Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Celiac?
0

2 posts in this topic

Hi,

I have been having some stomach and intestinal issues for the last nine months. It started off as just nausea, but however has gained some frrequent bathroom trips, cramps, intestinal pains, gas and bloating. My GI and primamry care doc have had me do an extensive series of tests like endoscopy, a barrium swallow, and ultrasound of my gallbladder, an ultra sound of my "girl parts" and random blood and fecal tests (not to mention the initial pregnancy test 9 months ago-thank god I'm not preg, my husband and I would be so upset!)

A few months ago my GI put me on amytriptiline which is an antidepressent (at much higher doses than what I was using) with the positive side effect of decreasing nausea, decreasing migraines (about 2x mo since I was 15) but causes weight gain! I went from about 135 lbs to 155 in just over 8 weeks! (I'm 5'8) I just stopped the medication due to the side effects and that it wasn't working very well.

I have always been a sleepy person (8-9 hrs a night is never enough) and have gone to the doc for exhaustion. But, that medicine made my sleepyness increase but olike 200%. In addition to nausea and migrane prevention, at the same lower concentration is perscribed as a sleep aid! So, needless to say, on the meds, I was drowsy for at least 4 hrs after waking. Now, I am still tired and exhuasted, but not as bad as on that medication!

I started having all these issues about a month after a pretty serious surgical procedure (totally unrelated) and just after being accepted to graduate school, though I wouldn't say I was under a ton of stress. Also, at that time I was doing Atkins, though not as good as I should have been. I was down to about 128-130 lbs (lowest in my life!) By the way, I am 24.

This week, my primamry care doc thought to test me for food allergies and sensitivities, so had me do a blood celiac test and some more stool samples.

I have been on that medicine for so long that I forgot what I felt like without it, that I just wasnt hungry and always sick to my stomach. Since Saturday, I haven't wanted to eat anything, because I always feel worse.

I don't know how long these results take, but do any of you have advice? Part of me wants this to be it so I dont have to be poked and prodded as much, but the majority of me really doesn't want this because I love pizza and chocolate cake and would miss having them ever.

Thanks in advance!

erbadger :D

0

Share this post


Link to post
Share on other sites


Ads by Google:

Hi erbadger, Welcome to the board!

I too had such nausea that I thought I was pregnant, had my doctor run a pregnancy test too and of course it came back negative but the point is the nausea was so bad and lasted all day and was not normal.

My suggestion to you is: Order a stool panel test from Enterolab if you receive negative blood results and continue to have the same problems. I had all the same symptoms as you and my blood-work came back negative but my stool panel test came back positive. A lot of times if the disease or intolerance is just beginning it may not register in the blood or has not done any damage to be seen in a biopsy.

A gluten free diet can be intimidating and can be overwhelming at first but there are a lot of foods out there we can eat, you just have to search for them. You mentioned you liked Pizza and cake, well you can still have those. There is a pizza made with Rice crust that is pretty good that is made by Amy's Organic. As far as the cake you will have to get in the kitchen and bake some, I still have not got the cake down pat but I will soon enough :D . The gluten free pantry sells an awesome Brownie mix that is better than the regular ones and for now that satisfies my cake craving!!!

I hope this information is helpful and I do hope you begin to feel better soon!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,115
    • Total Posts
      919,447
  • Topics

  • Posts

    • Well, you can probably get an apple or something.  You might be able to get someone to boil you some eggs.  But be careful of things like nuts that should be naturally gluten free.  They have almost always been soaked in a flavor solution that usually containes caramel coloring, "soy" (wheat) sauce and other aditives.  If I am really hungry and must eat in a Chinese restaurant, I order plain white rice and steamed vegetables.  But even so, you must monitor it carefully.  The rice sometimes has other substances added to give it a better texture, and very often the vegetables have in fact had "just a little bit" of soy sauce added.  To be fair, celiac disease is hardly ever found in East Asians, so understandably people are not tuned it to it.  Also, culturally, with the exception of fruits, it is generally thought that the flavor of foods needs to be enhanced, so it is had to find anything natural even in the "western" gorceries. Even in the western restaurants, be careful.  Fish and meat and often vegetables are usually pre-marinated. I will not even attempt to address the issue of cross-comtamination, since that is a whole higher order of things. I do know what I am talking about; I have celiac and have worked here for nearly 7 years.  
    • I'm glad I found these forums!  I will spend some more time this evening reading through them.  But I wanted to get my question out there just to see if anyone else might have answers quicker than I can sift through the forum for them.      I've been feeling terrible for about a year, and after an elimination diet last month, figured out that if nothing else, gluten/wheat is a problem.  After lots of research, I abandoned the elimination diet and added gluten back in, so that I could get tested for Celiac.   I was off gluten for 3 weeks, from mid-June until early July.  I've had it back in my diet for almost 3 weeks now.    My question is this: Since I was off gluten for 3 weeks, and now back on for almost 3, is that enough time on to yield a positive Celiac blood test, if that indeed is what I have?  All the research I've done says 4-6 weeks for a gluten challenge, but is that really necessary if I was only not eating it for 3 weeks?  I am desperate to get this testing done and over with.  I feel terrible all the time and getting through the day is a struggle.  My doctor ran allergy panels already and everything came back clear except for a mild wheat allergy.  So if nothing else, I'll have to give up wheat for sure at the end of all this.  I get the feeling she doesn't know a ton about Celiac though, so I'm doing a lot of the research on my own. Any advice or information would be so appreciated! 
    • Hi Michael, That's quite a spike in blood pressure!  I haven't tested that myself and don't want to if it means I have to eat gluten.  Blood pressure testing to identify food reactions is something that has come up before.  It sounds like it might be possible but I don't know how much study has been done on it.  Probably not much since it is such a simple, straight forward idea. Welcome to the forum!
    • Hi Megan, Did the doctor test you for celiac disease?  You really shouldn't go gluten-free until all the testing for celiac disease is completed.  It is a little odd for a doctor to tell you to go gluten-free for no reason IMHO.  Did he/she explain the reason for it? Personally, I have learned over the years what I can eat safely and what I can't.  Occasionally I get hit but it is rare.  Simplifying your diet is a good first step.  Avoiding processed foods for a while and dairy also is good.  I suggest any change you make last for a month at least. Then try the food again. If you are eating 100 random ingredients/foods each day it is hard to figure these things out.  If you reduce it to a much smaller number of foods then things become simpler. Welcome to the forum!
    • Finally, proof that non-celiac gluten sensitivity is real. ... for the 30 percent of consumers who choose to buy gluten-free products and the 41 percent of ... View the full article
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,154
    • Most Online
      1,763

    Newest Member
    calla84
    Joined