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Do Eye Problems Go Along With Celiac?


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18 replies to this topic

#1 JulesH

 
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Posted 04 March 2008 - 06:58 PM

About a year ago, after I'd been gluten free for 6-9 months, I noticed that my left eye was blurry. I got it checked and I had some weird spot on my cornea or lens or something. The doctor couldn't figure out what the cause was (whatever it was is usually something present at birth) and gave me steroid drops and sent me on my way.

Since then, my left eye has been completely clear, but a couple of days ago, my right eye suddenly went blurry. I'm getting it checked out tomorrow, but I was wondering if there's any correlation between celiac and eye problems.
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#2 trents

 
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Posted 04 March 2008 - 08:41 PM

Jules, how old are you? Could this be "floaters"?
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#3 Yenni

 
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Posted 04 March 2008 - 09:41 PM

I read in one of the gluten books (Dangerous Grains I think..) that the vision can get affected and it was recommended to check the vision 1-2 /year while healing. I had blurred vision while being real sick and got glasses. I don't know if it would have happened anyways though.
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One Celiac gene and one gluten intolerance gene (HLA-DQ 2,1).
Grain free, casein free, soy/legume free + a bunch of allergies I have had since I was a child (stone fruits, nuts..carrots)
Following the Specific Carbohydrate Diet, but no nuts, legumes or casein.

#4 Joni63

 
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Posted 05 March 2008 - 03:22 AM

For me, blurred vision is definately a symptom. My vision progressivly worsened before I went gluten free. Once on the diet I had clearer vision than I've had in years. Then I got glutened and had terribly blurry vision for 2 full weeks. It cleared up again, but it's one of my main symptoms when I get gluten in my system.

I tend to get it worse in my right eye. But that is where I have an astigmatism and my vision is always slightly different in that eye.
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Joni


Dx'd with Celiac Disease 8/01/07

#5 darlindeb25

 
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Posted 05 March 2008 - 05:01 AM

I want to add here though--never take anything with your eyes for granted! Don't think--I must have been glutened because my eyes are blurry just because it happens to someone else. Bellyfat knows this happens and is aware of it from past experience.

The other day, we had a patient come in for a regular exam. The doc asked her if she was prone to high blood pressure and she responded with, not to her knowledge. He recommended that she go straight to her doctor and have it checked. Her doctor immediately put her on blood pressure meds, it was so high. Many medical problems show up through your eyes, before you even realize you have them.

Besides that, your eyes are the windows to your world, you want to keep them healthy. Things I took so for granted before, I realize now are very important!
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Deb
Long Island, NY

Double DQ1, subtype 6

We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!

"The calm river of your life approaches the rocky chute of the rapids - flow on through. You are the same water. The rocks cannot hurt you. Remember, now and then, that you are the water and not the boat. Flow on!

#6 JulesH

 
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Posted 05 March 2008 - 05:41 AM

I want to add here though--never take anything with your eyes for granted! Don't think--I must have been glutened because my eyes are blurry just because it happens to someone else. Bellyfat knows this happens and is aware of it from past experience.

The other day, we had a patient come in for a regular exam. The doc asked her if she was prone to high blood pressure and she responded with, not to her knowledge. He recommended that she go straight to her doctor and have it checked. Her doctor immediately put her on blood pressure meds, it was so high. Many medical problems show up through your eyes, before you even realize you have them.

Besides that, your eyes are the windows to your world, you want to keep them healthy. Things I took so for granted before, I realize now are very important!

Don't worry, I'm a bit of a hypochondriac, so I make sure everything gets taken care of. I was just wondering if there's anything I can tell the doctor today that can help us find an underlying cause. Last year I went to the top eye guy at the local hospital (though there's a huge eye center near by that is considered the top eye place in this part of the world, which I've been given instructions to go to as an emergency case if this ever happens a third time) and the top eye guy couldn't figure out an underlying cause. He thought it would be vitamin A deficiency, but when I had my vitamins tested, my A levels were just fine.

Thanks for the information, everyone. I'll see if the doctor today has any information about celiac affecting vision.
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#7 Firegirl43

 
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Posted 05 March 2008 - 02:51 PM

Ive had spots on my retnia for years and no one knows what it is.Sometimes my eyes will hurt.
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SARAH

Celiac since 05
egg allergy since 08

#8 ptkds

 
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Posted 05 March 2008 - 03:55 PM

Wow, this really caught my attention!

About a month ago, I had blurry vision one day, so I immedietly went to see my eye dr. She discovered that the vessels in the back of my right eye were very small, and my left eye was fine. She told me it looked systemic and I needed to see my regular dr. So I did and got an MRI which turned out normal. Last week, I went to a different eye dr (recommended by my new PCP) and he said my eyes were fine, and the blood vessels looked normal. So I figured it was just fluke that day w/ my eye. But I still wonder if there is something seriously wrong, and the dr.s just havent' discovered it yet. Now I am wondering if it is because of my Celiac.
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ptkds

Mom of 4 beautiful girls (the 2 youngest are only 10 months apart!)
Diagnosed with Celiac disease on November 8, 2006; gluten-free as of 12-1-06.

DD#2 13 years old; diagnosed on November 28, 2006. gluten-free as of 12-7-06.
DD#3 9 years old; diagnosed through blood work in October 2006. Gluten-free as of mid-November and doing GREAT!!
DD#4 8 years old; had a scope done on 6-22-07 (at 14 months old) and the dr saw stomach ulcers, but all test results were negative. GI dr told us to put her on the gluten free diet anyway. She is gluten free as of 6-22-07.


#9 num1habsfan

 
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Posted 05 March 2008 - 07:18 PM

Very interesting. I've had issues with the vision too from time to time. Sometimes it's like I can't even see, its just a blur nearsighted and farsighted. Other times my vision is terrific...
ptkds, does anyone else in your family has eye issues? that sounds EXACTLY like my dad's case. He pretty much can't see out of his right eye, and has had every kind of possible tests done and nothing has ever showed up positive!!

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#10 georgie

 
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Posted 06 March 2008 - 03:02 AM

Since then, my left eye has been completely clear, but a couple of days ago, my right eye suddenly went blurry. I'm getting it checked out tomorrow, but I was wondering if there's any correlation between celiac and eye problems.


This has been happening to me too. I saw a new Endo last week and within 5 mins he had a name ..... Not a nice name BTW ..... and I have since freaked - as my auntie had this disease - its autoimmune and genetic ( she also had thyroid and B12 issues like me - don't know about Celiac )

Myasthenia Gravis. Symptoms include drooping eyelids that get worse with fatigue and better with rest. Also the vision - gets blurred with fatigue and better with rest as ....... the eye muscles are affected.....

There are blood tests now for MG - about 50 - 80% accurate. And Neuros can do muscle stim testing..... However - not all Neuros know about MG that well.... And ...MG can go into remission too - so may explain strange 'episodes' that come and go.....

There are treatments and sometimes surgery is needed.... so ...be aware ...

http://www.myastheni...i...#WHAT IS MG

http://www.myastheni...ml/symptoms.htm
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Diagnosed May 2006 - Hashimotos Thyroid after being diagnosed in 1977 and told it didn't matter.
Diagnosed June 2006 with adrenal insufficiency.
Diagnosed June 2006 as Gluten Intolerant after I failed the Challenge Diet. Negative blood test.No biopsy.
Diagnosed June 2006 as B12 low. Needed weekly injections for a year.Still have them every 2 weeks.
Trialled Dairy Free Diet and reacted positively to that challenge in January 07.
News Flash! Coeliac Genetic Testing done April 08 . DQ2 Positive !
Diagnosed July 2010 FODMAP. Limits on Fructose, lactose, polyols, fructans. NO ONION! But I can have hard cheese, butter and cream again!!!

#11 petemoss

 
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Posted 07 March 2008 - 08:21 AM

This is one of my biggest concerns with celiac disease. I have been gluten free for 1 year and 2 months. My eyesight continues to get worse and worse. I am now noticing daily changes. Particularly at night I am seeing ghosting where the lights and images seem to be almost doubled up and down to the right. I also have a problem with glare. I can't see things if looking into the light. faces and objects are black it is sooo frustrating. Anyone else with ghosting and glare problems??
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#12 darlindeb25

 
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Posted 07 March 2008 - 02:26 PM

Petemoss, you have to understand, everything can not be blamed on celiac disease. There may be something going on with your eyes that has nothing to do with your celiac disease. Some people have terrible night vision, my night vision is getting worse. I am 52, it happens. Go to an optometrist and get an eye exam. Don't just assume celiac disease is to blame. Even if celiac disease as an autoimmune disease is part of the problem, you should still have your eyes checked out. Diabetes is an autoimmune disease too and diabetes must always get eye exams for the safety of their eyes.
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Deb
Long Island, NY

Double DQ1, subtype 6

We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!

"The calm river of your life approaches the rocky chute of the rapids - flow on through. You are the same water. The rocks cannot hurt you. Remember, now and then, that you are the water and not the boat. Flow on!

#13 georgie

 
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Posted 07 March 2008 - 02:30 PM

Petemoss - see a Optician and a Dr. There are many conditions affecting the eye - glaucoma, macular degeneration,Pituitary Tumours and Diabetes are some I know of - and they have similar symptoms to as you describe. Time is of the essence as early treatment can help stall these conditions and prevent total blindness. Left too late the damage is irreversable. Never overlook eye symptoms.
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Diagnosed May 2006 - Hashimotos Thyroid after being diagnosed in 1977 and told it didn't matter.
Diagnosed June 2006 with adrenal insufficiency.
Diagnosed June 2006 as Gluten Intolerant after I failed the Challenge Diet. Negative blood test.No biopsy.
Diagnosed June 2006 as B12 low. Needed weekly injections for a year.Still have them every 2 weeks.
Trialled Dairy Free Diet and reacted positively to that challenge in January 07.
News Flash! Coeliac Genetic Testing done April 08 . DQ2 Positive !
Diagnosed July 2010 FODMAP. Limits on Fructose, lactose, polyols, fructans. NO ONION! But I can have hard cheese, butter and cream again!!!

#14 Joni63

 
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Posted 10 March 2008 - 04:30 PM

I want to add here though--never take anything with your eyes for granted! Don't think--I must have been glutened because my eyes are blurry just because it happens to someone else. Bellyfat knows this happens and is aware of it from past experience.


Yes! You are absolutely right. I diddn't mention that I went to the optomotrist and had a thorough exam and they did find an astigmatism, but no serious problems. It is worth getting those eyes checked.

This has been happening to me too. I saw a new Endo last week and within 5 mins he had a name ..... Not a nice name BTW ..... and I have since freaked - as my auntie had this disease - its autoimmune and genetic ( she also had thyroid and B12 issues like me - don't know about Celiac )

Myasthenia Gravis. Symptoms include drooping eyelids that get worse with fatigue and better with rest. Also the vision - gets blurred with fatigue and better with rest as ....... the eye muscles are affected.....

There are blood tests now for MG - about 50 - 80% accurate. And Neuros can do muscle stim testing..... However - not all Neuros know about MG that well.... And ...MG can go into remission too - so may explain strange 'episodes' that come and go.....

There are treatments and sometimes surgery is needed.... so ...be aware ...

http://www.myastheni...i...#WHAT IS MG

http://www.myastheni...ml/symptoms.htm


This is exactly what happens to me. My right eye is worse than my left eye. But when I am overtired or during PMS they tend to blur more. I'll have to go and read these links. And sometimes when I'm catching a cold I can tell because my vision changes.

This is one of my biggest concerns with celiac disease. I have been gluten free for 1 year and 2 months. My eyesight continues to get worse and worse. I am now noticing daily changes. Particularly at night I am seeing ghosting where the lights and images seem to be almost doubled up and down to the right. I also have a problem with glare. I can't see things if looking into the light. faces and objects are black it is sooo frustrating. Anyone else with ghosting and glare problems??


I have the ghosting due to an astigmatism in my right eye. But it does get worse from time to time. Glare bothers my eyes to. I've always had sensitive eyes and wear sun glasses even on cloudy days.
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Joni


Dx'd with Celiac Disease 8/01/07

#15 Gemini

 
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Posted 10 March 2008 - 07:47 PM

Petemoss, you have to understand, everything can not be blamed on celiac disease. There may be something going on with your eyes that has nothing to do with your celiac disease. Some people have terrible night vision, my night vision is getting worse. I am 52, it happens. Go to an optometrist and get an eye exam. Don't just assume celiac disease is to blame. Even if celiac disease as an autoimmune disease is part of the problem, you should still have your eyes checked out. Diabetes is an autoimmune disease too and diabetes must always get eye exams for the safety of their eyes.


Good post! One of the most common causes of changing eye problems is plain old aging! Not sure how old the original poster is but once you get past 40, it's mind blowing how bad your eyes can get in a very short period of time. A person has the most glass Rx changes between 40-50 years of age. Plus, the dryer eye sets in and can cause many of the problems listed here. Unless a person has serious eye problems as part of their family history, don't worry so much and accept that your eyes will never be the same as when you are younger. Plus, there are many things that can be done to improve symptoms.
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