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My Hopes And Dreams For 2005....
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4 posts in this topic

Happy New Year Everyone!!!

My hope is that 2005 will bring us a celiac cure.

My hope is that the medical establishment will wake up and really start to understand and detect this disease in the millions of people who currently are suffering from it and don't know what it is they have.....

My hope is that the world will turn a corner and really start trying in earnest to obtain peace around the world.....

My hope is that God will take care of all of the children left without parents in Sri Lanka, Indonesia, Thailand and all of the other countries effected by the tragedy this week.......

I have high hopes for myself and my family this year. We are moving in six days, we sold our house in the city (Toronto) and bought a house out of town (about 45 minutes outside of the city), in a nice little town. I am staying home on sick leave for about 1 year to concentrate on getting my health back on track. I have a positive feeling that we will find a treatment that works for me for the collagenous colitis and my health will really take a turn for the better..... I am excited to start a new life in a new town, new home, get the children into a community that has that "small town" feel to it. We made enough from the sale of our house to be able to climb out of the mountain of debt we are in, and take that weight off our shoulders.... Yep, I really have high hopes for this year.....

I hope for health and happiness for 2005 to all my friends on this site.

Have a wonderful Happy New Year!

Karen

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Yes, Happy New Year, everyone!

I have similar hopes to yours :). Also, I heard Dr. Green talk on NPR a couple weeks ago. He said that within the next five years, there will very likely be a treatment (not cure) for celiac. It won't allow you to eat wheat, but, I guess it would heal your intestines and perhaps aid your digestive system. I guess the 1/2 hour radio segment is also a positive step for celiac awareness. We're getting articles in magazines, newspapers, and now segments on the radio. The word will get out...it might take a little while, but more people are getting diagnosed now and I think the word is really starting to spread. After all, if you look at how many new members we have and the rate at which they are coming, we're making progress! :D

Of course I hope that I can sort out my stomach and digestive issues during this next year. Actually, I hope we can all get healthy in 2005! All the best to everyone here and happy new year!

-celiac3270

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Happy New Year Everyone!!!

My hope is that 2005 will bring us a celiac cure.

My hope is that the medical establishment will wake up and really start to understand and detect this disease in the millions of people who currently are suffering from it and don't know what it is they have.....

My hope is that the world will turn a corner and really start trying in earnest to obtain peace around the world.....

My hope is that God will take care of all of the children left without parents in Sri Lanka, Indonesia, Thailand and all of the other countries effected by the tragedy this week.......

I hope for health and happiness for 2005 to all my friends on this site.

Have a wonderful Happy New Year!

Karen

AMEN to all those comments, Karen! :)

With what has happened with the tidal wave and tsunami (sp), it has really made me realise how very blessed I am.

I wish all my friends here a wonderful and peaceful 2005.

God bless.

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:lol: i agree wholeheartedly--it will be wonderful when celiacs finally surfaces so people who are suffering with no knowledge of this disease will be helped---- :lol: i am looking forward to a wonderful year and all the best to all of my friends in this forum--love ya, deb :D
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    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
    • Mnoosh, I had swollen lymph nodes prior to celiac dx and for a while after going gluten free. My neck as well as groin. The groin ones were the worst. Guess what? All gone! It's hard to recall a time line & consider that everyone is different but I think mine completely resolved within a year.  You've been given great information. Just breathe and then again, breathe. You're going to be fine. 
    • It is the only thing you have eaten, so it can't be anything else?  I eat it with no issues so I am not sure how you can be certain that is the problem.  All I am saying is that its sort of "your word against mine and the company's word".  
    • Thanks cyclinglady & manasota! I appreciate it. I came to give an update...... I'm still 99% itch free. I get a "place" like a bug bite once in a while that itches and I just use the prescription steroid cream on it & that takes care of the itch. My rash is healing up rapidly everywhere. Almost clear skin now! Yaaaaayyyyyyyyyy! Now for a rundown of the "treatment". For 20 days I took a 100mg doxycycline twice a day. Then we upped it to two 100mg doxy twice per day. I took those for 5 days & made rapid progress and the itching stopped. The doxy was getting my tummy though. It was getting really rough despite my eating yogurt. So on day 6 and day 7, I took two 100mg doxy in the am but in the pm I just took 1 of them. On day 7, I was nauseous for hours on end. So since I was still doing well without itching and the rash was healing everywhere, I decided to cut back some more. On days 8, 9, & 10 I have only taken two 100mg doxy in the am and none at night. I'm doing good and my tummy is much, much happier! No more nausea!  I'll update as things go along.
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