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Just wondering.....have had lots of trouble with very low blood pressure. Had to do the heart monitor thing because of irregular heartbeat. It was decided that the bouts of tachycardia were nothing to be concerned over, same with the early beats. I'm so tired of being so tired, and so cold all of the time. Is this a normal thing with Celiac, or should I keep looking for "other" answers? Thanks for all the help.

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I don't know, but my own flippety floppety heart is driving me bonkers. I went off my thyroid meds because too high a dose has caused this in the past, and I wondered if my newly gluten-free body still needed it.

Going off it has helped some, but all the pre-thyroid-med fatigue has gradually come back, and the heart thing hasn't stopped completely, anyway. I have an appointment in a couple of weeks with the alt.med.dr. who prescribed the thyroid stuff in the first place, so we'll see what he says. It will be my first appt. w/him since I did the Enterolab test. He's never heard of Enterolab, so it could be interesting.

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I have low blood pressure and have a life long history of fainting. When I pass out my blood pressure goes very low and takes a long time to come back up. The doctors where I live now are the first in my whole life to monitor and document it. I wore the halter monitor 10 yeas ago and it showed an occasional irregular beat but the doctor dismissed it. The doctor I saw most recently and who's office I passed out in said that no way was it sufficient to have just had the halter monitor and recommeneded a work up but a cardiologist and a neurologist.

I also have a history of being low in energy and cold. All these thing are not necessarily connected to celiac disease for me. As far as I know I've only had celiac disease for 9 years but have had the others all my life. I'm very small and fair skinned and doctors my whole life have asked if I'm anemic but I don't know if they've tested. It's on my to do list.

Fatigue with celiac disease can be caused by deficencies as well as adrenal fatigue. My sister has been diagnosed with adrenal fatigue and has improved greatly with treatment. When we compare notes I can see that I probably had problems with this as well but it has improved enough in the year+ that I've been gluten-free.

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Flourgirl,

Hi. I have had low blood pressure and VERY slow heartrate( halter monitor recorded me at 33 beats per minute during one phase of slee- average is 56 BPM) and just got a work-up by cardiologist (again- had it 15 years ago) because a Naturopath I'm seeing to help me with celiac (I'm 2 years gluten-free.) got worried about my irregular heartbeat along with low everything. I am a runner and have been for 30 years now. (2 miles a day) I also dance. I wouldn't say I'm low energy but I am cold a lot. The cardiologist feels the low rate is from being in good shape from running and said the arrythmia is benign. If you have been checked I wouldn't worry about it; it's probably just "you".

I have fainted every single time I've thrown up since I was a little girl- it's terrifying! I'm terrified of stomach "bugs" for that very reason. It was just explained to me it's because of low blood pressure and the vagus nerve. Still scary though. I hope you don't faint very often.

Feel better.

lisa

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Flourgirl,

Hi. I have had low blood pressure and VERY slow heartrate( halter monitor recorded me at 33 beats per minute during one phase of slee- average is 56 BPM) and just got a work-up by cardiologist (again- had it 15 years ago) because a Naturopath I'm seeing to help me with celiac (I'm 2 years gluten-free.) got worried about my irregular heartbeat along with low everything. I am a runner and have been for 30 years now. (2 miles a day) I also dance. I wouldn't say I'm low energy but I am cold a lot. The cardiologist feels the low rate is from being in good shape from running and said the arrythmia is benign. If you have been checked I wouldn't worry about it; it's probably just "you".

I have fainted every single time I've thrown up since I was a little girl- it's terrifying! I'm terrified of stomach "bugs" for that very reason. It was just explained to me it's because of low blood pressure and the vagus nerve. Still scary though. I hope you don't faint very often.

Feel better.

lisa

Hi, not to beat a dead horse, however I have had this very problem most of my life. Finally I got the worst aspects to go away--namely the tachcardia and fainting. I haven't had my BP check recently but it feels better. I can now use a sauna and jacuzzi without fainting, a first for me since forever.

So what is my magic secret? Country LIfe Co-enzyme B vitamins. Check them out. They really mighth elp you too. The co-enzyme part makes it so the B's don't have to be digested through the liver. Instead they go straight into the blood stream. I can't absorb regular B vitamains and with celiac the state of the villi make it almost impossible to make my own. Beleive me these co-enzyme B's have changed my life. I can now exercise and feel years younger. I also am more resistant to colds and flus as long as I don't get glutened.

Just thought I should let you know!

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Hi, not to beat a dead horse, however I have had this very problem most of my life. Finally I got the worst aspects to go away--namely the tachcardia and fainting. I haven't had my BP check recently but it feels better. I can now use a sauna and jacuzzi without fainting, a first for me since forever.

So what is my magic secret? Country LIfe Co-enzyme B vitamins. Check them out. They really mighth elp you too. The co-enzyme part makes it so the B's don't have to be digested through the liver. Instead they go straight into the blood stream. I can't absorb regular B vitamains and with celiac the state of the villi make it almost impossible to make my own. Beleive me these co-enzyme B's have changed my life. I can now exercise and feel years younger. I also am more resistant to colds and flus as long as I don't get glutened.

Just thought I should let you know!

PS--you need to take them away from food for the best result. I take them late at night and first thing in the morning. Others here on the board have also found them helpful too against various skin and nerve conditions. Please let me know if it helps you.

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Is the Country LIfe Co-enzyme B vitamins better than Jarrow Formulas, B-Right?

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    • I too have heart palps, flutters, skips whatever you want to call them. Ecg shows nothing. I was told by my doctor it is due to my low iron which is due to celiac. They pretty much went away after being gluten-free. But occasionally do come back. I've actually been having them for the past 3 days. But I was glutened with really severe reaction about a week ago so not sure if its due to that. Or if iron is low right now. I am on supplements but it still goes up and down. I hear you about doctors. It seems if you don't do research yourself or ask questions they don't say or do or test for anything. 
    • For a number of years pre diagnosis I had irregular heartbeats - anything from a fluttering type thing to seemingly skipping one or more beats to rapid beats to something like a short drum riff. I had multiple ECG's which didn't find anything odd. It never did it when I was at the doctors or getting the ECG's. Sometimes it seemed to pound very hard & rapid, at these times I discovered if I just laid down flat on my back, it would restore normal rhythm almost instantly. These things happened at random whether I was at rest, sitting, standing, running or working hard. It was always short lived -- lasting only 1 to several seconds, perhaps the longest was close to a minute. I too have little faith in docs as I've had my share of being blown off, to misdiagnoses. The whole heart thing quit after I had been gluten-free for a while but if I get glutened, it returns.
    • My daughter had the HPV Vaccine last year. It was administered in three doses in April 2015, May 2015, and August 2015. Immediately after the third dose, she started having weird symptoms such has headaches, irritability, and a general feeling of being unwell (which she never had before). About three months later she started having gastro symptoms, most notably constant nausea. For several months we tried to figure out what was wrong and none of the doctors knew. After seeing many doctors and having a battery of tests, she was finally diagnosed with Celiac in August 2016. Her intestinal damage was a 3b Marsh score. No one else in our immediate or extended family has Celiac (myself and my other daughter were tested and are negative). No one else has symptoms or any indication that they could have Celiac. I feel like my daughter could have gone her whole life without being triggered and I'm feeling very guilty for making her get this controversial vaccine. I have done a lot of research and there seems to be conflicting studies regarding vaccines and autoimmune diseases. Some say there is no link, while others say there is a possible link, but it cannot be proven at this time. No one seems to know for sure what triggers Celiac...could it be vaccines? I'm wondering if anyone else feels that their Celiac Disease was triggered by a vaccine?  
    • Here is an article, albeit short, about Myocarditis and Celiac disease.  I have read before about a connection between the two and A-Fib is another one that can happen with undiagnosed Celiac. From one over-thinker to another......its the inflammation thing, along with maybe some genetic components to it.  I can't remember how long you have been gluten-free but it can take awhile for things to settle down, especially if your thyroid is wonky also.  I have Celiac and Hashi's so feel your pain, even though I have not had any cardiac involvement.  Some doctors really suck. I have a lifetime of bad with them so do not go that often, only when I have to and am leery about seeing any new ones. I am so done with that attitude of theirs. I think you need to find someone who has knowledge of Celiac and it's related conditions and who actually listens to the patient. That might be harder than finding a needle in a haystack but I wish you luck! 
      https://www.ncbi.nlm.nih.gov/pubmed/12045166
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