Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Soy Milk
0

31 posts in this topic

Has anyone had problems with soy milk?

BAM

0

Share this post


Link to post
Share on other sites


Ads by Google:
;) yup--i cant tolerate soy milk, soy flour, tuna in water that is soy based, mayo--i guess for now i consider myself soy limited--lecithin doesnt seem to bother me and i can use oil, whcih sometimes has soy in it--i guess it has something to do with the heating process that cooks the protein out of the soy then--anyways--no soy milk for me--if you are dairy free, maybe you could try rice milk or almond milk--just watch for barley in rice milk---deb
0

Share this post


Link to post
Share on other sites

It causes diarrhea?

I am fine with a lactose free milk, the coffee shop here has soy milk for those who can't have dairy, I had one Sunday and one today, and my stomach has been irritated every since.

0

Share this post


Link to post
Share on other sites

certain soy and rice milks do contain gluten! crazy-huh? try Pacific Soy, and Pacific Rice Milk, i know that both are gluten free~ they say right on the front. Eden soy and Silk Soy (the kind used at starbucks are Not gluten free... sorry...

1

Share this post


Link to post
Share on other sites

I have problems with it, too.

0

Share this post


Link to post
Share on other sites




WHAT?! The Silk soy milk at Starbucks is NOT gluten-free? I regularly use the NSA Silk soymilk at home, but only get the occasional one at Starbucks as a special treat. I've not had problems with it. I have noticed I can't tolerate any of the flavorings added at Starbucks, though. (But their silk soymilk is so sweet, I don't add any.)

I'd hate to have to pop the lactaid so I can drink the skim lattes again, but I will. <_<

0

Share this post


Link to post
Share on other sites

Actually, I just did a search. Phew! Here's the companies list of gluten-free soy products:

http://www.silkissoy.com/index.php?id=17&cid=2#10

White Wave Gluten-free Product List:

Soymilk

Silk Organic Plain

Silk Vanilla

Silk Very Vanilla

Silk Enhanced

Silk Chocolate

Silk Coffee Soylatte

Silk Mocha

Silk Chai

Silk Spice Soylatte

Silk Unsweetened

Silk Light Plain

Silk Light Vanilla

Silk Strawberry

Silk Nog

Silk Exclusively Formulated for Starbucks

0

Share this post


Link to post
Share on other sites
:( so sorry bambam, probably your problem is with the soymilk, not that there is gluten in it, but that you may be intolerant of soy in itself--just as i am soy limited, you may be too :( i know, not fair, but just might be the problem---deb
0

Share this post


Link to post
Share on other sites

Deb, you and I are alike in that we can't do soy.

Soy is a common allergen.

I can't do soy in any way shape or form........except for a teenie tiny amount of soy lethecin in say a candy product. Even the oil bothers me, so can't take a normal Vit E, only a Rice Tocopheral form of Vit E. When I do ingest soy I get one of the strangest reaction....my legs ache like a son-of-a-gun, especially the calves, and I can barely walk.

If anyone one is interested they can read about the affects of soy here:

http://www.westonaprice.org/soy/index.html

BamBam, I think I would try to go without soy a while, subing with rice and nut beverages and see what happens. That may tell you more.

Kandee

0

Share this post


Link to post
Share on other sites

Hello there - this is my first post - I'm the wife of Shayla Dad. I am questioning the possible negative reaction to soy in my 3 year old step-daughter. She was just diagnosed with celiac disease in November and my husband and I question the lack of improvement in both her weight, distended belly and diarrhea. Until recently, our time with her was limited due to only having partial custody. We just started a 50-50 custody schedule and although we follow a gluten-free diet (she is also a finicky eater) she had a pretty severe bout of foul-smelling diarrhea this morning. Her mom gave us PediaSure, which she claims she gives her on a regular basis. Although hesitant, I gave her the Pedia Sure late yesterday afternoon and I am concerned that this is what caused her to be sick. Unfortunately, we don't have a very good relationship with her mom and I worry that her family doctor would rule out the possibility of a soy reaction since he admits that celiacs for him was a "first-time diagnosis". I'm positive she's had nothing else to cause this. Is there anyone out there that can confirm a problem with Pedia Sure? To date, there is no known dairy intolerance either.

0

Share this post


Link to post
Share on other sites

No idea if there are other ingred/problems w/ PediaSure, but i did find this.

Thank you for contacting the Ross Products Division of Abbott Laboratories.

There is no source of wheat, barley or rye in our PediaSure® products. Additionally, PediaSure is not produced on a line that also produces gluten-containing products. There are no gluten-containing products manufactured in our formula plants.

Please let us know if we can be of further assistance.

Sincerely, Terri

Ross Consumer Relations

( http://maelstrom.stjohns.edu/CGI/wa.exe?A2...=celiac&P=R1229 )

Another thread says it contains casein, but you already mentioned no known dairy intolerance.

0

Share this post


Link to post
Share on other sites

soy make me sooooooooo sick! immediately too! I get bloated, feel ill, get a migraine....and the sore, sore stomach persists for days. My gut gets totally irritated and distended. I get thobbing pain low in the abdomen that only feels a littel better after a bowel movement.

Now I check to make sure that soy isn't one of added ingredients too!

0

Share this post


Link to post
Share on other sites

I had such a bad reaction to a few soy milks (bloating, upset stomach, nausea). Then I read an article about carrageenan. Most soy milks (and some rice milks and almond milks) have carrageenan, an emulsifier. From Dr. Mercola's website:

"Carrageenan is taken up by intestinal cells rather easily, but the cells are unable to metabolize it. As carrageenan accumulates in cells it may cause them to breakdown, and over time this process could lead to ulceration...."

As a side note, I don't drink soy milk anymore because I have to limit my soy intake (according to my doctor it has a negative impact on the thyroid, and I'm already hypothyroid). My friend, however, found a brand of soy milk that doesn't have carrageenan and it doesn't make her stomach her like the others did. I don't remember the name of it, but she said she feels much better.

You may want to give it one last shot with a brand free of carrageenan. Here's another quote from another article about carrageenan:

"Carrageenan is a gel. It coats the insides of a stomach,

like gooey honey or massage oil. Digestive problems often

ensue. Quite often, soy eaters or soymilk drinkers react

negatively to carrageenen, and blame their discomforting

stomachaches on the soy."

It's from http://www.notmilk.com/carageenan.html.

I don't know if it is soy or carrageenan. I hope you can find your answer. I, myself, love rice milk and almond milk.

Shannon

0

Share this post


Link to post
Share on other sites

Shayladad.... was the little girls diarrhea a frothy consistancy? if so I would have to say look at the casein foods ..... with it being foul-smelling and usually not happening for a few hours sounds a lot like how I react to casein. so just a thought but also sounds like your in a tough spot with her diet...... so good luck ;) hope you find what is causing it.

0

Share this post


Link to post
Share on other sites
**Eden soy and Silk Soy (the kind used at starbucks are Not gluten free... sorry...**

Hello,

I have a bunch of Silk chocolate soymilk drinkboxes--I have them for breakfast--and they all say "Gluten Free" on them. Plus, the ingredients don't contain anything that could be a gluten source. Is there something different about the soy Starbucks uses, or were you thinking of a different brand?

0

Share this post


Link to post
Share on other sites

I drink silk alot to. There was a post with the gluten free products list from them in a previous post under this subject. As far as I know the kind they make for starbucks is gluten free. I have a recent list from them that has that on it so as far as I know it is in fact gluten free.

0

Share this post


Link to post
Share on other sites

When I was first diagnosed with gluten-free I couldn't drink Milk. I have to have milk in my coffee so I tried the soy milk, NASTY I tried Lactaid, GROSS and made me sick. I ran across Land O Lakes Dairy Ease. I love it.

0

Share this post


Link to post
Share on other sites
<_< well everyone--i bought Smart Balance margarine last friday, knowing it to be gluten-free, but not realizing is was also dairy free and you guessed it--i got sick---terrible headache and for the first time ever--my ears had a ringing that was deafening--that finally calmed but the headache stayed with me and of course, my mind became foggy so i couldnt think and then the sleepless nights fell into place and muscle aches--i even pinched a nerve in my neck/shoulder and it finally hit me--maybe the margarine and that is when i saw the lactose free on the tub :angry: and i have been miserable for 5 days before i figured it out--i swear it messes with your brain too--the rest of the margarine is in the trash now and the headache is starting to dull--i havent had any of the margarine since yesterday morning :( somedays :( i have been gluten-free for almost 4 yrs and i still make mistakes and obviously--big ones :rolleyes: my daddy always said--if you're gonna do something, do it right!!!!!!!!!!!!!!!!! ;) deb
0

Share this post


Link to post
Share on other sites

I have called Starbucks and they verified that all their drinks are gluten-free EXCEPT their frappucino's. Even the soy milk is! : )

0

Share this post


Link to post
Share on other sites

My son can't drink soy milk either - it gives him horrible, smelly diarrhea, and distended belly. From what I understand there is about a 30% cross-reaction rate between cow's milk and soy - my son is allergic to both.

0

Share this post


Link to post
Share on other sites
certain soy and rice milks do contain gluten! crazy-huh? try Pacific Soy, and Pacific Rice Milk, i know that both are gluten free~ they say right on the front. Eden soy and Silk Soy (the kind used at starbucks are Not gluten free... sorry...

Silk Soy milk IS gluten free.

0

Share this post


Link to post
Share on other sites

I used to like soy milk but I don't drink it that often anymore. I don't exactly believe all the "warnings" against it either though; it's just that I don't like the taste of it.

I've smelled soy beans as they were being soaked. They smell like absolute GARBAGE, no joke. That's not the reason I don't like it that much anymore, though.

0

Share this post


Link to post
Share on other sites

Soy in some of its forms bothers me too. I made some cookies from soy flour and I thought I was going to die, stomach and intestinal pain, bloating, gas. It took a couple of days for everything to calm down. I tried soy milk and it gives me gas but not as bad as the flour. So far soy lecithin and soybean oil don't bother me. I guess it depends on how much soy is in a product.

0

Share this post


Link to post
Share on other sites

Just wanted to add...I think sriddle may be onto something with carageenan being problamatic. It is, by the way in the Silk Soymilk which is used at Starbuck's AND most PediaSure forulations.

I thought I might be lactose intolerant AND/or soy intolerant. Because I thought I had diary issues, I switched to having soy-no water chai's @ Starbuck's intstead of dairy ones. I was actually not really noticing a problem with the dairy in the chai before, but in other ice creams, etc. However the Starbuck's soy chai seems to be giving me a violent GI reaction each time, ie, rushing for the toilet to have diahreah. Yet, I don't seem to have a problem with most tofus, and some soymilks seem to be fine. Then I realised that there is a connection. Carageenan.

Cold Stone brand ice cream, which gives me trouble...i just found out has quite a bit of carageenan. The ice cream and sour creams that don't seem to bother me...NO carageenan in them. I then checked into Starbuck's choice of soymilk, found out it was silk....then went on Silk's website and saw that they use carageenan in all their products.

From what I've read about carageenan and what sriddle posted, it doesn't seem to be a highly digestable subtstance...I saw it compared somewhere else to petroleum jelly. Ick.

I think being as that most of us as celiacs have some or even extensive damage to our GI tracts, it would make sense that something like carageenan could cause GI distress. I would highly suggest people who think they are lactose or soy intolerant test out these substances in comparison to the same products that have added carageenan. Ie. Silk soymilk (contains carageenan), Vs. Vitasoy or 8th continent (no carageenan).

I also just found, as I was writing this, that Dr. Andrew Weil has written a series of articles on the dangers of carageenan, related to cancer and general GI issues.

Here are a few links to some related scientific studies. It just seems to be an additive that should be avoided when possible:

Carageenan Study#1

Carageenan Study #2

I then saw a page on Eden's site refuting the dangers of carrageen in their products, because it comes from seaweed...a "natural" source. Well, MSG is derived from natural sources, like sugar cane and molasses, etc., and many people do not tolerate THAT well. I mean really, as much as I'm into whole foods and everything, not everything "natural" is good for us. Even heroin comes from "natural" sources. Anyways, just some more food for thought.

0

Share this post


Link to post
Share on other sites

I avoid carrageenan because it is an excitotoxin, like MSG and aspartame. You can google "excitotoxin" and read up on these chemicals and the effect they have on one's body. A good book on the subject is by Dr. Blaylock (google on his name too -- I know I've ran across articles by him online before).

I had problems finding rice or almond milks without it. (I react to casein and soy.) Now I use Living Harvest hemp milk. No junk in it, and it is very nutritious (all sorts of nutrients including omega 3s). I like the flavor and consistency too. (Word to those interested in hemp milk -- Hemp Bliss is entirely different. Very nasty stuff IMHO I ran across one person who likes it, but everyone else who has commented here and in other forums agreed with me.)

There is no single reaction to soy. Some get diarrhea. Some get constipation. Some get skin problems. Some get very subtle reactions. Soy is in so many things that it is hard to get away from it unless you really do your research. Restaurants sometimes don't consider soy oil as an allergen. Prepared foods regulated by the USDA (what are deemed by them in their complicated rules as meat, poultry or egg products) are not subject to allergen labeling regulations, unlike those regulated by the FDA (everything else).

I've found that my reaction to soy has grown. It used to be I could handle soy oil; now I can't. Soy lecithin doesn't seem to bother me. Yet.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,679
    • Total Posts
      921,705
  • Topics

  • Posts

    • Hi All this is my blood test result 1.immunogloblulin serum 203 ( 87-350) 2.Deamidated Gliadin IGA  4 ( 0-19 negative) 3.Deamidated Gliadin IGG 3(0-19 negative) 4.Transglutainase IGA <2 ( 0-3 negative) 5.Transglutainase IGG <2 ( 0-3 negative) does it mean most likely no celiac ? thanks.  
    • At the moment it's microwave rice packets as it needs to be something easy for lunch at work. What do you choose for breakfast? At the moment I have gluten-free porridge oats with fruits but also seeing oats are a bit of a gamble in the early days. Trying to figure out how long a reaction takes to show up i.e. if I feel ropey later in the day is it really lunch as I'm blaming at present or actually is it something from the morning or even night before? The food is the toughest bit for me right now; wasn't that great with it before so will need plenty ideas from you good people... seems I'm in the right place though   
    • I know what you're going through - it's that grieving process and it's tough.  I was diagnosed in 2013, and aside from an occasional pity party, I don't look back. I have my restaurants where I feel safe, I have the food I know I can eat, and I get on with my life.  I'm lucky that I live in a big city with lots of options, but you can make this work, and you will feel better and once you do, you'll stop grieving.  The people on this site helped enormously. It is tough in the beginning to know if you've been 'glutened' vs. just going through withdrawal.  For that reason alone, it's best to avoid restaurants for a little while and be careful at home - just to be sure what's happening.  Eventually you'll be able to get back to your version of 'normal'.  Oh, I also have hypothyroid/hashimoto's.  No big deal, I take synthroid. Quinoa, eggs, nuts and beans for protein.  You don't have to go crazy on the cooking.  Just eat a lot of whole foods.  There are a lot of complicated recipes out there, but now may not be the time.  Rice noodles in veggie bouillon - easy and cheap.  gluten-free pasta with olive oil, parmesan and garlic - easy.  I eat a lot of rice and have never had a problem - you're not getting it out of one of those bulk bins, are you?  That could be contaminated.  Go with packaged.  Do you have access to the Macro Vegetarian brand of prepared rice dishes (in the refrigerated section).  They have several that are gluten free, they're delicious heated and with a little gluten-free soy sauce.  They're my go to on days I don't want to cook. Good luck!  
    • I also think that the HPV/Gardasil vaccine triggered something in my body. I had some Celiac symptoms many years before this vaccine but I felt ok. I was physically very active. However, after I received the third dose as well, I began having more problems including a more persistant pain, overall body weakness, lack of concentration, hair loss, etc.
    • OK so been to the doctor, they've sped up my referral and I should get the appointment booking form in the post shortly. They've said stay off the gluten until I have a date for the appointment then in the weeks leading up to it go back on - thoughts? Did my bit of sport last night which was a great relief to be free of any illness-related thoughts for an hour or two; didn't think I'd have the energy at the start but soon got going and was OK so that's a plus I seem to be getting some strange symptoms at the moment that have only happened since trying to remove gluten, do these sound familiar to anyone? dry forehead, just starting to go red \ itchy in places. Treating with E45-type cream tender scalp and sides of head, almost like a pulling feeling and a bit sensitive to touch. Scared this one matches the symptoms of GCA, a particularly nasty autoimmune disease that can lead to blindness 
      Edit: having said that just found this thread and funny enough did wash my hair this morning...
      http://www.celiac.com/gluten-free/topic/50920-sores-on-scalp/ one eye watering and associated fuzzy vision at times, trying to reassure myself it isn't blurred vision due to the point above sometimes bit of a lump in throat sensation, seems to come and go Been reading that some people can't handle rice - I was OK with it whilst eating gluten but have been having it for lunch each day and seem to get worse around 4-5pm so could that be a culprit? How long after coming off gluten would I be able to say I'm at a baseline to know if feeling ill is down to "glutening" vs. blaming it on the body adjusting to the change in (lack of) gluten in food?
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,676
    • Most Online
      3,093

    Newest Member
    Waseemshahid
    Joined