Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Giving Blood And Plasma
0

9 posts in this topic

Hi everyone! I was just wondering if anyone knows about donating blood? Can we (people with celiac disease) still give blood and plasma?

Thanks

-Jennifer

0

Share this post


Link to post
Share on other sites


Ads by Google:

Call 1-800-GIVE-LIFE. It's the American Red Cross, they should be able to tell you.

Lily

0

Share this post


Link to post
Share on other sites

Hi

I live in Australia and we can give blood with celiac disease. It is mainly infectious things they worry about, like aids, hepatitis, etc. I am on the Bone Marrow Registry but have since found out they don't take celiacs if they come up as a match. Not sure why.............don't think you could give a person celiac disease by giving them blood...........surely! Anyone know if that is a likely scenario? :blink:

Shaz

0

Share this post


Link to post
Share on other sites

I have given blood since being diagnosed with celiac, but I have a much more difficult time qualifying due to iron deficiency. My doctor recommends against giving blood or plasma as it takes my system longer to recover. That's speaking from personal experience. It might be different for each individual.

Darlene

0

Share this post


Link to post
Share on other sites

The Bone Marrow thing probably has to do with the fact that celiacs tend to be at higher risk of developing osteopenia/osteoporosis, due to the lack of nutrients being absorbed, so this may put them at risk from donating bone marrow, not at risk of giving the disease to someone else.

But I am wondering about the blood donation. This saturday they are having a blood drive in our town for my son's second grade teacher who has cancer (uterine cancer that spread to her lungs) and now that they have the lung cancer under control through chemotherapy, she is having her uterus removed next week. Since she has been in chemo for 4 months she needs blood for the surgery and platelets. So they are having a blood drive in her honor. I plan to go sign up, I don't know if they will take my blood, but I have to try. I have tried before more than a decade ago, when I was in better health, and they wouldn't take my blood after I filled out the questionaire. We'll see this time.

Do you think it will make me feel sick? I'm apparently not anemic, but I am so darn tired everyday. Only been gluten-free for 5 weeks...any thoughts?

Mariann

0

Share this post


Link to post
Share on other sites




I used to donate blood regularly and often barely squeaked by on the iron tests (although I was not officially anemic). However, I usually felt weak afterwards.

I think anyone who is feeling tired due to celiac disease should NOT donate. They are so desperate for blood these days that their criteria for accepting people may not be as stringent as it should be, I suspect.

The last time I tried to donate (a couple of years ago before my dx) they had to stop early because I was starting to pass out. So, my blood could not be used and it was a waste all the way around.

My main symptom of celiac disease so far has been fatigue.

It seems as if the antibodies to gluten that are detected in the blood STAY in the blood and would be passed on to the blood recipient. Even if this infused blood is only a small portion of the person's total blood volume, perhaps the infusion of antibodies could be enough to trigger the disease in someone susceptible. So little is known about this disease, why chance it?

If someone asks me why I don't donate anymore I will say that my body produces antibodies to certain grain foods and I don't want to risk passing on the allergy to someone else. Who is to say this is NOT well-founded? Better safe than sorry.

0

Share this post


Link to post
Share on other sites

I actually have given blood before and after my diagnosis. I used to have to prep myself w/iron before dontating but since I've been gluten-free, my iron is stronger then ever.

I don't think it's a problem. Otherwise the doctor would have advised that I not give blood. I think the best bet is to ask your local blood association.

0

Share this post


Link to post
Share on other sites

I actually did give blood this last Saturday. I checked the guidelines of who could donate, and since they check your iron when you get there, I figured I'd probably get turned away, but I would try anyhow. Well this was the first time that my iron level was up. I was actually quite excited to know that. I certainly feel like I'm absorbing more nutrients from my food. And I let them know up front that I was gluten intolerant, but since I didn't take medication for it, they didn't see it as a problem.

Someone had mentioned earlier that they didn't want to take the chance of triggering celiac disease in someone who had the gene but hadn't gotten the disease, and I thought about that, but I figured that whatever they needed the blood for was probably more than enough of a trigger. That if they are going to get celiac disease, the few antibodies still floating around in my blood was not going to cause them to get sick.

Just make sure that if you do give blood, to bring your own gluten-free snacks. It helped a lot, since the only thing on the snack table that was gluten-free were raisins, the rest was Hostess cupcakes, Twinkies, Ding Dongs and other such junk food. I was glad that I brought a snack bar from home. I felt a little tired that day, but a nap helped and then by the next day I felt better. And I get to know that I helped out my friend. She gets credit for 48 pints of blood! And someone else will get my pint of blood that they really need.

Don't let Celiac Disease get in your way of helping other people. Most blood banks are in constant need of donations. And they won't let you give if you feel sick or your iron is low. It doesn't hurt to try.

God bless,

Mariann

0

Share this post


Link to post
Share on other sites

Celiac is not something that would stop you from being an eligible blood donor. Potential donors are screened thoroughly with a questionare. Like mentioned earlier a screening iron level test is done. All donated blood is tested for many potential problems before being administered. I was not able to donate blood for several years after I had my triplets, because of elevated liver enzymes. It was thought at the time, that my liver damage was from HELLP syndrome (severe toxemia of pregnancy) but the problem has now been attributed to newly diagnosed celiac.

I now donate regularly again.

Being able to donate blood is really important to me. Blood donations saved my son's life 13 times when he was very ill as a newborn.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,896
    • Total Posts
      919,537
  • Topics

  • Posts

    • Marshmallow Fruity Pebbles
      I have been gluten free now since February and I recently purchased a box of Marshmallows Fruity Pebbles and looked at the ingredients (which none indicated gluten content), but am just wondering if anyone has had a problem with them. 
    • Test Results
      Update: I am about at my wit's end. I won't be able to see my new doctor until July 17 to get a referral to a GI doctor, so I continue to eat gluten and the effects continue to worsen. Today my boss, whom I have been working with for 12 years, and I had a meeting where he said he's noticed a change in many things, such as speech, not articulating well, forgetfulness, and other things that are affecting my work product. I finally told him I know there is something wrong with me medically and I've been trying to get to the doctor to no avail. I recall those four weeks early in the year when I tried out gluten free and was beginning to feel much better- more present, more sharp, and then went back on gluten in preparation for the blood test.  I just don't think I can do this gluten thing any longer and am thinking of going cold-turkey gluten free.  I'm 54 years old, am beginning not to care about a diagnosis because I just want to feel better and be able to do what I need to do. Because of how I felt going off of gluten earlier in the year, and eating gluten free when I was on the McDougall plan years ago, and how I feel while doing this gluten challenge, I am pretty convinced that my issue is gluten.  Any words of encouragement would be welcome.  If you've done gluten free and never looked back, tell me about it. 
    • Gardasil
      "I got this vaccination in 2009 when I was 20 and it completely altered my life. Made my celiac disease so much worse, sleep 15-18 hours a day, SIBO, it has completely altered my life since getting this vaccination. My doctor has two twin girls about my age and they both have digestion problems after receiving gardasil Thank you I have a young daughter and have wondered this exact question posed by the poster and your response has given me great pause about this issue which may come up in years to come. I am sorry to hear this wreak havoc on your life, but simultaneously thank you for sharing this detail to help those of us that have likely been decades misdiagnosed celiacs now raising children. Thank you.
    • Gluten does WHAT to the brain?
      "Wondering what kind of life my brother could have had - if  he had celiac - constantly haunts me" My sympathies that is just tragic, as this story is.  I hope you are at peace knowing you are aware of your celiac and help so many lost, scared, and confused celiacs here. It can never bring back your brother but I hope it can give soften some of what you feel that was/is beyond your control. His suffering and your loss has made you a better advocate to yourself and in your work helping us. I don't like my body or my  brain on gluten either. I do fear that people overlook the toll inflammation takes on the brain. It likely may explain decades of mental illness that was brain based inflammation unknown until changes in technology advancement catch up. However consuming gluten to study how one enters psychosis may not be the best method. Do no harm.  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Jmg  »  admin

      Hello Admin!
      I don't know whether this is of interest to post on your articles feed:
      http://pratt.duke.edu/about/news/window-guts-brain
      Kind Regards,
      Matt
      · 2 replies
    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,943
    • Most Online
      1,763

    Newest Member
    purplerain
    Joined