Posted 17 February 2008 - 09:09 PM
Posted 18 February 2008 - 05:05 AM
Friends may come and go but Sillies are Forever!!!!!!!
Posted 19 February 2008 - 03:45 AM
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
Posted 19 February 2008 - 07:42 AM
Oh, forgot to add, that after I was diagnosed I would often break out into a sweat during a meal or snack. I finally figured out that I was reacting to dairy in any form. It stopped after about two years gluten free. I did not eliminate dairy, just dairy light for a short period of time.
Gluten Free - August 15, 2004
"Not all who wander are lost" - JRR Tolkien
Posted 19 February 2008 - 11:11 AM
I've been gluten free since January 1, 2007. I'm sure the night sweats I had for years were probably from gluten. I do take synthroid for thyroid. I quit taking estrogen about a year ago. I ended up stopping cold turkey and didn't notice any difference at the time. I really wonder if I was even absorbing the stuff. I am 53 and I have notice more hot flashes lately, so it could be menopause. I sure hope that I'm not getting glutend this often. Can you tell the difference between the two?
If you are in your 50's and having hot flashes, then it's menopause. Hot flashes can start years before you actually go into full blown menopause and last for a long, long time. They can also start and stop without warning. That is very common.
As for testing, forget blood draws for hormone levels....very unreliable. Saliva testing is the way to go but you may need to see a less mainstream physician for that. Blood levels tend to be what's stored in your cells and may not be what's floating around for use by your body. That's why many women go and have their blood tested and are told their hormone levels are fine...when they have flaming symptoms of menopause.
I never had any gluten related hot flashes and am not convinced they are from gluten anyway.
It may be that before diagnosis of celiac disease, a person is very run down, adrenally, and this could cause temperature shifting. Hot flashes are generally a hormone mediated response and can occur for years around menopause. If your hormone levels are in flux, for whatever reason, you'll have a hot flash.
It may be a better idea to use bio-identical hormones, in cream form, for any hormone replacement. They are prescribed by a physician and obtained through a compounding pharmacy. As they absorb through the skin, there is no worry of mal-absorption problems. They are safer to use than mainstream pill hormones too.
Look on the bright side.....your heating bills should go down once the hot flashes gear up!
Posted 19 February 2008 - 11:17 AM
I agree with this--during perimenopause, especially, hormone levels can change daily.
As for testing, forget blood draws for hormone levels....very unreliable.
"Life is what happens while you're busy making other plans"
"When people show you who they are, believe them"--Maya Angelou
"Bloom where you are planted"--Bev
Posted 19 February 2008 - 08:08 PM
Posted 19 February 2008 - 08:56 PM
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