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Pediatricians
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Just wondering. How much do you feel your pediatrician knows about celiac, how proactive are they in managing it/ investigating related issues, etc.

Should we rely on them for this?

Or should we rely on the pedi- gastroenterologist?

Any and all insights are appreciated.

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I would bring in hard copy of articles related to Celiac for the doctor along with my written out questions. Make sure that the pediatrician's office has an up to date gluten free medication list in your child's file. In other words I wouldn't leave it as an option for the doctor not to be informed about Celiac.

L.

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The pediatrician I had been going to was terrific. He thought he had diagnosed me with cyclic vomiting (vomiting from migraines and all that, since migraines run in the family). Regardless, he sent me to a gastro. who, after sonograms, blood tests, x-rays, bone age tests, etc. finally found celiac! He wasn't an expert on celiac, but knew the basic principals and since I was dealing with a GI, then later, an actual celiac dr. for this, he didn't need to be. He just retired, so I am going to go to a new pediatrician in January for my annual physical.

I believe he's already had a celiac patient or two, so he knows enough, but he was recommended to my family by numerous friends, so he's probably a good enough dr. and if he doesn't know about celiac I'll educate him or provide articles.

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    • I was diagnosed this year and I live on Oahu. I have yet to meet another celiac, so that tells you something about our limitations here. I work in Waikiki and do frequent Rouffage. It is nothing fancy, small place, but keeps me fed when I need something. I also like Greens and Vines. It is a vegan restaurant and worth every penny. Greens and vines sets up at the KCC farmers market on Saturdays too. Places in Waikiki that do offer a gluten-free menu include, PF Changs, Dennys, Big City Diner and California Pizza kitchen. I do not trust those places due to the risk, but they "offer" gluten-free options. I did try and order a beer at Yard House in Waikiki. They label clearly states that it contained wheat, so yeah sent that back with the waiter. I have also tied Doraku in Waikiki. I called ahead and spoke with management. That went well and they offer gluten free soy sauce. There is a deli at Down to Earth Grocery store in Honolulu that has gluten-free options, but the whole foods here do not offer hot food that is gluten free. They do have a hot food bar, but you have to stick to the whole plain salad and veggie options. It's good to hear the hotels here are getting better, beyond Waikiki hotels there is no one really interested in being gluten free.
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