Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Celiac Blood Test
0

7 posts in this topic

My daughter had blood tests for celiac I call for the results and the nurse said they were normal but the IgA came back high. I asked her what that meant and she said its just allergies!!! does this mean she does not have celiac or she doesnt know how to read the results. any opinions !! :blink:

0

Share this post


Link to post
Share on other sites


I don't really know how to read blood results, nor do I know what this IgA stuff stands for, but if the nurse claims it's simply allergies, what allergies are she referring to? Wheat? I can't offer medical advice on the results, but I'm wondering what allergies she suspects.

0

Share this post


Link to post
Share on other sites

IgA - there are four different types of IgA antibodies that are tested when checking for celiac disease

IgA endomysial antibody (IgA EMA)

IgA tissue transglutaminase antibody (IgA tTG)

IgA antigliadin antibody (IgA AGA)

IgG antigliadin antibody (IgG AGA)

Elevated levels of any of these means celiac disease is a possiblity. Which ones did she test positive for? How high were her levels. Certain ones are more accurate than others. For example - a positive endomysial marker is 98%-100% accurate for celiac disease without a biopsy.

I would call and talk to the lab to get the specifics of the test and then ask for someone else to interpret the results. If your child has elevated IgA levels it should be looked into.

Did you have allergy testing done as well? If not I would do so.

If you can't get better results get a second opinion. My doctor has very limited knowledge of celiac disease. I was even told that is was up to me whether or not to follow a gluten free diet for them!

My computer was broke and I finally got a new one and just saw this post. I will try to check back to see if you have more questions.

0

Share this post


Link to post
Share on other sites

Hi there -

I'm new to the "Celiac Community" but definitely not new to food allergies. I had my "bloodprint" done, which tests for food allergies - IgA and IgG. (The third type of allergies - IgE?? - tests for instant, "obvious" reactions - like anaphalectic reaction to peanuts, for example) IgG would be referring to a delayed food allergy (symptoms ranging from headaches to moodiness to skin problems, etc.). IgA, that you are referring to, refers to a "gut" reaction. Your digestive system is your body's first line of immune defense (giving your body a chance to vomit or have diarrhea to eliminate the toxin), so if there is a positive IgA response, it means that the "gut" is allergic to it. Now, I'm still in research phases - so somebody correct me if I'm wrong - but I believe the difference between an allergy and Celiac Disease is that celiac disease means that gluten actually destroys the villi in the intestines... which, of course, is much more serious than a mere allergy. (I am 27 years old, and just now learning about an IgA allergy I have to soy...)

What brings me to do Celiac research is that my son, 15 months, is also being tested right now. (We got the blood-draw today.) I'm gluten-sensitive, but my son (knock on wood) is having possible celiac symptoms. (Chronic diarrhea, weightloss, etc.)

Good luck!!

Kristen in Colorado

0

Share this post


Link to post
Share on other sites

I lot of people have stated the blood tests are not accurate in a patient under the age of 20 months.

L.

0

Share this post


Link to post
Share on other sites

I know blood tests do carry false negatives. My child got a negative blood test to allergies and celiac disease. That is why a mom at the celiac foundation referred me to enterolab.com Because the antibodies are produced in the gut, that is the first place you should look. Unless you have enough damage in the villi done for the antibodies to spill over into the blood, you are going to get a negative. I know a mom in the R.O.C.K. (raising our celiac kids) who got a negative blood panel for celiac disease and waited six months until the damage was more severe and got a positive blood panel for celiac disease. I could not see my four year old suffer anymore. She had abdominal cramping (severe) and constipation. She would go over a week without a bowel movement. The new testing looks for the antibodies in the stool, where the foodstuff is. (to all the dinosaur GI's I want to say ...duh) Not in the blood. If you want to test a little one I would go to www.enterolab.com. There are gene and stool tests and you can read all about the Dr. Fine's curriculum vitae. In the four years my daughter has suffered, the ped. and the GI went by blood test only. No one cared about her celiac disease symptoms or her pain. I could not subject her to a biopsy at this age so the GI could satisfy himself, and just the fact that when she does not injest gluten containing foods, she is fine, should be enough. Because they say she does not have celiac disease, it is convenient for the extended family to not care for her special diet and they continue to poison her and she comes home and suffers. Sorry guys, but my anger is that the ped. and the GI igmore the obvious and they don't suffer in pain, my daughter does. Anyway, I really was happy that I got my answer from the stool and gene test from enterolab. My daughter does have celiac disease and not only were the antibodies present in her stool, she already has moderate malabsorbtion going on and she carries the HLADQB1 gene. Now my only fight is to get someone to stand up to the rich ex and let him know the testing is more then valid and to stop poisoning his daughter.

0

Share this post


Link to post
Share on other sites

More doctors are looking into the stool testing methods, so hopefully they're picking up on the demand for this sort of thing!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      102,691
    • Total Posts
      914,447
  • Topics

  • Posts

    • Second Panel has come back...advice?
      Update!  I went to my follow up with my gastro. He's hesitant to diagnose celiac without an endo, but said he will redo the blood work after I'm several months gluten free. My DGP IGA should drop after being gluten free, right? This could confirm the suspicion? I know the TTG levels drop, but want to be sure the DGP also drops on the diet.  Thanks! I've already replaced all kitchen equipment and pantry/fridge items. Early on I didn't realize the potential for cross contamination in restaurants. Now I do, so eating out has been put on halt for a bit. 
    • does your diet have to be like a perfection?
      Yes.  You have to be 100% gluten abstinent when you have Celiac Disorder.  It gets easier to be gluten abstinent, not because you get used to it but because of the negative effects that ingesting gluten causes when you accidentally eat something with gluten.  Nothing tastes good enough to go through a glutening.  As your system heals it will become less tolerant of your occasional lapses into gluten consumption--accidental or otherwise. You have to take this seriously.  You get used to it and there are some wonderful gluten-free options out there.  But you can't go back to gluten and stay healthy.  It just doesn't work that way. Good luck.
    • does your diet have to be like a perfection?
      I  think you need to watch where you get your medical info!    Of course you can't introduce gluten back in. And  of course you have to be strictly gluten-free and not intentionally eat gluten.   "The gluten-free diet is a lifetime requirement. Eating any gluten, no matter how small an amount, can damage your intestine. This is true for anyone with the disease, including people who do not have noticeable symptoms. It can take weeks for antibody levels (indicating intestinal damage) to normalize after a person with celiac disease has consumed gluten. Depending on a person’s age at diagnosis, some problems, such as delayed growth and tooth discoloration, may not improve. The gluten-free diet requires a completely new approach to eating. You have to be extremely careful about what you buy for lunch at school or work, eat at cocktail parties, or grab from the refrigerator for a midnight snack. Eating out and traveling can be challenging as you learn to scrutinize menus for foods with gluten, question the waiter or chef about possible hidden sources of gluten, and search for safe options at airports or on the road. However, with practice, identifying potential sources of gluten becomes second nature and you’ll learn to recognize which foods are safe and which are off limits." http://www.cureceliacdisease.org/living-with-celiac/guide/treatment    
    • does your diet have to be like a perfection?
      FlowerQueen is correct.  Once diagnosed with celiac disease, you should never consume gluten again without the risk of becoming very ill (osteoporosis, liver damage, lymphoma, etc.).   I think everyone has trouble in the beginning sticking to a gluten free diet.  That's because gluten is in so many processed foods.  It takes time to learn to read labels, make a safe kitchen, learn to eat out, get your family to support you.  I would advise reading out Newbie 101 section under "Coping" within this forum.  It contains valuable tips for becoming gluten free.  Also, check out the University of Chicago's celiac website to learn about celiac disease.  Knowledge is power!   Everyone has different degrees of damage, but I would say that learning the diet and healing can take months to a year or longer.  The good news is that this is an autoimmune disorder that is treatable -- avoid gluten at all costs!   Take care and welcome to the forum!   
    • does your diet have to be like a perfection?
      Not sure what you mean by perfecting your diet? Do you mean accidentally eating gluten?   As to re-introducing gluten again, if you have celiac disease, please DO NOT ever re-introduce gluten again. It's an auto-immune disease, not a food intolerance. It will damage your gut again if you do.  Hope this helps.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

    There are no registered users currently online

  • Member Statistics

    • Total Members
      59,730
    • Most Online
      1,763

    Newest Member
    Fragranista
    Joined