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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Can Taking "lactaid" Etc Harm You If You Are Not Lactose Intolerant?
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Hey Again Folks

Firstly, gee let me say I hope I posted this question to the correct category of forum????

I am wondering, if I do "reintroduce dairy using Lactaid etc meds" and it turns out I am actually NOT lactose intolerant, can/will the meds either harm me, or LORD FORBID "worsen/effect my symptoms"?

I do know that once in the distant past I'd tried taking a product called BEANO (enzmes for digestion) and I had an extreme cramping etc attack lasted 2 days from it... now because of course I already do have all these ongoing symptom troubles, I am a tad leary that if I take the Lactaid and it somehow is disagreeable with me that I will NOT be able to distinguish at all in fact that it's the Lactaid rather than Celiac itself? ANY info, suggestions MUCHLY appreciated... I really would like to have a bit of "butter" on my currently PLAIN everything, but am terrified to in case I am truly lactose intolerant also, I do so much want to get better and fear doing anything to PROLONG the healing process I've begun! :(

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Hey Again Folks

Firstly, gee let me say I hope I posted this question to the correct category of forum????

I am wondering, if I do "reintroduce dairy using Lactaid etc meds" and it turns out I am actually NOT lactose intolerant, can/will the meds either harm me, or LORD FORBID "worsen/effect my symptoms"?

I do know that once in the distant past I'd tried taking a product called BEANO (enzmes for digestion) and I had an extreme cramping etc attack lasted 2 days from it... now because of course I already do have all these ongoing symptom troubles, I am a tad leary that if I take the Lactaid and it somehow is disagreeable with me that I will NOT be able to distinguish at all in fact that it's the Lactaid rather than Celiac itself? ANY info, suggestions MUCHLY appreciated... I really would like to have a bit of "butter" on my currently PLAIN everything, but am terrified to in case I am truly lactose intolerant also, I do so much want to get better and fear doing anything to PROLONG the healing process I've begun! :(

Everyone over the age of 5 is lactose intolerant. We were never designed to drink milk once we are weaned. We find eating monkey brains repulsive, many far eastern cultures consider drinking a cows milk just as digusting ... Personally, I love cheese but hey ... I eat it because I like it not because i think its good for me.

Quite if lactade can hurt is another matter? But probably not so much as the milk in the first place.

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Hey Again Folks

Firstly, gee let me say I hope I posted this question to the correct category of forum????

I am wondering, if I do "reintroduce dairy using Lactaid etc meds" and it turns out I am actually NOT lactose intolerant, can/will the meds either harm me, or LORD FORBID "worsen/effect my symptoms"?

I do know that once in the distant past I'd tried taking a product called BEANO (enzmes for digestion) and I had an extreme cramping etc attack lasted 2 days from it... now because of course I already do have all these ongoing symptom troubles, I am a tad leary that if I take the Lactaid and it somehow is disagreeable with me that I will NOT be able to distinguish at all in fact that it's the Lactaid rather than Celiac itself? ANY info, suggestions MUCHLY appreciated... I really would like to have a bit of "butter" on my currently PLAIN everything, but am terrified to in case I am truly lactose intolerant also, I do so much want to get better and fear doing anything to PROLONG the healing process I've begun! :(

I can understand your concern and frustration, however, why not use butter? It has no lactose in it. As far as the milk they call Lactaid, it will either work for you or not. I can't tolerate it but my mother and brother can. I don't think it will overall worsen your symptoms to try it. If it doesn't agree with you, it might set you back a day or two but that's all.

By the way, plant enzyme combos usually are very helpful for someone who has celiac (avoid ox bile however). Lactase is usually one of the ingredients; it helps digest lactose. In my experience no one I know of has a problem with it. Just make sure there is no gluten in it. You may or may not tolerate or need HCL. Depends on how much stomach acid you have. I produce a lot of HCL despite not having enough enzymes in my intestinal tract--so I avoid enzyme mixes that have HCL.

Another really safe enzyme combo is bromelain/papain (made from pineapples and papaya). It helps heal the villi too since it is fibronylitic (anti scarring). It is thus good to both take with food -- and away from it for the anti scarring effect.

Another good enzyme mix is Pancreatin which specifically targets the intestines.

Probably the BEANO didn't work due to the enzymes being fermented. Plus I hear there is a very small amount of gluten in it. It may also be you don't tolerate beans very well. Certainly whenever your villi are blunted it makes eating beans very difficult.

I want to add that taking marshmallow root caps and slippery elm caps regularly (one 3 times a day of each at separate times) will go a long way to helping soothe and heal the villi in your gut.

Hope you feel better trying this rather than more agony!

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Hello yolo! THANK YOU so much for all these wonderful suggestions... MAN do I have a lot to learn! I really appreaciate your sharing your ides with me... I just wonder though, can I ask ya please...

Regards the "plant enzyme combos"... do ya happen to know any "specifc items/brands to look for" (I am in Chilliwack BC Canada so have limited availability to "shop" for many things here. Also... sorry but "what is HCL"? And is it listed as that on the lableing then?? Lastly, regards the "bromelain/papain" unfortunately I'm utterly ignorant to what that is as well... again is there a specific item to look for?

THANKS again.... I am becoming so very depressed with all this... (I know is new & takes time & I am hardly obviously alone eh!) but having suffered with this agony for over 7 weeks now, well gee I guess I am just desperately seeking whatever relief I might be able to instigate in myself and to bring some "momentum" to my healing.

I can understand your concern and frustration, however, why not use butter? It has no lactose in it. As far as the milk they call Lactaid, it will either work for you or not. I can't tolerate it but my mother and brother can. I don't think it will overall worsen your symptoms to try it. If it doesn't agree with you, it might set you back a day or two but that's all.

By the way, plant enzyme combos usually are very helpful for someone who has celiac (avoid ox bile however). Lactase is usually one of the ingredients; it helps digest lactose. In my experience no one I know of has a problem with it. Just make sure there is no gluten in it. You may or may not tolerate or need HCL. Depends on how much stomach acid you have. I produce a lot of HCL despite not having enough enzymes in my intestinal tract--so I avoid enzyme mixes that have HCL.

Another really safe enzyme combo is bromelain/papain (made from pineapples and papaya). It helps heal the villi too since it is fibronylitic (anti scarring). It is thus good to both take with food -- and away from it for the anti scarring effect.

Another good enzyme mix is Pancreatin which specifically targets the intestines.

Probably the BEANO didn't work due to the enzymes being fermented. Plus I hear there is a very small amount of gluten in it. It may also be you don't tolerate beans very well. Certainly whenever your villi are blunted it makes eating beans very difficult.

I want to add that taking marshmallow root caps and slippery elm caps regularly (one 3 times a day of each at separate times) will go a long way to helping soothe and heal the villi in your gut.

Hope you feel better trying this rather than more agony!

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I bought beano the other day - brought it home and noticed wheat is on the ingredients list! I dont think you were talking about drinking lactaid milk - that cant hurt, but some folks say they can taste teh difference. My family uses it. However, taking the lactaid pills- i would just be sure they dont have gluten in them. They arent dangerous at all, unless you react to something else in them. All in all, tho, its safer to just avoid dairy. Another option is to take acidophoulus, which is the active ingredient in yoghurt, that turns it in to yoghurt.

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Actually, not all people over the age of five are lactose intolerant, it just can begin to occur after that age. If you take Lactaid and you are not lactose intolerant, over a period of time you can make yourself become lactose intolerant. Lactase is the enzyme that digests lactose, and your body only makes the enzyme when lactose is present. If you take Lactaid, it breaks down the lactose and your cells never become stimulated to produce the enzyme lactase. After a while they think the enzyme lactase is not needed, so they quit making it, making you lactose intolerant. If possible, I would try to get hydrogen breath testing done for lactose intolerance. I hope this helps. :)

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Actually, not all people over the age of five are lactose intolerant, it just can begin to occur after that age. If you take Lactaid and you are not lactose intolerant, over a period of time you can make yourself become lactose intolerant. Lactase is the enzyme that digests lactose, and your body only makes the enzyme when lactose is present. If you take Lactaid, it breaks down the lactose and your cells never become stimulated to produce the enzyme lactase. After a while they think the enzyme lactase is not needed, so they quit making it, making you lactose intolerant. If possible, I would try to get hydrogen breath testing done for lactose intolerance. I hope this helps. :)

OH Thank You JennyC... greatly appreciate the help from all... I am unfamiliar with the testing you mentioned "hydrogen breath test"... "can I just ask my Dr to get that"? AND it happens I just had a "breath test" of some sort on Tuesday, (day before they did my Ttg blood test, but said I needed to "fast 4 hours" prior to the breath one so had to go back next day), but they said it was for H.Pylori (?sp) at the time, is this the "same test" you refer to, or no? Sorry for my MEGA ignorance with this :huh:

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HCL is hydrochloric acid-the acid we have in our stomachs. Some people find it aids in digestion. And helps prevent food poisoning. :)

bromelain is an enzyme derived from pineapple, its good for digestion, and sinus infections and other inflamatory stuff

Papain is an enzyme derived from Papaya, it breaks down the proteins in meat (that is why its used as a meat tenderizer)

Pancreatin is made from pancreas, it digests pretty much everything.

Since you are Canadian and have medical coverage, you may wish to ask your doc for a prescription pancreatic enzyme product to help with your D since that may be cheaper than buying over the counter. Here is a recent study on pancreatic enzymes and D in celiac for him or her...

http://www.blackwell-synergy.com/doi/abs/1...journalCode=apt

Hope this helps!

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Hello yolo! THANK YOU so much for all these wonderful suggestions... MAN do I have a lot to learn! I really appreaciate your sharing your ides with me... I just wonder though, can I ask ya please...

Regards the "plant enzyme combos"... do ya happen to know any "specifc items/brands to look for" (I am in Chilliwack BC Canada so have limited availability to "shop" for many things here. Also... sorry but "what is HCL"? And is it listed as that on the lableing then?? Lastly, regards the "bromelain/papain" unfortunately I'm utterly ignorant to what that is as well... again is there a specific item to look for?

THANKS again.... I am becoming so very depressed with all this... (I know is new & takes time & I am hardly obviously alone eh!) but having suffered with this agony for over 7 weeks now, well gee I guess I am just desperately seeking whatever relief I might be able to instigate in myself and to bring some "momentum" to my healing.

I know how confusing it can all be. It really is a lot to take in at once. It has taken me years. Fortunately now there is so much more info you can now find. I am working on a book exploring using herbs and alternative healing methods to make this and related conditions easier to deal with --which is why I have the following info already ready so to speak. You should be able to order various brands of things on the Internet. There are books too out there both new and used on celiac and diet that might be helpful. Plus you can order various grains online too I think if they aren't available locally. You might swing some kind of deal with your local grocer in case you don't want to have so much available all at once.

I made a file just the other day for questions like this. And yes the other responder here was/is right. Try to find out if you are lactose intolerant or not. I am but now can handle nonfat organic yogurt--I can't even handle taking Lactaid milk. It makes me feel sick actually. My ex can only manage that other soured milk -- Kefir. I "ought" to be able to tolerate it but can't. Everyone is slightly different so the rule of thumb is to figure out what works for you through trial and error.

Here is my supplement file below--hope it helps! I have listed the brand names of the ones I use, however you could investigate others by shopping on line.

Good luck!

Bea (my actual name--Yolo is short for my middle name -- Yolande):

_________________

Bea

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I love natto. Its like the soy version of gorgonzola B)

Footnoting the suppliment list: As malabsorbing girl, I have to take 15000 iu of D twice a week, or have shots. That honkin huge dose barely has my serum D levels above the minimum (32) after a year. I want a new small intestine. :(

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I love natto. Its like the soy version of gorgonzola B)

Footnoting the suppliment list: As malabsorbing girl, I have to take 15000 iu of D twice a week, or have shots. That honkin huge dose barely has my serum D levels above the minimum (32) after a year. I want a new small intestine. :(

Have you tried cod liver oil and sunbaking? The cod liver oil has natural Vit D which is much easier to digest, so you retain it better.

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I have Sjogren's so going out into the sun puts me into a flare (not to mention the awful rash). Cod liver oil is supposed to be very good, I know Dr. Mercola recommends it, but it makes me very nauseated :( Maybe that will clear up eventually. I know the prescription stuff is supposed to be less bioavailable.

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I have Sjogren's so going out into the sun puts me into a flare (not to mention the awful rash). Cod liver oil is supposed to be very good, I know Dr. Mercola recommends it, but it makes me very nauseated :( Maybe that will clear up eventually. I know the prescription stuff is supposed to be less bioavailable.

HCL helps. And by the way that means hydrochloric acid.

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You may want to check into Ghee it is lactose and casien free as can be used as a butter replacement. I would wait until you are more healed to add dairy back in regardless of the lactose issue unless you know for sure that you do not react to casien. The same villi that produce the enzyme that is needed to digest lactose are damaged with celiac. Many find that after they heal they are able to tolerate dairy again, but it is best to wait until you are symptom free from the celiac before you challenge. When you add dairy back in you should start with the hard cheeses and yogurt as they are 'predigested' and will be the easiest to tolerate. I would avoid the lactaid stuff until then.

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HCL is hydrochloric acid-the acid we have in our stomachs. Some people find it aids in digestion. And helps prevent food poisoning. :)

bromelain is an enzyme derived from pineapple, its good for digestion, and sinus infections and other inflamatory stuff

Papain is an enzyme derived from Papaya, it breaks down the proteins in meat (that is why its used as a meat tenderizer)

Pancreatin is made from pancreas, it digests pretty much everything.

Since you are Canadian and have medical coverage, you may wish to ask your doc for a prescription pancreatic enzyme product to help with your D since that may be cheaper than buying over the counter. Here is a recent study on pancreatic enzymes and D in celiac for him or her...

http://www.blackwell-synergy.com/doi/abs/1...journalCode=apt

Hope this helps!

Thanks heaps Itchygirl... (and reading your later posts in the thread I think maybe I understand yer "name" just a tad better too by the way, don't have Sjogren's myself but think I have DH feet ;)

Simply "could not" get away from the toilet long enough to post any replies last evening, but this morn

FIRST, for the record... am having a pretty good morning thus far here, have NOT tried to eat yet but did have what I'll call a "semi-formed" B movement upon arising, AND amazingly my GAS is truly at a "minimum gurrggle level", AND very happily I actually managed to attend my church for worship this morning without having to either BELCH OUT or RUN OUT, (While I am thankful for Doctors & the medications, Jesus & prayer IS the BEST medicine, well for me :) Assuming optimistically that I shall continue to be blessed with "healing" well gee, I am looking forward to enjoying this Sunday here!

I am going to post a thanks reply to Bea as well for all her "supplement" info shared, but I wanted to thank you much for the "article" for my Dr. (as I had revealed in my intro post he is more than a bit Celiac "illiterate" so he and I can use all the help we can to achieve "better understanding" of it eh! I've printed it off now and shall be seeing him tomorrow and will share it if indeed my D does persist until that time, otherwise I'll "file it" within my new "Celiac Folder" so I have it (Please Lord Forbid) if I'm once again brought to suffer ongoing chronic D for weeks on end.

About the HCL... okay, so is that perhaps the "acid" he was "targeting with the Nexium"? ( and which did prove to make me WORSE not better) if so I am wondering then, was my bad reaction to Nexium maybe an indictaion that I do NOT "produce enough HCL and so inhibiting it caused negative effect"?

About the rest of the items you defined... well I also happily did "make it to the store at 9 last night", I got myself "a few" of the noted items, BUT as I need to reply to Bea on the same matter I'm going to wait to discuss the particulars in that reply... hope ya shall if interested also read that post for more. I certainly do appreciate your kind assistance, and naturally, I pray you also shall be "well & happy" :D

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I know how confusing it can all be. It really is a lot to take in at once. It has taken me years. Fortunately now there is so much more info you can now find. I am working on a book exploring using herbs and alternative healing methods to make this and related conditions easier to deal with --which is why I have the following info already ready so to speak. You should be able to order various brands of things on the Internet. There are books too out there both new and used on celiac and diet that might be helpful. Plus you can order various grains online too I think if they aren't available locally. You might swing some kind of deal with your local grocer in case you don't want to have so much available all at once.

I made a file just the other day for questions like this. And yes the other responder here was/is right. Try to find out if you are lactose intolerant or not. I am but now can handle nonfat organic yogurt--I can't even handle taking Lactaid milk. It makes me feel sick actually. My ex can only manage that other soured milk -- Kefir. I "ought" to be able to tolerate it but can't. Everyone is slightly different so the rule of thumb is to figure out what works for you through trial and error.

Good Day Bea (Yolande, what a lovely name)

Well gee, how can I even begin to thank ya enough for sharing such a vast amount of information with me in regards to the "supplements/etc" which can be utilized to promote healing of my body now! I'm quite happy to be able to report that I did manage to go to store and obtain a few items which ya had listed, (though NOT ALL in the specific brands you'd noted here, so I have to wait until Monday to give a call to manufacturer to enquire regards Gluten content on couple were NOT clearly deduced on the label unfortunately, ie. One specifically lists several ingredients that are NOT contained BUT one of them listed is NOT "wheat or Gluten", so I'm suspicious that in fact it does contain it as a result, I will confirm before I "open the bottles" so if needed maybe I can "exchange for another that is" after ;)

Anyhoo, I got... "Nature's Way, Slippery Elm" (NO Marshmallow just now) and got a "Natural Factors, Pancreatin Plus" (the Plus is Papain, Amylase, Lipase, Flutin, and Amia, with Pancreatin 8X) BUT these were the 2 which I could still not confirm were Gluten free with the clerk/label alone so waiting to take aditionally I got "Serious Edge, L-Glutamine (Free Form?)" and "NOW, Enteric Coated Peppermint Oil" both of which I did take starting yesterday, and now today just the L-Glutamine (my gas abated so). I also did purchase yesterday, BOTH some Reg. Immodium pills and Reg. Lactaid pills, however I chose NOT to take them as of yet, decided to wait out one more night for my D to abate (and it has actually at least as far as I know at this moment huh! <_< I also determined that NO dairy just now is best, rather than prolong my healing by perhaps giving my poor sickly self "anything additional" to deal with aside from the Celiac (which I DO believe eh comes from GLUTEN being contrary to my system). Eventually though I do want to reintroduce dairy, (I'm going to ask my Dr about Lactose testing in the interim to see if I can get that for a confirmation, otherwise I'll reintro it without Lactaid to see how I do and then perhaps with Lactaid if it seems indicated by my "untreated reaction" to reintroduction.

Now all that said... I would like to pose a clarification question to ya... "are you saying that you DO in fact take ALL of the supplements DAILY that you have listed within sections I & II"??? Whoa man if ya do fer me here eh, while I am fortunate to have Canadain Health coverage, it is a misunderstanding to think that it either can nor will "cover everything one REALLY needs prescribed for one's health"! (AND too I'd add that includes need of a proper or special diet even if FOOD makes you SICK!) I'm unfortunately "disabled by other spinal disease" (for over 30 years now), and so I live receiving an allowance from the BC Government (rent/food/etc), and as such I also have a VERY restrictive type of "coverage" which sadly does exclude many many medications and treatments as being too costly. (Obviously, given my limited resources "online shopping which requires credit cards is NOT a viable option for me, I have none of those I'm afraid) BUT I'll never the less be ASKING for more assistance benefits to meet my needs in near future with I hope co-operation of my family Doctor. Meantime, I'm figuring that ANY "supplemental benefit" that I can and do provide my body, would be a HELP huh!

So anyhoooooo Bea (and other readers ;) surely I have rambled on long enough already, and I still do have one more quick reply I must post to another helpful soul who responded to my other thread, so am gonna wrap this up, again I'm grateful for you all, and pray you're blessings are a hundredfold in return for assisting me to cope with the "new, strange & rather unplesant circumstance I'm now in"!

BTW Bea, I prior posted a reply to Itchygirl in this thread yer most welcome to eavesdrop on too eh ;)

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You may want to check into Ghee it is lactose and casien free as can be used as a butter replacement. I would wait until you are more healed to add dairy back in regardless of the lactose issue unless you know for sure that you do not react to casien. The same villi that produce the enzyme that is needed to digest lactose are damaged with celiac. Many find that after they heal they are able to tolerate dairy again, but it is best to wait until you are symptom free from the celiac before you challenge. When you add dairy back in you should start with the hard cheeses and yogurt as they are 'predigested' and will be the easiest to tolerate. I would avoid the lactaid stuff until then.

Thanks ravenwoodglass... I am NOT familiar... "what is GHEE"? and "where do ya look for it"?... as I've already noted within a couple other replies to the thread today, I indeed AM going to avoid the dairy for now, in fact I obtained myself a SUPER WAREHOUSE PACK of "Strip Loin Steak" and am eating it ALONE and 'fried DRY (no oils at all) just with some "Organic Garlic Powder" (I think is gluten free as ONLY ingredient on label is Organic Garlic eh :rolleyes: AND for a treat I've ben "Nuking a sliced apple with a wee bit of sugar & water", extraordinarily happy to say, I had NO immediate sort of reaction eating these yesterday, and only a minimal degree of "later discomforts" (apart from the D which I had extreme ALL day/night yesterday that is). One way or another, I am determined to get better AND remain FREE of GLUTEN now, for me individually, it is NOT really the least bit daunting to have to "give up certain foods" (though YES of course I to DO love so many esp. dairy things too!) if only I can prevent myself from ill effects of Celiac devastating my body. It WILL be worth it for me! I may have MUCH to learn, but never mind I can be an eager and willing learner to reap better health!

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Ghee is butter with all the milk solids out. Otherwise known as clarified butter. Its shelf stable and can be used for everything from frying to makeup remover. You can make it yourself or buy it in jars. Its like the universal solvent in Indian cooking.

http://en.wikipedia.org/wiki/Clarified_butter

The proton pump inhibitors (such as nexium) just made me worse, as well as giving me the worst oral fungus I've ever had. I was slugging Miracle Mouthwash for weeks after being on an acid reducer. Some people find them to be a real life saver however, your mileage may vary.

If the Nexium did seem to increase your symptoms talk to your doc. If you look at the side effect sheet (hopefully the pharmacy included one) that came with the Nexium you will see that D can be a side effect.

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HCL is hydrochloric acid-the acid we have in our stomachs. Some people find it aids in digestion. And helps prevent food poisoning. :)

bromelain is an enzyme derived from pineapple, its good for digestion, and sinus infections and other inflamatory stuff

Papain is an enzyme derived from Papaya, it breaks down the proteins in meat (that is why its used as a meat tenderizer)

Pancreatin is made from pancreas, it digests pretty much everything.

Since you are Canadian and have medical coverage, you may wish to ask your doc for a prescription pancreatic enzyme product to help with your D since that may be cheaper than buying over the counter. Here is a recent study on pancreatic enzymes and D in celiac for him or her...

http://www.blackwell-synergy.com/doi/abs/1...journalCode=apt

Hope this helps!

Thanks for the extra info. This looks useful!

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Ghee is butter with all the milk solids out. Otherwise known as clarified butter. Its shelf stable and can be used for everything from frying to makeup remover. You can make it yourself or buy it in jars. Its like the universal solvent in Indian cooking.

http://en.wikipedia.org/wiki/Clarified_butter

The proton pump inhibitors (such as nexium) just made me worse, as well as giving me the worst oral fungus I've ever had. I was slugging Miracle Mouthwash for weeks after being on an acid reducer. Some people find them to be a real life saver however, your mileage may vary.

If the Nexium did seem to increase your symptoms talk to your doc. If you look at the side effect sheet (hopefully the pharmacy included one) that came with the Nexium you will see that D can be a side effect.

Evening itchygirl... well gee... DUH on my part eh :o clarified butter, now THAT is a safe bet I'll have NO trouble using it... I LOVE Butter! ANY kind of real butter! So imagine "clarifed" will suit me good! Am grateful fer yer enlightening me on this thing I've "heard of" BUT obviously (since I'm single and I don't cook too much anymore had completely forgotten about! Sheeeesh, now I'm re-learning stuff I'd should'a already learned a'fore huh... oh well, I'm still considering it progress in this situation! :P

As regards the Nexium... yes absolutely, got & read the "insert" from Pharmacy with it, however by the time that my D (and all my other symptoms as well) had gotten so extremely pronounced, I had already "had the Nexium withdrawn and then replaced with the Dicetel" (which also notes a plethora of possible GI side effects for it), which I only took for a brief 4 days my reaction was so severe to it the Pharmacist advised me to STOP it immediately, it was at that point that I re-visited my Dr 2 days later to inform him of the whole thing, explain my suspecting myself of having Celiac, and demanded the "blood tests" for it. I left there with NO other prescribed meds, nor treatment ideas, just a form to go for bloodwork... and thereafter is when my D symptom just continued on and on... until today.

Again thanks fer sharing... pray ya stay well at yer house.

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Hey Again Folks

Firstly, gee let me say I hope I posted this question to the correct category of forum????

I am wondering, if I do "reintroduce dairy using Lactaid etc meds" and it turns out I am actually NOT lactose intolerant, can/will the meds either harm me, or LORD FORBID "worsen/effect my symptoms"?

I do know that once in the distant past I'd tried taking a product called BEANO (enzmes for digestion) and I had an extreme cramping etc attack lasted 2 days from it... now because of course I already do have all these ongoing symptom troubles, I am a tad leary that if I take the Lactaid and it somehow is disagreeable with me that I will NOT be able to distinguish at all in fact that it's the Lactaid rather than Celiac itself? ANY info, suggestions MUCHLY appreciated... I really would like to have a bit of "butter" on my currently PLAIN everything, but am terrified to in case I am truly lactose intolerant also, I do so much want to get better and fear doing anything to PROLONG the healing process I've begun! :(

:( Last I knew when I went to buy Lactaid it contained gluten in the ingrediants. Also the beano i bought didn't list gluten on the box where the ingredients are listed but on the inside of the bottle after I had taken 2 pills I noticed the wheat listing. I too had cramps. I guess we really have t be careful and read everything! Sistergoldenhair
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:( Last I knew when I went to buy Lactaid it contained gluten in the ingrediants. Also the beano i bought didn't list gluten on the box where the ingredients are listed but on the inside of the bottle after I had taken 2 pills I noticed the wheat listing. I too had cramps. I guess we really have t be careful and read everything! Sistergoldenhair

Hi sister golden hair... YUP gotta AGREE on the being careful part with ya!!! Heck even now I am being careful, am still discovering new other "hidden sources" of gluten for my getting CCd, and even when as you I do check the label and/or call to the manufacturers there is little to no gaurantee I find that I am actually safe with something... case in point, I obtained a free "Gluten free Medication List" from one of the local type Celiac Association websites which I took with me to store this time to buy some "gas relief products", upon the list the products of the MAALOX brand were listed as gluten free so I went ahead and got 2 "EX strength with anti-gas (smithecone) chewables (wild berry) and Extra strength with anti-gas "liquid suspension" (wild berry). Unfortunately, I'd trusted too much in that list and had actually used a WHOLE bottle of the liquid before I decide to confirm again by calling Mallox manufacturer with the bar codes... wellllllll sheeeesh eh, disappointingly I was told 'BOTH" contained gluten! As ya can imagine I was shocked, and rather led to disbelieve what I was being told on it... so (thinking meself so clever eh ;) then I decided well ya know I'm gonna call again to see what answer I get from another "customer service rep"... well, sheeesh again this time I was told that in the case of Liquid suspension with anti-gas it definetly DOES HAVE GLUTEN in it... and that in the case of the "chewable tabs but same anti-gas/flavour" that it does NOT have any gluten. Well ya might imagine that this all gave me absolutely ZERO confidence in using ANY of the Mallox stuff at all, so now I went and bought DIOVOL brand and was able to confirm with my pharmacist the "maker is one of the gluten free companies listed in the CPS period". I also found the "Rolaids ONLY in reg mint" in the tablets ARE Gluten free, so at least now I am finally (sheeesh I think) "treating symptoms gluten-free"!

As to the LACTAID (tablets).... hmmmmm wonder if ya used the "Lactaid Ultra" tabs they contain the Gluten unfotunately, to best of my (immature) Celiac knowledge, "regular Immodium tabs" (ONLY) are safe and Gluten free... (got a bottle of them BUT still eating just my taters so no need to try yet ;)

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Good Day Bea (Yolande, what a lovely name)

Well gee, how can I even begin to thank ya enough for sharing such a vast amount of information with me in regards to the "supplements/etc" which can be utilized to promote healing of my body now! I'm quite happy to be able to report that I did manage to go to store and obtain a few items which ya had listed, (though NOT ALL in the specific brands you'd noted here, so I have to wait until Monday to give a call to manufacturer to enquire regards Gluten content on couple were NOT clearly deduced on the label unfortunately, ie. One specifically lists several ingredients that are NOT contained BUT one of them listed is NOT "wheat or Gluten", so I'm suspicious that in fact it does contain it as a result, I will confirm before I "open the bottles" so if needed maybe I can "exchange for another that is" after ;)

Anyhoo, I got... "Nature's Way, Slippery Elm" (NO Marshmallow just now) and got a "Natural Factors, Pancreatin Plus" (the Plus is Papain, Amylase, Lipase, Flutin, and Amia, with Pancreatin 8X) BUT these were the 2 which I could still not confirm were Gluten free with the clerk/label alone so waiting to take aditionally I got "Serious Edge, L-Glutamine (Free Form?)" and "NOW, Enteric Coated Peppermint Oil" both of which I did take starting yesterday, and now today just the L-Glutamine (my gas abated so). I also did purchase yesterday, BOTH some Reg. Immodium pills and Reg. Lactaid pills, however I chose NOT to take them as of yet, decided to wait out one more night for my D to abate (and it has actually at least as far as I know at this moment huh! <_< I also determined that NO dairy just now is best, rather than prolong my healing by perhaps giving my poor sickly self "anything additional" to deal with aside from the Celiac (which I DO believe eh comes from GLUTEN being contrary to my system). Eventually though I do want to reintroduce dairy, (I'm going to ask my Dr about Lactose testing in the interim to see if I can get that for a confirmation, otherwise I'll reintro it without Lactaid to see how I do and then perhaps with Lactaid if it seems indicated by my "untreated reaction" to reintroduction.

Now all that said... I would like to pose a clarification question to ya... "are you saying that you DO in fact take ALL of the supplements DAILY that you have listed within sections I & II"??? Whoa man if ya do fer me here eh, while I am fortunate to have Canadain Health coverage, it is a misunderstanding to think that it either can nor will "cover everything one REALLY needs prescribed for one's health"! (AND too I'd add that includes need of a proper or special diet even if FOOD makes you SICK!) I'm unfortunately "disabled by other spinal disease" (for over 30 years now), and so I live receiving an allowance from the BC Government (rent/food/etc), and as such I also have a VERY restrictive type of "coverage" which sadly does exclude many many medications and treatments as being too costly. (Obviously, given my limited resources "online shopping which requires credit cards is NOT a viable option for me, I have none of those I'm afraid) BUT I'll never the less be ASKING for more assistance benefits to meet my needs in near future with I hope co-operation of my family Doctor. Meantime, I'm figuring that ANY "supplemental benefit" that I can and do provide my body, would be a HELP huh!

So anyhoooooo Bea (and other readers ;) surely I have rambled on long enough already, and I still do have one more quick reply I must post to another helpful soul who responded to my other thread, so am gonna wrap this up, again I'm grateful for you all, and pray you're blessings are a hundredfold in return for assisting me to cope with the "new, strange & rather unplesant circumstance I'm now in"!

BTW Bea, I prior posted a reply to Itchygirl in this thread yer most welcome to eavesdrop on too eh ;)

Hi "Too Much"!

Am glad my post was helpful. As I said I prepared it previously for someone else but thought why not also send it to you since you are a new comer. I also figure it could be useful to others

here as well.

I know what you mean about not being rich; I also try to fit these supplements etc. in as I can. These things make me feel so much better however that I figure its worth it. I have gone off of them enough times to know the difference. They make it so I can function at a higher level usually and don't have to run to the doctor. However sometimes at the end of the month it is a little thin.

So, as I am able, I do use the supplements daily -- though at times I run out of enough money to buy the nattokinase or the E-zorb. I then instead rely more on the bromelain/papain or in a pinch if the raw fruit is OK I eat pineapple and papaya as fibronylitic agents even if they aren't as good as the nattokinase. Fortunately now I can eat organic non-fat yogurt on a daily basis which helps with calcium absorption. Eating lots of greens also helps..

Ditto with kelp, you can just add it to your diet. Kelp from the Asian markets are the cheapest. They are also a good source for buying natto cakes (its also a great place to buy burdock root which you can add to your soups--great as a systemic detox). If you develop a taste for natto cakes they are a lot cheaper than the pills. You can even make natto I understand for pennies a day. Info about it is online.

If you buy some of the supplements like magnesium citrate in powder it turns out to be a lot cheaper and easier to get it so it has no gluten in it. You could do the same with calcium citrate--which hopefully you can make better use of than I.

The herbs I use are mostly in bulk so they don't cost so much. I use the detox herbs when I need them or just every once in a while just because due to underlying problems with my kidneys and sometimes CC or headaches, sore muscles etc..

I usually alternate the soothing herbs marshmallow root and slippery elm on a daily basis again as needed. If you can find it in bulk (and not contaminated with gluten) its a lot cheaper.

You might want to figure out what your priorities are and go with those for now in any case. I probably provided more info than you wanted, but you never know if it might be useful in the long run.

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