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Really Struggling With The Celiac Thing


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8 replies to this topic

#1 amandasch

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Posted 14 March 2008 - 09:47 AM

I got diagnosed with celiacs spru in the last part of 07 I was 24 at the time and I was in recovery from drugs. I got married to an awsome husband last year also. So this has been hard for both of us. He has been my support and when he is home he eats the diet too. We have done everything by the book. I had just finished my cosmetology degree and found out that the hair spray in the salon was making me sick cuz 90% of them contain wheat. Well i took time off and that didn't help i just slept all the time and it was easier to not eat than eat. I am back at work. In a salon that lets me use my own stuff and they are way supportive. But I can't gain weight and i am depressed. And i feel like i am running on anxiety all the time, I just cant seem to feel better. I have fallen off the wagon a few times and its so hard to deal with this. I was on a drug call subboxenne for opiate addiction and then they switched me to subutex. Does anyone know why i cant gain weight, i am depressed and i am full of anxiety since i follow the gluten free diet. Did anyone go through not being able to eat, or not even noticing you didn't eat after you got diagnosed. How come i am super skinny and most people i talk to with this are healthy. Whats wrong?
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#2 mismalw/cealiac

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Posted 14 March 2008 - 10:10 AM

I'm sorry you feel like that. i go to a middle school when it takes two bucks to by a pizza and no one stops you. I've been struggling with that for a while. i've been cheating and i know its making me sick but something inside me is saying, "hey this one time its not going to hurt me" of "i was mis diagnosed" it sucks cause i know i'm hurting myself but i can't stop.
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#3 Ursa Major

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Posted 14 March 2008 - 10:17 AM

Amanda, are you still eating/drinking dairy? It is best to eliminate dairy for at least the first few months on a gluten-free diet, to allow your intestines to heal. Dairy can stop the healing from happening. As can soy.

The tips of your villi are supposed to produce the enzyme lactase, which is necessary to digest dairy. If those tips are gone or damaged, you can't digest dairy.

Also, have you made sure to replace your toaster and plastic colander? Did you buy new wooden cooking spoons? Are you still using an old wooden cutting board? Those could all keep you sick.
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I am a German citizen, married to a Canadian 29 years, four daughters, one son, seven granddaughters and four grandsons, with one more grandchild on the way in July 2009.

Intolerant to all lectins (including gluten), nightshades (potatoes, tomatoes, peppers, eggplant) and salicylates.

Asperger Syndrome, Tourette Syndrome, Addison's disease (adrenal insufficiency), hypothyroidism, fatigue syndrome, asthma

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#4 amandasch

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Posted 14 March 2008 - 10:47 AM

Well i didn't eat dairy for the first few months and i can tollerate a lil bit of dairy. I eat a lot of soy based foods i didn't know that.

I know this is gross but i Am still bloated and that icky stuff still comes out in my bowels. I am extremely skinny. To the point i dont even recoqnize myself in the mirror anymore.

Yeah we got new stuff for our wedding and we had to get rid of all of it and start over. The cabnits are the same. And i live in a apt and i am sure thats it.


Amanda, are you still eating/drinking dairy? It is best to eliminate dairy for at least the first few months on a gluten-free diet, to allow your intestines to heal. Dairy can stop the healing from happening. As can soy.

The tips of your villi are supposed to produce the enzyme lactase, which is necessary to digest dairy. If those tips are gone or damaged, you can't digest dairy.

Also, have you made sure to replace your toaster and plastic colander? Did you buy new wooden cooking spoons? Are you still using an old wooden cutting board? Those could all keep you sick.


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#5 amandasch

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Posted 14 March 2008 - 10:51 AM

I am sorry if i would have found out when i was in middle school iwouldn't have got into drugs. I know thats why i wasn't right in my head growing up.

I'm sorry you feel like that. i go to a middle school when it takes two bucks to by a pizza and no one stops you. I've been struggling with that for a while. i've been cheating and i know its making me sick but something inside me is saying, "hey this one time its not going to hurt me" of "i was mis diagnosed" it sucks cause i know i'm hurting myself but i can't stop.


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#6 ksymonds84

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Posted 14 March 2008 - 11:03 AM

Well i didn't eat dairy for the first few months and i can tollerate a lil bit of dairy. I eat a lot of soy based foods i didn't know that.

I know this is gross but i Am still bloated and that icky stuff still comes out in my bowels. I am extremely skinny. To the point i dont even recoqnize myself in the mirror anymore.

Yeah we got new stuff for our wedding and we had to get rid of all of it and start over. The cabnits are the same. And i live in a apt and i am sure thats it.


Amanda,
Just wanted to say welcome to the board and congratulations for your drug addiction recovery. My daughter who is almost 20 is also recovering so I know how hard that is. Your body has been through alot with the drugs plus dealing with celiac. It may take your body a little more time to heal. Keep a daily food journal so you can keep track of everything that goes into your mouth, I also add a little note about how I am feeling as well. This helped me figure out alot of things with hidden gluten when I went back over it when suspecting a certain food. Ursula is right about alot of people reacting to soy so since you say you eat alot of it that could be your culprit.
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Kathy

Gluten free 3/08
Negative blood work/positive endoscopy
Fructose Malabsorption
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#7 aikiducky

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Posted 15 March 2008 - 03:07 AM

Are you taking any vitamin supplements, have your vitamin levels been tested?

I keep recommending two things here, what has helped me a lot with feeling less depressed is taking a vitamin B complex, and fish oil capsules that have omega 3 fatty acids. Especially the omega 3's are important for your brain function. It takes a couple weeks before you start to notice their effect, just good to know.

Try to eat as much fresh food as you can, you know vegetables, fruit, meat, fish, not too much processed gluten free cookies and breads etc.

Try to get some exercise every day, a twenty minute walk is already enough, that gives your skin some sunshine, and your body some exercise. Even if you feel really blah, it's better to move than not.

Come and rant here any time you feel like it, we all understand! ;)

Hope this helps a little...
Pauliina
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#8 home_based_mom

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Posted 15 March 2008 - 05:41 AM

I was on a drug call subboxenne for opiate addiction and then they switched me to subutex.


Have you called the manufacturer of either of these to verify they are gluten free? From reading other threads I have come to realize that even though it can be difficult to get the information because the person answering the phone may not know the answer and may not even know who to ask, it is definitely worth pursuing until you get a definite answer. Generics are more likely to have gluten containing fillers, but you need to ask about everything. Prescriptions can be written to specify brand name only if necessary, and a gluten free one can be specially formulated just for you.

Hope you feel better soon. :)

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Sandi ~ learning to live in a world obsessed and infested with wheat.
"You don't need a weatherman to know which way the wind blows" probably was not referring to us . . .
"For the love of money gluten is a root of all sorts of evil, and some by longing for it have wandered away from the faith and pierced themselves with many griefs." (apologies to 1 Timothy 6:10 (NASB)
The person we most dislike is still a soul for whom Christ died. (David Jeremiah)

#9 nikki-uk

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Posted 15 March 2008 - 06:41 AM

Just wanted to add it sounds like you may have been an undiagnosed coeliac for many years.

It probably took many years for you to get this ill. Stick with it!! ...for some it just takes a little longer <_<

My hubby was terribly skinny by the time he was dx - he didn't hardly put any weight on for the first year - barely had the energy to eat, was still really weak and felt frustrated like you!............four years later he is 50 pounds heavier!!!!

Good Luck :)
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It's not enough that we do our best; sometimes we have to do what's required - Sir Winston Churchill

Nikki



Son diagnosed with Coeliac Disease Oct 2006 by biopsy (at age 13yrs)

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