Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Osteoporosis
0

6 posts in this topic

I am a 46 year old woman who has scoliosis (not too bad - 40 degreee top/36 degree bottom). About a year ago my spine doctor told me to go get a bone density test done because they've found that people w/ scoliosis have a higher prevalence of osteoporosis. So I did. My gynocologist told me I had the worst levels he's seen in someone my age. I have severe osteoporosis in my hips (-3.1) and osteopenia in my spine. I have NOT GONE through MENOPAUSE yet... Anyway, I was told to go to an endocrinologist because the osteo was so extreme. She ran a battery of tests and was baffled because she suspected Celiac or a problem w/ my parathyroid but her tests, other than a weak positive for the IGG came back negative. She told me to go to see another endocrinologist in NYC at Columbia Presbyterian Hospital. I had more tests done for this new endo. & just went this past Tuesday. Although I didn't test positive for the basic IGG & IGA tests, my vitamin D (hydroxy test) was very high and my parathyroid level high too... making her suspect Celiac. She then had more blood taken for the Prometheus Celiac Serology.

Other than osteoporosis, I don't have concrete stomach issues... I'd often been constipated... but I thought that was due to my diet (too much cheese here and there, not enough roughage, etc.). I have often gotten bloated... but thought that was not too unusual.

Anyway, anyone else out there have osteoporosis for not the "typical reason" such as menopause, being anorexic, taking certain drugs, not having normal periods, etc? ANYONE HAVE OSTEOPOROSIS DUE TO celiac disease?

I actually hope I have Celiac... then I will know WHY I have osteoporosis so bad at only 46!

Thanks!

0

Share this post


Link to post
Share on other sites


If you have osteoporosis, there is a very good chance you also have celiac. Osteoporosis is one common long-term effect of gluten on a celiac's body.

0

Share this post


Link to post
Share on other sites

Hello,

Low bone density prior to menopause can certainly happen and could certainly be related to celiac disease.

I discovered I have celiac disease about 9 months ago. I am now 28. At the age of 22, a dexa scan demonstrated osteopenia in my lower spine. I was told that I was 1/2 a standard deviation away from osteoporosis at 22. I suspect that my low bone density is related to undiagnosed celiac disease. This is quite a scary problem, as celiac disease was not determined for an additional 6 years. Who knows how much further my bones have deteriorated b/c I was not able to absorb nutrients properly. I am currently checking out the status of my bone density.

I've been taking a fabulous Calcium supplement - Calcium Apatite. It is expensive, but it is one the best out there. Certainly, there are prescription medications that you can take, such as fosomax. Good luck and take care.

Sara Gardiner

Philadelphia

0

Share this post


Link to post
Share on other sites

Hi Sara... yes I too am taking a great calcium supplement - but as for Fosomax, it is definitely NOT RECOMMENDED for premenopausal women! My new endocrinologist (a metobolic bone disease specialist at Columbian University Med Ctr in NYC) expressed her anger and frustration of doctors prescribing Fosomax to women not yet in menopause.

Thanks,

Lisa

0

Share this post


Link to post
Share on other sites

Hi there. My mother is also Celiac and she has the worst case of Osteoporosis her Doctor said he has ever seen. She has fractured her back on two occasions just from odd movements and in one case sneezing too hard. She is still able to walk, but she is currently on Morphine for pain. Take your Calcium folks!!!

0

Share this post


Link to post
Share on other sites

It is my understanding that osteoporosis is common in celiacs, due to the malnutrition that is characteristiic of the disease. I have been diagnosed as having osteoporosis, although my bone mineral density is improving with calcium supplements, vitamin supplements and Fosamax. I am a male, age 50, who was diagnosed as celiac four and one-half years ago, after many years of incorrect diagnoses. The clue to osteoporosis was a triple compression fracture of the lower back. My doctor said that should happen to a man my age :o

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      102,674
    • Total Posts
      914,381
  • Topics

  • Posts

    • Itchy skin
      Cool compresses may help a bit. Hot baths or showers used to really aggravate my itchy skin so go with warm or cool ones to see if it helps. Keep well hydrated both inside and out. Be sure to check and make sure any lotions you use are gluten free. Shea butter, olive or coconut oil may help. Since you say this is not DH, no blisters etc. I would not advise Dapsone. It is quite a toxic med but if you do talk to your doctor about it make sure that they do blood work before prescribing and frequently during the time you are on it.  Some celiacs have liver impact and Dapsone can be damaging to the liver. I also had both DH and the all over itchies. Being strictly gluten free and avoiding obvious sources of iodine like iodized salt or iodine in supplements will help you heal. I hope you get some relief soon.
    • Where do I start??
      I will be going for my endoscopy on Februry 19. The other day in reading about Celiacs, I read about the strange rashes often associated with celieacs and gluten intolerrance. About six months ago, a rash exactly as you describe showed up on the backs of my knees. The doctor didn't know what it was, hought maybe it was ringworm, and gave me some topical medicine, and the spots did go away with time. However, I've had the same type of spots show up in other places occassionally. I know for a fact they were not ringworm.
    • Advice on reintroducing dairy.
      I can!   Start with hard cheeses, then yogurt/butter, soft cheeses and finally milk/cream.  Start slowly and build.  Give yourself time to get your body to release the enzymes necessary to digest lactose.  Certified gluten-free enzymes for lactose can help the transition.  Lactose free milk and ice cream are helpful too.  Remember, that genetically some of us are predisposed to being lactose intolerant no matter what (e.g. aging, race).   I wish you success!      
    • Gluten free diet, positive celiac screen...what should I eat now?
      Here is a link that explains why you should get tested (completely) for celiac disease: https://celiac.org/celiac-disease/diagnosing-celiac-disease/diagnosis/ As far as the link to the functional doctor....why?  If you get a celiac diagnosis, chances are you will heal on a gluten free diet.  As you have probably seen on this forum, most of us encourage newly diagnosed members to eat a whole-foods, easy-to-digest (a.k.a "cooked to death")  gluten-free diet to speed healing.  Going Paleo might not be the best right now, if you have celiac disease.  Eating lots of nuts, raw fruits and veggies can be tough on a damaged gut.  You can try that diet later!   Everyone is different due to various degrees of damage, so some may have temporary intolerances  (e.g. lactose).  You just have to experiment.   Save your money and spend it on good wholesome food.  I heartily support getting away from the SAD (Standard American Diet).   Celiac disease is the one autoimmune disorder that is healed by avoiding a food -- gluten!  
    • Itchy skin
      I have DH and itchy skin is a symptom.     Your Dermatologist could write a script for Dapsone, provided you're not allergic to Sulphur.     Expect blood labs to go with using Dapsone.      You need to study everything that goes in your mouth for possible gluten content, including all meds.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      59,700
    • Most Online
      1,763

    Newest Member
    Valou
    Joined