Seeing A Child With Symptoms
Posted 19 December 2004 - 07:23 AM
What should I do? Should I do anything? Looking at the girl, you'd not think it surprising to find she was being mis-treated. I just don't believe that is so (or I'd go to the school and not to this board.) If someone came up to you and said "your child looks like she could have celiac disease," how would you react? If I don't say anything and the little girl gets seriously ill, I would feel horrible and guilty. Ugh! I'm so confused!
I would really appreciate both positive and negative feedback on this, just to get an idea. Hindsight tells me I would have appreciated the info, but would I have, really, at the time? I think so. Has anyone else done this? I know my sisters have been interested in hearing about gluten intolerance, but none of them feel it's important enough to actually test their kids (or themselves.) But, at least, I tried.
Posted 19 December 2004 - 08:37 AM
One other thought about your situation - this child may have some malady that her parents are aware of and may not appreciate the comment.
Posted 19 December 2004 - 09:33 AM
Posted 19 December 2004 - 09:40 AM
Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy
G.F. - September 2003; C.F. - July 2004
Hiker, Yoga Teacher, Engineer, Painter, Be-er of Me
Posted 20 December 2004 - 02:05 PM
I agree that she might already have something her parents know about and you might be the 100th person to suggest they have a possible diagnosis. Been there, heard that! (My son was dx by relative strangers with cancer, anorexia, diabetes, kidney failure.....) BUT, given your good intentions, why not mention all this to the friend you have in common, and ask them to pass the suggestion along? You know "You know her better, and their child looks so much like jr. did when he was sick, Ijust thought they might want to know "
Success is never final and failure never fatal. It's courage that counts -George Tilton
Posted 23 December 2004 - 09:14 AM
It is so hard to give advice tactfully... especially when it is not solicited.
A mutual friend may know better what they are going through and know the right way to approach the issue.
Diagnosed 3/03 (Positive Biopsy/Negative Blood Tests)
Daughter dx 12/03 (Positive biopsy/Positive blood tests);
Two sons (Negative blood tests); One on gluten-free diet (6/04) ... cured his persistent, severe headaches.
Posted 23 December 2004 - 12:02 PM
LOL. Yes, I have already diagnosed most of all my children's aquaintances... lol. I have even "diagnosed" my own friends, extended family memebers and grocery check out workers. lol. I just keep it to myself. My husband thinks Im crazy. I know just what you feel. I dont have any advice as I just stick with my own thoughts to myself.
Long Island, NY
Double DQ1, subtype 6
We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!
"The calm river of your life approaches the rocky chute of the rapids - flow on through. You are the same water. The rocks cannot hurt you. Remember, now and then, that you are the water and not the boat. Flow on!
Posted 24 December 2004 - 10:37 AM
But, here's an example of "trying" with family...My mother's cousin is in the hospital right now. She went in a couple days ago (she's 76.) They thought she was having mini strokes (some three letter term they use now, but meaning what we used to call mini strokes.) But, all the tests have come back negative. She has pain in her right arm, her right leg, her stomach is distended, her brain has "low fluids," but no stroke damage. She doesn't eat many things because they just disagree with her. She feels like she's living in a fog. The doctors have no clue what is happening to her. At all. I'd spoken with her kids over Thanksgiving and several of them are pretty convinced they may have gluten problems. So, I suggested to my mother she suggest it to her cousin that she gets tested (while they're doing all the other tests at the hospital.) I was pretty convinced my mother would NOT suggest it. But, if she did, her cousin would disregard it. But, if she didn't, her doctors would consider it ridiculous and not do it. Well, my mother did suggest it, but at this point, I don't know what her cousin is going to do. I really stressed whether to suggest it to my mother, but decided, I really had to or I would feel horrible if they found it out after the fact (like with my father.) My mother confessed, she only suggested it because of exactly the same reason.
The interesting thing abou this is that my mother FINALLY confessed she is feeling so much healthier these days while living with me and not eating gluten. Her sinuses are perfect (no constant allergies or sinus congestion.) She's been suffering from burning mouth syndrome and this has stopped (except for last week when she "had to" have a bite of a roll added to her salad lunch.) She has so much energy...Hmm...
Posted 26 December 2004 - 07:18 AM
Posted 29 December 2004 - 07:25 PM
Wife to Power Lineman, Chris.
Hollis (10.96) peanut allergy
Zobey (7.98) gluten intolerant & mild allergy to milk and egg whites
Zeda (6.02) dog allergy, hay fever, something else that I just cant figure out yet...?
Annakaya (1.05) milk sensitivity
Kaitlyn (8.06) milk allergy
Posted 30 December 2004 - 09:41 AM
I tell everyone about my celiac disease and the common symptoms that get misdiagnosed etc. Some people just say, Oh I know someone at school like that, I should tell there parents etc. In the end I just leave it at "If they want to talk to me for more info or doctors names, you can give them my number".
Good luck with your dilema
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