Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Any Ideas?
0

7 posts in this topic

Hey guys it has been a while since i have been on here, some days are ok and some are not ok. I made a trip to my grandkids they live in MO. Been here about 2 weeks and have been doing better only 2 real bad days. The babies are 4 and 1, gluten has bound to be here but they kept a hyla water filter vacuum going quite alot. When I visited my father in Arizona i did pretty well also and was gone 10 days, ok here is the question, At home in my own home which is a new trailerhouse, I get sick almost everyday, and never feel like doing a thing, not even visiting my friends,afraid i will become ill at there house, and not be able to get home. I still am not driving, in too much pain and misery. I am wondering if there could be something in my home that is making me ill I do have lupus of the skin and DH and celiac of course but my home is clean and gluten free. which is not the case when i visit family, my husband thinks i am either crazy or just major depression. I have been gluten-free for about 6 months, Please help and give me some advise. :o

0

Share this post


Link to post
Share on other sites


Ads by Google:

Hello Barara, I think that celiacs is a constant journey. Febrauary 28th will be my one year anniversary that I have been gluten-free. There have been good days, and bad days. The bad days are depressing, fustrating and scary. On those days when you're feeling crummy, you just want to wrap yourself in your home, and not see or hear anyone.

I also learned that most celiacs have other allergies. Maybe because of the damage that was done to our intestines. I finally went to see an allergist/nutrtionist. My list of allergies goes on and on. Hopefully one day when I am healed, I will be able to enjoy those foods again.(except gluten, of course) I couldn"t figure out why one day I would be ok then the next I felt like I did on day 1. I wanted to pull my hair out( whats left of it :unsure: ) Maybe a ND would be able to help you too.

Hang in there, you are not alone :)

0

Share this post


Link to post
Share on other sites

While I don't have specific answers for you, I do have a few ideas for things to look into.

Here are some items I'd check into if it were me (all of which are documented to bother people):

Gas leaks

Compact fluorescent lighting

Fumes from carpeting, upholstery or paint

Mold (including from potted house plants)

Tobacco smoke or other pollutants from neighboring homes

Radon or other naturally occurring gases

Pollen, dust, or dust mites

Ultrasonic pets repellers (can be from neighboring homes)

HTH

0

Share this post


Link to post
Share on other sites
While I don't have specific answers for you, I do have a few ideas for things to look into.

Here are some items I'd check into if it were me (all of which are documented to bother people):

Gas leaks

Compact fluorescent lighting

Fumes from carpeting, upholstery or paint

Mold (including from potted house plants)

Tobacco smoke or other pollutants from neighboring homes

Radon or other naturally occurring gases

Pollen, dust, or dust mites

Ultrasonic pets repellers (can be from neighboring homes)

HTH

thank you one and all you guys are always so helpful.

0

Share this post


Link to post
Share on other sites
Hey guys it has been a while since i have been on here, some days are ok and some are not ok. I made a trip to my grandkids they live in MO. Been here about 2 weeks and have been doing better only 2 real bad days. The babies are 4 and 1, gluten has bound to be here but they kept a hyla water filter vacuum going quite alot. When I visited my father in Arizona i did pretty well also and was gone 10 days, ok here is the question, At home in my own home which is a new trailerhouse, I get sick almost everyday, and never feel like doing a thing, not even visiting my friends,afraid i will become ill at there house, and not be able to get home. I still am not driving, in too much pain and misery. I am wondering if there could be something in my home that is making me ill I do have lupus of the skin and DH and celiac of course but my home is clean and gluten free. which is not the case when i visit family, my husband thinks i am either crazy or just major depression. I have been gluten-free for about 6 months, Please help and give me some advise. :o

have you spoken to a doctor about depression? I know it sounds like a scary word, but, depression cuases physical pain and is usually linked with things like fibro...you should go to your dr and explain your symptoms instead of hiding. Also, when have you last had blood work and things tested about your lupus? because, if you are eating gluten-free you should not really be having gluten problems. go to your doctor! also, maybe journal your symptoms for a week, what happens when you eat, how you phsyically feel, how you mentally feel. You don't have to suffer by yourself! And, sometimes, as much as we all love men, they just don't get it!

0

Share this post


Link to post
Share on other sites




Since you're living in a new home, I'd suspect something like chemicals - the chemicals in the carpet, paint, etc. A slight possibility of mold. Or maybe something weird with the electrical wiring. I've read some stuff about electrical emissions on the human body. Dimmer switches emit a lot, if you have electronics like you clock too close to your head when you're sleeping it might cause a problem.

0

Share this post


Link to post
Share on other sites

Yeah, I agree with the others. If you are doing better outside of your home, then you should get your home tested. I know where I live, radon is a huge issue, especially in new communities. A friend of mine put in a bid on a townhouse that is no more than 2 or 3 years old, and the radon levels were unreal. Apparently, this is a common problem throughout the neighborhood, which has thousands of houses in it.

Not to say that radon specifically is your problem, but many people in that community live with that every day and have no idea. So, I would most definitely check into the list the other poster gave. Your home is supposed to be the one place you know you can feel good in. I hope you can figure it out soon!

On the other hand, I am glad you are feeling better so you can enjoy your time with your family! :lol:

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,116
    • Total Posts
      919,451
  • Topics

  • Posts

    • I figured I would update those who were wondering.  I have gotten the appt. so far moved up to August 30. I am waiting to have gene testing done via swab for all 3 of my kiddos tomorrow. My daughters celiac antibodies came up negative but her IgA is low which the ped said could cause false negative antibodies for celiac so she will need to see a GI dr. also. The pediatrician is going to call the GI to try to get them in sooner. I am keeping them all on a gluten diet until the GI dr. decides what to do. I am on the cancellation list already for my son, however I am not going to be persistent with my phone calls to them until I have the results of the gene test. I really want that result in my hand before going to the GI dr if I can. Maybe if he is positive, along with his bloodwork and my history they can forgo the endoscopy. But he will eat gluten till then.  My husband and I have been very honest and upfront with him as to what is going on and the possibility of the endoscopy and what that entails and although scared in general he seems ok after assuring him that since I have it he has me to help him every step of the way.  Going through his current diet with him I realized that he is truly on such a low gluten diet that I am actually surprised his bloodwork shows antibodies at all!  So I told him to make a list of allllll the gluten he could possibly think of eating and he needs to pound it until the GI visit or endoscopy. Funny thing is everything he keeps thinking of to want to eat...is already gluten free!  The other night we were at a friends and he asked if he could be done with his hotdog. I made him finish just the bread 😂 Thanks for your help and advise and I will keep y'all posted on both kids!  My oldest is a ok as far as all his antibodies. Just actually had a follow up for other immune issues and all his levels are now normal!
    • I like your plan Cara, I may have to include it in my sons.    Poor little guy is still very very sick. I think he is resisting and cheating, despite having the support of two other siblings and a 100% gluten-free home. 
    • Despite it being a nightmare, I did wait for my kids to get biopsies. At one point I had one severely ill child gluten-free and two more waiting having to eat it. It was worth the wait though and I think long term a biopsy may be worthwhile, especially for school. I have already had issues with schools and camps so having a firm diagnosis has been helpful. 
    • Knowing that the reaction to gluten in celiacs is an uncalled for immune system reaction, I was thinking of how a cure would be possible. Maybe a medicine that somehow turns off the immune system. The only thing that i've heard do that... HIV.  obviously that's way worse than celiac. Just some food for thought.
    • Well, you can probably get an apple or something.  You might be able to get someone to boil you some eggs.  But be careful of things like nuts that should be naturally gluten free.  They have almost always been soaked in a flavor solution that usually containes caramel coloring, "soy" (wheat) sauce and other aditives.  If I am really hungry and must eat in a Chinese restaurant, I order plain white rice and steamed vegetables.  But even so, you must monitor it carefully.  The rice sometimes has other substances added to give it a better texture, and very often the vegetables have in fact had "just a little bit" of soy sauce added.  To be fair, celiac disease is hardly ever found in East Asians, so understandably people are not tuned it to it.  Also, culturally, with the exception of fruits, it is generally thought that the flavor of foods needs to be enhanced, so it is had to find anything natural even in the "western" gorceries. Even in the western restaurants, be careful.  Fish and meat and often vegetables are usually pre-marinated. I will not even attempt to address the issue of cross-comtamination, since that is a whole higher order of things. I do know what I am talking about; I have celiac and have worked here for nearly 7 years.  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,155
    • Most Online
      1,763

    Newest Member
    AndiR
    Joined