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Any Ideas?
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Hey guys it has been a while since i have been on here, some days are ok and some are not ok. I made a trip to my grandkids they live in MO. Been here about 2 weeks and have been doing better only 2 real bad days. The babies are 4 and 1, gluten has bound to be here but they kept a hyla water filter vacuum going quite alot. When I visited my father in Arizona i did pretty well also and was gone 10 days, ok here is the question, At home in my own home which is a new trailerhouse, I get sick almost everyday, and never feel like doing a thing, not even visiting my friends,afraid i will become ill at there house, and not be able to get home. I still am not driving, in too much pain and misery. I am wondering if there could be something in my home that is making me ill I do have lupus of the skin and DH and celiac of course but my home is clean and gluten free. which is not the case when i visit family, my husband thinks i am either crazy or just major depression. I have been gluten-free for about 6 months, Please help and give me some advise. :o

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Hello Barara, I think that celiacs is a constant journey. Febrauary 28th will be my one year anniversary that I have been gluten-free. There have been good days, and bad days. The bad days are depressing, fustrating and scary. On those days when you're feeling crummy, you just want to wrap yourself in your home, and not see or hear anyone.

I also learned that most celiacs have other allergies. Maybe because of the damage that was done to our intestines. I finally went to see an allergist/nutrtionist. My list of allergies goes on and on. Hopefully one day when I am healed, I will be able to enjoy those foods again.(except gluten, of course) I couldn"t figure out why one day I would be ok then the next I felt like I did on day 1. I wanted to pull my hair out( whats left of it :unsure: ) Maybe a ND would be able to help you too.

Hang in there, you are not alone :)

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While I don't have specific answers for you, I do have a few ideas for things to look into.

Here are some items I'd check into if it were me (all of which are documented to bother people):

Gas leaks

Compact fluorescent lighting

Fumes from carpeting, upholstery or paint

Mold (including from potted house plants)

Tobacco smoke or other pollutants from neighboring homes

Radon or other naturally occurring gases

Pollen, dust, or dust mites

Ultrasonic pets repellers (can be from neighboring homes)

HTH

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While I don't have specific answers for you, I do have a few ideas for things to look into.

Here are some items I'd check into if it were me (all of which are documented to bother people):

Gas leaks

Compact fluorescent lighting

Fumes from carpeting, upholstery or paint

Mold (including from potted house plants)

Tobacco smoke or other pollutants from neighboring homes

Radon or other naturally occurring gases

Pollen, dust, or dust mites

Ultrasonic pets repellers (can be from neighboring homes)

HTH

thank you one and all you guys are always so helpful.

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Hey guys it has been a while since i have been on here, some days are ok and some are not ok. I made a trip to my grandkids they live in MO. Been here about 2 weeks and have been doing better only 2 real bad days. The babies are 4 and 1, gluten has bound to be here but they kept a hyla water filter vacuum going quite alot. When I visited my father in Arizona i did pretty well also and was gone 10 days, ok here is the question, At home in my own home which is a new trailerhouse, I get sick almost everyday, and never feel like doing a thing, not even visiting my friends,afraid i will become ill at there house, and not be able to get home. I still am not driving, in too much pain and misery. I am wondering if there could be something in my home that is making me ill I do have lupus of the skin and DH and celiac of course but my home is clean and gluten free. which is not the case when i visit family, my husband thinks i am either crazy or just major depression. I have been gluten-free for about 6 months, Please help and give me some advise. :o

have you spoken to a doctor about depression? I know it sounds like a scary word, but, depression cuases physical pain and is usually linked with things like fibro...you should go to your dr and explain your symptoms instead of hiding. Also, when have you last had blood work and things tested about your lupus? because, if you are eating gluten-free you should not really be having gluten problems. go to your doctor! also, maybe journal your symptoms for a week, what happens when you eat, how you phsyically feel, how you mentally feel. You don't have to suffer by yourself! And, sometimes, as much as we all love men, they just don't get it!

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Since you're living in a new home, I'd suspect something like chemicals - the chemicals in the carpet, paint, etc. A slight possibility of mold. Or maybe something weird with the electrical wiring. I've read some stuff about electrical emissions on the human body. Dimmer switches emit a lot, if you have electronics like you clock too close to your head when you're sleeping it might cause a problem.

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Yeah, I agree with the others. If you are doing better outside of your home, then you should get your home tested. I know where I live, radon is a huge issue, especially in new communities. A friend of mine put in a bid on a townhouse that is no more than 2 or 3 years old, and the radon levels were unreal. Apparently, this is a common problem throughout the neighborhood, which has thousands of houses in it.

Not to say that radon specifically is your problem, but many people in that community live with that every day and have no idea. So, I would most definitely check into the list the other poster gave. Your home is supposed to be the one place you know you can feel good in. I hope you can figure it out soon!

On the other hand, I am glad you are feeling better so you can enjoy your time with your family! :lol:

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    • Thank you so much guys. Reading that last response and those from forum members who seemed to be mind-bogglingly sensitive to gluten at times helps me feel like less of a freak  Perhaps worse than the symptoms themselves was my fear that I'm the only person on earth who has gone through this and that if it continues, I will end up with all of my friends and family washing their hands of me because it would look to them like I'm the only one with this and so I must be crazy. It's really good to hear that the sensitivity can go down too. I've been holding onto this idea through the tough times, reminding myself that I also had really bad hayfever for a few years, and asthma at a different time and they both got better.  It has been a whole month since I had a bad reaction to gluten. It has also been two weeks since I even had a small reaction and I'm feeling SO much better. I'm still going to take every precaution I can but this feels worlds away from how it was. At my most risk averse, I had a day on holiday where I only ate bananas and avocados because I could eat them without them having been touched by human hands, even my own! (This was straight after getting sicker and sicker and hunting down what it was that made me ill. I found the refill bottles of soap in the house where I was staying and read that they had wheat in them - not an airborne reaction I imagine but when I washed my hands to prepare food it was probably contaminating my food. Plus because I didn't speak the language, I couldn't be sure the new soap I bought was gluten free.) Now, I am still avoiding environments with lots of gluten and staying clear of all grains, with the exception of rice which I reintroduced using the food challenge method as directed by my dietician (since I understand that rice is, according to Dr Fasano, the lowest risk of gluten contamination of all the grains) and I am building my weight back up. My husband has been able to see also that the last time he cooked gluten in the house was the last time I got ill. So it is reassuring for him to see that the sacrifice he is making is making such a difference to me. I also took the advice about new cooking utensils - thanks! I have my fingers crossed for me. I want this better health to continue but right now I'm happy to know that there is a break in the clouds and to know that I can feel like me again. Good luck to everyone, sensitive or not, who gets into a bad place with managing their reactions. Hang on in there!        
    • I'm not sure I just had the endoscopy, and I've had a  songram. 
    • Thanks and I'm seeing a doctor in three months may have to make it sooner.    Thanks for all the replies.
    • Hey guys so question. I still am going through some of the motions to finally be diagnosed. I has a really bad case of acid reflux a few days ago and now i feel soo sick. Im still eating gluten because i got a negative biaopsy test but ive been told thag i more than likely still have it because its really hard to detect. Well i drank beer last night and had a poutine today stupid i know and now i feel soooo sick. And only felt really sick after the poutine. Now my question is can your symptoms get worse all of a sudden??  I have many other symptoms thaat read celiac deisease for most of my life. But since all doctors told me you have anxiety ibs and fibro at 28 years old. I just baiscally gave up and figured this was going to be my life feeling like crap for the rest of my life. Any thoughts??? Thanks guys. Sorry for the novel lol
    • A negative result from a biopsy that is. 
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