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Celiac.com Celiac Disease & Gluten-Free Diet Forum: Ibs Vs Celiac Disease - Celiac.com Celiac Disease & Gluten-Free Diet Forum

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Ibs Vs Celiac Disease Rate Topic: -----

#1 User is offline   amiller1030 

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Posted 04 January 2005 - 03:58 PM

First I want to say I am so grateful that I found this board!

My husband has been suffering from was diagnosed as IBS for about 7 years now. After just talking with a friend who was told she had a gluten allergy, I think this may be what my husband has too.

He is starting immediately on a gluten-free diet. I am just wondering if anyone else has been diagnosed with IBS and found that it is a gluten allergy?

I am just finding out about this disease so any insight is greatly appreciated.

Andrea
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#2 User is offline   tarnalberry 

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Posted 04 January 2005 - 04:22 PM

IBS is a common mis-diagnosis of celiac, as recognized by the NIH's conference on celiac disease last year. There have been some recommendations to test all IBS patients for celiac, but that's not a formal "recommendation".
Tiffany aka "Have I Mentioned Chocolate Lately?"
Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy
G.F. - September 2003; C.F. - July 2004
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#3 User is offline   MySuicidalTurtle 

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Posted 04 January 2005 - 04:44 PM

I think pretty much everyone is diagnosed with IBS at first.
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#4 User is offline   SherriRoy 

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Posted 04 January 2005 - 05:56 PM

I have the IBS diagnosis as well, but i was diagnosed early on with celiac too. I guess I got a little lucky, but I have not found any relief from my symptoms even being on the diet for almost two years. There is the possibility that yes your husband does in fact have IBS and celiac. Both which are great to know.

The one thing with IBS is it's sort of the doctors guess at what is there ... They throw the IBS term around when they really don't know what is wrong with the person.... food allergies, or sensativities is a big one. I know right now greecy foods aren't friendly to my system...but that doesn't stop the constant spazaming. Hope you have much better luck with the diet. I do notice a difference when I ingest wheat..and anything that makes a difference is well worth trying. :rolleyes:


Good luck
Sherri
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#5 User is offline   mela14 

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Posted 20 January 2005 - 01:00 PM

I was diagnosed with the IBS first........many years ago. Then it got really bad and the GI drs didn't bother to listen..Here it is many years later...and lots of illnesses later that this is finally coming to light. I don't think I'll evr get rid of the IBS as I am very sensitive to various ingredients and foods but at least I know that the gluten was making me ILL!!!! Feeling sick from eating foods , and losing weight is different than just getting bloated or having cramps....the drs. just didn't get it and some still don't!!
Mel
mela14@optonline.net

10 years of abdominal problems, incorrectly diagnosed with Endometriosis / suffered 7 surgeries. Total hysterectomy 2 years ago!
Fibromyalgia, Chronic Fatigue, Interstitial Cystitis ,IBS, Migraines, Primary Immune Deficiency to name a few. Finally realizing that food intolerances make them all worse!
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#6 User is offline   kactuskandee 

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Posted 22 January 2005 - 02:20 PM

I'm a bit odd in that I've been intolerant to wheat for over 25 years now (by old testing methods), but didn't come down with IBS until 2 years ago after a bout of using antibiotics and no probiotics to offset the damage it does to your gut. I was so sick with pain, and lost over 35 lbs. quickly. Everything I ate made me hurt..I had every test imaginable. It wasn't until I ate the IBS way (helpforibs.com) did I feel better....of course I still maintained my wheat free/soy free diet. Now recently, with the newer more sensitive blood testing I was upgraded from wheat intolerance to gluten intolerance. Talk about amazed when I'd been eating wheat free all these years, (but not gluten free...loved that barley and oats), and told the GI that even if I was intolerant it likely wouldn't show up in any test...At least that's what I thought....haha...no way...bingo high IgA..the joke was on ME... The only relief I have is that I know I didn't ruin my intestines over the past many years by the wise choice of staying away from wheat. But for me...yes, I have both, IBS and gluten intolerance...just not celiac disease.

Having been on the IBS boards for a couple years now it is amazing to me that the symptoms are so very much alike....but in the case of IBS 1/3 are diarrhea dominant and 1/3 are constipation dominant and 1/3 alternate between the D and C. I'm wondering (does anyone know?) what the ratios are in celiac disease? Is there a much higher percentage of "D" folks?

Kandee
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#7 User is offline   Peaches503 

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Posted 06 April 2005 - 11:05 AM

I was also diagnosed with IBS first, but when the symptoms didn't clear up, even after medication, further blood testing was done, and I was diagnosed with celiac disease.
Blood test diagnosed with celiac disease 3/05
gluten-free since March '05
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#8 Guest_ajlauer_*

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Posted 06 April 2005 - 11:26 PM

kactuskandee, on Jan 22 2005, 02:20 PM, said:

I'm wondering (does anyone know?) what the ratios are in celiac disease? Is there a much higher percentage of "D" folks?

That would make an interesting poll. *giggle* Personally, I'm more of a "D". From what I've seen, I think D is more common - but maybe I just notice it more because I relate to it more. I'd also like to see a poll on skinny vs overweight. Seems like nobody is of a "normal" weight, and about 2/3rds are skinny.

On a side note, if I become a millionaire, I'm going to start some sort of funding for enterolab tests. My regular Dr. doesn't know they do blood tests for food allergies - you can forget about testing for celiac disease!! I even printed up the names of the tests, and they were still clueless. Would love to do an enterolab, but can't afford it. Anyone want to sponsor one of my kids? *laugh* For just the price of the enterolab tests, we'll send you a picture of the child every month with a handwritten note!! All macaroni art will be gluten free, I promise! :lol:
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#9 User is offline   Chrissy in England 

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Posted 08 April 2005 - 01:36 AM

Ha! I was diagnosed with IBS 1 1/2 years ago after 13 years of coplaining that something is wrong with me (my husband agreeing with me of course). We got a new doctor (military) and he said that he thought I might be gluten intolerant and wanted me to try the diet. After 5 weeks gluten free, I feel really well! He seems to think this is the way to go. So for the poll - skinny, "D" and "C" - lately after adding grits to my diet the big D.

I believe the doctors do tend to say IBS without actually listening to what the patient is suffering from.

Andrea take your husband on the road to gluten free - it worked for me!!!

Take care,
Chris
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#10 User is offline   plantime 

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  Posted 08 April 2005 - 06:28 AM

"C" here. Most definitely "C"!
Dessa

The Lord bless you and keep you; the Lord make His face shine upon you and be gracious to you." Numbers 6:24-25
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#11 User is offline   nikki-uk 

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Posted 08 April 2005 - 09:45 AM

My husband would be skinny and'D'.Never 'C'!
It's not enough that we do our best; sometimes we have to do what's required - Sir Winston Churchill

Nikki


Husband diagnosed with Coeliac Disease 2004 by biopsy
Son diagnosed with Coeliac Disease Oct 2006 by biopsy (at age 13yrs)

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#12 User is offline   KaitiUSA 

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Posted 08 April 2005 - 09:59 AM

Before I went gluten free I had "C" ....now I don't
Kaiti
Positive bloodwork
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Arkansas

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#13 User is offline   Coulter 

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Posted 08 April 2005 - 11:02 AM

Before gluten-free......D

Now....neither.
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#14 User is offline   stef_the_kicking_cuty 

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Posted 14 April 2005 - 12:10 PM

My doctor also told me, I had IBS. This didn't help me, though. But when I found out, that it's gluten, that bothers me, I got a lot better. One of my students told me, she was diagnosed with IBS. I told her, my doctor said, it would be IBS with me, too, and at the end it came out, that it's celiac disease and not IBS. She got tested for celiac disease and guess what... :lol:
Stef

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#15 User is offline   plantime 

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  Posted 15 April 2005 - 08:34 AM

That's great Stef! Your own experience helped someone else!
Dessa

The Lord bless you and keep you; the Lord make His face shine upon you and be gracious to you." Numbers 6:24-25
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