Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Gluten / Wheat Sensitivity But No Wheat Allergy?
0

3 posts in this topic

OK....new forum member here with my first post!

I am a 41 y.o. male with a long, long history of symptoms that I am now believing have always related to wheat (gluten?) sensitivity and associated malabsorption. In summary, here are the highlights:


always a VERY skinny and underweight kid.....skinny arms and legs, bigger abdomen. Looking back, I was malnourished!


terrible allergies (severe eczema, dry skin, food allergies, hay fever, etc.) throughout childhood....weekly allergy shots for years, on steroids and powerful antihistimines for years, saw allergist monthly, special diets all the time as a little kid, etc.


frequent stomach aches as a child, and actually hospitalized for a week at age 13 due to mysterious chronic stomach ailment that caused severe pain, vomiting, etc. Many tests run at the time (1980?), but no diagnosis other than "stress" (but I don't recall being stressed!).


always anxious and irritable as a child....this sprialed downward by college and into adulthood into clinical depression, panic attacks, anxiety disorder, which continued in one form or another to the present


chronic sinusitus and allergic rhinitis, all of my life.


occasional "irritable bowel syndrome" over the years....i.e., a month of diarrhea, a month of constipation, then all "back to normal"


weird undiagnosed neurological symptoms (parasthesias, etc.) over the years

As I said, just a summary. I could go on and on. But, anyway, I began to suspect I had a "grain sensitivity" probably 10 years ago. Whenever I would drink beer, my sinuses would immediately close up. After a big spaghetti meal, I was wiped out. I was thinking wheat was the culprit. A few years ago, I gave up carbs as part of Atkins, and I really REALLY started feeling better. For whatever reason, I went back to them after a while.

OK, now the main point of my post.....I finally (a few years back) decided to visit an allergist, after not having seen one for 25 years. When tested, I was so highly allergic to EVERYTHING that they even called other doctors into the room to see my skin reactivity test to the various test!! They said not even allergy shots would help me. But guess what......the ONLY food that I was NOT allergic to was WHEAT!

Fast forward to today, and I again believe there is SOME sort of link with wheat. But, the doc said I'm not allergic to it. I eliminate it anyway (this month) and all sorts of wonderful things have happened! My skin has cleared up, I have stopped snoring, my sleep apnea is going away, and for once in my life I can breath out of my nose! My hair is even improved! Not only that, but I feel less "inflammed" (it's hard to describe), and have even eaten some foods recently that I am highly allergic to (normally), with NO reaction!

So.....my question is, what the heck is going on here?? I KNOW this isn't my imagination. I was told I had NO allergic reaction to wheat when tested, but when I give it up I feel so much better! It's true I have had some (well, a lot of, actually) questionable things occur in my past with my digestive tract that would make someone think of celiac, but I have also gone for LONG period with what seems like fairly normal digestion.

Whatever it is, I can't see going back to wheat (and barley, and rye). There is SOMETHING to all of this! Am I finally absorbing my nutrients? Was my gut inflammed due to wheat for years and years, so much so that I became "immune" to registering an allergic response to it? Just weird!

0

Share this post


Link to post
Share on other sites


Ads by Google:

Welcome,

I'm not good with the scientific explanations so maybe someone else will. But, the simple answer is wheat allergy and celiac disease are different things. Those with celiac disease won't test positive through allergy testing unless they have celiac disease AND wheat allergy. There is a reason why they call it a disease and not an allergy. I hear the term "gluten allery" alot lately but it doesn't exist. Alot of us with celiac disease say we have "wheat allergy" because it's easier for people to understand.

It does sound like you have may have celiac disease. If you want to test for it you can have a blood test but there are some problems with false negatives so be educated about it. The most conclusive test is a biopsy of the small intestine. But you need to be eating gluten for it to be most accurate. If you go gluten-free it will possibly change the results.

0

Share this post


Link to post
Share on other sites

Allergies are not the same thing as intolerances. Allergies involve IgE immune thingies and intolerances involve IgA immune thingies. Other differences are: Allergies are generally fast acting and can be very severe to life-threatening shortly after you eat. Intolerances may take 24 hours or more to show up as they might not affect you until they get further into your digestive tract. Intolerances might or might not cause severe symptoms right away but they do cumulative damage over time. The effects of an intolerance probably lingers longer too.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,918
    • Total Posts
      919,627
  • Topics

  • Posts

    • Weird things people have said
      I've had people say strange things about celiac to me lately... Like someone said, "Oh I'm just a mild celiac so I don't have to worry about cross-contamination." And then someone else said that they're celiac but things have calmed down now so they can have a bit of gluten here and there. And I told my doctor that back in 2014 I thought I had been gluten free but I actually wasn't because I had been repeatedly glutening myself with an old colander. And he just looked at me like I was insane, like a colander?? Sure... I'm not crazy, right? Even if you have no symptoms you have to avoid cross-contamination because you can be doing damage internally right? You can never have 'just a bit'. And a colander is a big source of cross-contamination right?? I know all this but why do these other people not? Why does my doctor not know? So confusing and spreading misinformation... And then they look at me like *I'M* crazy.
    • fructose malabsorption and gluten intolerant
      Look up FODMAPS.   That might clarify things for you.  There really are a lot of diet recommendations so make sure you bring a list of questions regarding foods to your doctor's  and dietician's appointments.  
    • Recovery?
      Thank you for sharing those web sites. I will look at them. We have been gluten free since December so it's been a while. Once, he had a gluten free beer, the kind that they take the gluten out, and his legs felt very heavy and had a more difficult time walking. I really don't want to experiment.  Although I am very careful about what we eat, I am concerned that some of our medication could contain gluten. Is there any easier way to tell if medication has gluten. I did find a website which listed drugs and known gluten but every drug was on it or was determined to be gluten free
    • fructose malabsorption and gluten intolerant
      I don't have celiac but doctors or amazed I don't so they told me to fallow the gluten-free diet like I have it... any way I was wondering if one can have corn, corn starch if they have fructose malabsorption. I am so confused on what I can and can't have.. i have an appt next week hopefully with a dietitian... also can you have sugar free stuff since it's not sugar.. I'm reading online and I'm getting a bunch of mixed info on both. 
    • Depression / anxiety issues
      Hi all.  Still feeling the same way this past week. I'm thinking of dropping dairy starting from today, I don't know if I have a problem with it or not, but I drink 2 coffees a day with milk. I'm just constantly tired all the time, and getting trough the day is pretty hard, I noticed a couple of weeks ago that my sleep was improving but the last couple of days I have been waking up at least 3 times during the night, then when I get up in the morning it feels like I have been hit by a bus, like I haven't slept at all. I keep waking up during the night needing to drink water as I feel dehydrated, I don't know why as I drink 2-3 litres of water everyday 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Jmg  »  admin

      Hello Admin!
      I don't know whether this is of interest to post on your articles feed:
      http://pratt.duke.edu/about/news/window-guts-brain
      Kind Regards,
      Matt
      · 2 replies
    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
  • Who's Online (See full list)

    There are no registered users currently online

  • Member Statistics

    • Total Members
      60,963
    • Most Online
      1,763

    Newest Member
    Tams67
    Joined