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Celiac Button Would Be Helpful
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11 posts in this topic

It occurred to me that an organization might sell a fund-raising button or pin that we could wear in the market to ferret out other Celiacs and generally raise awareness. Something like "Support Celiac Disease Research" or something catchier.

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They do exist. They are a small green ribbon pin (like the yellow "support the troops) . They cost $5 a pin. They are put out by the University of Chicago Hospital and Northeast Ohio Celiac Support Group. I had inquired about them back in May, so not sure if they still have a supply or not, I am sure you could contact them to find out. Here is the info that I got back in May.

Jessica,

We created the celiac disease awareness pin with the Northeast Ohio Celiac Support Group to raise awareness. All proceeds of pins purchased from us will go to support the mission of our organization, which is to raise diagnosis rates for celiac disease in the US through professional and patient education.

Anyone interested in a pin should send a check to:

University of Chicago Celiac Disease Program

5839 S. Maryland Avenue, MC4065, Room C-491

Chicago, IL. 60637

For $5/ per pin plus $.60 postage for an order of 1-10 pins (more than 10, postage is $1.00)

Thanks!

Michelle

mmelinro@peds.bsd.uchicago.edu

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My Mother bought me a "Wheat Sucks" shirt which I sometimes wear. My Aunt and Grandmother alos bought (different) Celaic shirts which they wear often.

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My Mother bought me a "Wheat Sucks" shirt which I sometimes wear. My Aunt and Grandmother alos bought (different) Celaic shirts which they wear often.

LOL :lol:

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I forgot about this one.......... it is called Angelic Grooves. http://angelicgrooves.com/ The lady creates bracelets, necklaces, and keychains out of crystals and beads. 20% of the profits go to Celiac Research. The bracelet runs 35$, necklace is 37$, and keychain is 10.99.

This is what the website says :

Celiac Disease Awareness

Celiac disease , also known as gluten intolerance, is a genetic disorder that affects 1 in 133 Americans. Symptoms of celiac disease can range from the classic features, such as diarrhea, weight loss, and malnutrition, to latent symptoms such as isolated nutrient deficiencies but no gastrointestinal symptoms. Those affected suffer damage to the villi (shortening and villous flattening) of the intestines, when they eat specific food-grain antigens, (toxic amino acid sequences) that are found in wheat, rye, and barley. Oats have traditionally been considered to be toxic to people suffering from Celiac Disease but recent scientific studies have shown otherwise.

Both of my daughters, Halle,(6) and McKenze (3) have Celiac Disease.  Now I have been tested also and have confirmed that I have it.  For this reason I have made the Celiac Disease Awareness jewelry (green catseye with peridot Swarvoski Crystals that represent the celiac color) with an awareness ribbon for Celiac Disease. I have chosen a few fundraisers to donate 20% of profits for Celiac Disease.

20% will go to the University of Maryland Center of Celiac Research       

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Wow, I am loking at her stuff right now!

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The lady creates bracelets, necklaces, and keychains out of crystals and beads. 20% of the profits go to Celiac Research.

I think that's a great idea!

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Hi I am new to this board... I have been navigating around today and saw this and thought I should post! I ordered some and it is beautiful! I ordered last June and hardly take it off!!! I get so many compliments on my bracelet and it is really great to raise awareness. I just ordered again for my family and saw they are having a 15 % off the bracelets until the middle of Feburary. Just thought I would pass that around. Look forward to meeting everyone!

Sada

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Edit: OOOPS I messed up and did 2 posts thinking I didn't get the other post done. SORRY! :) New and learning about this! :)

Hi!

I am new here to this board and just thought I would post here!

I love her jewelry. I have had my bracelet since June and wear it all the time! It is beautiul and helps raise awareness! I have compliments on it daily. I just put in another order for my family to have one. The bracelets are 15% off right now until the middle of Feb. Just thought I would post this information!!! :)

I look forward to meeting everyone here.

Sada

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LOL! Wheat sucks! That is fantastic! Hopefully I can make it an LJ icon. ;)

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    • Thanks for posting.  I know it is difficult to talk about these sorts of things even on a webforum.  It is good thing for people to be aware though about celiac disease and that it can cause mental problems.  Gluten can cause brain damage and it can cause anxiety. If the brain does heal it may take a long time. I know that gluten can cause anxiety and obsessive thoughts.  My experience has been similar to your experience. When I first quit eating gluten I had a similar constant loop and strong negative feelings. There are lots of people on this forum who get anxiety when they eat gluten. Some people also experience gluten withdrawl where they experience anxiety after giving up gluten. It can take a long time for the body to heal and for obsessive thoughts to go away.
       It is normal for people to socialize with each other and to be comfortable about it. You said you have problems still socializing and being around people. It might be a depressing thought but it sounds to me like you still have problems with anxiety.  I would recommend considering what options you have available to treat the anxiety. When I quit eating Gluten I still had some symptoms, even though I felt much better. I have been slowly recovering over a period of about three years. I had obsessive thoughts even after I quit eating gluten.  Now I very rarely if at all think about those things. My experience is that my mind would latch on to certain things that caused me anxiety and focus on those things. Sometimes my focus would shift and I would latch onto other things. My ability to socialize has also improved greatly with time. I have made some dietary changes which I believe have helped greatly. It sounds to me like you have obsessive thoughts about things and maybe some brain damage. My experience has been that my obsessive thoughts about different things went away with time. I feel my obsessive thoughts were caused by gluten and not by what people did around me or any events. As my brain healed I became more self aware and things became less stressful.  I can't give medical advice on this forum but I can talk about my current diet and my experience with celiac disease. My experience with gluten is different from a lot of other people so it is a good idea to ask other people and to talk to a doctor.  I avoid oats and avoid almost all processed foods. I buy certified gluten free food. I eat healthy and I exercise every day. I take st John's Wort as I have read studies that say it may be as effective as some other anti-depressants for treating certain types of anxiety. It is available over the counter. I started with a small dosage and then stepped it up over time. I think it helps a lot.  This is also something that you should talk to a doctor about first. https://www.researchgate.net/profile/Martin_Mahoney2/publication/7426926_St._John's_wort/links/540d8acc0cf2f2b29a386673.pdf A lot of people with celiac disease have vitamin deficiencies.  Vitamin b deficiency can cause anxiety. Some people do not process the synthetic form of vitamin b (from normal pills)  very well, and do better on an activated form of vitamin b. I take:
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