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Top Celiac Supplements!
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2 posts in this topic

Hi everyone. newbie here again.

I've been enjoying reading all your messages.

Some questions.. if you had to put together a top 5 list of things you would recommend to a newbie, what would they be... food, or supplements..

here is my top 1

1. L-glutamine. This stuff, i used 2 take when into bodybuilding, and not only does it heal the intestinal track, it boosts the immune system.. i know from years of experience, it helps my digestive system.. and hundreds of research avail will support it

2. Omega-3's .. when i assumedi just had IBS, i took a product called "Omega+fit" by greenpluscanada.ca or .com or .org

it has normal epa and dha in it, plus GLA. A well known product for reducing inflammation.. exceptional supplement to take.

3. Book - healing the angry gut. This is an amazing read for those who want to truly understand the impact of food to the digestive system

4. Acidophilus.. i take it, never sure WHEN i need to replenish lost flora... i hope someone can add to this.

5. fibre ..

(and 6.. ..an answer to .. why do i get damn sick eating mcdonalds food and popcorn!!!)

rob

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:unsure: i dont get sick eating mcdonalds fries or hashbrowns--there is nothing else there i trust, but they dont bother me--cant help you there----i know nothing of glutamine, but just the name would keep me away from it--as a new celiac, i didnt take anything extra--i didnt even take vitamins until 1 year ago--i think my top 5 list for a newbie would be:

1. Dont put anything in your mouth until you have read the ingredients and if in doubt, dont eat it! :unsure:

2. Stick to unprocessed foods as much as possible--fresh meat, potatoes or rice, veggies and fruits---if terrible stomach problems--i didnt have trouble with dairy and i lived on cottage cheese and applesauce, peanut butter and quaker caramel corncakes! ;)

3. Check the ingredients on your shampoo, bath soap, lotions, and medications you are taking--dont stop taking your medication without doctor's imput, but do request gluten-free meds! B)

4. Get your family involved--have them read up on celiacs so they understand what you have to look out for and have them learn ingredients too! ;)

5. Dont panic if you get glutened, you may have a bad reaction, but get back on that horse--you havent failed, you just had an accident and have learned from it! :D

I wish I didnt have this disease, but if I have to have a disease I would want one that doesnt require medication to fix--I know many of us have other medical issues because of the celiacs and that cant be helped, but if we can catch this in our children before they have all these other problems ;) that would be wonderful!

Hope this is helpful for some of you!

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    • I think the idea of grinding your own at home stems from the thought that flavored coffees might be ground on the same machines.  The grinders in the grocery are not cleaned between uses.  However, I have not found a flavored coffee bean that had gluten, so it's probably not a real concern.  For coffee that comes from a factory ground, I wouldn't worry at all.   Machines would be cleaned between flavors and nothing but coffee could be made on the machines or even in the same building ( everything made would taste/ smell like coffee). if you still have doubts - I went to the International Celiac Disease Symposium a few years back.  This is held every few years in different countries for medical professionals that study and treat Celiac.  They present research, etc.  All food served was gluten-free.  We drank a lot of plain, already ground, coffee!  A lot!   Coffee is not on any lists as a gluten containing food.  Talking legitimate organizations - not some blogger or pseudo- science website.   After all this, if you still doubt that coffee is gluten free...... Then don't drink it!  It leaves more for me!    
    • To answer some of your questions.... Non celiac gluten sensitivity does not cause any damage to the small intestine so that is not the source of the "little holes or bumps".  You need to get her records including the report of the endoscopy to see exactly what it says as well as the pathology report of the biopsies. You should always get medical records anyway & keep a copy for yourself. How many biopsies did he take? There should be a minimum of 4, ideally 6. The small intestine is very vast even in a small child. An adults is the size of a tennis court! That's a whole lot of territory so biopsies can miss damage especially when enough of them are not taken! She has 2 positives on the serum panel. This crap about "weak" positives should be thrown out of the nomenclature! A positive is a positive, weak or not! Her DgP IGG is way over the range and extremely telling. As far as my knowledge goes, there is nothing else that causes a positive DgP IGG other than celiac disease. False positives are really rare and to have 2 false positives would be astronomically rare! You are right & smart that she really does need an official diagnosis! IMHO, keep her on gluten for right now. Get a second opinion pronto & I believe you'll be able to get her a dx based on the 4 out of 5 rule if nothing else. I wouldn't think it's going to take more than a month to get to see another doc for a second opinion. Then you can take her off gluten. Kids heal up really fast, way faster than us old geezers! I'm sure as others  wake up & get on their computers they will be along to voice their knowledge. I am in the eastern time zone & rise before the birds so I was on here early. Hang in there mom! You're doing the right thing!
    • Now that my initial rage has calmed a tad.... your daughter has to fulfill 4 out of 5 of the diagnostic criteria. Second opinion can do a gene test. If positive, then she will have4 out of 5 of the dx criteria to dx without a positive biopsy. See: http://www.gastro.org/news_items/a-biopsy-should-not-be-required-to-make-the-diagnosis which says in part: The presence of signs and symptoms compatible with celiac disease. Positive serology screening (high serum levels of anti-TTG and/or EMA). Presence of the predisposing genes HLA-DQ2 and/or –DQ8. Histological evidence of auto-insult of jejunal mucosa typical of celiac disease. Resolution of the symptoms and normalization of serology test following the implementation of a gluten-free diet.   Also see: http://www.tenderfoodie.com/blog/2014/5/1/dr-fasano-on-new-gut-autoimmune-research-autism-clearing-up.html She can get a dx after her symptoms resolve on a gluten-free diet!
    • OMG!!!! The doc wants her to get sicker & sicker & do further damage so he can diagnose her? Don't do me any favors doc!!! I'm so spitting med right now I can't even speak! Find a new doc, take the records & get a second opinion. Maybe the next doc will have a freaking brain & dx your daughter. She should be dx'd! This is absurd in the extreme. The very least that should happen is the doc give her a dx now & then in a year or 2 have her do a gluten challenge & do a biopsy all over again but seriously, that would be just as cruel as what he's doing now. He's an ASS!
    • Celiac disease may lead to a host of other inflammatory, gluten-related ... Fortunately, Diet Doc offers gluten-free diet plans which are customized to ... View the full article
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