Get email alerts Get E-mail Alerts Sponsor: Sponsor:

Ads by Google:

   Get email alerts  Subscribe to FREE email alerts

Back On Regluar Diet..

4 posts in this topic

Well a couple of weeks ago my sons GI doc told us to put him back on the regular diet after his endoscopy.. (which was negative) we have not had blood work done on him yet and I am trying to get a stool sample in for testing..

anyway.. I also went back on the regular diet.. and hey.. even though I am eating all kinds of stuff like candy and ice cream and all.. I have lost 6 pounds. Now fitting into my old jeans is cool and all.. but every day it seems I get on the scale and am a pound lighter.. I have also had bloating and gas and all.. I have fallen three times.. ( am normally klutsy but not this bad..) and have been feeling spacey..more than usual..

makes you think...

Has this wieght loss been related to diet? my son did not lose any weight.. didn't gain either.. his bms have been about the same..but he is avoiding most gluten containing items.. you would think if I am on a HIGH carb diet... eating lots of ice cream etc.. (i've been bad) that I would not be losing wieght.

I just wish I could mainly get some answers about my son.. and mabye after another two weeks of this if I am still losing Mom will have to go to the doc.. that'll give me four weeks on the regular diet.. good for testing..

Ugh UGh and triple UGH



Share this post

Link to post
Share on other sites

Ads by Google:


Are going to the washroom like crazy?? That could cause the weight loss. I used to be under 100lbs before diagnosis, but that's because every time I ate I could keep anything in my body!! I'd rather gain more weight and be healthy than underweight and malnurished.


Share this post

Link to post
Share on other sites

Somewhat..I would have to say yes more than before.. whats worse is being an adult and having accidents.. :angry: I started having trouble when I had the last baby Mr 11 pound boy.. I chalked it up to that.. didn't accociate it with my other son's problems till now that I am having this trouble again..

I weighed 90 pounds till 7 years ago when my first son was born.. now I am getting progressively lighter..about 2 pounds a week.. and I am eating high carb high fat ice cream cookies etc etc.. all the bad stuff..

so it's not like I am trying to lose weight


Share this post

Link to post
Share on other sites

Hi D. It sounds like your body may not be absorbing nutrients (and calories). Doesn't sound healthy to me. I'm not a doctor, but I'd sure go see one.

Good luck.



Share this post

Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Forum Statistics

    • Total Topics
    • Total Posts
  • Topics

  • Posts

    • Ok, that was my understanding of it too after some reading, but the fact that the result was under "celiac reflex panel" is what confused me.    I do have some unspecified autoimmune activity going on in my body. My inflammation levels are very high, my complement testing has come back off, and nobody really knows why. A total high Iga isn't a surprise in this case if it doesn't actually hab anything to do with gluten. Going gluten free made my inflammation markers rise rather than go down, so I'm inclined to believe I'm mostly okay with gluten, aside from some digestive issues that I believe are simply from the wheat not being fermented. Sourdough causes me no issue,  but soft white bread destroys me for example. Anyways, It's all very confusing and I wish I knew what the heck was going on with my body. 
    • maybe check exactly which blood tests you had done as well if the dermatologist doesn't know much about celiac its possible they didn't run enough
    • i think chips would vary from place to place depending on the ingredients where you go
    • Hey Everyone! Been celiac for 6 years, and it's my first time on a forum.  I assume my story is the same as most of yours: I was really sick and skinny and bloated, got diagnosed with celiac, went gluten-free and felt amazing, then slowly, but surely, the symptoms and elevated antibodies returned, no matter how OCD I am about avoiding cc. Basically I have what they call Non-Responsive Celiac disease.  I'm wondering, is there something ELSE that I can do? Clearly the gluten-free diet isn't enough anymore. I know I'm not alone in this experience. And I know doctors don't have any advice besides the gluten-free diet (and the new celiac drug that is apparently in phase III)). But do you guys know of any other tricks?  I went on anti-anxiety SSRIs for a bit to help with my anxiety problems, and that really helped my celiac. But now that I've sort of developed a tolerance to my low dose, the symptoms have returned. Anyone else try this? Or low doses or steroids/anti-inflammatory drugs?  I'm really sick of feeling sick. I even tried the Fasano (Gluten Contamination Elimination Diet) for 3 months, but it didn't really work. Any suggestions or tips would be much appreciated! Or even the names of doctors who have helped you!  
    • 60% of celiacs with dh test negative on the celiac blood work. Fact. Many people with DH have no digestive symptoms and only about 40% of them have the positive blood tests (serology) for celiac disease.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

    There are no registered users currently online

  • Member Statistics

    • Total Members
    • Most Online

    Newest Member