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Really Struggling With The Celiac Thing
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I got diagnosed with celiacs spru in the last part of 07 I was 24 at the time and I was in recovery from drugs. I got married to an awsome husband last year also. So this has been hard for both of us. He has been my support and when he is home he eats the diet too. We have done everything by the book. I had just finished my cosmetology degree and found out that the hair spray in the salon was making me sick cuz 90% of them contain wheat. Well i took time off and that didn't help i just slept all the time and it was easier to not eat than eat. I am back at work. In a salon that lets me use my own stuff and they are way supportive. But I can't gain weight and i am depressed. And i feel like i am running on anxiety all the time, I just cant seem to feel better. I have fallen off the wagon a few times and its so hard to deal with this. I was on a drug call subboxenne for opiate addiction and then they switched me to subutex. Does anyone know why i cant gain weight, i am depressed and i am full of anxiety since i follow the gluten free diet. Did anyone go through not being able to eat, or not even noticing you didn't eat after you got diagnosed. How come i am super skinny and most people i talk to with this are healthy. Whats wrong?

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I'm sorry you feel like that. i go to a middle school when it takes two bucks to by a pizza and no one stops you. I've been struggling with that for a while. i've been cheating and i know its making me sick but something inside me is saying, "hey this one time its not going to hurt me" of "i was mis diagnosed" it sucks cause i know i'm hurting myself but i can't stop.

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Amanda, are you still eating/drinking dairy? It is best to eliminate dairy for at least the first few months on a gluten-free diet, to allow your intestines to heal. Dairy can stop the healing from happening. As can soy.

The tips of your villi are supposed to produce the enzyme lactase, which is necessary to digest dairy. If those tips are gone or damaged, you can't digest dairy.

Also, have you made sure to replace your toaster and plastic colander? Did you buy new wooden cooking spoons? Are you still using an old wooden cutting board? Those could all keep you sick.

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Well i didn't eat dairy for the first few months and i can tollerate a lil bit of dairy. I eat a lot of soy based foods i didn't know that.

I know this is gross but i Am still bloated and that icky stuff still comes out in my bowels. I am extremely skinny. To the point i dont even recoqnize myself in the mirror anymore.

Yeah we got new stuff for our wedding and we had to get rid of all of it and start over. The cabnits are the same. And i live in a apt and i am sure thats it.

Amanda, are you still eating/drinking dairy? It is best to eliminate dairy for at least the first few months on a gluten-free diet, to allow your intestines to heal. Dairy can stop the healing from happening. As can soy.

The tips of your villi are supposed to produce the enzyme lactase, which is necessary to digest dairy. If those tips are gone or damaged, you can't digest dairy.

Also, have you made sure to replace your toaster and plastic colander? Did you buy new wooden cooking spoons? Are you still using an old wooden cutting board? Those could all keep you sick.

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I am sorry if i would have found out when i was in middle school iwouldn't have got into drugs. I know thats why i wasn't right in my head growing up.

I'm sorry you feel like that. i go to a middle school when it takes two bucks to by a pizza and no one stops you. I've been struggling with that for a while. i've been cheating and i know its making me sick but something inside me is saying, "hey this one time its not going to hurt me" of "i was mis diagnosed" it sucks cause i know i'm hurting myself but i can't stop.
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Well i didn't eat dairy for the first few months and i can tollerate a lil bit of dairy. I eat a lot of soy based foods i didn't know that.

I know this is gross but i Am still bloated and that icky stuff still comes out in my bowels. I am extremely skinny. To the point i dont even recoqnize myself in the mirror anymore.

Yeah we got new stuff for our wedding and we had to get rid of all of it and start over. The cabnits are the same. And i live in a apt and i am sure thats it.

Amanda,

Just wanted to say welcome to the board and congratulations for your drug addiction recovery. My daughter who is almost 20 is also recovering so I know how hard that is. Your body has been through alot with the drugs plus dealing with celiac. It may take your body a little more time to heal. Keep a daily food journal so you can keep track of everything that goes into your mouth, I also add a little note about how I am feeling as well. This helped me figure out alot of things with hidden gluten when I went back over it when suspecting a certain food. Ursula is right about alot of people reacting to soy so since you say you eat alot of it that could be your culprit.

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Are you taking any vitamin supplements, have your vitamin levels been tested?

I keep recommending two things here, what has helped me a lot with feeling less depressed is taking a vitamin B complex, and fish oil capsules that have omega 3 fatty acids. Especially the omega 3's are important for your brain function. It takes a couple weeks before you start to notice their effect, just good to know.

Try to eat as much fresh food as you can, you know vegetables, fruit, meat, fish, not too much processed gluten free cookies and breads etc.

Try to get some exercise every day, a twenty minute walk is already enough, that gives your skin some sunshine, and your body some exercise. Even if you feel really blah, it's better to move than not.

Come and rant here any time you feel like it, we all understand! ;)

Hope this helps a little...

Pauliina

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I was on a drug call subboxenne for opiate addiction and then they switched me to subutex.

Have you called the manufacturer of either of these to verify they are gluten free? From reading other threads I have come to realize that even though it can be difficult to get the information because the person answering the phone may not know the answer and may not even know who to ask, it is definitely worth pursuing until you get a definite answer. Generics are more likely to have gluten containing fillers, but you need to ask about everything. Prescriptions can be written to specify brand name only if necessary, and a gluten free one can be specially formulated just for you.

Hope you feel better soon. :)

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Just wanted to add it sounds like you may have been an undiagnosed coeliac for many years.

It probably took many years for you to get this ill. Stick with it!! ...for some it just takes a little longer <_<

My hubby was terribly skinny by the time he was dx - he didn't hardly put any weight on for the first year - barely had the energy to eat, was still really weak and felt frustrated like you!............four years later he is 50 pounds heavier!!!!

Good Luck :)

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    • Thank you everyone! Good to know I am not alone with this. I am asking for a referral to a new cardio. Hopefully it will all go away the longer I am gluten-free. It started up in February/March after a gluten challenge and mostly vanished until July when I had a lot of shortness of breath. It absolutely was CRAZY just a few days after the glutening. I was gasping for breath and the beats were all over the place just walking through a parking garage and I was only mildy anemic at the time.   But it seems to "quiver" and do funny things for a bit still. I sort of theorized maybe it was inflammation in the heart because after this last glutening, my head felt like it was in a vice and my eyes would sting or get stabbing pain hurt (that is finally going away thankfully...knock on wood).  The head/eye pressure I learned also happens to my sibling who has celiac and his naturopath told him that sometimes the brain gets inflamed. Hopefully I can meet the new cardio soon and feel confident that he is taking me seriously. It is sort of difficult to feel confident in the opinion of a doctor that your ticker is ok when they are not really listening and end up making you cry. LOL. A friend of mine in the mental health field recently listened to my story of doc after doc and test after test and said that it was akin to the folk story of blind men describing an elephant. A group of blind men all feel one part of an elephant (tusk, tail, ear, tail) and then compare notes only to find they all disagree.  In some  versions they argue intensely. In other versions they have to collaborate and listen to each other in order to "describe" an elephant.    
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