Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Severe Cough/rhinitis And Celiac Disease
0

8 posts in this topic

Hey all, I'm new here and newly ID'd as a possible celiac disease'er. I am very happy to find some kindred souls on this forum. My celiac disease symptoms= "IBS" (diarrhea/bloating + loud growling tummy, intermittent anemia). I've also had issues with asthma, rhinitis, & severe cough since I was 13 or so. I grew to dread every cold because even simple viruses result in 4-6 weeks of uncontrollable coughing, gagging, vomiting, poor sleep, missed work, etc. I was dx'd by a pulmonologist two years ago with "hyperreactive airway disease". The hay fever/rhinitis/cough went from intermittent to continuous last April. I've tried it all-- antihistamines, inhalers, antitussives, steroids, antibiotics, breathing treatments-- nothing helps. I became "that girl who coughs". The cough was affecting my work performance and limiting my social life. I had to find out what was wrong or my goose was cooked. I went to an ENT, who saw no functional problem. An allergist was next on the list.

Then a girlfriend and I decided to go low-carb (no bread) for weight loss. Lo and behold, within 3 days my rhinitis & cough went away!!!~ I made the wheat allergy connection. I went gluten-free with much success-- after four weeks I am now sleeping flat thru the night like a normal person. I'm not vomiting into plastic bags while driving on the freeway. I'm putting off the dentist because it costs too much-- not because I can't lay back without coughing. I'm hiking, mountain biking, and hitting the gym again!

Questions for the Forum:

1) My allergist told me that respiratory symptoms (like cough & rhinitis) are atypical for Celiac Disease. But are they unheard of??? Otherwise I very much fit the picture for celiac disease.

2) My skin test for wheat allergy was negative-- does that rule out wheat allergy?

3) If so.... how come when I accidentally ate some wheat (in falafels), my gut bloated and I coughed all night?

4) I am awaiting the blood test antibody results for Celiac Disease. How much of a problem is it that I went gluten-free several weeks prior (my allergist says no problem).

5) Has anybody else had severe respiratory problems RESOLVE COMPLETELY after going gluten-free???

Thank you so much for your time,

Diana

0

Share this post


Link to post
Share on other sites


Ads by Google:

1) My daughter had persistent nasal and throat irritation prior to diagnosis. Her problems cleared up when going gluten-free and come back if she accidentally ingests gluten.

2) Wheat allergy is different than Celiac/gluten intolerance. Sounds like you don't have a wheat allergy, but certainly could be celiac or gluten intolerant, especially if your experience with the SB diet provided relief of many symptoms.

3) Because that is how your immune system reacts when you get "glutened." My daughter gets horrible stomach cramps and bloating and sinus irritation (among other things, but those are the most noticeable).

4) False negatives are common among celiac blood tests. The time off of gluten (depending on how strict you have been) may cause the result to be negative. Your next steps might be to request an endoscopy to see if there has been damage (blunting of villi) to your small intestine and/or continue with a gluten-free lifestyle (you don't need a doctor's permission) if it provides you relief. It just depends on how important a doctor's diagnosis is to you. It was important for me and our family to have a Dr. diganose our daughter's celiac disease, but looking back, I would probably be just as satisfied going gluten-free rather than getting the dx. She had a positive blood test and a positive biopsy with both a strong dietary response and decreased TTG levels after 3 months of complying with the diet.

5) Yes. My daughter's have resolved completely. Her sinuses do flare up with accidental glutenings, though, and it does make her prone to other infections like strep and such if her immune system is suppressed for any length of time (which happens when she is glutened). Many of her symptoms I would have considered mild or atypical when she was diagnosed. I didn't even know what Celiac was until the GI mentioned it as a possibility just after her endoscopy.

Hope that helps. Best of luck with your gluten-free journey!

0

Share this post


Link to post
Share on other sites

Your tests will not be accurate since you went gluten free. I suggest you do Enterolabs stool testing. You can be gluten free for this. But, obviously you are at least gluten intolerant since you eliminated and then ate it and had a reaction. Gluten intolerance can destroy your body as much as Celiac.

0

Share this post


Link to post
Share on other sites
But, obviously you are at least gluten intolerant since you eliminated and then ate it and had a reaction. Gluten intolerance can destroy your body as much as Celiac.

Please forgive my ignorance-- but how does "gluten intolerance" differ from celiac disease and wheat allergy?

0

Share this post


Link to post
Share on other sites

I believe wheat allergy, like other allergies, involves a histamine reaction.

Celiac disease and gluten intolerance, by contrast, are autoimmune responses: your immune system reacts to the gluten by attacking YOU (thyroid, pancreas, gut, brain, skin, etc.).

THere is much argument over the dividing line between celiac disease and gluten intolerance. Possibly, the only difference might be what stage the gluten intolerance is: gluten intolerance, in many (but possibly not all) cases is simply early-stage celiac. If you have gluten intolerance and you keep eating gluten, eventually, you will damage your villi, which results in a positive diagnosis for celiac disease. However, many people believe that there are situations that seem to be able to CAUSE a non-celiac gluten intolerance; these situation include (but are not limited to) mercury toxicity and Lyme Disease.

Many people think that genetic testing is the answer; however, people who do NOT possess the currently recognized "celiac genes" have been know to have positive biopsies for celiac and/or dermatitis herpetiformis, both of which are considered incontrovertible evidence of celiac disease.

It doesn't really matter what you call it; either way, you can't eat gluten! (If it walks like a duck, talks like a duck, poops like a duck... :) )

0

Share this post


Link to post
Share on other sites




To those who replied-- thank you so much for your responses, and for helping to clear up some confusing issues. It will be interesting to see my blood test results. Regardless, no way will I eat gluten again on purpose. I feel so much better without it and the cough/rhinitis seems to be history. :D I would still love to hear from anyone who has cough/rhinitis as their major symptom.

0

Share this post


Link to post
Share on other sites

I just discovered this website as I was looking for a possible link between celiac disease and rhinitis. It seems other people with celiac are also experiencing nasal and sinus problems. I have been gluten free for about three years but my rhinitis has not improved. The doctors say it is vasomotor rhinitis which basically means it is non-bacterial and non-viral but a hypersensitivity in the nasal mucous membranes. It is very annoying and I have not found anything that gives me relief although I have not tried pharmaceuticals as I tend to stay away from them. Plan to keep looking and will certainly share the information if I find anything.

0

Share this post


Link to post
Share on other sites

Ditto, Lady Baba!

My elderly father has been suffering with a non-stop runny nose, as you have, for several years now. It seems to be aggravated by eating and exertion. In addition to the annoyance of having a drippy faucet in the middle of his face, I think the gunk that's constantly running down his throat is causing him to gag and spit up. Poor guy. Poor you, too!

We cannot find the source and we're having no luck finding a medication that works -- it's just as well you've resisted using them: Dad has high blood pressure, so antihistimines are out; NasalCrom, which is supposed to relieve vasomotor rhinitis doesn't seem to help at all; Fluconase for sinusitis seems to help only verrry slightly.

From some of the posts, it seems that gluten intolerance is a possibility. I'll keep him off gluten and see how it goes.

In case it doesn't help him...

Have you discovered the source of your rhinitis?

Have you found any relief?

Thanks! Hope you've found some relief!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,876
    • Total Posts
      919,429
  • Topics

  • Posts

    • Anyone experience brain fog like this?
      Brain fog is a common symptom.  I had a hamburger patty from a local restaurant and am suffering the effects.  Sometimes mine is bad and sometimes it is mild.  This one feels mild, provided I am not "glutened" again.  I have the exact same feelings when I am contaminated.  I actually had 2 good days this week to ony have to go back through this again.  The first day is just tired and want to sleep, but as each day goes on it seems like all I can do to concentrate and do anything.  TV is OK but for me just standing up or moving sometimes makes me dizzy.  Luckily I don't have the nausea but even sitting still I feel like I am in a swimming pool moving.  You know kind of like when you were a kid and you got in the pool or went roller skating but then got out and and you still felt like you in the pool or skating?  The anxiety and the depression is the worst.  I am taking things to help with it but it doesn't always help.  Only thing that seems to help sometimes is just going in to my room and laying there and not moving and just going to sleep.   It will pass.  Just be cautious about everything.  I have opted to let my family know that I will bring my OWN food when we have gatherings.  I don't mind being the odd man out because I am already the odd ball.  One thing I have learned and that is people mean well but mistakes happen and we are the ones who have to pay the price.   Hope you feel better soon.
    • gluten intolerance, dairy intolerance and fructose
      Look into The Paleo Approach by Sara Ballentyne, PhD.  Great resource and will probably answer your questions.  I have the same problem. You have to really read labels.  The only coconut milk I can use is an organic canned one.  Others have too many ingredients that are problematic.  For now, stay with meat and vegetables as someone else has recommended.  If rice works for you, great.  If not, winter squash is good.  The diet change is overwhelming at first but then it starts to make sense.  The one good thing about an intolerance versus allergy is the possibility of someday being able to add it back into your diet once your gut has healed.
    • Anyone experience brain fog like this?
      I went gluten free about a month ago, and was finally feeling *great* last week when wham -- my well-meaning Dad cooked me dinner and forgot to check the ingredients on the fish sauce he used. The upside of being glutened for the first time is that, after a couple weeks of feeling good, I feel like I can discern the symptoms a lot better now. I've noticed that the worst part, aside from the nausea, is the "brain fog," but I'm curious if my experience of brain fog is the same as or similar to what other people are feeling. For me, it becomes almost physically painful to concentrate on anything. If I try to read a book, or watch a TV show, it makes me feel dizzy, overwhelmed, and nauseous. For a couple days, I feel like all I can do is try to stay still and do as little as possible while I wait it out. It feels similar to anxiety, but not quite the same, and none of the usual tricks for getting through a panic attack help. Do any of you experience brain fog in a similar way? Where it basically makes you feel sick to try and concentrate on anything, even fun and relaxing things?
    • gluten intolerance, dairy intolerance and fructose
      I've never gone fructose free so can't help much with that.  But any fruit is probably a problem.  If you are serious about avoiding fructose you could do a search and print out a list of foods to avoid. http://www.mayoclinic.org/fructose-intolerance/expert-answers/faq-20058097 Yes, it very possible to have multiple food intolerance issues.  Many people have multiple food intolerances.  It might help to avoid any foods that are sweet for now.  Meat and most veggies are probably the way to go.  You may want to get some jerky to eat for snacks.  Peanuts might be ok but you'll need to verify that.  Boiled eggs are probably ok.  Most soda would be a no-no.      
    • Help
      Hi Courtney, You asked about dairy, and RMJ got it right.  Celiac disease destroys the villi lining of the small intestine.  Those villi make the lactase enzyme we need to digest dairy. Sigmoid colon thickening could be related to diverticulitis.  Which according to Wiki is a fairly common condition but doesn't always cause symptoms.  Diverticulitis can cause a problem if there is an infection though.  The sigmoid colon is part of the large intestine.  Celiac disease affects the small intestine, so celiac isn't likely involved.  I am not sure why the resident suggested celiac, unless there were some other reason to do so.  Possibly the weight loss, which could be explained by celiac disease.  Thickening of the colon may happen with Crohn's disease also.  And I'm not sure about UCD (ulcerative colitis disease) but it might cause that also, not sure https://en.wikipedia.org/wiki/Diverticulosis https://en.wikipedia.org/wiki/Sigmoid_colon http://biology-pages.info/G/GITract.html#pancreas http://www.ccfa.org/what-are-crohns-and-colitis/what-is-ulcerative-colitis/
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Jmg  »  admin

      Hello Admin!
      I don't know whether this is of interest to post on your articles feed:
      http://pratt.duke.edu/about/news/window-guts-brain
      Kind Regards,
      Matt
      · 2 replies
    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
  • Who's Online (See full list)