears tortuous (whatever that means) and we are waiting on colon/endo biopsies. I have been gluten-free since March except for cc so expect the biopsies to again be negative.  My primary care is useless. I am in the process of getting a new one I will see on the 7th but need the current one to fill out FMLA paperwork because I both physically and mentally need time to recover. I will have to go off of payroll for 2 weeks but I think I need to. I called the primary's office today to discuss the hospital tests which she does NOT have yet and to ask if we should/could start a low dose of prednisone because my body is attacking itself. My thyroid on ultrasound is also abnormal though my bloodwork thus far is normal. But it hurts on that side. The only reason the ultrasound was ordered is because I asked for it in the first place. The only reason I have started seeing an endocrinologist is because I found one myself. Anyway...I broke down in tears on the phone eith her today and she told me I was having a "manic episode". I have no history of mania. I only recently started taking xanax to help me cope with the stress of being sick. I was not sick until I did this stupid gluten challenge over the winter. My mother was in town and spoke with the doctor on the phone as well who was trying to get my mom to take me to a psych hospital. She also threatened to send the police to check on me. My mother assured her I was in no danger and we hung up the phone in complete shock. Admittedly, I was in tears when I called her and probably sounded like a fucking mess. But I believe I referenced the dropping iron, protein, fluid near lungs, enlarged thyroid and attacked adrenal gland then literally said "my body is attacking itself and I need help" to which she said, "I think you are manic". Lovely. If I was a mess before that phone call it was 10x worse when we hung up.  Anyway, this is the first night it has been extremely difficult to sleep. I admit my thoughts about my odd symptoms keep me up often recently. I mean, who the hell bleeds from or gets an infected adrenal gland?! I am sure it was another time I begged my primary for help. On a side not, the NP at the ER told me the primary should be putting these pieces together and communicating with my other doctors better. He then stated that he used to go to the same practice but left because the practice got too big and like a business. So I got some validation from that chat.  A melatonin or a .25 xanax usually does the trick for me to sleep but I am so disturbed about my interaction today, stressed at my health, stressed that my ex has our son so much because I am always sick (bless him for coming through), stressed that I have to go back to this awful doctor because I will need the FMLA paperwork before I see the new doc on the 7th.  8 months ago, I took a multivitamin when I remembered it and that was it.  End rant. Maybe now that it is off my chest I can finally sleep. 
    • Hi DKH0614, I use aspirin, Pepto Bismol, and peppermint tea or Altoids peppermints.  Pepto Bismol has a soothing effect on the gut.  Pepto Bismol also has aspirin in it.  Peppermint is helpful for relaxing smooth muscle tissue and getting gas out of the stomach. As per KarenG, you may be reacting to dairy.  Dairy has a sugar called lactose in it that some people with celiac have a hard time digesting.  You could try avoiding dairy for a few weeks to see if that helps.  Or try taking lactaid type pills when you eat dairy. It doesn't take very much gluten to cause an immune system reaction.  So it is important to avoid even traces of gluten if possible.  The stuff is hard to avoid sometimes if people around you don't understand how much a small amount of it can affect your body. Let us know if we can help with any  more questions, or if you have concerns we haven't addressed. And welcome to the forum! Also, if you subscribe to the thread (notify me of replies) you'll get an email when people respond to your thread.    
    • After a year and half, if you are eating gluten-free, you shouldn't be having pain from Celiac.  Perhaps you need to find out what is really causing your issues?  Dairy/ lactose is an obvious first place to look.
    • Hi! I am 15 and have been diagnosed with celiac disease for about a year and a half now and I am woundering what do some of y'all use to relive some of the abdominal pains that come along with celiac/gluten allergies?  ( Ibuprofen,  Tylenol, etc.) 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,440
    • Most Online
      1,763

    Newest Member
    Cygnusx1
    Joined