Should My Whole Family Get Tested?
Posted 11 February 2008 - 09:10 AM
Posted 11 February 2008 - 09:17 AM
I haven't been able to convince my parents or sister to get tested yet. I hate that I am not the boss of them!
Dx 8/05 via bloodwork and biopsy (total villous atrophy)
13-year old son Dx 11/05 via bloodwork and biopsy
Daughters (16 and 5) have tested negative via bloodwork
A woman is like a tea bag - you never know how strong she is until she gets in hot water. - Eleanor Roosevelt
Posted 11 February 2008 - 09:24 AM
Something to keep in mind....just because they test negative now doesn't mean they are "free" of Celiac for life. If symptoms arise later, it is worth it to be tested again.
Here is some info you might find helpful, from a very well respected source. http://www.celiacdis...nts/A02-FAQ.htm
"Q: Why do my family members need to be screened for celiac disease?
When the diagnosis is established in one family member, their first- degree relatives (parents, siblings and children) should have blood tests for celiac disease. This is because at least 10% of family members will have the disease, even if they are asymptomatic. Screening is also recommended for second-degree relatives (grandparents, grandchildren, aunts, uncles and cousins) as they are also at an increased risk for celiac disease. Family members who already have an autoimmune disease are at a greatly increased risk to have celiac disease (25%).
The reasons to diagnose family members prior to the development of symptoms include the prevention autoimmune diseases and malignancy."
Posted 14 February 2008 - 05:22 AM
experts say that if one person has coeliac every one in ten people in that family will also have it.
and as for not having many symptoms i was asymptomatic until about a month before i was diagnosed the only sign that i had coeliac was anemia
"great works are performed not by strength but by perseverence"
Diagnosed coeliac - aged 14
High blood calcium
Crohn's disease -december 2012
Posted 05 March 2008 - 06:56 AM
Hope that helps!
Posted 05 March 2008 - 04:16 PM
Posted 17 March 2008 - 10:20 AM
Hello. I just got diagnosed with Celiacs this week. I'm 28 and the oldest of 6 kids. No one in my family had even heard of this disease before now, and apparently it's genetic. We've had our share of indigestion and gas, I suppose, but no one besides me showed any real symptoms. Should they all be getting tested?
YES! Get your family tested! It is very important. When i got cealiav disease we got my family tested and my sister had it. we were both a symptomatic but we so felt better after we started the diet. it doesn't hurt to get tested.
Posted 17 March 2008 - 07:09 PM
" 15 years of it's stress!"
"blood work show's a disease called celiac,
but it can't be that because it's rare!"
Diagnosed via blood and biopsy 2003
Not a medical professional just a silly celiac
offering support, my
experience and advice
Posted 28 April 2008 - 04:39 PM
Also, if anyone else comes up positive, then make sure they contact all members of that side of the family that may be at risk. Thanks for being so careful!
And when you have kids one day, treat them as though they are gluten intolerant, breast feed as long as possible, and then test when reccomended by your GI. My GI said my kid had to test his kids one day since he is a carrier.
Posted 04 May 2008 - 11:28 AM
0 user(s) are reading this topic
0 members, 0 guests, 0 anonymous users