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The Celiac Belly


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111 replies to this topic

#76 GikiGirl

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Posted 30 August 2008 - 02:34 PM

I was prescribed miralax which helps me 'evacuate' fully and helps my belly remain flat (I too was asked when I was 'due' when I had gluten). Also, limiting raw fruits and vegetables, especially more than one meal/day, and taking digestive enzymes were helpful.
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Gluten-sensitive, SLE, food allergies. gluten and dairy free since July 2008

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#77 Christina725

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Posted 01 September 2008 - 03:14 PM

I have been reading all your posts because I went to my nutritionist a few weeks ago and she advised me to keep a food journal and cut out dairy and limit my carb intake. but I still have the belly, yeah I was asked a little while ago if I was expecting! How embaressing to say no I have celiac and cant get rid of my bloat! Anyways, if anyone is lowering their carb intake how many grams of carbs should you consume?
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#78 CMCM

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Posted 03 September 2008 - 09:26 PM

Through a couple of years of experimenting, aside from the necessary elimination of all gluten, I also discovered I had to severely limit these things:
1) sugar, sugar, sugar.....I'm best off if I never eat it, period.
2) I'm very carb sensitive, and that includes fruit....I have to eat only small amounts, no more than 1x a day.
3) I don't do well with "permitted" grains either....only small bits of brown rice occasionally.
4) I learned I couldn't eat all the gluten free goodies due to all sorts of other flours which gave me trouble, plus they are mostly full of sugar which brings up the sugar/carb problem
5) Nightshades are problematic....eggplant, potatoes, tomatoes. Have to severely limit these.
6) Dairy: I have to severely limit this too. Maybe it's the milk sugar? Even yogurts bloat me up. My dairy is pretty much limited to about 1/4 c. whole milk in my daily cappuccino.
7) Limit cheese....small amounts, not every day.

I actually feel best on what is pretty much an Atkins diet way of eating: eggs, moderate meat (not fatty stuff), veggies, very limited fruit, lots of water, some tea. I feel GREAT eating this way, but of course I can't seem to keep it up for all that long. Too bad, because I lost the belly and all the other excess fat eating this way. As soon as I eat too much of the stuff listed above, I bloat right up again and feel horrible.

Ye gads, to feel and look best I have to stick to a very limited and rather boring diet.
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CAROLE

-------------
Enterolab 1/2006
IgA & tTg Positive
DQ2-0201 (celiac) and DQ1-0604 (gluten)
Casein IgA positive
Mom has 2 celiac genes
Both kids have a celiac gene.
Lots of celiac disease in my family, both sides.

#79 mftnchn

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Posted 04 September 2008 - 01:48 AM

Just a comment that it appears like I'm going to have major improvement with this since my switch to SCD diet. It is gluten-free of course, but also free of most of the things you just mentioned, CMCM.

Bloating and good BM evacuation are really improving. I am still a bit overweight and not so young so I am not sure yet to what degree this will improve, but it is definitely better.

I'm less than two months on SCD so improvement could continue for awhile.
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4/2007 Positive IGA, TTG Enterolab results, with severe malabsorption: Two DQ2 celiac genes--highest possible risk.

gluten-free since 4/22/07; SF since 7/07; 3/08 & 7/08 high sugar levels in stool (i.e. cannot break down carbs) digestive enzymes for carbs didn't help; 7/18/08 started SCD as prescribed by my physician (MD).

10/2000 dx LYME disease; 2008 clinical dx CELIAC; Other: hypothyroid, allergies, dupuytrens, high mercury levels

#80 Christina725

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Posted 08 September 2008 - 06:24 PM

Thank you, I'm going to look into the SCD diet. I'm really starting to wonder if its the carbs even though they are gluten free still giving me problems, IE bloating and gas. I'm just getting really dissapointed with this belly not going down. Hopefully this change helps.
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#81 mysecretcurse

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Posted 09 September 2008 - 09:26 PM

I have the bloated stomach too. Although I don't always have it. It seems to be there some times and not others, I'm not sure what causes it.
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#82 susieg_1

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Posted 10 September 2008 - 07:43 AM

I heard Suzanne Sommers on Today show talk about her new wellness book, she mentioned the importance of adaquate levels of betaine HCL (stomach acid) in maintaining health in regard to eliminating toxins from the body. I googled it and it seems that bloating, gas, belching etc... can be a symptom of not enough betaine hcl in the gut. Candida, parasite infections and other conditions can result from this lack of acid in the stomach. I find this very interesting as it may relate to the celiac belly and am going to keep researching ...I put the ? out to the forum and hope for a response from someone more knowledgable than myself.
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Self dx celiac disease
Gluten free since July 2007
Clinical dx celiac disease November 2007
Self-dx Lyme disease May 2008
Lyme confirmed positive Western Blot May 2008

#83 Shawn

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Posted 11 September 2008 - 01:14 PM

Thank you so much for posting this! I used to have DH (when I had leaky gut) - now my symptoms have settled down and I have the "bloat belly". It's nasty. I hate feeling like somebody is making a circus balloon animal out of my intestines!

I have been gluten free for a long time, though sometimes I'm not as vigilant as I should be.

I am always constipated, too, and I eat tons of fresh fruits and veggies and drink lots of water. Does anybody know of a way to flush everything out?

I'd be eternally greatful!

Thank you,
Shawn
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#84 mysecretcurse

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Posted 13 September 2008 - 07:15 PM

Iodine therapy helped my bowels move much. It also helps thyroid, mood and many other things.
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#85 emcmaster

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Posted 14 September 2008 - 08:16 AM

Hi there.

Not sure if I've posted in response to this thread before, but I believe severe bloating can be one of the most psychologically disturbing symptoms Celiacs have. Nothing like looking "fat" when you can't help it. Nothing like not being able to fit into nice clothes when you have a special event to go to. It's soooo depressing.

Some things that help me:

- Gas X. I take it every day and it really helps dissolve any built-up gas before it bloats me.
- Fennel Tea. Wonder herb when it comes to knocking out the bloat. NOW brand also makes capsules which work just as well.
- Limited grains. For me, this is key. I can digest gluten-free grains fine IF I have them sparingly, such as once or twice a week. This may not be a problem for others.
- Hot tea and coffee. Not sure why, but hot drinks seem to make my stomach happy.
- No huge meals. Eating huge amounts of food at a time does not make my digestive system happy.
- Magnesium capsules, strong coffee before breakfast every morning, and Amitiza (prescription constipation med). All three work in conjunction to keep me having a normal BM every day (usually right after the 2nd cup of coffee), which keeps bloating away.

Secondary food intolerances can also cause bloating, so keep an eye out for that. It is my belief that once you have cut out all offenders from your diet, you shouldn't be bloated anymore, so if you are still having problems, keep looking. There WILL be something that helps.
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ELIZABETH

gluten-free (04.17.2006)
corn-free (03.27.2007)
xanthan gum-free

#86 Ms. Skinny Chic

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Posted 17 October 2008 - 11:22 AM

I used to get asked if I was pregnant because mine stuck out so much on my small frame and I had to buy the next size up to accommodate it so I know what you're talking about. I had mine still the first 2 months into the diet as I was still learning but after that, no more unless I am glutened, which is rare. I also have dairy issues but it doesn't cause my abdomen to be distended like gluten does. Very occasionally if I have alot of gas or am constipated for a day, it will stick out but 90%or more of the time I have my old flat tummy back. When I'm in good shape, healthwise, I have 2 or 3 normal BM"s a day. If I don't, a cup of black tea and tummy squeezes often get things moving. Probiotics or yoghurt can help. Many years ago I read Dr. Andrew Weil's book and if I remember correctly, he said we should be having a BM per meal if we are eating regular meals. I had one BM per day and thought that I wasn't constipated all those years when in fact I was very constipated. I would also recommend re-evaluating what you are eating to be sure that you aren't getting hidden gluten or CC. Don't eat anything unless you've confirmed for yourself that it is gluten-free.



My stomach distends also.... I don't ever recall myself having a muffin belly, until my diet changed.
I have learned to embrace my muffin belly.
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#87 LadyWicklow

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Posted 01 November 2008 - 07:14 AM

I read my way through this thread (C'mon, who didn't? That belly is FROM HELL) a few weeks ago and started eliminating stuff...

The good news is that I am still cool with soy and neat gin :unsure:

No, it's not quite that bad really (I hope!)

Interestingly enough, most of the things I needed to cut out were things I reacted to as a kid and then stopped reacting to (makes sense...perhaps I simply stopped absorbing the irritant rather than stopped reacting to it?). I cut out:

  • Peanuts (they went with gluten)
  • Oily red fish (was allergic as a child)
  • Eggs (reacted horribly to for a few years as a child)
  • Tannins (had a migraine reaction to tea and red wine for a very long time years ago)
  • Dairy (jury is still out...I have a feeling I may be able to tolerate that again some day)

The sneaky one, for me, was tannins...they are in SO many things...like chocolate, particularly the dark chocolate that is the gluten and dairy free compensation we get for being celiacs... :o

It's almost TOO unfair.

Literally, I grabbed an 80% bar of chocolate while shopping, ate a couple of pieces and could feel my belly swell and get crazy (along with my ankles etc filling up with water) while I drove a mile...so I checked the web for contents as soon as I got home and found that all forms of cocoa are loaded with tannins (which I already knew I couldn't tolerate).

When I realised that I react to beans and yam too, and that "slimfast" contains traces of gluten, I decided to try and stick to most of the specific carbohydrate diet (it is full of things I do not react to)

...and for the first time, in more than a decade, my stomach is flat and empty all day...UNLESS I accidentally ingest something I am sensitive to.

I also seem to finally be losing weight reliably.

LadyW
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#88 digmom1014

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Posted 01 November 2008 - 02:23 PM

"I have 2 main suspects, gum and coca-cola. Both are supossed to be gluten free, but my stomach says otherwise. Like others have said, the distension is my best measure of having been glutened."


Yes, both are known bloaters for me. The gas in the pop is a bloater and the air extra air you swallow with gum is also bad. I have also added using straws to drink beverages to my list, for the same air reason.
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Sarah

"What comes around, goes around"

#89 shan

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Posted 03 November 2008 - 10:45 AM

We noticed that it was dairy and soya together that did us in! If we ate dairy, the swelling and bloat would stay if we ate even the tiniest amount of soy. Now we are off both we have not stopped getting compliments!!! And she looks way taller!!!
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#90 givenupgluten

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Posted 04 November 2008 - 01:29 PM

Just wondering, has anyone noticed if exercising has helped the belly? (God, I HATE this thing that's happening to mine! Haha) I've been gluten free for about 2 1/2 months and cant' seem to get rid of the belly either. It's starting to look better, but I still feel like I look pregnant. When I get hungry it swells up..when I'm full, it swells up. The only good times are morning and......yep, that's about it! LOL I do remember a time, even before being gluten free where my stomach was not quite such an issue. The only thing differently I was doing THEN (besides eating gluten back in the day) was exercising heavily. I was a dance major in college and had danced most of my life. I still had ibs/celiac bloated belly back then, but not nearly as bad. I was injured a few years ago and have yet to be able to resume an exercise routine that resembles anything like what it used to be. I feel much better now and would like to start working out again. Just wondering if that might help?
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