This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.
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What are the major symptoms of celiac disease?
Celiac Disease Symptoms
What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic)
Celiac Disease Screening
Interpretation of Celiac Disease Blood Test Results
Can I be tested even though I am eating gluten free?
How long must gluten be taken for the serological tests to be meaningful?
The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free
Is celiac inherited? Should my children be tested?
Ten Facts About Celiac Disease Genetic Testing
Is there a link between celiac and other autoimmune diseases?
Celiac Disease Research: Associated Diseases and Disorders
Is there a list of gluten foods to avoid?
Unsafe Gluten-Free Food List (Unsafe Ingredients)
Is there a list of gluten free foods?
Safe Gluten-Free Food List (Safe Ingredients)
Gluten-Free Alcoholic Beverages
Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?
Where does gluten hide?
Additional Things to Beware of to Maintain a 100% Gluten-Free Diet
Where can I buy gluten-free stuff?
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My results were similar – Low ferritin but normal B12.
Although my ferritin levels were low, my Iron serum levels were normal. So might be worth getting your iron levels checked out to see if you have any deficiency in Iron.
Also I was deficient in Vitamin D, which is perhaps more of a problem in England rather than the US - Our milk isn’t supplemented with vit D and we obviously have less sunshine.
If you are going to continue the celiac testing with an endoscopy, you need to keep eating gluten until it's done.
It can be hard for vegetarians to keep their vitamin D levels up. This Vitamin D Council link has some good info on ways to boost your levels.
Your ferritin was very low! My result was a 2 when I was diagnosed. I hard a hard time breathing and the fatigue was awful due to low hemoglobin levels. But after going gluten free and taking iron for a few months, I quickly recovered from iron-deficiency anemia. I still have hemologobin levels that are slightly below range due to Thalassemia which is genetic and my body has adjusted for it.
My B12 and folate levels are super high. My B12 is over 2000! Yeah, I googled and ruled out cancers, etc. Looks like some of us do not process man-made B12 often included in supplements. I opted for natural sources of B-12 and folate and my levels have come down a bit.
Let us know your results. Read the Newbie 101 section under "Coping" within this forum for tips.
Be patient. It can take months, to years to feel good. But it will happen!
Welcome to the forum!
Well.....in theory you should be able to heal within a few months (grow new villi, etc.). The reality is that it takes so much longer -- like a year or two (I kid you not!) Why? celiac disease can damage more than just the gut. Depending on what was damaged (nerves, bones, etc) can impact healing time. The gluten-free diet has a very steep learning curve. It's not just giving up gluten. It's avoiding cross contamination. Becoming an expert in reading labels. Learning to avoid foods processed on shared lines in a facility. Then there are intolerances that most celiacs develop. The most common ones is lactose. Why? The villi tips release the enzymes to digest lactose. No villi tips? Then you can not digest lactose. Often this is temporary, but if you are one of the many adults in this world, you might already be lactose intolerant or might become so as you age. Other intolerances that members often report include corn or soy. Some celiacs react to oats, even gluten free. So avoid oats for six months.
So, try cutting out dairy for a few days and see how you feel. Then add in those items that have the least lactose: hard cheese, butter, yogurt and see how you feel.
Avoid eating out for six months until you have seen some improvement.
Read our Newbie 101 thread under coping for more ideas!
Hope you feel better soon.
I am having my endoscopy on Tuesday. I want to begin to heal my gut asap. I spent this morning in the ER with stabbing pain in my right shoulder blade, pain to the left of my belly button and vomiting. It's referred pain from my small intestine. I couldn't move or breathe hardly it hurt so bad. I NEED to get everything together to heal my gut asap. I don't want to ever go through this again.
What are your recommendations? I've been reading a bit on leaky gut - anyone have good experience/links
Or would the autoimmune diet be better? Are they one in the same?
I know I am also reacting to casein and possibly potatoes.
Hello cycling lady, have you noticed my picture is showing up as you? Have no idea why but it's rather disconcerting to see my picture and your words 😉 Do you know how to fix it? You seem to have far more experience with this board than I do
Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
Here is the link if you have never watched it.