Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

New Diagnosis, 21


Kate H

Recommended Posts

Kate H Newbie

hi all,

i was just diagnosed this past january. i was just wondering if there was someone around my age who would be willing to talk to me about it or could give me some advice. i'm 21 and in my last year of university. i was diagnosed with ulcerative colitis at 9 and had my colon removed at 14, so anyone with both IBD and celiac i'd also be interested in talking to.

be well, and thanks!

kate

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



luvthelake21 Rookie

hey just wanted to sat wecpme to the board. you will learn alot here.

Link to comment
Share on other sites
pixiegirl Enthusiast

I'm sure some younger people will say hi, but I know there are a lot of people in your age group on this list. Take some time out and read a lot of the topics in this list, you'll learn a lot. I've been diagnosed for 5+ years now and if it were not for this list I couldn't have done it. Everyone has been very helpful.

My daughter is on this list too (she's younger then you at 16) and she's been gluten-free now for only a month and doing pretty well. There is a learning curve to figuring this all out so don't beat yourself up if it takes a while but after time (at least for me) I don't even think about it very often, its all just second nature to me when I go shopping and such.

Welcome to the group.

Susan

Link to comment
Share on other sites
cojaro Newbie
hi all,

i was just diagnosed this past january. i was just wondering if there was someone around my age who would be willing to talk to me about it or could give me some advice. i'm 21 and in my last year of university. i was diagnosed with ulcerative colitis at 9 and had my colon removed at 14, so anyone with both IBD and celiac i'd also be interested in talking to.

be well, and thanks!

kate

I'm 20 and I've been gluten-free for, geez, more than seven years! The best advice I can give is to not cheat, though it may be quite hard not to. Be careful what you buy and always read the ingredients (though it seems you don't have to much anymore, as more food companies print what allergens may exist below the ingredient list). I know Wild Oats has a large selection of gluten-free food items, but they are $$$. The longer you stay gluten-free, the better you'll feel.

Link to comment
Share on other sites
little00blondie Rookie

I am 21 as well! Feel free to chat away... nice to see someone else our age on here! : )

Link to comment
Share on other sites
Tall-Laydee Newbie

I'm a little older at 28 but I'm also newly diagnosed (on Feb 11th). This site really seems to have a lot of great information and so many people to support us both as we figure it all out.

Good luck!

Link to comment
Share on other sites
mamasaidso Apprentice

Hi Kate,

My daughter was just recently diagnosed as well. She is twenty-one and joined the forum last week. I'll be sure to let her know you are a member of this elite club as well. She is going off to new university in the fall and would love to have someone to talk to.

Best to you,

Maureen

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Kate H Newbie

Hi all,

Wow, thanks for all of your responses! I definitely appreciate the support-- as I'm sure you know it's been very tricky lately. I will certainly be in touch.

again, thanks for taking the time to write to me

Best,

Kate

Link to comment
Share on other sites
Churellies Newbie

Hi Kate. I was recently diagnosed as well back in November. I'm just about to turn 20 and am completely alone in this as I learn to navigate the gluten free world. Definitely contact me with any sort of anything you may want to talk about.

Good luck!

Ariel

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - plumbago replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

    2. - trents replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

    3. - Suzi374 replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

    4. - Suzi374 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

    5. - Peace lily posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Would like to gain weight


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,224
    • Most Online (within 30 mins)
      7,748

    Suzi374
    Newest Member
    Suzi374
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • plumbago
      I'm also a nurse, but one who has worked in chronic care, and to some extent, it is more satisfying to see patients through to a diagnosis (as opposed to working in the ED), but an accurate diagnosis does not occur not as often as it should! Your posting presents a lot of information. But a couple of things I can respond to. One, celiac disease is diagnosed by endoscopy and biopsy of the duodenum. So, pathology will need to weigh in. It's not diagnosed on gastroscopy. (At least, not as far as I know). Two, did you get blood tests for celiac disease? You will need to be eating gluten in order for those to be accurate. Three, where was the CT angiogram (of what)? I could go on and on, but thought I'd start there.
    • trents
      Was a biopsy done when you had your gastroscopy? Concerning your anemia, are you B12 deficient? It's nearly impossible to get sufficient B12 if you are a vegetarian unless you take supplements.
    • Suzi374
      And I’m anaemic, however I’m also female and vegetarian. I had an iron trans a couple of years ago however it’s starting to dwindle and taking supplements doesn’t seem to work. I can’t seem to absorb it. 
    • Suzi374
      Hi, I attended a neurologist appt last Tuesday, which I nearly cancelled, due to ongoing numbness and tingling in toes to mid foot. One of the first things he asked was ‘are you celiac’. I’m not. He thought all reflexes were ok but at the last minute decided on nerve conduction tests which were low normal. He was a little confused as he felt they should be better and tried a new set of probs, all the time, giving me multiple shocks which were not enjoyable lol. Anyway, he’s now ordered tests for myeloma, and all the vitaminy things that so many of you mention on here, also tests looking for autoimmune responses. I already have Hashimotos. Interestingly, to me, but maybe someone out there can relate or knows more than i do, although I was a nurse, but ED not ‘weird symptoms’  nurse. Anyway back to the interesting thing, I took duramine in 2013 to lose weight which caused a massive panic attack when I stopped taking it and half my hair fell out. I only took it for a week but it was horrible and I regret it. It triggered ongoing panic attacks which are horrendous. So I feel like I’m a bit crazy. Then in 2020 I had this sudden onset of horrible pain when trying to eat a cinnamon roll. It continued and I lost around 20 kgs. I had two gastroscopes and a colonoscopy and they were all normal. I scored a barium swallow and CT angiogram. All normal. The pain subsided a little but I was left with reflux and an awful feeling that I couldn’t get air when I ate some foods. This was not anxiety.  The anxiety was separate and I still maintain this. This was something to do with eating. It was like the air was thick but I wasn’t short of breath. I just had the sensation I was, then it triggered anxiety. Anyway, I had other weird things- couldn’t bend knees to shave legs in shower lol. Knees felt stiff and swollen but they weren’t. Knee WOUld swell up randomly but mri showed minimal issues. A bit of a meniscus degeneration but insignificant. Then the buzzing sensations in my head, the feeling like someone was stabbing me with something sharp. So now, I pre empted his tests, although I don’t think I’m celiac because it should have come up on gastroscopy, I’ve gone off gluten. Since Tuesday last week so 9 days. Since then I don’t appear to be as constipated, I realised I got through today without a nap and I’m not tired, maybe it’s just today and not related but I get very tired normally and sleep straight after work often, I can bend my knees and shave my legs lol, the buzzing vibrating has gone from my head, I had to call and ambulance as my heart decided we were off on a run, but we weren’t running and I’ve been a bit twitchy at bed time when trying to sleep, reflux is improving, I did get the weird suffocating feeling a bit when eating today but not as bad normall. Tingling and numbness still present and I felt like it moved up my legs a bit today but I’m a bit jittery. So I don’t know if it’s celiac disease or a gluten intolerance but I think, and it may be wishful thinking because my symptoms do make life a bit challenging, but maybe I’m feeling better. I don’t feel as cloudy. My thinking feels crisper. Like there’s no buzzing and I’m not fighting to break through the cloudiness now. I hope so much that this may help me feel a bit better moving forward. It would be a miracle as I really have struggled to work and parent and keep the house clean and I’m always anxious and exhausted.  If you get this far, please tell me if you you can relate to any of the above. Oh and tonsils out 5 years ago but before that antibiotics multiple times a year, sometimes intramuscular because they were so bad.  Op was meant to take 30 mins, it took 1.5 hours due to size of them. 
    • Peace lily
      Im still not gaining weight I’m on a gluten free diet . And still having issues with constapation started priobiocs figured it would help been over two weeks . I guess it’s going to be a long road for me .
×
×
  • Create New...