Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Is Sudden Onset Possible?
0

6 posts in this topic

some details about myself:

female, 24, type 1 diabetes since march 2004

1+ year ago blood test for celiac negative after i went to a GI for indigestion/abdominal pain.

the pain eventually stopped bothering me at that time. he prescribed nexium and a reglan, which i no longer take.

i have extremely bad pms, the kind that renders me mostly useless, and extremely irritable and unapproachable. i've been this way since starting insulin in sept 2004.

suffered with depression for many years, have been on and off anti-ds, prefer being off of them because i'm unfortunately really sensitive to having strong side effects.

about two weeks ago i started feeling uncomfortable in my gut. like a weakness almost- a slight pain, something was off. but i had no change in bowel movements, if anything, perhaps a little bit constipated. i wasn't, and still am not nauseous. this past sunday the pain became much worse, i feel very uncomfortable. my stomach/instestines feel a lot of cramping and am having more gas than usual. this pain is about a 6 on the pain scale. on tuesday, the pain became very very prominent and got worse as i ate. it lasts all day long.

this is what i'm wondering, does a gluten intolerance/celiac have a sudden onset like this, and when you guys feel pain/cramping/overall discomfort, is it a constant pain?

i went to the ER last night and spent 10 hours getting tests done. extensive blood work, (turns out my potassium was a little low) urine sample, an ultrasound and a CAT scan. everything came up negative. (no gall bladder problem, not appendicitis, etc) they let me go with a prescription for vicodin (!) which to me is crazy and i don't plan on filling. i left the ER with the same pain that i went in with, even though i hadn't eaten for 14 hours or so at that point. is that a symptom of a gluten problem? because after 14+ hours hasn't all the food left your body?

when i got home this morning, i ate some brown rice fried with egg and some crumbled bacon, i figured, let me try something gluten-free and see how i feel. i went right to bed at 11am and just woke up a little while ago at 4pm! i was exhausted. my stomach feels "better" as in, the pain is much less right now.

i am just looking for some answers. i almost wanted it to be appendicitis just so i knew i would have an explanation and would feel some relief.

i guess all i'm looking for is a little insight, wondering if my symptoms might possibly be a gluten problem. thank you all in advance for helping me. i have an appointment with a GI in about 10 days- believe me, i'm trying to get in sooner, no way i can live with this pain for that long...

thank you :)

sarah

0

Share this post


Link to post
Share on other sites


Ads by Google:

Hi Sarah,

Yes, it can definitely come on quickly. I would say mine came on over about a 2-3 week period where I went from no symptoms to constant sickness and being unable to leave the house. Depression and other mental/emotional issues can also be symptoms of celiac disease.

Having type 1 diabetes makes you more at risk for Celiac than the general population. Definitely get tested and if your tests come out negative, you could go gluten-free anyway while you keep searching and getting tests to make sure it's not anything else. You may find that you feel better off gluten even if your results turn out negative -- no test can be 100% accurate. If you want to be tested, don't go gluten-free until after the tests because that could invalidate the results.

0

Share this post


Link to post
Share on other sites

Yes it can, although it sounds like you have had some indications for a while. Up to 30% of us show up negative on blood work. For some of us doing the diet and the results we see are the best indications of whether we need to be gluten free. Many of us have unexpected effects from the psychotropic drugs they throw at us but the diet can negate the need for any of them.

0

Share this post


Link to post
Share on other sites

some details about myself:

female, 24, type 1 diabetes since march 2004

1+ year ago blood test for celiac negative after i went to a GI for indigestion/abdominal pain.

the pain eventually stopped bothering me at that time. he prescribed nexium and a reglan, which i no longer take.

i have extremely bad pms, the kind that renders me mostly useless, and extremely irritable and unapproachable. i've been this way since starting insulin in sept 2004.

suffered with depression for many years, have been on and off anti-ds, prefer being off of them because i'm unfortunately really sensitive to having strong side effects.

about two weeks ago i started feeling uncomfortable in my gut. like a weakness almost- a slight pain, something was off. but i had no change in bowel movements, if anything, perhaps a little bit constipated. i wasn't, and still am not nauseous. this past sunday the pain became much worse, i feel very uncomfortable. my stomach/instestines feel a lot of cramping and am having more gas than usual. this pain is about a 6 on the pain scale. on tuesday, the pain became very very prominent and got worse as i ate. it lasts all day long.

this is what i'm wondering, does a gluten intolerance/celiac have a sudden onset like this, and when you guys feel pain/cramping/overall discomfort, is it a constant pain?

i went to the ER last night and spent 10 hours getting tests done. extensive blood work, (turns out my potassium was a little low) urine sample, an ultrasound and a CAT scan. everything came up negative. (no gall bladder problem, not appendicitis, etc) they let me go with a prescription for vicodin (!) which to me is crazy and i don't plan on filling. i left the ER with the same pain that i went in with, even though i hadn't eaten for 14 hours or so at that point. is that a symptom of a gluten problem? because after 14+ hours hasn't all the food left your body?

when i got home this morning, i ate some brown rice fried with egg and some crumbled bacon, i figured, let me try something gluten-free and see how i feel. i went right to bed at 11am and just woke up a little while ago at 4pm! i was exhausted. my stomach feels "better" as in, the pain is much less right now.

i am just looking for some answers. i almost wanted it to be appendicitis just so i knew i would have an explanation and would feel some relief.

i guess all i'm looking for is a little insight, wondering if my symptoms might possibly be a gluten problem. thank you all in advance for helping me. i have an appointment with a GI in about 10 days- believe me, i'm trying to get in sooner, no way i can live with this pain for that long...

thank you :)

sarah

see an allergist! my mom is type one and had the same gi phenomenon a normal wheat panel wont show up it has to be extensive, i go to the doctor in the morning and im hoping for answers

0

Share this post


Link to post
Share on other sites

some details about myself:

female, 24, type 1 diabetes since march 2004

1+ year ago blood test for celiac negative after i went to a GI for indigestion/abdominal pain.

the pain eventually stopped bothering me at that time. he prescribed nexium and a reglan, which i no longer take.

i have extremely bad pms, the kind that renders me mostly useless, and extremely irritable and unapproachable. i've been this way since starting insulin in sept 2004.

suffered with depression for many years, have been on and off anti-ds, prefer being off of them because i'm unfortunately really sensitive to having strong side effects.

about two weeks ago i started feeling uncomfortable in my gut. like a weakness almost- a slight pain, something was off. but i had no change in bowel movements, if anything, perhaps a little bit constipated. i wasn't, and still am not nauseous. this past sunday the pain became much worse, i feel very uncomfortable. my stomach/instestines feel a lot of cramping and am having more gas than usual. this pain is about a 6 on the pain scale. on tuesday, the pain became very very prominent and got worse as i ate. it lasts all day long.

this is what i'm wondering, does a gluten intolerance/celiac have a sudden onset like this, and when you guys feel pain/cramping/overall discomfort, is it a constant pain?

i went to the ER last night and spent 10 hours getting tests done. extensive blood work, (turns out my potassium was a little low) urine sample, an ultrasound and a CAT scan. everything came up negative. (no gall bladder problem, not appendicitis, etc) they let me go with a prescription for vicodin (!) which to me is crazy and i don't plan on filling. i left the ER with the same pain that i went in with, even though i hadn't eaten for 14 hours or so at that point. is that a symptom of a gluten problem? because after 14+ hours hasn't all the food left your body?

when i got home this morning, i ate some brown rice fried with egg and some crumbled bacon, i figured, let me try something gluten-free and see how i feel. i went right to bed at 11am and just woke up a little while ago at 4pm! i was exhausted. my stomach feels "better" as in, the pain is much less right now.

i am just looking for some answers. i almost wanted it to be appendicitis just so i knew i would have an explanation and would feel some relief.

i guess all i'm looking for is a little insight, wondering if my symptoms might possibly be a gluten problem. thank you all in advance for helping me. i have an appointment with a GI in about 10 days- believe me, i'm trying to get in sooner, no way i can live with this pain for that long...

thank you :)

sarah

Your story sounds so much like mine except I don't have Type 1 diabetes. I've had previous tests that showed no hint of celiac, so they said I had IBS.

I ended up in the ER about a month ago with abdominal pain and bloating. All the tests came out negative. Leading into it though I had joint pain, so none of it seemed to fit together. I was basically called a hypochondriac by my PCP, so I got a new one. First (and only) test he ran was a celiac panel. My IGG is higher than could be measured, my IGA lower than could be measured and EMA (due to the low IGA) was negative. Due to these results I was sent to a GI (took a couple of weeks to get in) I have my biopsy on Friday. They gave me pain meds at the hospital too. I've been taking about one every other night. Of course I have joint pain on top of the level 6-8 abdominal pain. I've survived the pain for nearly a month, so believe me, it's possible. Not much fun, but possible, especially if there seems to be an answer in store.

I hope your GI appointment goes well. Keep us updated.

Angie

0

Share this post


Link to post
Share on other sites




For me the pain is about a 4 until it shoots down my left leg, then it's higher. It can take up to three days (with miralax) to a week to get my system cleaned out and working again. Then my stomach feel like I've been doing sit ups.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,346
    • Total Posts
      917,413
  • Topics

  • Posts

    • Will my doctor test me? So many symptoms...
      Yep, get tested for celiac.  You have plenty of digestive symptoms to indicate it.
    • Weird Reaction
      Hi Richie, It definitely sounds like you got glutened.  Over here in the USA they can't label foods gluten-free if they are made from gluten ingredients, period.  So your barley drink would not be labeled gluten-free here.  A while back I read something about the testing for gluten in foods not being as accurate for detecting barley hordein as it is for wheat gliaden.  So the gluten-free testing (if they do any) that your drink maker does may not be reliable. Celiac disease is an autoimmune condition.  So the immune system starts reacting when it detects gluten and damages the gut lining.  An immune reaction is not like a food poisoning event, where most of the damage is only while the food is actually in your system and then ends.  An immune reaction can continue for weeks to months.  The immune system is really quite serious about protecting our bodies.  And since it is designed to detect and attack micro-organisms it reacts to tiny amounts of gluten. Wheat, barley, and rye are the main gluten grains that affect celiacs.  But some celiacs also react to oat gluten.  
    • Weird Reaction
      Hi Richie,  Glad you are feeling better. I wondered have you been officially diagnosed with coeliac disease? Just wondering as you say you are anaemic, that is one of the symptoms of coeliac disease, along with other general malnutrition. You don't need to eat meat for iron though, you can get it from non-heme foods, like spinach or parsley. Just be careful with the drink with barley, it may be that you only start to have symptoms if you consume a lot of it, but if you have coeliac disease the damage is still been done to your gut regardless of whether you have symptoms or not, which will ultimately lead to malnutrition as well as other things.
    • Weird Reaction
      I think, if all this is caused by glutening, it could be that it takes a while to work its way out of your system. I should explain about what I said about organic broccoli.   I don't have a problem with organic food,  in fact, I buy organic milk and carrots all the time, but I don't want to try organic broccoli in case it is the broccoli that is the problem, not the insecticide.    I meant to ask, are you a coeliac or is it non-coeliac gluten intolerance that you have?   I wonder what sort of support you get in Australia for these conditions once diagnosed?   Here in the UK I think the understanding is that if new gastro symptoms have lasted for more than six weeks it needs to be investigated.   I have found this very helpful advice because I do get odd twinges of pain and sometimes changes in bowel movements (sorry if tmi) but they rarely last more than a couple of weeks.   If they do persist I mention it to my gastroenteroligist and he follows it up.  I recently had a sigmoidoscopy for left sided pain and they found nothing.  Turns out it was to do with lactose intolerance, but I always imagine the worse!    
    • Will my doctor test me? So many symptoms...
      Welcome, @iwillmoveamountain! Of course you are not wrong to pursue getting testing for celiac. My advice is to drop that doctor and find a new one, preferably one who is celiac savvy, and who will listen to you and test you for the disease.  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
    • ukuleleerika

      Hello! I am new to this Celiac website... Is there anyone out there with Celiac AND extensive food allergies? My allergies include shellfish, dairy, eggs, cantaloupe, kiwi, mango, nuts, oranges, red dye, and more I can't think of. I went to the allergist about a year ago to see why I wasn't feeling well, and once everything was eliminated, I still didn't feel well. We did more testing to find out I had celiac as well as allergies to cattle as well as rye grass (I live on a farm basically). This was back in January 2016. I recently had my endoscopy with the gastroenterologist a week ago. I have no idea what to do or what to eat... So fish and potatoes for me!
      · 2 replies
    • SLLRunner

      Week 4 of the gluten challenge- wheat cereal every morning, regular bread every day, and wheat tortillas for my lunch wraps. Right now, body aches that seem exercise related (weight lifting and running), even though I am doing the same intensity of weight lifting and running I've always done.  Just a few more weeks until my blood test. Counting down the days.
      · 0 replies
  • Who's Online (See full list)

    There are no registered users currently online

  • Member Statistics

    • Total Members
      60,482
    • Most Online
      1,763

    Newest Member
    Jiifigment
    Joined