Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Spent The Morning In The Er!
0

9 posts in this topic

OK,

I spent half a day in the ER today hooked up to an IV getting fluids. I haven't been feeling right lately and a lot of other food intolerances have been making me really sick. I have felt myself getting weaker and weaker the past few days with more and more muscle pain and less sleeping at night. I've been waking up in a sweat with a rapid heart rate and the feeling that my legs would not hold me up. Needless to say, the muscle pain and fatigue has been debilitating and my body has been feeling malnourished. I have been ravenous and actually been eating very well these past 2 days with no diarhea or food reactions. I have been watching what I eat very closely but just eating more of the foods that are ok. I will say that my meals these past 2 days have been well rounded.

I felt like something was really wrong and thought I would pass out. My husband took me to the ER and of course they are clueless to gluten issues. They ran simple blood tests that of course were normal and gave me an IV in case I was dehydrated.

I'm home now not really feeling any better and just craving more and more food. Dinner is in the oven as we speak.

The dr who diagnosed the gluten intolerance is from out of this state and I spoke with him about a week ago. He mailed me some precriptions for specific blood work to be done. I had complained to him that I was feeling weaker and achy about that time. I have planned to do that blood work on monday. For insurance reasons they could not draw those bloods today. The tests that he wants me to have done are to check for nutrional and vitamin deficiencies as well as thyroid function. I will have to call him monday and inform him of today's scenario.

this is a very scary feeling...light headed and extremely weak. the hospital dr said it is probably chronic fatigue. Oh well........I've been told I have that but this feels different. I feel so exhausted and malnourished! The gluten dr siad that it's possible that I am not absorbing enough. Has anyone else had this problem or felt this way? and what did you do?

I actually came home for the hospital and had my hubby give me a B-12 injection.

Not sure if it will help but don't think it will hurt.

I'm praying that tomorrow will be a better day.

0

Share this post


Link to post
Share on other sites


Ads by Google:
:( sorry to hear this mel--hope you start feeling better soon--i do believe you are on the right track, its just your body is in such bad shape that it will take a while to get it back to feeling better--i think you will see improvement soon--feel better sweetie :) deb
0

Share this post


Link to post
Share on other sites

Mela,

Are you sure that your not getting gluten from a hidden source?

I ended up in the ER because of a medication that contained

wheat starch. I also had a rapid heartbeat and felt light-headed.

Be sure to check your meds, lotions, shampoo, etc. Hope you

feel better soon..

0

Share this post


Link to post
Share on other sites

Mela, I hope you are doing better now. That sounds rough. Make sure they check if you have some anemia causing problems, and monitor your blood sugar levels. Certainly low blood sugar can hit you that way, and anemia too. If its low blood sugar keep your protien high and eat small meals 5 times a day.(those are the only two things I can personally suggest from experience). Could you have eaten food with a lot of MSG? Just remember that even though it seems like an unbelievable mystery of what is causing this,there is a cause and it can be found. Make sure to keep a full food diary to try to help track that side of it. Good luck tomorrow. Dreamhouses

0

Share this post


Link to post
Share on other sites

Thanks for all the well wishes.

I do keep a food diary and have not had any gluten, soy, dairy, eggs or medications...definately no msg.. I felt as thougth my entire body was going to collpapse; dizzy, weak, uncoordinated, knees buckling and the worst aching muscles! i couldn't even get out of bed. this happened to me a year ago and I went to my dr who threw his hand up and said I don't know what to tell you. that was it. Gluten issues were never discussed with me even with me telling him of ALL my GI symptoms with diahrea.

Anway, while I was in the hospital I thought of a friend of mine who has Crohn's disease and had an experiece with the same crippling problem. he went to the ER a few times and they did not help. Finally, he went to the ER and said he was not leaving until they found out why he felt as though he were ging to pass out. They admitted him and ram more extensive tests and sure enough he was not absoribng B-12. He now takes the B-12 regularly or when he starts to feel a little weak and catches it before it gets that bad.

So, I thought maybe that was happening to me and that these drs are just clueless or because of ins reasons don't run certain tests. They already told me yesterday that they would only run tests in the ER that would bring them results back right away. Anything that needed a longer turn around time could not be done. Of course they were not going to admit me.

I came home and dug into my fridge and found a bottle of liquid B-12 from a year ago and made my husband give it to me(injection) . Afterwards, we saw that it was recently expired....that's how long it's been in the fridge but figured it couldn't hurt anyway. By evening I thought I was little better but the heart palpatations were still there. I had to take an inderal and ativan to get some rest. I can honestly say that this morning I feel better. I have less muscle pain and feel stronger. I don't feel that I am going to collapse. I had my husband give me another injection this morning and then tomorrow will call my dr in NJ and let him know what happened.

I looked up what the spcific blood tests were that he had written on the precription for me to have done tomorrow and it seems that he put some sort of screening for b-12 deficiency. Maybe when I gave him the syptoms he was thinking along those lines.

if this is it then I can't tell you how relieved and upset I am at the same time. I've had so many other incidents like this and no one took an interest in finding out what the heck was going on. My explanations of what I was feeling were always the same.

The B-12 vial was given to me by an old dr about 2 years ago just for the sake of having it to help build me up. The indications for it's use were never clearly stated to me and then again the Gliadin issue was never discussed. By the way, this is the same dr that ran the test for Gliadin AB....got the results (strong positive) and then never gave them to me. hhhmmmmmm

This new dr that is helping me now is very expensive and does not take insurance. I flew from Florida to NJ about 6 weeks ago to see him and it was the best money I ever spent! I feel that I am on the right track now.

i will have to call him tomorrow and let him know that I did these injections and that the blood test I take tomorrow will be reflective of that.

The bottom line.....follow your heart. I knew something was wrong....and I even told the ER dr...maye I am not explaining myself well enough but...."I feel crippled".."I feel that I am going to collapse"..."My legs won't hold me up"..."I feel malnoursihsed"....etc. just a few of the very accurate ways I articulated to him what I was feeling....so much for ER drs! In the end we have to be our own drs!

Hopefully this second shot will continue to give me strength. Let's see what happends!

Thanks again,

0

Share this post


Link to post
Share on other sites




Hi Mela, I'm only adding this because you said you have a doctor that is very responsive to you AND because what you're describing seems to be similar to what my father experienced many times at hospitals. It was so frustrating and heartbreaking! Anyway, here's a quote from an article written by M Hadjivassiliou, R A Gr

0

Share this post


Link to post
Share on other sites

Hello, I have been that weak as well. I had no iron in my blood.You need to get your iron and ferratin checked thruogh blood. I have to have iron infusions. That help tremendously. It takes a week or so to feel it though. Please ask the dr to check your blood. Hope this helps. feel better soon

Vicki

0

Share this post


Link to post
Share on other sites

I've been getting B12 shots for the last two months and they help a lot. I highly reccomend them.

Hang in there.

Caryn

0

Share this post


Link to post
Share on other sites

Hi,

Your symptoms sound similar to mine when I first started showing celiac symptoms - the ER, docs going "huh?", and so on. It went on for months. Finally I found an amazing traditional chinese doctor who restored my health partway, and I was able to semi-function in the world. 12 years later I was diagnosed celiac.

There have been some good suggestions from other folks. If you've been celiac for a long time, I'd like to throw out one more - which is anxiety and anxiety attacks, caused by damage to the central nervous system and sometimes triggered (and sometimes not) by gluten exposure.

Gluten can be in places as hidden as drywall and joint compound, which are major pollutants in the air (and inhaled and ingested consequently) if there is even minor construction in your house/apartment. Gluten can be in brown rice syrup (you have to call the food manufacturer to find out) and in many other things that are not obvious.

Take a good look at your kitchen appliances - someone mentioned pots and pans - also look at your microwave - it may be time to get a second one. If your dh cooks gluten, airborne particles could be an issue. I got a very very mild gluten reaction this week from a thorough cleaning of the kitchen cabinets which had some old wheat flour and dust on the top shelf.

Possibly consider going to a nutritionist. I got some digestive enzymes (all natural, food based ones) and they have made a world of difference in my digestion. She also offers ones especially to aid pancreatic function. She had to look through her products carefully, as many of them contained gluten.

Best of luck,

Merika

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,918
    • Total Posts
      919,629
  • Topics

  • Posts

    • Weird things people have said
      You are right Dania, you cannot have "mild Coelic" disease and you cannot eat "a bit of gluten here and there" if you've been gluten free for a while. Coelic disease is a lifetime commitment to being gluten free, even if you don't have symptoms, it is still damaging the villi in the gut, which can lead to more serious health problems, (not that Coelic disease is not serious, because it is).  Some people may question whether it is safe to use the same colander as those cooking gluten, but it depends how well it is washed up as it is quite easy to miss bits. Personally, I bought a new one and I would definitely not use the same sieve as the mesh is far too tight not to collect  small amounts of gluten. I'm not too surprised at doctors not knowing all they should know about Coelic disease, it's the same here in the UK where Coelic UK actually advise doctors on the disease. 
    • Depression / anxiety issues
      Hi Chris, haven't had a chance to read the whole conversation but regarding dairy, if you are suspicious of something, drop it for some time and see. You are still healing so maybe dairy is bothering you now. Also look at the nightshades, corn, dairy, soy, and eggs. I had a horrible time last year. I had muscle twitches, brain fog, pain, was tired,etc. I searched online and decided to drop all of those things I mentioned above. I am not sure what bothered me since I dropped them all at once but i slowly began feeling better. Now, i reintroduced eggs again and sometimes have lactose free milk with my coffee. I recommend eating salmon, tuna, bone broth soups, using olive oil and coconut oil and not eating much or not at all processed food even if it is marked gluten free.
    • Weird things people have said
      I've had people say strange things about celiac to me lately... Like someone said, "Oh I'm just a mild celiac so I don't have to worry about cross-contamination." And then someone else said that they're celiac but things have calmed down now so they can have a bit of gluten here and there. And I told my doctor that back in 2014 I thought I had been gluten free but I actually wasn't because I had been repeatedly glutening myself with an old colander. And he just looked at me like I was insane, like a colander?? Sure... I'm not crazy, right? Even if you have no symptoms you have to avoid cross-contamination because you can be doing damage internally right? You can never have 'just a bit'. And a colander is a big source of cross-contamination right?? I know all this but why do these other people not? Why does my doctor not know? So confusing and spreading misinformation... And then they look at me like *I'M* crazy.
    • fructose malabsorption and gluten intolerant
      Look up FODMAPS.   That might clarify things for you.  There really are a lot of diet recommendations so make sure you bring a list of questions regarding foods to your doctor's  and dietician's appointments.  
    • Recovery?
      Thank you for sharing those web sites. I will look at them. We have been gluten free since December so it's been a while. Once, he had a gluten free beer, the kind that they take the gluten out, and his legs felt very heavy and had a more difficult time walking. I really don't want to experiment.  Although I am very careful about what we eat, I am concerned that some of our medication could contain gluten. Is there any easier way to tell if medication has gluten. I did find a website which listed drugs and known gluten but every drug was on it or was determined to be gluten free
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Jmg  »  admin

      Hello Admin!
      I don't know whether this is of interest to post on your articles feed:
      http://pratt.duke.edu/about/news/window-guts-brain
      Kind Regards,
      Matt
      · 2 replies
    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,963
    • Most Online
      1,763

    Newest Member
    Tams67
    Joined